catheter out this morning (5/8/08)

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wallypm
Regular Member


Date Joined Apr 2008
Total Posts : 48
   Posted 5/8/2008 10:31 AM (GMT -7)   
tongue  Got the catheter out this morning and will not see the doctor agin for 30 days. Was able to start and stop my stream but since then its been drip drip drip. I guess from what I've learned from you guys on the board it just time and exercise from here out. I was surprised the Dr paid little attention to the driping and said things would be fine.  Boy, from some of the problems I've seen on the board I hope so..Thanks to all for you encourgement and help.


Age 70 -  Diagnosed late March
PSA 5.52 - stage T2b,T2c
Gleason 7 (4+3)
quad heart bipass 4/06/06
surgery on 4/28/2008, Greensboro NC by David Grapey
path report showed  lymph nodes clear cancer has spread to the margins gleason (4+3)
catheter removed 5/8
Post surgery PSA 0  at 4 weeks

Post Edited (wallypm) : 7/3/2008 7:01:14 AM (GMT-6)


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 5/8/2008 10:36 AM (GMT -7)   

Wally,

Dripping is typical....so there was no reason for the doctor to pay much attention to it.  Mine paid absolutely no attention to it.  Just said if I became continent in less than 5 or 6 months, I would be fortunate.

Congratulations on having that thing removed....and don't forget to do those kegels and walk as much as you can, even a couple of miles a day if you feel up to it.

You will leak MORE at first when you walk, but sometimes things have to get worse before they get better.

Good luck to you, sir.

DanMan


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 5/8/2008 11:33 AM (GMT -7)   
Hey Wally,

Congrats on freedom day! Its great news that you can start and stop your stream. Do it several times when you pee and you will discover the muscles that you need to exercise with Kegels. Walk, do Kegels and remember to squeeze before you sneeze...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 1/17/08 0.00. 
Next PSA test on 7/17/08
"Patience is essential, attitude is everything."


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 5/8/2008 11:45 AM (GMT -7)   
Good news, indeed.  Glad you got rid of the thing.  Don't be too premature as to expectations confirmed.  The catheter is just removed, it has been stretching the bladder neck opening, you are still swollen internally and your stitching is only half healed.  Consider that flesh, when stretched, takes some time to tighten back up.  Tomorrow, the next maybe, things might start sealing off nicely.  I'd wait a week to see what you have, that's a better timeline to determine where you are as far as initial continence.  

James C.  
Help support the forums so they can support you:  http://www.healingwell.com/donate  
Age 60 
4/19/07   PSA 7.6, referred to Urologist, recheck 6.7
7/11/07   Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07   Path report:  3 of 16 PCa, 5% involved, left lobe , GS 3/3:6. 
9/24/07   (Open) Retropubic Radical Prostatectomy performed 
9/26/07   Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07  ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08   Caverject started/stopped, aching.  2/24/08 .5ml Bimix started-success
5/7/08     ED- Viagra, pump, no response- Trimix .075ml continues
              Post-surgery PSA's:  3 mt:0, 6 mt:0,


wallypm
Regular Member


Date Joined Apr 2008
Total Posts : 48
   Posted 5/8/2008 1:01 PM (GMT -7)   
Thank's for the encouragement guys I've started walking and my Dr has given some pelvic floor exercises, are these kegels? Biker thanks for the squeezing on sneezing that'l help.
Age 70 -  Diagnosed late March
PSA 5.52 - stage T2b,T2c
Gleason 7 (4+3)
quad heart bipass 4/06
surgery on 4/28/2008, Greensboro NC by David Grapey
path report showed  lymph nodes clear cancer has spread to the margins gleason (4+3)
catheter removed 5/8


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 5/8/2008 2:19 PM (GMT -7)   
Yes, those are kegels.
Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


KrisP
Regular Member


Date Joined Mar 2008
Total Posts : 162
   Posted 5/8/2008 3:04 PM (GMT -7)   
Hi Wallypm,
I'm about a week and a couple days post catheter removal and I'm doing pretty good. I haven't seen any leaking since and have not been using any pads but this morning after bending over to pickup something on the floor I noticed a few drops. I wiped it off and bend down again mimic the first time but this time I tried to hold in the urine and it worked. I'm not sure what I did different but I'm very lucky to be this far with minimum leaking (knock on wood). I've been walking a lot since the day of surgery and some told me that helps the leaking. I'm not a doctor but whatever I'm doing its working. Hope my first PSA result is negative also.
Good luck and all the best.
Kris
Biopsy done 3/2008
Pathology report: Gleason 6 (3+3), involving left lobe
DRE=15gm with indurated left base and mid prostate
Cores positive: left base medial, left base lateral, left mid medial and left mid lateral (4 of 12)
Clinical stage t2b.
Prostate Carcinorna 185
DaVinci Surgery on 4/21/2008 in Austin by Dr Randy Fagin.
Pathologist report upgraded to a Gleason 7 (3+4)
Clinical stage upgraded also to a T3a
Margins Clear


