Port Installed

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 5/12/2008 5:50 PM (GMT -7)   
I got my port installed today.
4 more weeks until chemo starts, otherwise, still feeling fine.

Just realized -
PSA update from April 21 - 38

Agreed to a Chemo trial starting on June 9th
Dx'd 2/18/05
PSA 219, bone mets, lymph node involvement
Gleason Score: 7
Current (2-24-08)
PSA: 29
Lupron, Nilandron

Personal Blog:
prostatecancerat42.blogspot.com


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 5/12/2008 6:00 PM (GMT -7)   
FLHW......Wishing you the best of luck.
KW
    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
 
     


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 5/12/2008 6:03 PM (GMT -7)   
David,

Thanks for keeping us up to date on your treatment. Take good care of yourself, get enough rest and keep moving forward.
You'll be in our thoughts and prayers.

Don & Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
PSA - Undetectable since 6/07/07

Link to journey:
http://www.healingwell.com/community/default.aspx?f=35&m=826731


anniea
Regular Member


Date Joined May 2007
Total Posts : 234
   Posted 5/13/2008 2:41 AM (GMT -7)   

Hi David,

I hope things go well for you now that you are starting chemo. I also want to Thank You for all of the attention you bring to prostate cancer. I have your site saved in my favorites and refer to it quite often. When I think about how this cancer affects the lives of so many I get really angry that there is not more attention brought to this subject. You would think that since this is a couples disease it would get more media coverage, but it is so rare to hear anything about it on TV.

 

Thank you for all the work and time you put into this, we all gain more insite from people like you.

Warmest Wishes

Diana 


Rick & Diana
Age 68/ 67@ Dx
6-30-06  PSA 2.54
1-22-07  PSA 4.98
1-26-07  PSA 5.09
Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09
Bone Scan 3-1-07 Clear
3-6-07 Triple Spinal Fusion (due to old back injury)
Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins
4-29-07 PSA 0.02
6-9-07   PSA 0.02
7-6-07   PSA 0.03
8-1-07   CT Scan & Chest X-Ray   Clean
 9-26-2007 PSA 0.07
11/1/07 PSA 0.1
11/30/07 PSA 0.12
01/31/2008 PSA 0.3
03/01/2008 PSA 0.3
04/28/08 PSA 0.6


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 5/13/2008 7:17 AM (GMT -7)   

David,

You will love the port. I got mine right before I started my chemo. It makes it so much easier and saves the veins. As for your chemo trial, what are they going to use? I'm on Taxotere and Prednisone. So far everything has been better than I thought it woul be.

We will keep you in our prayers. Keep fighting the good fight, brother.

War Eagle, baby.

Walt 


Age: 55 ( still alive at 55)
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007 Bone mets
Casodex 4/2007
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 6.34 12/2007
Radiation (15 treatments) started on bone mets 12/2007
PSA 6.72 1/2008
PSA 8.23 2/2008 - Starting prednisone for 30 days
PSA 14 2-29-2008 - start chemo on 3/12
PSA 12.82 3/1/2008 round one chemo
PSA 12.24 4/2/2008 round two chemo 
PSA 10.86 4/24/2008 round three chemo
 
"I will persist without exception - I will find a way where there is no way"


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 5/15/2008 8:01 PM (GMT -7)   
Walt - Tax and Predisone and if I'm in the trial arm the addition of Atrasentan.
Dx'd 2/18/05
PSA 219, bone mets, lymph node involvement
Gleason Score: 7
Current (4-21-08)
PSA: 38
Lupron only as I await a Chemo trial on June 9
Personal Blog:
prostatecancerat42.blogspot.com


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 5/15/2008 8:02 PM (GMT -7)   
Walt - also meant to ask about any side effects you have noticed? Are you doing anything to combat nuropathy?
Dx'd 2/18/05
PSA 219, bone mets, lymph node involvement
Gleason Score: 7
Current (4-21-08)
PSA: 38
Lupron only as I await a Chemo trial on June 9
Personal Blog:
prostatecancerat42.blogspot.com


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 5/16/2008 7:12 AM (GMT -7)   

David,

As for the side effects from the chemo:

1. Loss of taste buds. You will have a weird feeling in your mouth. Flavors are very different or non-existent. I have heard that eating ice while taking the taxetere will reduce this effect.

