Just Got My Path Report from Johns Hopkins

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ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 830
   Posted 5/1/2008 2:02 PM (GMT -6)   
Well, it's official.  I am in the club.   Johns Hopkins confirmed my original pathologists report.  I have prostate cancer in 4 to 6 out of 50 samples.  It is 3+3=6.  It says "SMALL FOCUS OF ADENOCARCINOMA."  I am not sure what "SMALL FOCUS" means.  But it doesn't matter it is cancer. 
 
Age 42
PSA 2.75
6 out of 50 samples 3+3=6
 

Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 5/1/2008 2:16 PM (GMT -6)   
Sorry to hear the news, but it sounds like you are on top of it! Continue to be your own advocate and best wishes in your treatment decision. Keep us posted!
Father's Information
DX July 15, 2007

Age 62 (now 63)

PSA 5.5

Original Gleason 3+4=7

Post Surgery Gleason- 4+3=7

DaVinci Surgery Aug 31, 2007

Focally Positive Right Margin

One positive node

Bone Scan/CT Negative (Sept. 10, 2007)

T3a N1 M0

Oct. 17 PSA 0.07

Nov. 13 PSA 0.05

Casodex adm. Nov 07

Lupron beg. Dec 03, 2007 2 yr

Radiation started March 03-April 22, 2008- 8 weeks 5x a week

8 weeks of radiation down!!!

Praying for a cured dad. First PSA 3 months!


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 5/1/2008 3:01 PM (GMT -6)   
Hi Chris,
If you have had to join us, you have done so with numbers that look very managable. I am very sorry that we add another to this fraternity, and another young guy at that, but do your homework and stay positive. And stay close to us too. This site will bring you some wonderful support and experience. Good luck on your research. Learn as much as you can as knowledge is the best tool you can have on your side. God Bless you and be well.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 5/1/2008 3:02 PM (GMT -6)   
Well Chris . . . welcome to the club you didn't want to join. You are definitely in a good club though . . lot's of supportive caring people to sound off to, come to for support, advice and who know exactly how you feel.

Good luck with your treatment decision . . you are young and this sounds like it's in the early stages.

;o) Linda & Bob
Bob (62) - Laproscopic Prostate Removal Sept 27, 2006 at age 60.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
 
Pathology - cancer completely contained, even a second more aggressive, previously undetected cancer)
PSA UNDETECTABLE Nov 2006, Feb, May, Oct2007.  ONE YEAR!!!! WHOOO HOOOO! 

Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2332
   Posted 5/1/2008 3:41 PM (GMT -6)   
Chris--The bad news is you have cancer; the good news is you are among friends and now belong to an exclusive club that all the money in the world can't get you a membership.
 
You have numbers similar to mine, so have an highly treatable cancer, caught early. 'Small focus' means there ain't much of it yet. Take care and be well...Tim


Age 59  PSA quadrupled in 1 yr (0.6 to 2.5) 
DRE neg  1 of 12 biopsies pos (5%) 
Open surgery June 2006 
Cancer confined to prostate (1 pea-sized area) 
T2a  Gleason 5 (3+2)  PSA < 0.1  


ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 830
   Posted 5/1/2008 4:08 PM (GMT -6)   
Thanks all.   I know I am in the right place.   Thanks for everyones support.  

Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 5/1/2008 6:16 PM (GMT -6)   
Chris,
 
Sorry your here but glad you came.  I am so glad it seems that you found your cancer very early. Your journey will most likely take you around the block in regards to your feelings and emotions.  Pull those close to you a little closer.  Ask questions of everyone.  Arm yourself with knowledge.  Put on your Battle Face and beat this thing... 
 
One thing you dont have to worry about is the caring, thoughtfull and heart felt support you will get from this site.  No matter what road you choose we will be here for you.
 
God Bless
 
Frank
Diagnosed 01-08-08 @ 53 years old 
DRE normal - High PSA for 5 or more years
2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Current PSA 6 - Bone and Ct scans negative
clinicalg Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,5 hour surgery , 3 hour recovery
Unexpected Cardiac issues appear and disappear?
Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage - Erectile funtion back on line 9 days 
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on bottom of prostate, 1 positve margin  going to meet with oncologist to discuss treatment options if any at this time.
 


CaPCa
Regular Member


Date Joined Aug 2007
Total Posts : 118
   Posted 5/1/2008 8:13 PM (GMT -6)   
As others have said, it looks like you caught it early. You should take solace in the fact that the tumor is evidently small based on the large number of samples. It sucks to be diagnosed with cancer, but you really have reason to be optimistic that your final outcome will be good.

