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Who has had Brachytherapy and what side effects?

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ChrisR
Veteran Member
Joined : Apr 2008
Posts : 849
Posted 5/5/2008 6:18 AM (GMT -8)
I am in the middle of deciding between Brachytherapy and surgery.   I know that some people prefer surgery so you can get a good picture of your cancer afterwards.   I would like to know what side effects people are having from Brachytherapy.   Would you do it again so to speak?       Chris 42 years old 4 out of 50 cores “small focus” positive (4/08) 2 HGPIN suspicious of cancer Gleason 3+3=6 PSA 2.4 (11/03) PSA 2.57 (7/06) PSA 2.75 (8/07) PSA 2.76 (3/08) No movement….Strange….
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JustJulie
Regular Member
Joined : Mar 2006
Posts : 355
Posted 5/5/2008 6:34 AM (GMT -8)
Welcome.

My husband had Brachytherapy with very few side effects other than some fatigue which is perfectly normal.  If you wish to read about his journey, check out the thread "JustJulie's Brachytherapy Journey" and if you have any questions, please post them.

Good luck in your decision.

JustJulie

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GBINAB
Regular Member
Joined : Apr 2008
Posts : 206
Posted 5/6/2008 8:29 AM (GMT -8)
hi and welcome to this wonderful knowledge base
I can not offer my experience in any other form of treatment other than my own which was an open surgery on June 2007
from my research and learning of other members treatment I have seen members on this board with the same confined cancer score as yours and mine (3+3=6) that went through robotic surgery and went back to potency in a matter of fe weeks
in my case with the open surgery I am 10 out and feeling great progress in potency and had no issues what's so ever with continence
the key factor is a good experience surgeon
my decision was based on the fact that what I heard about radiation methods was that side effects can appear after a long time and might stay forever also the fact I wanted it all out and in case any other treatment needed I have the option of radiation after
if radiation takes place first surgery would be a challenging task for the fact that the organs are deformed however if I had to do it over the only thing I would change is to select da vincie over open for faster recovery period

You are very young and I am sure that any treatment you chose your body will recover fast and well depending on your health and abilities pre surgery

Good luck and keep us posted
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Johnny Canuck
Regular Member
Joined : Jan 2008
Posts : 88
Posted 5/6/2008 5:11 PM (GMT -8)

If I had it to do all over again, I would absolutely go for the brachytherapy. No doubt about it. I've posted my process as well, and if there is anything to update it is simply that the side effects are fading...I'm just over two months in, and all is cool. I wouldn't be talking you out of making a similar choice.

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GBINAB
Regular Member
Joined : Apr 2008
Posts : 206
Posted 5/6/2008 6:18 PM (GMT -8)

Johnny Canuck said...
If I had it to do all over again, I would absolutely go for the brachytherapy. No doubt about it. I've posted my process as well, and if there is anything to update it is simply that the side effects are fading...I'm just over two months in, and all is cool. I wouldn't be talking you out of making a similar choice.

I have heard of some better results even in the long term with some that went the radiation route, however it is harder to predict what part of the healthy organs the radiation will EAT UP ..and its left to be determine how precise science is that .... i heard great things about that procedure being more targeted and precise than other external radiation methods ...usually the side effects show up 2 to 3 years down the road but as i mentioned i heard of better results on the long term as well...i am happy to hear you had done well with your treatment .. we all fight a common disease and the main goal is to deafet it ..
Good Luck again . and congrates !!
GB
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Johnny Canuck
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Joined : Jan 2008
Posts : 88
Posted 5/7/2008 3:05 AM (GMT -8)

GBINAB said...

I have heard of some better results even in the long term with some that went the radiation route, however it is harder to predict what part of the healthy organs the radiation will EAT UP ..and its left to be determine how precise science is that ....

