AUS for me... finally

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Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 4/27/2008 5:33 PM (GMT -6)   
HW Friends,
 
I guess it's been a couple of months since I've posted.  My dilligent search for info regarding the AUS frustrated me.  My apologies to TC-vegas in my last post.  I understand rules are rules but I let frustration get the best of me.
 
After coming back today and reading KW's recent journey today, including his frustrations, I decided to begin posting again, since I am scheduled for an AUS and penile implant in a few weeks. Please forgive my stupid exit from this forum.  I've looked for others like it and not found any with people such as you who are ready to help. 
 
It is difficult for most who post here regularly and who become continent as expected after prostate surgery after 15 weeks or so, to understand how KW and the rest of us who have lost hope of regaining continence without artificial devices. These devices frighten us because we have now researched all the pros and cons of these machines and know they will require maintence and/or replacement after some time and use--which means more surgery later on.  We would like to be through with surgery, be able to pee and have normal relations with our wives without these surgeries, but, it's evidently not to be for us.
 
Moreover, surgeons, as skilled as they are, have never experienced such a predicament and often scold us for our cautiousness.  Their good training is all clinical and not from practical experience (thank the Lord).  The have skill and offer their services.  But they sometimes forget that it's not their butts on the operating table.  So, what if it does not work out...?  I quickly add my gratefulness for skilled surgeons who do want to help.
 
KW has been the best example of those of us like him.  I began reading his journey from day one.  He gave me hope that I would get better.  He surely is to be commended, as so many of you have done, for his positive attitude.  And believe me, I can understand why he is "down".  Who wouldn't be after all he's gone through.   
 
I understand.  I am there now.  I am preparing for major surgery again to hopefully get resolution to my incontinence and impotence.  But KW expressed my sentiments exactly when he today posted that he feels that if it can go wrong, it probably will.  I feel that way too.  But here I go, a leap of faith into the darkness of experimentation.  Except I am leaping with faith in the Great Physician (the Lord).  I will keep you all posted so that the rest of you can perhaps find light at the end of the tunnel... hoping all the time that light is not a train.
 
Gene214

CT
Regular Member


Date Joined Apr 2008
Total Posts : 25
   Posted 4/27/2008 7:56 PM (GMT -6)   

Good luck.

(I'm just starting my journey.  Hopefully, things will work out.)


Age: 50 (March 2008)

DX 1/08 @ 49 yo

7/05: PSA 2.6 DRE Normal

9/07: PSA 3.4 DRE Normal

1/08: Biopsy 1 of 12 cores with 10% involvement, T1c, Gleason 3+3=6

4/08/08:  Da Vinci Rad. prostectomy @ Banner Thunderbird, 5 hrs.

                Advised both nerve bundles spared

                Post Op Pathology Report: Tumor confined w/in prostate, pT2c, NX, DX 

    Gleason is 3+3=6, bilateral with 15% total involvement near apex

                Margins and Seminal Vesicles negative!!!

4/18/08:  Staples and Catheter removed. Drip, drip, drip, drip...


zebbiedog
New Member


Date Joined Apr 2008
Total Posts : 4
   Posted 4/29/2008 12:51 PM (GMT -6)   
Gene 214
 
What you have just said is so true.  Doctors can tell you how it is clincally but they don't understand what it is like to live day to day with these conditions.  No disrespect to these amazing and skilled people but the only ones who truely know are people like you, living with this problem.
 
No matter how complex the surgery or how risky it may be, if your quality of life is improved or it enables you to mange you condition at home when you've left the hospital then it's worth if.  Unfortunately doctors can never gaurantee this.  That is why sites like this are invaluable to those on such difficult journeys.  Real people with real experiences who can tell you what it is really like.
 
Good look with your AUS and implant.  I hope it works out for you.
 
Zeb

anxiouswife
New Member


Date Joined Apr 2008
Total Posts : 18
   Posted 4/29/2008 6:20 PM (GMT -6)   

Gene 214

I could not have said it better myself. A great post on how those who are still incontinent feel.  As a spouse of an incontinent man, I am feeling his pain and frustration, added to my worry and broken heart.  It is also difficult for family and friends to understand the emotions that run through us. Unless you live it it is not understandable.  Even my spouse says I do not truly understand what he is going through.  I must agree with you about the physcians as well.  While they are experts in their field and always trying to help the best they can, I think they lose touch with the emotional side of this disease.  We have seen three doctors in our hospital, all of whom just seem to be clinicians who deal with the disease and not the whole person.  I sometimes feel they think we are blaming them for our problems, instead of giving the emotional support we need.  Thank you Gene for validating our feelings on this issue.