Age:45 (44 when diagnosed)
Father diagnosed and cured at age 52.
08/21/07: Diagnosed with T1c cancer
1 of 12 biopsy cores positive; 10% tissue
Gleason score: 3+3=6
PSA level prior to biopsy: 4.3 (velocity < 0.4ng/ml)
10/19/07: da Vinci prostatectomy by Dr. Vipul Patel
              Difficult surgery due to prostate inflammation.
              Both nerve bundles spared.
              Spongy erections began within 24hrs of surgery!
10/24/07: Catheter out; down to 1 Serenity pad/day next day.
              Final pathology: neg margins, no capsular penetration,
              Gleason 3+3=6, 5% tumor involvement, multi-focal.
11/04/07  First usable erection with Cialis
11/22/07  Thanksgiving - Bye-bye, pads
01/17/08  First post-surgery PSA result: < 0.008 ng/ml
03/17/08  Erection quality mostly back to pre-surgery levels with Cialis;
              have not tried without meds yet.
04/23/08  Second post-surgery PSA result: < 0.008 ng/ml
 


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1211
   Posted 5/1/2008 8:46 PM (GMT -6)   
Hi ChrisR,
I'm so sorry that we have to welcome you here at this forum at such a young age, but at least you are among friends that will offer you support, advise and true friendship. Your numbers thus far look very good and will, hopefully, allow you to have a full and quick recovery, through whatever choice you make, to arrive at resolution to this cancer.
All the best to you.
 
Magaboo

Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
Open RP 28 Nov 06
Post op staging T3
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA test Mar., 08 =.04 
 
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 5/1/2008 9:55 PM (GMT -6)   
Sorry to hear this Chris. We are here to help any way we can.
KW
    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 15, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
 
     


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 5/2/2008 6:15 PM (GMT -6)   
As much as I hate to say welcome to the forum under the circumstances, however this is the best place to find love and support. No cancer is good, and especially prostate for a man, but it does look like you have numbers that should allow you to live a productive otherwise healthy life. Be sure to seek emotional support when you need to, and if you are spiritual, I am sure you will find blessings in this. Stay in contact with us as you go thru this journey. The folks here at HW really do care.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
 


41diagnosed
Regular Member


Date Joined Jun 2007
Total Posts : 176
   Posted 5/2/2008 6:27 PM (GMT -6)   
Chris,

Hang in there. I was miserable when I first found this site almost a year ago. I was full of anger and fear and sadness. This was no doubt the best place for me to go to late at night when I couldn't sleep. I'd read posts and try to find direction and answers from the many experiences here.

I also reached out to people to talk about the options and their outcomes as I tried to find my own path toward cure and feel resolved about my decision. Please feel free to do the same. Some folks here post their email on their profiles which allows you to email them directly. Mine is there, so feel free to reach out any time.

I found that discussing things with other people help me find resolution in the decisions I was faced with in terms of treatment options, and I explored many.

Also, complete your signature when you have a chance so people can be reminded of your circumstance when they read your posts. It helps people identify how similar their own situation may be to yours and how relevant sharing their experience might be to you.

In the end, we're all fighting the same disease, so all of the collective experience here is relevant. But everyone's situation has things that make treatment choices a very personal decision. Glad you found this site.
 
42 yo. now
 
5/07 PSA 4.65 at routine physical
6/07 biopsy positive for cancer...Gleason 3+4...diagnosed at 41 y.o.
6/07-9/07 manic research and interviews with physicians across the country in search of the "right" decision.  I went to Mass General in Boston, Loma Linda, University of Chicago and Northwestern.
9/17/07 - Radical Retropubic Prostatectomy Surgery at Northwestern Memorial in Chicago by Dr. William Catalona.  Thankful the father of the PSA test was right here in Chicago.
 
Post op pathology was Gleason 3+4 with negative margins, no seminal vesicale involvement, no lymphatic or vascular invasion, bladder and urethral free and tumor volume was 5% of 27.3g.  
 
9/27/07 - Catheter removal...let the games begin...
 
12/07 - Threw out the pads.  I only had to use 1 pad per day for protection against minor drips. 
 
I started Trimix 8 weeks after surgery with success.
 
I hope someday I won't need injections, but I hope more that my PSA stays at 0 forever.
 
 
 

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