Wondering about raw feeling in Penis

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VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 4/29/2008 7:51 AM (GMT -6)   
OK, its only been a week since the cath came out and Kent is slowly recovering from incontinence. Seems to do well from waking till about mid afternoon, then the dribbling starts alittle. Nothing too bad and it gets better every day. But it seems when he does urinate it burns inside the penis. I know its raw from the cath but wondering if this might be infection or just the way it is. Anyone else have this go on for awhile. He doesn't want to bother the surgeon with every little thing so I figured I would check here first. Everyone is so helpful here and I find I get the answers I need from those who have been thru it. His surgeon did have this same surgery but I just wanted to ask my friends here first.
Thank you again and again.
Cindy
Age 51 Kent
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 anpther round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th.
Cindy (the wife!!)
Surgery preformed and doing great. Only took 1 1/2 hours. Will know in two weeks about pathology report. Surgeon feels he he got all cancer and confined to prostate. Both nerves were spared.
Home 4-11 - incision looks completley healed on the outside by 4-25
Cath out 4-22 dripping some
Cancer confined to one side of prostate.
Cialis 5 mg at night to start
Outlook very positive!!


Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 4/29/2008 8:38 AM (GMT -6)   
Hi Cindy,
I had the same sensation, but it only lasted a few days. It could be an infection, so I wouldn't wait too long to check with the Doc. Don't ever feel as though you're bothering him with "every little thing." All good surgical teams would want to help with any reactions a patient is experiencing. Glad the incontinence is improving. Every little step forward is a step closer to full recovery!
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist November 2005 - Biopsy negative July 2006 - PSA 5.9 at regular Physical October 2006 - After several more rounds of anti-biotics PSA 8.1 November 2006 - Second biopsy - Positive December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear. February 2007 - Three to fo ur pads a day, no erection with viagara. April 2007 - First Post-Surgical PSA 0.02. Down to one pad a day.July, 2007 - Six Month Post-op: PSA 0.04 No change in ED. October, 2007 - Nine Month Post-op: PSA back down to 0.02!Almost totally dry! Only slight improvement in ED - Will try injections if not improved by next appointment. January 2008: One Year Post-OP PSA 0.02 still dripping, but improving. Tried 500 dose of MUSE for ED, no luck. Will try 1000.


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 4/29/2008 8:48 AM (GMT -6)   
Thank you, Mike. I think I'm slowly convincing him that he should call.
C
Age 51 Kent
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 anpther round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th.
Cindy (the wife!!)
Surgery preformed and doing great. Only took 1 1/2 hours. Will know in two weeks about pathology report. Surgeon feels he he got all cancer and confined to prostate. Both nerves were spared.
Home 4-11 - incision looks completley healed on the outside by 4-25
Cath out 4-22 dripping some
Cancer confined to one side of prostate.
Cialis 5 mg at night to start
Outlook very positive!!


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 4/29/2008 11:50 AM (GMT -6)   

I am 4 weeks post op and having the occasional buring sesation as well.  It seems to be when I use Talc Powder or when I drink certain drinks.  It seems better when I apply an antibiotic topical ointment and just drink water. The very tip is red as well. 

Good Luck

Frank


Diagnosed 01-08-08 @ 53 years old 
DRE normal - High PSA for 5 or more years
2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Current PSA 6 - Bone and Ct scans negative
clinicalg Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,5 hour surgery , 3 hour recovery
Unexpected Cardiac issues appear and disappear?
Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage - Erectile funtion back on line 9 days 
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on bottom of prostate, 1 positve margin  going to meet with oncologist to discuss treatment options if any at this time.
 


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 4/29/2008 12:01 PM (GMT -6)   
Hi Frank,
 
Ahhhh, he does use the talcom powder and drinks alot of coffee. Maybe thats it. The tip is red too. Not too bad but enough to cause irratation and an "ouch!" hear and there.
Thank you..every opinion certainly helps.
Hope you are doing well!
Cindy
Age 51 Kent
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 anpther round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th.
Cindy (the wife!!)
Surgery preformed and doing great. Only took 1 1/2 hours. Will know in two weeks about pathology report. Surgeon feels he he got all cancer and confined to prostate. Both nerves were spared.
Home 4-11 - incision looks completley healed on the outside by 4-25
Cath out 4-22 dripping some
Cancer confined to one side of prostate.
Cialis 5 mg at night to start
Outlook very positive!!


anglophile
Regular Member


Date Joined Apr 2008
Total Posts : 82
   Posted 4/29/2008 12:09 PM (GMT -6)   
My doctor advised putting Neosporin on my catheter where it goes in, which I did. I haven't had any burning sensation since it was removed. I wonder if a little Neosporin on the tip now would help the redness? Couldn't hurt.
The ox is slow but the Earth is patient.


