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Posted 5/3/2008 3:18 PM (GMT -6)
Hi everyone I want to introduce myself. I joined this club in Oct. 07 when I had a routine physical. Had my PSA check and it was 36.  Nov.07 had the biopsi done and found 11 of 12 cores 90% pos. It took till Jan. 08 to get my day with the Davinci (man that thing is cool) the Cath??? was a real treat had it removed 10 day later(boy that was another feeling I don't want to experiance again). The leaking seemed to be under control till I returned to work then someone opened the tap and boy did it run. After 2 months had my PSA rechecked it was .7 which wasn't low enough for my Dr. so now it's Lupron for 2 months then hopfully Radiation in June 08. So now I have to ask the first shoot of Lupron was in the arm which was sore for a couple days. The latest one was in the butt. The shot was nothing but a day later someone hit me with a baseball bat. How is everyone elses butt feel? And they tell me I could be on this the rest of my life ( thats something to look forward to).
 Age 48
 PSA 46 Oct (07)
 Gleason 3+4=7
 Biopsi 11 of 12 pos.
 DaVinci Jan 08 Dr W. Johnston
 Evanston Northwestern Illinois
 Post Op  PSA .7
 Started Lupron April 1st
 Radiation June (08)?????

Posted 5/3/2008 4:16 PM (GMT -6)

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Posted 5/3/2008 4:32 PM (GMT -6)
Hi Gary,
Welcome to the best site on the web for patient to patient interaction. You will do well with the radiation therapy. I have faired well. My Lupron call is for two years, not two months, and I was kinda wondering why your oncologists does not suggest a longer time frame. I do hope the best for you and can tell you that this is a great site to hang around and get caring support. God Bless and stay positive. keep us posted.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator

Posted 5/3/2008 4:38 PM (GMT -6)
My dad described it exactly the same way.  He felt like he had been hit with a baseball bat.  He has had a few shots now and he is typically sore for a couple of days and then it is ok.  I guess the only positive is that at least they have the 3 and 4 month shots, that way you don't have to feel like you get hit with the baseball bat every month.  Hopefully you will breeze through the radiation and HT with minimal side effects.  My dad had a few GI side effects from radiation that were easily controlled with Imodium.  Otherwise, he did pretty well.  We are hoping and praying for an undetectable PSA for his first PSA test following radiation.  Good luck with everything and keep posting! 
Father's Information
DX July 15, 2007
Age 62 (now 63)
PSA 5.5
Original Gleason 3+4=7
Post Surgery Gleason- 4+3=7
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin
One positive node
Bone Scan/CT Negative (Sept. 10, 2007)
T3a N1 M0
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07
Lupron beg. Dec 03, 2007 2 yr
Radiation started March 03-April 22, 2008- 8 weeks 5x a week
8 weeks of radiation down!!!
Praying for a cured dad. First PSA 3 months!

Posted 5/3/2008 4:39 PM (GMT -6)
Gary-

I've had 2 Lupron shots in the butt (Aug '07 and Feb '08) and they were nothing. For the 2 years from Jan'05 to Jan '07 I had "every 3 monthly" Zoladex spring loaded (to insert a capsule) shots in the abdomen - now that's a really lovely experience. Including the very large black and blue mark for weeks afterward.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.

Posted 5/3/2008 6:10 PM (GMT -6)
Hi everyone I was just trying to add a little humor to this crappy disease. I am very positive and have a very up beat additude. I have to believe in the system this stuff is slow growing so I believe they will develope something in the future to cure it.  I am not growing any man boobs yet.
 Age 48
 PSA 46 Oct (07)
 Gleason 3+4=7
 Biopsi 11 of 12 pos.
 DaVinci Jan 08 Dr W. Johnston
 Evanston Northwestern Illinois
 Post Op  PSA .7
 Started Lupron April 1st
 Radiation June (08)?????

Posted 5/3/2008 6:26 PM (GMT -6)

Ouch,

My brother always kids me and asks if I'm growing the man boobs, and I tell him if I do I better never catch him whistling.  Instead my side effect is that I am now a better shopper than my wife.  I can also drive while shaving and talking on the cell phone.  War Eagle wants to start a home decorating company, and we already have some potential customers.  One day this may happen...Ouch. 

 

Tony

Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator

Posted 5/3/2008 6:35 PM (GMT -6)
I tell my wife I may not need her when it happens. I only experianced a couple hot flashes at night so far, I made a attempt to stay away from watching any chic flik I don't want to see if I will break down and ball.
 Age 48
 PSA 46 Oct (07)
 Gleason 3+4=7
 Biopsi 11 of 12 pos.
 DaVinci Jan 08 Dr W. Johnston
 Evanston Northwestern Illinois
 Post Op  PSA .7
 Started Lupron April 1st
 Radiation June (08)?????

Posted 5/3/2008 6:41 PM (GMT -6)
Heck, I well up when my wife says she's gonna watch a chic flick. Especially if she doesn't invite me to join her. Women can be so insensitive.