Gary H
Regular Member


Date Joined May 2008
Total Posts : 34
   Posted 5/8/2008 3:38 PM (GMT -7)   
Wally you will learn to squeez on everything you do that is assertive. cough squeez, set up squeez, bend over squeez, get my point. As soon as you forget squirt squirt squirt.
 Age 48
 PSA 46 Oct (07)
 Gleason 3+4=7
 Biopsi 11 of 12 pos.
 DaVinci Jan 08 Dr W. Johnston
 Evanston Northwestern Illinois
 Post Op  PSA .7
 Started Lupron April 1st
 Radiation June (08)?????


Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 5/8/2008 7:26 PM (GMT -7)   
Hi Wally,
I'll bet you don't miss "Mr. Hang" as we refer to it on this forum. I had complications and had the drain tube and catheter for over two weeks. Daily walks and Kegels did the trick for me. I am three months out and able to walk without leaking. Sounds like you are coming along just fine. Be patient. As my Urologist said, measure your progress in weeks, not days. It sure helped me get through it.
Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 5/8/2008 8:52 PM (GMT -7)   
I wish you luck. But if you lag behind we will be here for you.

KW
    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 15, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
 
     


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2268
   Posted 5/8/2008 9:49 PM (GMT -7)   
I kinda got attached to my catheter and enjoyed a full night's sleep without having to get up to make my bladder gladder.
 
You'll be continent before you know it.  In the meantime, keep up your exercises.  I didn't do many Kegels, and still ended up continent well before I'd gone thru a Costco-size box of Depends.
 
Take care and be well...Tim
Age 59  PSA quadrupled in 1 yr (0.6 to 2.5) 
DRE neg  1 of 12 biopsies pos (5%) 
Open surgery June 2006 
Cancer confined to prostate (1 pea-sized area) 
T2a  Gleason 5 (3+2)  PSA < 0.1  


wallypm
Regular Member


Date Joined Apr 2008
Total Posts : 48
   Posted 5/21/2008 5:47 AM (GMT -7)   
Its been nearly two weeks now and still dripping like a faucet though it seems to get better at times. What I'm questioning now is the odor of the urine.  Does a strong stench or odor indicate anything. sad
Age 70 -  Diagnosed late March
PSA 5.52 - stage T2b,T2c
Gleason 7 (4+3)
quad heart bipass 4/06
surgery on 4/28/2008, Greensboro NC by David Grapey
path report showed  lymph nodes clear cancer has spread to the margins gleason (4+3)
catheter removed 5/8


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 5/21/2008 6:26 AM (GMT -7)   
Wally, the tendency when leaking is to not drink as much fluid . . . be sure you are taking in enough fluid and see if this improves the odor.

As for the leaking, 3 weeks is still early and if you are seeing some improvement "at times" you are going in the right direction. Good luck.

;o) Linda & Bob
Bob (62) - Laproscopic Prostate Removal Sept 27, 2006 at age 60.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
Pathology - Gleeson 3 + 4; stage T2; cancer completely contained, even a second more aggressive, previously undetected cancer) PSA UNDETECTABLE Nov 2006; Feb, May, Oct 2007; May 2008.  WHOOO HOOOO! 
Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 5/21/2008 10:05 AM (GMT -7)   
Most guys are 8-12 weeks before improvement. keep your expectations realistic. stench? drink lots, avoid asparagus (haha!) and if it starts to burn or gets worse call your doc. If it just smells like really strong urine, there is probably no problem, just drink. Uro infections are fairly common after catheters come out. not a big deal to treat.
47 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6      (Biopsy 3/07 just suspicious)
10/07 PSA 5.06   (Biopsy 11/07  1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC  www.roboticoncology.com
Saved both nerve bundles.
Path Report:  Stage T2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
PSA 0 at six weeks
Pad free on March 14 - (10 weeks.)
ED - Take 100mg viagra every night.
Totally usable erections at 10 weeks.
 
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 5/24/2008 9:19 AM (GMT -7)   

tongue  Hey ~ Wally,

 

Just checking in to see how you’re doing?  It’s been 26 days.  An update would be good and I’m going to add your previous threads to this thread…  It will help Newbies who follow us.

 

Thank you for touching base with us in reference to “Our Journey”… (via e-mail).

If 1 or 10 or 20 things listed in it ~ helps make your path a little smoother… it is a gift we are grateful to share.

 

I see where you had your surgery in Greensboro.  You’re just down the road… we’ll be heading your way on June 3rd… which starts our travels for the year.  That’s why I will be moving on for awhile…  I’m sad that I missed your original thread but it’s never tooo late to stop in and say “Hi” to a new friend of HealingWell.

