Radiation therapy after surgery

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 5/5/2008 9:01 AM (GMT -6)   
I mentioned this in the middle of another thread, but am reposting separately with the hope that it might receive some responses.
 
My urologist will probably recommend radiation in a few months, despite an undetectable PSA.  The reason is that a very high Gleason score is an indicator of a likely recurrence eventually.
 
For those who had radiation after surgery, please share your insights.
 
Specifically:
 
1. What type of radiation did you undergo, how many sessions and so on?
 
2. What obvious side effects did you experience - tiredness, bleeding, incontinence, other?
 
3. If you had regained all or partial erectile function prior to radiation, what impact did the radiation have upon your erectile function and recovery?
Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


Ken S
Regular Member


Date Joined Nov 2006
Total Posts : 120
   Posted 5/5/2008 3:24 PM (GMT -6)   
DanmanBob,

I had 37 treatments (IMRT) 66 gys from 4/23/07 to 6/14/07. I had minor side effects. I did get some tenderness in the anal area which was relieved easily with Preperation H. No tiredness whatsoever, I was told at my age I wouldn't have any problems with that. No bleeding at all.

I was pad free for a few weeks before treatments but during the procedure I reverted back to 1 pad a day and still have some stress incontinence problems 11 months after finishing treatments.

I regained partial erectile function prior, maybe 50 - 60% and now I would guess 70%, that is without ever using any aids mechanical or medical. But erections are short lived and require continuous stimulation.

Ken
Age 54 (2006)
PSA: 2005 - 3.2, 2006 - 3.7
Biopsy 8/06, Gleason 6 (3+3), T1c
Radical Retropubic Prostatectomy 11/3/06
Memorial Hospital, Pawtucket, RI
Post-Op Biopsy, still Gleason 6 (3+3),
T2c, right apical margin positive
CT Scan 1/07, tumor discovered on right
kidney (unrelated to PCa)
Partial Nephrectomy 3/9/07
R.I. Hospital, Providence, RI
IMRT (37 Treatments) 4/23/07 - 6/14/07
PSA: 11/07 - less then 0.01
4/08 - 0.04


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 5/5/2008 3:57 PM (GMT -6)   
My father had 8 weeks of IMRT following his RP. He had Whole Pelvic Radiation Therapy (including the lymph nodes) . He just completed the IMRT and is doing very well! He had a little fatigue, however, he is also on Lupron. He had a week or two of an upset stomach, however, his symptoms were easily controlled with Imodium. He did get a little sore in his abdominal area, however, it was short lived. Overall, his experience was VERY good and the side effects were nothing in comparison to what he had expected.
Not to sure about the ED, however, being on Lupron has killed his libido, therefore, I can't imagine things are great in that department. Good luck and God Bless!
Father's Information
DX July 15, 2007
Age 62 (now 63)
PSA 5.5
Original Gleason 3+4=7
Post Surgery Gleason- 4+3=7
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin
One positive node
Bone Scan/CT Negative (Sept. 10, 2007)
T3a N1 M0
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07
Lupron beg. Dec 03, 2007 2 yr
Radiation started March 03-April 22, 2008- 8 weeks 5x a week
8 weeks of radiation down!!!
Praying for a cured dad. First PSA 3 months!


mgl
Regular Member


Date Joined Feb 2007
Total Posts : 122
   Posted 5/5/2008 4:04 PM (GMT -6)   

I had 37 imrt treatments ending oct 07, no real side effects except some anal discomfort but was given suppositories and that took care of it

the ED was not any different after radiation ,with pills I  have some results

As a whole the only thing  difficult about radiation was going to the hospital everyweekday for 8 weeks
50 years old
gleason 3+4=7 psa5.8 clinical stageT3a
Da vinci surgery April10 2007 Mayo clinic Rochester, Mn.
extraprostatic extension Gleason -same
pelvic lymph nodes -negative
Catheter out April 19
37 treatments IMRT ended 10/26/07
psa Jan 29 2008 0.10
psa april 30 0.14


sterd82
Regular Member


Date Joined Sep 2006
Total Posts : 187
   Posted 5/5/2008 5:53 PM (GMT -6)   

My treatment history is in my signature line....

about half way through the radiation, I got a little tired at night (walking helped this A LOT).....  I had some urinary discomfort, which pyridium cleared up, and some anal problems, which meidcation also helped.

I was completely dry post-surg, but now have a bit of stress incontinence --- usually if I'm lighting alot or jogging--- I just wear a pad when I'm in those situations.

Can't comment on ED --- I had a non-nerve-sparing RP.  My sex life is different now, but actually pretty good with a few adjustments now that my hormone therapy has worn off!

Radiation was pretty manageable--- more of a nusance than a big burden.....