Tony (Sleeping out tonight luckily)
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator

Posted 5/3/2008 6:59 PM (GMT -6)
TC sounds like you have a pretty up beat additude. thats the things that make the day a lot easyer. My wife is going though menopose now so it's funny in bed with the blanket off me on her then off her on me we cannot get our timing right. So how did you handle American Idol this week?
 Age 48
 PSA 46 Oct (07)
 Gleason 3+4=7
 Biopsi 11 of 12 pos.
 DaVinci Jan 08 Dr W. Johnston
 Evanston Northwestern Illinois
 Post Op  PSA .7
 Started Lupron April 1st
 Radiation June (08)?????

Posted 5/3/2008 7:41 PM (GMT -6)

Gary,
I'm just another lemonade maker here.  Why cry over a lemon when I now have an excuse to over a ballgame.  Gary, the folks here are great and will keep you positive.  And that makes life a lot easier.  My QoL has not suffered over prostate cancer.  We've had our bumps in the road, but keep moving forward.  My serious side can kick in at any time on you, so try not to trigger a mood swing... tongue .  I'm flying across country tonight and don't want to start it off on the wrong kind of ball game.

Tony

Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator

Posted 5/4/2008 9:45 AM (GMT -6)
Gary my lupron experience has been the same way. I get the shot and feel ok that day, and then the next three or four days my butt feels as though it was hit by a truck. Thank goodness it does go away. I to have found humor in this crazy disease, and often laugh at the side effects. I ask my doctor a few weeks ago if I would always be impotent and he ask me if I had any libido, and my reply was no, so he said what difference does it make then.
I have been on lupron for 11 months now, and will likely be off and on for life. I have found many a blessings thru cancer as weird as that sounds. Even though life has changed in some realms I will have to say it has opened my eyes to many a possiblities and it will you to. Please keep us posted as to how things are going. May I ask what your symptoms were when diagnosed?
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
 

Posted 5/4/2008 11:17 AM (GMT -6)
I would hire MR War Eagle. He gave me excellent nursery tips and decorating advice. :-)
Father's Information
DX July 15, 2007
Age 62 (now 63)
PSA 5.5
Original Gleason 3+4=7
Post Surgery Gleason- 4+3=7
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin
One positive node
Bone Scan/CT Negative (Sept. 10, 2007)
T3a N1 M0
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07
Lupron beg. Dec 03, 2007 2 yr
Radiation started March 03-April 22, 2008- 8 weeks 5x a week
8 weeks of radiation down!!!
Praying for a cured dad. First PSA 3 months!

Posted 5/4/2008 6:06 PM (GMT -6)
Livinadream I was getting up a couple times a night to pee for years which I blamed on first the quanity of beer I drank then I quit drinking then I drank coffee like water all day long so I didn't think anything of it till I started having trouble peeing. Also I had real bad back aches at night which went away after I got up so I didn't think anything of that probley job related??? TillI had it removed the back ache went away.

Doting when I need help will you get me in touch with Mr War Eagle?
 Age 48
 PSA 46 Oct (07)
 Gleason 3+4=7
 Biopsi 11 of 12 pos.
 DaVinci Jan 08 Dr W. Johnston
 Evanston Northwestern Illinois
 Post Op  PSA .7
 Started Lupron April 1st
 Radiation June (08)?????

Posted 5/6/2008 6:30 AM (GMT -6)
Tony, I had to laugh out loud. My Uncle in so many words said the same thing. I guess you are all on the same page and think alike. The power of positive thinking!!!!
Cheryl
Father diagnosed 13 years ago @ age 63
Watchful waiting until PSA jumped from 6 to 10
Cancer found in 1 core
Gleason score 6
Seeds implanted
PSA has been low since (don't know exact numbers)
 
Uncle (mother's brother) age 68
PSA jump from 2 to 8 in 18 months (2/08)
DRE was normal (2/08)
Biopsy (3/08) Cancer found
Bone scan (clear) 
Fine Needle Lymph Biopsy (Positive)
Gleason Score
(2) 4 + 3
(1) 3 + 3
(4) 4 + 3
7 of 12 cores positive
Waiting for MRI and another CAT Scan before radiation
Started Casodex and Eligard
 
 

Posted 5/17/2008 1:21 PM (GMT -6)

I have a young wife and the change (her's) has affected the temperature of our abode often.  Her hot flashes and my cold from blood thinner are not a match made in heaven. 

Debbie keeps wondering when our hot flashes will become synched so we can either have cover or kick it off and can both agree what temp to set the AC.

As for the man boobs, I DONT WANT TO TALK about IT! (while Debbie cackles)

We are currently living in a 30 foot RV so it sure is a good thing that we are soooo compatable.

Richard & Debbie yeah   tongue   yeah

Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
U of Florida Proton Therapy Institute
5/2/2008 LUPRON & Casodex
IMRT to start 5/16/2008 for approx 4 weeks with Proton to follow for approx 4 weeks
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM
 

Posted 5/18/2008 8:20 AM (GMT -6)
Smilingoldcoot Now it has progressed to the car she turns on the air, me the heat, then me the air, her the heat. My poor little VW doesn't know which way to go.So how is everyones sex drive or lack of going.
 Age 48
 PSA 46 Oct (07)
 Gleason 3+4=7
 Biopsi 11 of 12 pos.
 DaVinci Jan 08 Dr W. Johnston
 Evanston Northwestern Illinois
 Post Op  PSA .7
 Started Lupron April 1st
 Radiation June (08)?????

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