KW has been an inspiration to so many and especially those of us in the same boat.  Now you too, Gene214, have given me strength and hope to continue on this journey.  Bless you all and please continue to post. Your journey has helped so many of us.   Nancy


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 4/29/2008 8:23 PM (GMT -6)   
I admire the tenacity of you blokes with ongoing problems with incontinence. It is bad enough for all of us to have encountered this curse but your resilience facing this ongoing problem is remarkable and an inspiration to us all. You are most certainly correct about doctors attitudes though and I do admire them for their skill and know they cannot afford to be emotionally involved but at days end we are the ones that go home with our problems. That is why I find this forum such a marvelous support and source of wisdom and knowledge------we know how "it feels" to deal with this.
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 4/29/2008 8:23 PM (GMT -6)   

Hang in there, Nancy.  Your husband is still well within the "normal" range for recovery of continence.  I am still incontinent after 5 months, but not giving up hope.  Made great progress after week 12 or so, then leveled off.  Been at one pad a day....lightly used...for two months now but still hope to dry up completely sooner or later.

There are no guarantees, of course, but do not give up hope that your husband will regain continence.  Sometimes significant improvements happen literally overnight and for no obvious reason other than some healing has taken place. 

Keep walking, keep the faith and hopefully some good improvements will be on the way.

Best of luck to you and your spouse.

DanMan


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 4/29/2008 9:45 PM (GMT -6)   
Gene214,
You're right, KW is invaluable here, he is strong and hopeful in a long battle with incontinence. His gift of sharing that here is exactly what is needed - everyone needs to be represented and feel they're understood. That is the very reason this site is invaluable for all of us.
It's good you're back - for you & for us. Your heartfelt post is appreciated, as you can see, by many. I post for my husband and though I cannot completely understand the difficulty you're going through, I can say I sympathize and sincerely hope things go well for you.

I wish you all the best,
Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
PSA - Undetectable since 6/07/07

Link to journey:
http://www.healingwell.com/community/default.aspx?f=35&m=826731


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 4/29/2008 10:03 PM (GMT -6)   
Gene214, It's nice to have you back here. Yeah,,,this is some rollercoaster were on here. I was in the bottom of a dip....now I'm climbing up the next hill. I watching your trip to the AUS. I hope all will go well. I may be talking to your doctor soon!
Good Luck, KW
    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 15, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
 
     


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 5/2/2008 5:18 PM (GMT -6)   

Bob, Jerryv, KW, Biff, and others very interested in AUS/penile implant:

Last night before I went to bed I read Biff's take on the AUS/Penile implant.  Since I am scheduled for AUS/implant next week, Biff's straight-forward words grabbed my attention. Bob, you grabbed it too!  I immediately began praying for insight as to whether I should cancel or go ahead.  I emailed Biff & gave my cell number, since he provided his email address in his post. Although it took a while to go to sleep, I did and slept good.

Today I went to the hospital to pre-register.  In the next consultation room was a guy who had also had prostate surgery and I overheard him say, "I sure wish they had put my prostate back in after they took the cancer out."  I should have laughed with him, but I was not quite in the laughing mood.  It was all too close to "home."

I chatted with the pre-registering nurse to see if very many get the AUS and pennile implant in this hospital.  She named my doctor and another one as doing lots of them.  Since my doctor's office is less than a block away from the hospital, I high-tailed it over there and asked to see the doctor's head nurse. He was gone to lunch but receptionist said she'd have him call me, which he did before I even got out of the building.  I just leveled with him and told him I was terribly frightened and told him about HW posts.  Said he: "There is a certain amount of risk."  I know.  I know.  But... "You should know that your doctor does about seven AUS's a week and about one penile implant a week.  Out of all he has done, he now has had problems with two.  He is a great surgeon."  Now my hope is not in a man, good doctor or not, but... 

...Somehow, that's all I needed to hear today to give me the green light to go on with my surgery.  Then there was this call from Biff. In spite of Biff's expressions of disappointment last night, he was wonderfully encouraging, sharing how bit by bit things were getting better for him.  He does not come on to HW often, he said, but for some reason felt he should last night.  I really believe the Lord sent him to us...at least to me... So you guys have become a source of good information for those at this site who are struggling with incontinence and impotence.  We need more info from patients who have been there and done that.  Most surgeons have not been the patient.  They know how to do the job but don't know how it feels to be the patient.  But I really do appreciate their skill.

Cowboy Bob, I too know the Lord and am looking to Him.  I know my postings sometime do not reflect that fact and instead give off the sense of panic, but "I know Whom I have believed, and am persuaded that He is able to keep that which I committed to Him against that day." (2 Tim 1:12)

So to you all, thank you all at HW for your patience and prayers, especially next week when I go under.