 


Sterd82
Age 47 - pre-surgury PSA 39
Open Radical Prostatectomy 6/9/2006
Pathological Stage T3a, Positive Surgical Margin
Gleason 3+4
PSA rose to .24 in November of 2006
6 month hormone therapy initiated December 1. 2006
36 sessions of IMRT Ended Feb 1, 2007
PSA as of May 25, 2007 undetectable
PSA as of November 29, 2007 undetectable
Next PSA May of 2008


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 5/6/2008 9:17 AM (GMT -6)   

Hi Danman,

Thanks for asking this question.  I will meet with oncologist Friday with 6 week PSA.  I am betting I will have to make a decision because of my bad margin regardless of PSA. 

Good luck with yours and keep us informed how it goes.

Frank

 

 


Diagnosed 01-08-08 @ 53 years old 
DRE normal - High PSA for 5 or more years
2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Current PSA 6 - Bone and Ct scans negative
clinicalg Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,5 hour surgery , 3 hour recovery
Unexpected Cardiac issues appear and disappear?
Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage - Erectile funtion back on line 9 days 
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on bottom of prostate, 1 positve margin  going to meet with oncologist to discuss treatment options if any at this time.
 


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 5/7/2008 10:02 PM (GMT -6)   
Appreciate the replies.

Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 5/9/2008 11:14 PM (GMT -6)   
Hey, Frank.
 
Some of the guys commented in this thread about their experience with radiation and ED (the nerve thing you asked about today).
 
DanMan
Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


mozart250
Regular Member


Date Joined Jan 2007
Total Posts : 102
   Posted 5/10/2008 10:05 PM (GMT -6)   
I just got done radiation and it certainly was not as bad as I feared.
 
A little bowel and bladder irritation that seems to be clearing up.
 
And there was a little tiredness.  I am not sure whether the tiredness was from the radiation or all of the 40 mile trips to Burlington which were certainly a pain in the anus.
 
Anyway in my humble opinion it was worth it, particularly since this offers the hope of killing all the cancer.
52 Year Old DBA by profession; amateur pianist by passion.
 
June and Aug 2006:  PSA 4.6.  DRE prostate enlarged.  Second opinion
Sep  2006:  Biopsy results positive one lobe.  Gleason 3+3.
Nov  2006:  RPA performed at Fletcher Allen in Burlington VT.
Nov  2006:  Pathology report: Stage T3a and Gleason 3+4.
Dec  2006:  PSA 0.1
Feb, May  2007:  PSA 0.0 (under 0.1)
Aug, Nov  2007 and Feb 2008:  PSA 0.1
Mar-May  2008:  IMRT Radiation..completed May 1, 2008 
 
Trying my hand at blogging.


kdnole
Regular Member


Date Joined Jun 2007
Total Posts : 152
   Posted 5/12/2008 2:51 PM (GMT -6)   
I had 30 treatments of IMRT the only side effect I had was more frequent visits to the bathroom to urinate. Other than that I will have to side with Mozart that any fatigue I had was from the daily drive.
Age 44
PSA 4.8
Gleason 3+3=6
T2
Biopsy - 3 of 12 (2@20% / 1@80%
Da Vinci 7/31/07 @ Duke
2.5 hr. surgery, released from Duke within 14 hrs.
Saved both nerve bundles. 
Foley out 8/10/07
Positive Pathology Report 
Near left side nerve bundle
New Gleason 7
Oncology visit in the near future for radiation
Back to work 3 weeks following surgery - Sales
 
9/13/07 - 1 Post PSA Undetectable less than 0.1 
 
9/17/07 - Pad Free! 
 
10/11/07 - ED, Trimix injection .2cc Tooo much but it worked. Now on .05cc, 3 times a week
No luck with viagra or pump. 
 
11/19/07 - 5 mth. PSA 0.1 (Ouch)
02/11/08 - Scheduled for CT Scan and MRI
2/27/08 - Started IMRT Radiation treatments
(6 weeks, 5 days a week)  
4/14/08 - Radiation complete with "NO" side effects.
6/17/08 - 1st Post Radiation PSA scheduled


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 5/13/2008 9:58 AM (GMT -6)   
Found this very article from Dr. Catalona about radiotherapy after prostate surgery......

http://drcatalona.com/quest/quest_article_v8n3.htm
Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, July 21, 2018 12:44 PM (GMT -6)
There are a total of 2,983,962 posts in 327,164 threads.
View Active Threads


Who's Online
This forum has 161962 registered members. Please welcome our newest member, blfinish.
355 Guest(s), 11 Registered Member(s) are currently online.  Details
momto2boys, Baginapples, Girlie, Tburd, Sherrine, Jerry_Delaware, Maudgone, Everton, CAdogsRus, borborygmi, halbert