 

We’re glad you found all of us!!!

 

I know we can “all” make “Your Journey” smoother ~ just by being here for you!  

Thank you for reaching out!!! 

 

You’ve just made your own journey a lot smoother.  There are a lot of Helping Hands here… and just by reaching out like you did ~ you will have a much easier time.  We’ve been where you are now…. Knowing you aren’t alone… makes a big difference in psyche and spirit.

 

We will always be here for you… This is truly a great forum!!! ~ You have joined! You are now part our forum family ~ a group of wonderful individuals who are so willing to share their journey with you! 

 

It helps “all of us” ~ to help you ~ if we know where you are on your path.

So ~ Please stay with us and take our hand when you need it!  Keep posting.... OKAY!!   

  

KNOWLEDGE IS POWER... and POWER conquers fear

 

 

We wish you well on your healing/recovery stone and know that we will continue to keep you close in thoughts and prayers….  Our spirit will always be here on HealingWell because ~ caring never stops.  We are all under the same sun, moon, and stars.  Just look up and know we are thinking of you!

 

Hugs from Lee & Buddy

 

 

Threads by wallypm

New member scheduled for Robotic Surgery 4/28, 7:30AM

Back home after Da vinci surgery

catheter out this morning

 


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

4th PSA 2-13-2008 (23 months) Less than 0.1 Non-Detectable :)


wallypm
Regular Member


Date Joined Apr 2008
Total Posts : 48
   Posted 5/25/2008 5:05 AM (GMT -7)   

Bluebird, thanks for the thought.  Still have the drip, drip but am doing the kegels and walking. Can control the driping when I'm sitting or lying down but as soon as I get up and start movement, drip, drip. Now using 4/6 pads a day. What is bothering me somewhat is the fatique.  After I've been up 6/8 hours its time to take a nap.  Don't know if this is normal or not. cool Am scheduled to see my uro on the 12th.  Also, what pads did Buddy find the most effective?, I've been using the male guards by Depend.


Age 70 -  Diagnosed late March
PSA 5.52 - stage T2b,T2c
Gleason 7 (4+3)
quad heart bipass 4/06
surgery on 4/28/2008, Greensboro NC by David Grapey
path report showed  lymph nodes clear cancer has spread to the margins gleason (4+3)
catheter removed 5/8


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 5/25/2008 6:38 AM (GMT -7)   
 
i had the robitic surgery on may 9 and had the catheter removed last friday (may 23).  i came home and took a 30 minute nap and woke up and my pads were completed soaked.  i am getting up in the night when i can't sleep and go ahead and go to the bathroom.  i have leakage and don't even know it.  i am told patience, patience, patience.  i am starting he kegel's again and hopefully that will help.
 
also, when have people gone back to work after robotic surgery?  some say 2 weeks and some say lots longer?
 
 
age 48
psa went from 2.6 to 3.5
biopsy gleason 3+4
robobic surgery 5/9 (what a relieve - the wait took its toll on me)
still waiting on pathology reports but doctor seems to think surgery went well
 
 

wallypm
Regular Member


Date Joined Apr 2008
Total Posts : 48
   Posted 5/25/2008 7:18 AM (GMT -7)   
Rob, I find the pads during the day are ok but at nite the complete underwear is better. On the work it will vary with the individual, the type of work you do and how your body reacts to the surgery.. Most I've noticed start back to work on a graduated scale, working up to a full day. I would suggest starting at a couple of hours a day when you feel up to it and go from there.
Age 70 -  Diagnosed late March
PSA 5.52 - stage T2b,T2c
Gleason 7 (4+3)
quad heart bipass 4/06
surgery on 4/28/2008, Greensboro NC by David Grapey
path report showed  lymph nodes clear cancer has spread to the margins gleason (4+3)
catheter removed 5/8


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 5/25/2008 11:55 AM (GMT -7)   

tongue  Hey Wally,

At the beginning we used Depend Underwear for night-time and Depend Guards for men during the day... The Guards were a little stiff and we eventually transferred over to Tena / Serenity http://www.tena.us/consumer/Products/SelectionGuide.aspx

 

Here’s their link for free samples below:

 

They are much softer made for women and not so bulky. 

They cup nicely and are very comfortable.

 

Here’s another thread with info… These pads are hot!  started by dawgfan

 

A suggestion is to ask the pharmacy if they have trial sizes available… this will allow you to try them without having to buy the whole pack!  You don’t get unless you ask and the answer will be yes/maybe/no….  worth asking!  My uncle was given 3 pair of the underwear to try.... when he had his cystoscopy...

 

It’s good to hear from you and it’s nice to see that you are staying close. 