Gene214


Radical open removal 2-14-07
Removal of stricture 6-07
Bio-feedback (4) 08-07
Scheduled for AUS & implant 05-08
63 years old at time of nerve-sparing surgery


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 5/4/2008 10:27 PM (GMT -6)   
   Gene...( T ).....    I will be thinking of you this week and wishing you the best.  I will try to call ya before you go in.
   Pullin for ya here.....
    KW
    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 15, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
 
     


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 5/5/2008 10:36 PM (GMT -6)   

Thanks KW. 

Had a little "bump" today.  Surgeon insists I go see my primary care physician tomorrow to check something out or the surgery is a no-go.  I hope it will not take long and that we can proceed with this thing.

Gene


Radical open removal 2-14-07
Removal of stricture 6-07
Bio-feedback (4) 08-07
Scheduled for AUS & implant 05-08
63 years old at time of nerve-sparing surgery


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 5/6/2008 3:53 PM (GMT -6)   

Godspeed, Gene!!!

Got you in my prayers.

DanMan Bob


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 5/6/2008 7:16 PM (GMT -6)   

Disappointment!

Well, most of you know what it's like to get prepared mentally and spiritually for surgery.  That's the way I was up untill less than three hours ago.  Surgery is a no-go for me.  I'm very, very disappointed, but... It's out of my hands.

I really don't understand why my surgeon waited until the last minute to have me go to primary care doctor, but that's what happened.  All my stats at the hospital pre-registration were good, according to the nurse: good bp, good ekg, etc.  So I am puzzled. He must have noticed something.

To make a long story short, my primary doctor would not sign off on surgery until I have a stress test... a full-blown one with all the bells and whistles.  So I am scheduled for Tuesday for that.  There's no telling when, if cleared, my surgery will be now.  I have waited for weeks for tomorrow's surgery...

Though disappointed, I am trying to stay positive.  If it is to be, it will happen, but not tomorrow. 

Gene214



Radical open removal 2-14-07
Removal of stricture 6-07
Bio-feedback (4) 08-07
Scheduled for AUS & implant 05-08
63 years old at time of nerve-sparing surgery


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 5/7/2008 8:23 PM (GMT -6)   

    Gene,  Thanks for calling me to tell me your not so good news.  Of all people I can understand what it would be like to have made the decision to have the AUS done then be told it has been postponed.  I will be looking forward to hearing that you have been given the green light again and are booked for a date.

    Hang in there a little longer.  KW

 


    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 15, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
 
     


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 5/7/2008 8:53 PM (GMT -6)   

Gene, good luck with the stress test...and if that goes ok, with the AUS and penile implant.

DanMan


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


jerryv
Regular Member


Date Joined Jan 2008
Total Posts : 52
   Posted 5/8/2008 9:28 AM (GMT -6)   
Hi Gene
Sorry to hear you operation has been delayed.  This whole situation is a bumpy road at best and you must keep a very positive attitude not only for yourself but for those close to you.  I have just returned from Mayo where in March they removed the AUS i had put in in February because of the great infection i had.  This is the second one i had removed and i think it was because the doctor i was going to ,put a new one six weeks after the first failure.  Mayo told me i have heaed well but must now wait for six months for another to be installed.  This whole thing is a waiting game and we all have to be patient.  I know all will work well for you Gene and you are in my daily prayers.  I am posting a little poem which should make us all lighten up
I cannot see
I cannot pee
I cannot chew
I cannot s*rew
Oh My God, what can I do?
My memory stinks
No sense of smell
I look like hell
My mood is bad-can you tell?
My body's drooping
Have trouble pooping
The Golden Years
Have come at last
The Golden Years
Can kiss my a*s
Blessings
 
Jerry
 

cowboy bob
Regular Member


Date Joined Sep 2007
Total Posts : 116
   Posted 5/8/2008 8:45 PM (GMT -6)   
Gene,

I am so sorry about your news. But I know it will all work out. It doesn't sound like a long term wait, but rather like when there's a hold when the rocket booster is on the launching pad. They are just waiting for the skies to clear.

Cowboy Bob

DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 5/16/2008 9:24 AM (GMT -6)   

Gene,

Hope your stress test went ok and you can schedule your procedures soon.

DanMan


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 5/16/2008 4:16 PM (GMT -6)   

I did the stress test on 5/13. I did very good on my part... I felt no obvious symptoms or anything like that.  Have heard nothing from the doctor about results.  I talked with his nurse but she said she knew nothing.  Tried calling again today. Left a message on her phone but still have heard nothing.  So... still on hold.  I cannot even get back on the surgeon's waiting list till primary care doc says it's ok.  Thanks for asking.