I think brachy has been a clinical tool for over a decade now, and the nature of the radioactivity is carefully plotted. My Iodine 125 seeds have a half-life of 60 days and and are specifically placed in the prostate...inserted on strands so they go (and stay) where they ought to. That, according to ultrasound mapping. The whole thing is that the radiation is placed just where it should be, for as long as it is needed.

I take herbal supplements to ameliorate the side effects...whether that has helped this to be easier I can't say. I do find it hard to understand how I'll have problems down the road when the seeds are actually inert after a year. It is the narrow focus of the treatment that is meant to spare the neighbouring giblets. Fact is though...surgeons promote surgery, radiation oncologists promote brachy if the candidate is right for it.

I don't seek to turn this into a debate as there are no wrong choices as long as we fight this fight, but I can only say that the science looked good going in, I feel good, and I'd do it again.

An edit to answer the original question (typical Kraut...ask me what time it is and I'll tell you how to build a watch). After two months, I feel some fatigue some days which would not be helped by my arthritis. The major thing is that when it's time to pee, it is time to pee. Soon. That has kept me a little closer to home of late, but most of that, I think, is a reluctance to find myself on the parkway and pulling over to take that whiz. No leakage, no ED. And I find that tendency towards an insistant bladder is fading now too. Hope this helps...

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GBINAB
Regular Member
Joined : Apr 2008
Posts : 206
Posted 5/7/2008 8:21 AM (GMT -8)

Johnny Canuck said...

GBINAB said...


I have heard of some better results even in the long term with some that went the radiation route, however it is harder to predict what part of the healthy organs the radiation will EAT UP ..and its left to be determine how precise science is that ....

I think brachy has been a clinical tool for over a decade now, and the nature of the radioactivity is carefully plotted. My Iodine 125 seeds have a half-life of 60 days and and are specifically placed in the prostate...inserted on strands so they go (and stay) where they ought to. That, according to ultrasound mapping. The whole thing is that the radiation is placed just where it should be, for as long as it is needed.
feel good, and I'd do it again.
Hope this helps...

H Johny ,
you are right there is no such thing as right or wrong treatment ... i wish there was and we all go down the same route without any side effects or Re occurrence ...but it is an individual choice .
As for myself i did consult an oncologist and a radiologist before before i went to surgery and to my surprise they also recommend to go the surgery route (where you would think they will promote their own treatments), however i a almost 11 months out and i must happily report that 2 weeks after surgery had no incontinence problems and in the last 3 months i see progress with ED as well to the oint start having usable erections and getting better every week , it is a longer process maybe with the open surgery compared to the daVinci ,but it is a process no matter which route you take , and i hope you will only make progress with every day where the main goal in mind (as you had mentioned ) is to beat that disease.


Good Luck and keep us posted !!
B :-)
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GBINAB
Regular Member
Joined : Apr 2008
Posts : 206
Posted 5/9/2008 7:54 AM (GMT -8)
again i must concur with Ziggy....
at your young age and perfect health otherwise yo probably will do great with Surgery and the following side effects ..and try to eliminate the cancer all together....

Good Luck
GB
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just al
New Member
Joined : Apr 2008
Posts : 6
Posted 5/16/2008 2:16 PM (GMT -8)

I was diagnosed in March '07 and had Brachytherapy in Jan '08. To date I can describe two 'problem' areas with regard to the procedure. The first is burning with urination, which seems to be closely related to diet. How long that situation will last is inknown. The second issue is sexual in nature. Erection quality is good, but there is unbearable pain both at arousal and ejaculation, if that stage could be reached. This situation existed soon after the procedure, so all indications are that nerve fibers were possibly damaged by the needles. It is also unknown how long this will last.

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Johnny Canuck
Regular Member
Joined : Jan 2008
Posts : 88
Posted 5/16/2008 7:46 PM (GMT -8)

just al said...

 To date I can describe two 'problem' areas with regard to the procedure. The first is burning with urination, ...The second issue is sexual in nature.