2. Nuropathy has not been a problem.

3. This one is important. Go online and but some Elasto-Gell mittens and wear them when you get the Taxetere. In a recent study the Oncologist found that cooling the hands will reduce the chance of losing your nails. I have done this since day one and have only experienced some nail pain, but no discoloration or loss.

4. Another importane issue. You will most likely get Decadron as part of the proceedure. Got buy some Zantex and take it every day, This steroid can cause some pretty bad heartburn.

5. The Prednisone will change your facial features, more rounded. It will also increase you appetite. I have gained an average of 8 pounds since we started the Prednisone.

6. I get the treatments every 3 weeks. It takes about 1-1/2 to 2 hours to run everything in. They start with the anti-nausa drug, the Decadron, Zometa, and then the Taxetere. We finish of with a flush of saline solution.

7. Hair loss. The hair on my head started to come out 13 days after the first treatment so I went ahead and shaved it off. I can see some growth back, but it is very slow. The grey ones seem to grow faster. I have lost all of my body hair. The ones that rdiation didn't get.

8. Here is my biggest one. Fatigue. It is building with every treatment. In y case it starts on week 2 after the chemo and lasts for around 2-3 days. The energy level never returns back to what I had before each round. I just try to push through and take some afternoon naps.

I read a great article yesterday about Avastin. It has been received accelerated approval for advanced HER2-Negative breast cancer. It is being tested for prostate cancer now. The studies for breast cancer were listed as Ribbon1, Ribbon2 and AVADO. Conducted at the Sarah Cannon Research Institute. Check it out. My article was in "Birmingham Medical News". www.birminghammedicalnews.com.

I hope this helps, brother.

Still in our prayers,

Walt


Age: 55 ( still alive at 55)
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007 Bone mets
Casodex 4/2007
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 6.34 12/2007
Radiation (15 treatments) started on bone mets 12/2007
PSA 6.72 1/2008
PSA 8.23 2/2008 - Starting prednisone for 30 days
PSA 14 2-29-2008 - start chemo on 3/12
PSA 12.82 3/1/2008 round one chemo
PSA 12.24 4/2/2008 round two chemo 
PSA 10.86 4/24/2008 round three chemo
 
"I will persist without exception - I will find a way where there is no way"


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 6/26/2008 7:16 PM (GMT -7)   
I was going to start a new thread but figured I'd just add to this one:

- my first treatment was almost three weeks ago (June 9th)
- I felt 'out of it' for 2-3 days. Was probably the combo of anxiety and all the steroids.
- by day 4 began to get back aches and feel generally flu-ish. Nothing a little Advil and
a heating pad couldn't help.
- I laid on the sofa Saturday and Sunday and watched the US open
- By Monday the 16th I was back to normal
- My white blood count is very low (normal around 11; mine as 1.9 on the 16th and 2.6 on the 23rd) Nuelasta may be in the future?
- As Walt warned, I have a greater appetite
- No hair loss (YEA!!!)


Yesterday, during my weekly golf game I pointed out to my friend Mark "Overall, I haven't felt this good in months". Seriously, the small aches and pains in my legs, hips and back are gone. This was right in the middle of a string of holes were I went; par, par, birdie, bogey!!! The birdie was nearly a hole in one!!!! Believe me, I'm not that good!


So now I have a the weekend to enjoy before treatment number two on Monday.
Walt - I'm praying for you tonight

Peace be with all of you and thanks for the continued support!!!
Dx'd 2/18/05
PSA 219, bone mets, lymph node involvement
Gleason Score: 7
Current (6-9-08)
PSA: 52.02
Taxotere + Prednisone + Atrasentan
[started June 9th]
Clinical Trial:
http://www.clinicaltrials.gov/ct2/show/NCT00134056?term=prostate+AND+atrasentan&rank=2
Lupron
Personal Blog:
prostatecancerat42.blogspot.com


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 6/26/2008 7:31 PM (GMT -7)   
Thanks for the update, David. Sounds like treatments are going well and your input here is important.