soxfans4life
Regular Member


Date Joined Apr 2008
Total Posts : 63
   Posted 4/29/2008 12:58 PM (GMT -6)   
:-)  Hi Cindy, I'm afraid I can't help from personal experience since Rod's surgery isn't til next month. But as a nurse I would tell anyone, no concern after surgery is too small to contact your M.D ! Things are usually pretty easily solved but discomfort and worry are a whole other problem. Catheters can cause irritation anytime and it's been a short time since removal, so I'd give the doc a call  and see what he has to suggest. Feel better soon BOTH of you! Annie

dx. 3-08  @ age 63. gleason 6 . 1 out of 12 cores positive. 4th biopsy in 8 years. previous 3 negative. followed closley due to family hx.grandfather, father and 2 uncles dx. with prostate cancer. dre negative, cat and bone scan negative. davinci scheduled for may 27, 2008. 2 daughters, retired hospital administration, air force family years ago.


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 4/29/2008 1:53 PM (GMT -6)   

Thank you, Annie. Can you tell I worry about everything?! :)

I think if it doesn't start feeling better today, he will call. He is trying to drink alot of water which I'm sure will help.

Thanks again for writing and I am thinking of you during your waiting time.

Cindy


Age 51 Kent
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 anpther round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th.
Cindy (the wife!!)
Surgery preformed and doing great. Only took 1 1/2 hours. Will know in two weeks about pathology report. Surgeon feels he he got all cancer and confined to prostate. Both nerves were spared.
Home 4-11 - incision looks completley healed on the outside by 4-25
Cath out 4-22 dripping some
Cancer confined to one side of prostate.
Cialis 5 mg at night to start
Outlook very positive!!


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 4/29/2008 2:18 PM (GMT -6)   
long after the cath came out, I still had a slight stinging sensation. It went away after about a month, I think. It was not always there, but things like vitamins bothered it...anything that increased the acidity I think.  Give the Dr a call - and talk to the nurse. They have heard it ALL. They will probably not even have to ask the doc.  I'm guessing that it is normal and just nerve sensations being weird.
Paul
47 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6      (Biopsy 3/07 just suspicious)
10/07 PSA 5.06   (Biopsy 11/07  1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC  www.roboticoncology.com
Saved both nerve bundles.
Path Report:  Stage T2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
PSA 0 at six weeks
Pad free on March 14 - (10 weeks.)
ED - Take 100mg viagra every night.
Totally usable erections at 10 weeks.
 
 


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 4/29/2008 3:09 PM (GMT -6)   

Greetings, Kent and Cindy.  I would always err on the side of caution and calling the doc.  A couple of weeks ago I got an infection in my incision.  Judy, my wife and also a nurse, called the doc's office and they said we couldn't see our surgeon but could see one of his partners. We went in and the partner took a look, said give me a minute, and a minute later was back with our surgeon.  They gave me some medicine and it is clearing up nicely.  Morale of the story, if there are issues, the doc wants to know. 

By the way, I had the same burning sensation - nothing unbearable - but it was there.  Trust you are both doing well otherwise.  David


Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
Great wife and family who take very good care of me


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 4/29/2008 3:18 PM (GMT -6)   
Paul, didn't think about acidity. He is drinking orange juice and tomato juice. Guess we should cut that back a bit. Thank you for the reply.

Hi David, You are right about caution. He just hates calling the doctor and expects it all to go away. I can't convince him otherwise most of the time. But considering the part of the body that it involves, I think he will change his mind. :)
All is well here except for the continual incontinence. Good sometimes but still a battle. But of course, I know it takes time and we are working on understanding the "time" part.
Thank you for writing
Glad all is going well for you!
Cindy
Age 51 Kent
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 anpther round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th.
Cindy (the wife!!)
Surgery preformed and doing great. Only took 1 1/2 hours. Will know in two weeks about pathology report. Surgeon feels he he got all cancer and confined to prostate. Both nerves were spared.
Home 4-11 - incision looks completley healed on the outside by 4-25
Cath out 4-22 dripping some
Cancer confined to one side of prostate.
Cialis 5 mg at night to start
Outlook very positive!!


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 4/29/2008 5:16 PM (GMT -6)   
Cindy . . just a note on dealing with the incontinence issue . . . .I remember it well . . . .seems like it's never going to get better . . . .trust me it will!

What I did as a motivational tool during that time was keep track of how long a package of the mens pads lasted. Ours were 52 per package and the first one was gone in 1 week; the 2nd package lasted 2 weeks; the 3rd one 3 weeks . . . . .made Bob feel like he truly WAS moving in the right direction, because if we hadn't kept track the first week and first package wouldn't be remembered.

6 months ago at the doctor's office he asked how the incontinence was coming and the look on Bob's face was like . . . . incontinence .. . what's that . . .a look I'm sure the doctor was glad to see . . . . .one truly does forget once it's all behind.

Take care both of you.

;o) Linda & Bob
Bob (62) - Laproscopic Prostate Removal Sept 27, 2006 at age 60.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
 
Pathology - cancer completely contained, even a second more aggressive, previously undetected cancer)
PSA UNDETECTABLE Nov 2006, Feb, May, Oct2007.  ONE YEAR!!!! WHOOO HOOOO! 

Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 4/29/2008 6:14 PM (GMT -6)   
Hi Linda,
Thank you so much for writing! We were actually thinking about that today. He does so much better during the morning and then as the day goes on and he takes walks is when he starts dribbling and more.
We will start counting starting tomorrow morning and hopefully it will start easing up.
Thank you again
Cindy
My thoughts are wilth you and Bob too!
Age 51 Kent
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 anpther round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th.
Cindy (the wife!!)
Surgery preformed and doing great. Only took 1 1/2 hours. Will know in two weeks about pathology report. Surgeon feels he he got all cancer and confined to prostate. Both nerves were spared.
Home 4-11 - incision looks completley healed on the outside by 4-25
Cath out 4-22 dripping some
Cancer confined to one side of prostate.
Cialis 5 mg at night to start
Outlook very positive!!


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 4/30/2008 1:45 AM (GMT 0)   
Hello VaFan,
A tip I was given by a very experienced nurse prior to surgery was to use baby oil as a lubricant on the exit point of the catheter tube rather than the commercial lubricants normally recommended (it doesn't get as gluggy) which proved to be excellent advice. It also might be worthwhile if he tries a urinary alkaliniser (sp?). Urine should be slightly acid as an acidic eviroment inhibits the growth of any bacteria (urine is normally quite sterile and germ free). I think the natural reaction to any discomfort when urinating is to limit fluid intake which, of course is the opposite to what should happen. Try to keep plenty of fluid rolling through the system and keep the urine as clear as you can. You can buy PH test strips quite cheaply on Ebay as well as other places on line with which to check acidity, and if too acid, can be adjusted temporarily with the alkaline drinks. I also drank a fair bit of orange juice early in the piece (you do get sick of drinking water) which also caused me a bit of grief which disappeared when I substituted apple juice.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 4/29/2008 8:03 PM (GMT -6)   
Apple Juice! Thats what we'll get tomorrow. We were never told about the acid thing so didn't really think about it until everyone told me about it. Now as I think back to the last week, it seems he has the most discomfort when drinking orange and tomato juice.
Thank you, Bill, for the advice..I will certainly take it!
Cindy
Age 51 Kent
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 anpther round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th.
Cindy (the wife!!)
Surgery preformed and doing great. Only took 1 1/2 hours. Will know in two weeks about pathology report. Surgeon feels he he got all cancer and confined to prostate. Both nerves were spared.
Home 4-11 - incision looks completley healed on the outside by 4-25
Cath out 4-22 dripping some
Cancer confined to one side of prostate.
Cialis 5 mg at night to start
Outlook very positive!!


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 4/29/2008 10:51 PM (GMT -6)   
tonight he feels very uncomfortable. Feels like maybe there is some kind of blockage. He is going to call the doctor in the mornig to make sure. Sometimes it seems to swell alittle and he says this is not an erection but feels a bulge that feels like blockage. I consider that a small cause for alarm so time to make the call.
Thanks again for all the help. What would I do without you all
Cindy
Age 51 Kent
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 anpther round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th.
Cindy (the wife!!)
Surgery preformed and doing great. Only took 1 1/2 hours. Will know in two weeks about pathology report. Surgeon feels he he got all cancer and confined to prostate. Both nerves were spared.
Home 4-11 - incision looks completley healed on the outside by 4-25
Cath out 4-22 dripping some
Cancer confined to one side of prostate.
Cialis 5 mg at night to start
Outlook very positive!!


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 4/30/2008 12:40 AM (GMT -6)   
That bulging /swelling may be due to him exerting a pushing pressure when he attempts to urinate and perhaps a little blood is being forced into the penis causing this slight reaction. All though he may not think so and is feeling down it does get better. He may find passing urine at this stage a little easier if he half sits and crouches rather that standing facing the "throne". Sometimes this has the effect of shortening and opening the urethra somewhat rather than standing upright which may stretch and constrict it a little.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable

Post Edited (BillyMac) : 4/29/2008 11:44:17 PM (GMT-6)


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 4/30/2008 8:06 AM (GMT -6)   
Thank you, Bill.

Thats a good tip. Hadn't thought about pressure happening. Didn't even consider the urethra having to stretch and go back. He says the bulging happens when he is sitting not standing. This can really get complicated. He says he will probably just call the nurse today to ease his mind. Quite the impatient man and one who cannot just let it run its course.
Thank you again for helping out!
Cindy
Age 51 Kent
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 anpther round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th.
Cindy (the wife!!)
Surgery preformed and doing great. Only took 1 1/2 hours. Will know in two weeks about pathology report. Surgeon feels he he got all cancer and confined to prostate. Both nerves were spared.
Home 4-11 - incision looks completley healed on the outside by 4-25
Cath out 4-22 dripping some
Cancer confined to one side of prostate.
Cialis 5 mg at night to start
Outlook very positive!!

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