Al, I'd have to say that one of us is going through an atypical response to the treatment. I have been taking zyflamend and a high-potency omega-3 fish oil with the express intention of avoiding nasty side effects. These goodies were recommended by a naturopath, and perhaps they are responsible for the difference in our stories. I'm not saying that things are the way they were...but I don't figure I have too much to complain about.

If you check my thread, you can see my path took a certain direction. Perhaps the complementary medicine helped. Bottom line...I'd do it again, with no regrets.

Happy Trails.

JC

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smilingoldcoot
Regular Member
Joined : Jan 2008
Posts : 338
Posted 5/16/2008 7:56 PM (GMT -8)

Chris

Have you considered Proton?

yeah tongue yeah
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wiggyann
Regular Member
Joined : Apr 2007
Posts : 171
Posted 5/17/2008 3:53 AM (GMT -8)
Hi Chris :-)

My husband had brachytherapy (90 seed pallidium) plus 25
IMRT (radiation treatments) in the first half of 2007. He did not have any problems with the radiation treatments and the only problem from the brachytherapy (which he still has ) is that when he has to urinate, he can't hold it long. Hopefully that will eventually go away.

Diagosed at 68
PSA 7.3
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wiggyann
Regular Member
Joined : Apr 2007
Posts : 171
Posted 5/17/2008 4:16 AM (GMT -8)
Sorry 'bout that everyone... I don't know what happened
I was typing my husband's information at the bottom and
suddenly the screen disappeared.


I'll try once more...

Husband 68 and Retired
PSA had been up to 7.3, but was 6.6 at biopsy
Eight out of twelve cores positive for adenocarcinoma
Gleason 7 (seven cores 3+3=6, and one was 3+4=7)
stage T1c
PSA after nine months was 0.7 (Thank you Lord)
next PSA coming up soon

Chris, I noticed that you had 50 cores taken at your biopsy. Was this done in the urologist's office?

Wishing you the best.
Wiggyann
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just al
New Member
Joined : Apr 2008
Posts : 6
Posted 5/17/2008 5:17 AM (GMT -8)
Johnny thanks for your reply. I should have mentioned diagnosis at age 64 with 6 of 12 samples positive and PSA 5.1 around that time. Also, over the 8 months prior to the procedure I managed to reduce the PSA which had spiked to 7.1, by a change in diet, i.e no dairy, and using a soy, flaxseed and pomegranite juice combination. It is possible that the prostate might have shrunk during this period. Absent any underlying physiological problem, that appears to be the only significant diversion from the 'norm'. Your reference to zyflamend suggests that inflammation might play a role in reactions, etc. I might try some gingerly at first because it appears to contain elements which may irritate the bladder. I see my urologist next month for my first post op PSA. Thanks once again for your response.

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ChrisR
Veteran Member
Joined : Apr 2008
Posts : 849
Posted 5/17/2008 7:37 AM (GMT -8)
The Dr. I saw does 52 points.  He is one of 5 or 6 in the country doing this now.  I was knocked out for the whole thing, so it was breeze.  He says I have the same chance for treatment success doing brachy or surgery.  He does brachy and is not pushing me either way.  If I want surgery he said he would send me to Dr. Partin at Johns Hopkins or the Cleveland Clinic.  He also said that if I was older he would not even treat me.  I forgot to ask how old.  I don't know why he thinks it is so low risk.  We all know from here no matter what your numbers anything can happen.... Chris 42 years old 4 out of 52 cores “small focus” positive (4/08) 2 HGPIN suspicious of cancer Gleason 3+3=6  (Wheeling Hospital WV pathologist, Jothan Epstien Johns Hopkins confirms) PSA 2.4 (11/03) PSA 2.57 (7/06) PSA 2.75 (8/07) PSA 2.76 (3/08) No movement….Strange….
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KC9AOP
Regular Member
Joined : Jun 2008
Posts : 85
Posted 7/11/2008 2:49 PM (GMT -8)

wiggyann said...
Sorry 'bout that everyone... I don't know what happened
I was typing my husband's information at the bottom and
suddenly the screen disappeared.