You are in our thoughts and prayers as we all move forward on a path we found ourselves on…. and new friends to walk with.

In Friendship ~ Lee & Buddy


wallypm
Regular Member


Date Joined Apr 2008
Total Posts : 48
   Posted 5/28/2008 4:52 AM (GMT -7)   
redface  Well, went to the physical therapist yesterday for some work on the dripping problem and discussed the urine problem to which she had me give a sample.  She didn't like what she saw so I was sent back to the Doctor. He feels it is a bladder infection but is running further tests on the urine sample.  Put me on Amoxicillin, ugh more pills confused   Further he was surprised that I'm not having more success in drying up but he pointed out every patient is different and the ones he expects to be wet dry up and others are wet. Still early.
Age 70 -  Diagnosed late March
PSA 5.52 - stage T2b,T2c
Gleason 7 (4+3)
quad heart bipass 4/06
surgery on 4/28/2008, Greensboro NC by David Grapey
path report showed  lymph nodes clear cancer has spread to the margins gleason (4+3)
catheter removed 5/8


wallypm
Regular Member


Date Joined Apr 2008
Total Posts : 48
   Posted 7/2/2008 6:42 AM (GMT -7)   
Well I'm now into the 8th week since Mr Hang was removed tongue   and am starting to show some progress on the dripping.  If i'm sitting or lying down nothing but as soon as I get up the dripping starts mad particularly when I'm doing something strenuous then it squirts out. Also I've noticed my stream is slowing down and it's harder to urinate, is that normal?
Age 70 -  Diagnosed late March
PSA 5.52 - stage T2b,T2c
Gleason 7 (4+3)
quad heart bipass 4/06/06
surgery on 4/28/2008, Greensboro NC by David Grapey
path report showed  lymph nodes clear cancer has spread to the margins gleason (4+3)
catheter removed 5/8
Post surgery PSA 0  at 4 weeks


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 7/2/2008 7:21 AM (GMT -7)   
wally, good going on the improvements.
 
not sure about the slower stream.  if anything, mine got stronger over time.
 
good luck.
Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


Dirtmover
Regular Member


Date Joined Apr 2008
Total Posts : 158
   Posted 7/2/2008 8:20 PM (GMT -7)   
i am almost 5 weeks out  of surgery and went back to work at 3 weeks 8 hour days,i too still have a dripping problem ,will use a pad a day im sure im on the right road as i am dry at night all night we will see and good luck to all of my brothers out there dealing  with  the continence crap

Diagnosed November 2007   (43 years old )
PSA 3.9 / Gleason 6 / TC1 6 cores 1 shows 25%
Sugery scheduled 5/29/08 - City of Hope - Dr. Mark Kawachi
 "First show of the day"
 and now for the new ive been waiting for
 FINAL PATH REPORT:gleason upgraded to 3+4 T2c bilateral disease,tumor involvment 5%
extra prostatic extention:absent
seminal vesical invasion :absent
pathological staging:pTNM pT2 ORGAN CONFINED
margins free of carcinoma
usable erections ;6-6-08 with little blue pill
continence; 1 pad a day, dry at night


wallypm
Regular Member


Date Joined Apr 2008
Total Posts : 48
   Posted 7/9/2008 11:58 AM (GMT -7)   
Well the stream continued to weaken confused so I saw the Uro this morning.  At first an infection was suspected but when that was rulled out they did an Ultrasound of the bladder and a Cysto.  What they did find was scar tissue had formed around the opening in the Urethra reducing the hole the urine flows thru.  During the Cysto they were able to cut a little away opening the hole but are not sure this will be a permenent fix. Has anyone else experienced this problem ? and if so what experience ? eyes
Age 70 -  Diagnosed late March
PSA 5.52 - stage T2b,T2c
Gleason 7 (4+3)
quad heart bipass 4/06/06
surgery on 4/28/2008, Greensboro NC by David Grapey
path report showed  lymph nodes clear cancer has spread to the margins gleason (4+3)
catheter removed 5/8
Post surgery PSA 0  at 4 weeks


wallypm
Regular Member


Date Joined Apr 2008
Total Posts : 48
   Posted 11/14/2008 10:43 AM (GMT -7)   
Havn't been too active on the forum and thought it was time to check in.  I'm still having a little problem with the dripping but am now down to one slim Tena pad a day.  Still have problems when I cough, get up etc. Have not been to good with the kegels and wonder if that's caused my drying up to take longer.

Age 70 -  Diagnosed late March
PSA 5.52 - stage T2b,T2c
Gleason 7 (4+3)
quad heart bipass 4/06/06
surgery on 4/28/2008, Greensboro NC by David Grapey
path report showed  lymph nodes clear cancer has spread to the margins gleason (4+3)
catheter removed 5/8
Post surgery PSA 0  at 4 weeks

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