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Gary H
Regular Member


Date Joined May 2008
Total Posts : 34
   Posted 5/7/2008 6:16 PM (GMT -6)   
I was wondering how everyone incontience is going?
 Mine is 4 months post surgery an am able to hold it for severl hour after I get up then as the day goes on I leak. The drip increases though out the day. Usually 2 pads per day.
 Age 48
 PSA 46 Oct (07)
 Gleason 3+4=7
 Biopsi 11 of 12 pos.
 DaVinci Jan 08 Dr W. Johnston
 Evanston Northwestern Illinois
 Post Op  PSA .7
 Started Lupron April 1st
 Radiation June (08)?????


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 5/7/2008 6:38 PM (GMT -6)   

    Two pads is good.  You should be on your way to being dry.  Good Luck.

    KW


    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 15, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
 
     


Gary H
Regular Member


Date Joined May 2008
Total Posts : 34
   Posted 5/7/2008 6:42 PM (GMT -6)   
I am supose to start Radiation in June but was told it could bhe delayed if incontience is not improved. The waiting suck along with the leaking. KW I read all your posts I hope that they can some how get you dry also.
 Age 48
 PSA 46 Oct (07)
 Gleason 3+4=7
 Biopsi 11 of 12 pos.
 DaVinci Jan 08 Dr W. Johnston
 Evanston Northwestern Illinois
 Post Op  PSA .7
 Started Lupron April 1st
 Radiation June (08)?????


Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 5/7/2008 7:15 PM (GMT -6)   
I'm about 3 months out and down to 2 pads a day. Nothing at night. I Am able to do repairs around the house with minimum dripping. I would say that you are doing good. Not all of the guys here are that lucky with the incontinence. Count your blessings.
Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C 


wallypm
Regular Member


Date Joined Apr 2008
Total Posts : 48
   Posted 5/7/2008 7:17 PM (GMT -6)   
Due to get the catheter out tomorrow, I can hardly wait. I have had leakage since the surgery around the catheter and been unable to control regardless of what I do. I have to wonder is there any relationship between incontinence and catheter leakage.
Age 70 -  Diagnosed late March
PSA 5.52 - stage T2b,T2c
Gleason 7 (4+3)
quad heart bipass 4/06
surgery on 4/28/2008, Greensboro NC by David Grapey
path report showed margins and lymph nodes clear gleason (4+3)
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 5/7/2008 7:27 PM (GMT -6)   

    Wally,  I'm not sure there is any relationship to how soon you will regain control.  Not to scare you but my cathiter also leaked the entire time.  Wish you well after removal.

    KW


    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 15, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
 
     


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 5/7/2008 7:33 PM (GMT -6)   
wallypm,
 
no relation between the two.
 
yes, i am still slightly incontinent 5 months post surgery.....but a friend of mine leaked constantly while the catheter was in and was totally dry within 5 days after the catheter was removed.
 
danman
Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 5/7/2008 8:27 PM (GMT -6)   
I was dry at 9-10 weeks. But still have the surprising squirt every now and then - passing gas is nuts, as well as stretching, lifting without clenching. I wear boxers and it sort of falls down my pant leg. It doesn't show. Not sure if I wore briefs if it would stain or not. Sigh...
All things being equal, I'm lucky and grateful to be where I am.
Paul
47 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6      (Biopsy 3/07 just suspicious)
10/07 PSA 5.06   (Biopsy 11/07  1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC  www.roboticoncology.com
Saved both nerve bundles.
Path Report:  Stage T2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
PSA 0 at six weeks
Pad free on March 14 - (10 weeks.)
ED - Take 100mg viagra every night.
Totally usable erections at 10 weeks.
 
 


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 5/8/2008 6:31 AM (GMT -6)   
My husband is 2 weeks out of cath removal. 1 or 2 pads a day. But he can't stand the least little bit so its not heavy when he changes it. Still having small accidents especially when laughing (I make him do that alot). Nothing at night.
From what I understand you are doing great. Keep positive.
P.S. Yesterday he racked leaves, cut down a tree, and cut the grass. Not supposed to be doing that so soon and was sore and tired but he didn't leak the whole time.
Cindy


Age 51 Kent Cindy 49
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 another round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th. Only took 1 1/2 hours. In recovery 1 hour.  Both nerves were spared.
Home 4-11 - incision looks completly healed on the outside by 4-25
Cath out 4-22 dripping some
5-3 Still incontinence with sneezing or coughing but not too bad
Cialis 5 mg at night to start.Stopped Cialis after taking for 3 days as it caused rawness with bm. Will start back in a week or so to see how it goes
 


StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 357
   Posted 5/8/2008 3:37 PM (GMT -6)   
I can't seem to get from 1 pad down to zero.

One thing that is also extremely irritating, as an aside, is toilets that are too small - like those on planes. I sit down to do a #2, but I end up leaking. On a regular size toilet, I can point little StrictlyInc into the toilet to avoid making a mess, but on those planes that is impossible due to space and size of the toilet. As a result, I try to avoid using plane restrooms to some extent (a hassle as I'm a frequent business traveler).

TMI, I know, but where else am I going to complain? :)
____________________

Prostate cancer diagnosed: May 15, 2006 (age 40)
Gleason score: pre-surgery 3+3=6; post-surgery 3+4=7
daVinci radical prostatectomy: July 25, 2006
size of tumor: approx 1.1 inches; negative margins from surgery

- number of pads/day at 3 months after surgery: 3 to 5
- number of pads/day at 4 months after surgery: 1 to 2
- number of pads/day at 6-18 months after surgery: 0 to 1

- 1st post-surgery PSA: 0 (Nov 2006); 2nd post-surgery PSA: 0 (Feb 2007)
- 3rd post-surgery PSA: 0 (May 2007); 4th post-surgery PSA: 0 (June 2007); 5th post-surgery PSA: 0

The search for timber: took Viagra/Cialis approx. every other day, ErecAid once a day, injections. Peyronie's diagnosed 7/5/07. Now on daily Cialis, L-arginine and pentoxyfylline. Peyronies has stabilized and significantly reversed.

- PGE1 batting average: .364 (4 for 11)
- Bimix #3 batting average: .722 (13 for 18) Bimix #1 batting average (8 for 8) = 1.000
- Trimix batting average: .500 (1 for 2) Grand total 26 for 39 = .667

"Lost in the valley without my horses, no one can tell me what my remorse is..."

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