Gene 214 


Radical open removal 2-14-07
Removal of stricture 6-07
Bio-feedback (4) 08-07
Scheduled for AUS & implant 05-08
63 years old at time of nerve-sparing surgery


anxiouswife
New Member


Date Joined Apr 2008
Total Posts : 18
   Posted 5/16/2008 5:22 PM (GMT -6)   
Gene,
Sorry to hear about your bump in the road. I have been thinking about you alot. I pray you will get your test results soon. The waiting is often the worst part. My hubby had to have a stress test after he developed congestive heart failure due to a sepsis infection from his prostate biopsy. He was cleared for his RRP and went through the surgery well, although still incontinent. I am prayling for you and hope that you are able to have your surgery as planned. It is often frustrating dealing with the medical arena as I think sometimes they forget the level of the anxiety of the patient. My prayers and well wishes are with you.

Nancy
Husband Age 61
PSA 2.32 1/06
PSA 4.98 9/07
Biopsy 12/07 results in hospitalization for severe sepsis infection
Infection causes congestive heart failure
Biopsy results: Gleason 3+3=6 10% of 1 of 6 cores on left 0 of 6 cores on left
Echo stress test 1/16/08 cleared for surgery- reevaluate congestive HF 7/08
RRP 2/26/08 blood transfusion needed
Adenocarcinoma Gleason 3+3=6 pT2c, NX. MX Clear margins Seminal vesicles no evidence of malignancy
Incontinence-bad -cysto 8 weeks post surgery for burning and incontinence-looks fine
ED-tried Cialsis(no luck) but worried about effect on heart-Now using VED for therapy
12 weeks post op incontinence still bad


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 5/17/2008 8:56 PM (GMT -6)   
Thank you muchly!
Gene214
Radical open removal 2-14-07
Removal of stricture 6-07
Bio-feedback (4) 08-07
Scheduled for AUS & implant 05-08
63 years old at time of nerve-sparing surgery


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 5/17/2008 9:16 PM (GMT -6)   
Hi Gene,

I'm so glad to hear the stress test went well. I hope your treatment schedule will be back on track soon. We'll be watching out for it! tongue

Regards,

Barry ~ (a.k.a. "Idaho") - Prostate Cancer Forum Moderator

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  09/11/2007  <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

3rd PSA  03/17/2008  <0.04

My web site: http://pca-info.blogspot.com


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 5/22/2008 2:11 PM (GMT -6)   

On my journey to receive AUS, I am closer, but...

Saw my new cardiologist today since my primary care doc was not pleased with my nuclear stress test. The cardiologist said that although the stress ekg was not normal (showing possible problem from an old angioplasty proecedure) and that it indicated there could be some blockage, since I was experiencing no cardio symtoms (no pain, etc.), he said he would approve going ahead with the surgery if that was what I wanted.  He said he felt I was a very good candidate to come through with no cardiac problems.  I had an appointment with primary care physician shortly after because of another matter. I told him what the cardiologist said and then asked, "What would you do? Would you go ahead and have an angiogram or go on with the AUS/implant surgery?"  He said without blinking, "I would have the angiogram first." He went ahead and explained his main concern was that I would be put to sleep during the AUS/implant surgery. 

So I am scheduled for angiogram Tuesday... to be safe. Since my decision to have surgery, I have been on a rollercoaster ride emotionally.  I dread having new plumbing put in down there, but I also do not want to continue with all the leaking.  All of this extra time has given me more time to consider the whole picture.  I'll report back when I know something.  Thanks for your concern.

Gene214


Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Bio-feedback (4) 08-07 (no improvement)
Scheduled for AUS & implant 05-08
Surgeon cancelled one day pre-surgery.
EKG at primary care doctor...he didn't like what he saw
Nuclear stress 5/13/08
Heart cath scheduled for 5/27
63 years old at time of nerve-sparing surgery


ace06
Regular Member


Date Joined May 2008
Total Posts : 28
   Posted 5/22/2008 7:07 PM (GMT -6)   
Gene, maybe God is adjusting the schedule a little to make sure everthing is in your favor.
Age 73
PSA 4.1 in Nov 07. 4.5 in March 08 after antibotics
Biopsy 2 Pos out of 12, 1- 70%, 1<5%
Preop Pathology 3+3 contained no postop yet
robotic surgery May 5th 08
Doing good except very wet


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 5/22/2008 9:50 PM (GMT -6)   

    Gene...(T)  Sorry I missed your call the other night.  I will call you soon.  I'm sorry things are taking so long.  I hope things get moving soon.  I know you are ready for this to be over.

  Good Luck,  KW


    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
 
     

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