Good thoughts coming your way,
Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
PSA - Undetectable since 6/07/07

Link to journey:
http://www.healingwell.com/community/default.aspx?f=35&m=826731


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 6/26/2008 8:00 PM (GMT -7)   

David,

I will be thinking of and praying for you next week. Remember that the side effects will be cumulative. They will slowly grow, but you are off to a great start. I am on my second dose at 195mg. It's a big change from the 165mg that we did for 4 cycles. I got a Rx for decatrone (pill) to take for three days afterwards. It should help with the body aches. I'll let you know. I'm getting an MRI on Tuesday to checkout changes on the bone met's from 6 months ago. Love the golf score. I have not played in over 2 years but will play in a charity match in two weeks. I'll take the bogeys now.

Anyway, brother, you have a great weekend and let me know how things go.

Peace, love and hope to you. Also a big War Eagle.

Walt 


Age: 55 ( still alive at 55)
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007 Bone mets
Casodex 4/2007
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 6.34 12/2007
Radiation (15 treatments) started on bone mets 12/2007
PSA 6.72 1/2008
PSA 8.23 2/2008 - Starting prednisone for 30 days
PSA 14 2-29-2008 - start chemo on 3/12
PSA 12.82 3/1/2008 round one chemo
PSA 12.24 4/2/2008 round two chemo 
PSA 10.86 4/24/2008 round three chemo
PSA 10.4 5/15/2008 round four chemo - increase dosage next month
PSA 12.98 6/5/2008 round five chemo
 
"I will persist without exception - I will find a way where there is no way"


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 6/26/2008 8:11 PM (GMT -7)   
Hi David,
 
I'm so glad you're feeling good and it is great to hear you're getting on a good track for your treatments.
 
I wish you the very best as your forge ahead.
 
Thank you for keeping us up-to-date.
 
Kind regards,
 
Barry

norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 6/27/2008 7:07 AM (GMT -7)   
David

Glad things are off to a positive start with your treatment and here's hoping for continued sucess through this phase of the journey. PS I wish I could have a string of golf holes like that, I am really not that good.

Good luck
Norskie
norskie
Age 49, PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Surgery Pathology report 4+3=7 a couple agressive Grade 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
1st & 2nd Post PSA Blood Test .1 and less - Undetectable
3nd Post PSA Blood Test 01-17-07 .3
March 27th PSA .4 Begin Salvage Radiation April, 14 2008
Incontenence-Pad free since end of May 07 4 1/2 months post surgery 
ED back to 95% prior to surgery - no medication required.


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 6/27/2008 8:58 AM (GMT -7)   
David-
I wanted to let you know that I am thinking of you and praying for you on this next chapter in your journey. You are always such an incredible source of inspiration. Golfing? Wow! I am so happy that you are feeling well and pray for continued strength, blessings and bogeys!!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
Praying for a cured dad. First PSA 3 months!


Co-Moderator Prostate Cancer Forum


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 6/27/2008 4:21 PM (GMT -7)   

David, I hope that you continue to feel well and have many, many more good weekends.  Thanks for keeping us informed.

Regards,

Bill


August of 2006, PSA up to 4.2 from 2.7 one year ago. 
October free and total PSA 12% free and 5.0 total.
A month, or so later, 4.7.
Late in the year decide on Image Guided IMRT.
Begin 43 treatments on January 23, 2007 and finish on March 23.
Four month post treatment PSA is 1.9.
Seven month PSA is 0.8.

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, February 25, 2018 1:02 AM (GMT -7)
There are a total of 2,933,048 posts in 321,813 threads.
View Active Threads


Who's Online
This forum has 160485 registered members. Please welcome our newest member, treyb190.
226 Guest(s), 4 Registered Member(s) are currently online.  Details
07kr5, island time, Girlie, FSLondon