I'll try once more...

Husband 68 and Retired
PSA had been up to 7.3, but was 6.6 at biopsy
Eight out of twelve cores positive for adenocarcinoma
Gleason 7 (seven cores 3+3=6, and one was 3+4=7)
stage T1c
PSA after nine months was 0.7 (Thank you Lord)
next PSA coming up soon

Chris, I noticed that you had 50 cores taken at your biopsy. Was this done in the urologist's office?

Wishing you the best.
Wiggyann


I'm going in for a Stereotactic Transperineal Prostate Biopsy in 2 weeks. The doctor averages 1.44 cores per gram of volume so I may end up with more than 50. This is a newer approach where you are under general anesthesia and the prostate is divided into 8 regions.

If you are interested I can provide more info. Don't want to hijack this thread.
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Salty_clark
Regular Member
Joined : Apr 2008
Posts : 95
Posted 7/11/2008 7:10 PM (GMT -8)

I hate to be one who throws cold water on all these glowing reports of brachy treatment but I feel it necessary to reveal the plight of a dear old friend of mine who underwent brachy on 1 April 08.  He is a life long friend and it pains me no end to hear of his problems following brachy.  Ed is in Dallas and supposedly had top radiation specialist handling his case.  Seeding with about 85 seeds mapped.  He had external beam prior to the seeding with relatively little side affect.  Now he is experiencing radiation burn (his description: "like a blow torch pointed at his perineum".)  He also is totally incontinent and also experiences bouts of bowel incontinence.  He is totally impaired sexually.  Before the seeding he was sexually active.  The doctors tell him that he will just have to wait it out and hope for the best.  Perhaps he is the exception but I can definitely say that I am glad I elected to get the da Vinci even though I had complications following the surgery.  He says he wishes he had done the same as me. Sorry for being the bearer of bad news but I felt you needed to know.

 

 

Salty

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thoullis
New Member
Joined : Jun 2006
Posts : 4
Posted 7/13/2008 1:04 PM (GMT -8)

I was diagnosed with PC in April 2006 Gleason 6 T1a 1 out of 13 cores NO SYMPTOMS WHATSOEVER!! and had Brachy in Feb. 2008 after nearly 2 years 'watchful waiting'. (I am a limey by the way).

I have been taking Tamsulosim tablets since the op which promote a reasonable urinary flow but stopped taking them a couple of days ago by way of an experiment. Now Urinary flow during the day is OK-ish but at night time it takes quite a while to empty the bladder. So I might resume the tablets. To be fair I was warned that it can take up to a year for normal service to be resumed in this department. I normally get up once during the night to pee. 

Like just al I also experienced a burning sensation on arousal and ejaculation but this is gradually lessening in intensity. The tamsulosim tablets also lessen the amount of ejaculate produced. Another unwanted side-effect is the desire to perform a bowel movement when peeing especially first thing in the morning and consequently I have never been so 'regular' in my life!! I am told that this should resolve eventually.

My wife recently had a hysterectomy and thus sexual activity has had to be put aside for the time being. However, regular morning erections suggest that all is relatively OK in that department.

Would I take the same route again - yes most definitely! I would also like to comment on salty clark's thread. You mention that your friend had external beam prior to brachy. This could account for the problems your friend is experiencing and the problem might not be caused by the brachy at all!!!

I do feel strongly that we should not be carried away by this term Prostate Cancer which in its early stages is one of the most treatable of all cancers. Unfortunately, society continues to associate the 'C' word with terminal illness. However, spare a thought for those individuals who have been diagnosed with late onset diabetes! Unlike PC diabetes is at present an incurable disease! Although the daily effects can be controlled, longer term side effects include much greater risk of heart attack/stroke, problems with feet which can in some cases lead to amputations (yes really), eye problems and sexual dysfunction!

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just al
New Member
Joined : Apr 2008
Posts : 6
Posted 7/13/2008 2:03 PM (GMT -8)
My problem with pain at arousal and ejaculation was sharply relieved when I started using the Omega 3 fish oil capsules, and is slowly tapering off. Granted I only began using the fish oil about 4 months after the procedure. This pain symptom would appear to be related to susceptibility to body inflammation, which of course varies with the individual.

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Johnny Canuck
Regular Member
Joined : Jan 2008
Posts : 88
Posted 7/16/2008 5:16 AM (GMT -8)
Interesting thread, now that I am almost 5 months out of the gate. JustAl, I'm pleased to hear that the Omega3 might be helping out. The trouble with supplements and such is that so much info is anecdotal, but I seem to note a real difference in both my arthritis (AS) and my giblets if I slip a couple of days with the fish oil and zyflamend. I also think that I may get that 'burning o' the butt' feeling, as well...so I'm there for the foreseeable future.

Saltyclerk...I am indeed sorry to hear about your friend, and perhaps he'd like to check those goodies out to see if they help him.

Thoullis...are you saying that the flowmax cuts back on the ejaculate and that it may return to its former self (well, sterile) in time? Not to attract the mod's attention, but a great big whoopie on that, if so! Who knew that the dry well syndrome would be so annoying?
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just al
New Member
Joined : Apr 2008
Posts : 6
Posted 7/16/2008 6:54 AM (GMT -8)
JC I had actually tried both of your recommendations... fish oil and zyflamend, and found a response from the fish oil. I had used the zyflamend liquid instead of capsules, so I don't know whether that made any difference. It seems to be more applicable for joint pain. The first sign of my relief came with reduced burning in the peritoneum, although it was never really intense. Individuals who are a bit sarcoid, as I am, would definitely need to watch out for inflammatory reactions after any type of surgery.

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lvdgs
Regular Member
Joined : May 2008
Posts : 70
Posted 7/16/2008 10:09 AM (GMT -8)

I'd like to know if you started this medication before brachytherapy or after? I've ordered the zyflamend and my husband goes in on the 23 rd for seeds. I'm wondering if the problems are more intense due to the amount of seeds used in each individual? And also if that's the case if EBR is used as well?

Gail

  

 

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chris nz
Regular Member
Joined : Sep 2007
Posts : 33
Posted 7/17/2008 12:02 AM (GMT -8)
Hi, this thread has been interesting for me, I have been on active surveillance for 4.5 yrs and have recently decided on Brachy using I125 seeds on August 23, going for planning day after tomorrow.
regards chris nz
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just al
New Member
Joined : Apr 2008
Posts : 6
Posted 7/17/2008 12:21 AM (GMT -8)
I began using the fish oil 4 months after the procedure. Zyflamed arrived by mail order, and I started using that also about 2 weeks after the fish oil course began. The effect of using Zyflamed appeared to be marginal. It's hard to say what the effect might have been if used exclusively. It's also unknown whether the fish oil would have the same impact, if I had used it immediately after the procedure. It would appear that inflammation can affect both the prostate itself and the seminal vessels.

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Johnny Canuck
Regular Member
Joined : Jan 2008
Posts : 88
Posted 7/18/2008 4:34 AM (GMT -8)

lvdgs said...

I'd like to know if you started this medication before brachytherapy or after? I've ordered the zyflamend and my husband goes in on the 23 rd for seeds. I'm wondering if the problems are more intense due to the amount of seeds used in each individual? And also if that's the case if EBR is used as well?  Gail

I suppose it's a good sign that instead of this topic being the core issue of my being, I'm starting to forget some of the details. I believe I waited til the brachy to start taking the pills. The Omega 3 caps I had recommended by a naturopath (as was the zyflamend) were Nutra Sea High Potency. My oncologists were ok, if not a little bemused, by this stuff. "It can't hurt..." was the comment.

 

All in all, I think they preferred the radiation symbol I had tattooed on my upper arm. tongue

 

A quick self-edit, though, to recommend the rubber donut for the ride home!

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