feeling very anxious as this was not a scheduled PSA.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

hopemylove
Regular Member


Date Joined Apr 2008
Total Posts : 65
   Posted 5/15/2008 7:05 AM (GMT -7)   
Good morning everyone,
I have been reading about all the most recent PSA results and am so happy for all the Os being posted. Larry (my husband) had a blood test yesterday and we are going for the results today, but I am feeling very anxious as this was not a scheduled PSA. Although Larry's fight only began a short time ago, he has already become discouraged as he is in a lot of pain and with each new day, a new symptom/complication arises. This week we spent the night in the ER with a swollen leg--no blood clot found--but now the Oncologist is not sure what is causing the swelling. He has decided to recheck PSA to see if the Hormone Therapy is working to bring it down. He has also decided to re-do all the CT Scans and the MRI today to see what is going on. Larry continues to have huge blood clots and blood in his urine as well as the pain. His left leg is swollen and his right leg hurts so much that at times he is not sure if it will support his weight. I know this site is for positive encouragement and everyone is always so optimistic in their postings, but I am finding it difficult to keep his spirits up (as well as my own). When we stopped at the radiologist yesterday to pick up his oral contrast for today's test, the Tech. really pushed him to refuse the IV contrast in the other tests that are to be done. He really tried to scare him. I feel that it is really important for us to see as much and as clearly as possible and I am assuming the Oncologist feels the same or he would not have ordered the contrast. Does any one have an opinion on this?? Thanks for letting me vent. [img]/community/emoticons/confused.gif[/img]

Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 5/15/2008 8:21 AM (GMT -7)   
I'm so sorry to hear about your situation and just as your "name" states, you have to continue to have hope. Hopefully, the PSA will show that the treatment is working and his PSA has been greatly reduced, if for someone reason it is not working as well, hopefully, your husband can get on another hormone therapy or combination that will be successful in getting his PSA under control.
I am confused as to why the TECH is recommending not to have the tests done? Do you know what the creatinine is? I am sure the tech is concerned because of your husband's kidney function. The swelling in the leg could be due to a kidney stone or a blockage in the kidneys. I would confirm with the oncologist that your husbands kidney function is ok and hopefully the leg swelling is just due to a kidney stone or something and not due to the cancer. I will pray that his PSA comes back greatly reduced and they figure out what is going on with his leg. Did the ER doctor discover anything in regards to his leg? Did they do an ultrasound in the ER? Also, did he have surgery for the hydroureteronephrosis? Sorry for so many questions.


P.S. I'm not a doctor, so take my questions as a concerned friend.
DX July 15, 2007
Age 62 (now 63)
PSA 5.5
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7, T3a N1 M0
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node
Bone Scan/CT Negative (Sept. 10, 2007)
Post Surgery Gleason- 4+3=7
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07
Lupron beg. Dec 03, 2007 2 yr
Radiation March 03-April 22, 2008- 8 weeks 5x a week
Praying for a cured dad. First PSA 3 months!

Post Edited (Doting Daughter) : 5/15/2008 9:43:58 AM (GMT-6)


hopemylove
Regular Member


Date Joined Apr 2008
Total Posts : 65
   Posted 5/15/2008 8:39 AM (GMT -7)   

Doting Daughter-

Thank you for your prayers--I am relying on prayers daily. The ER doctor spent 15 seconds with my husband and only said--Good news, No blood clot and then sent us home. Needless to say, I called our doctor the next day. The Tech was not relying on any blood results, but since I posted this AM, I have called the Oncologist and he said that Larry cannot have the IV as a result of yesterday's blood work. His kidney function is not where they want it to be. This was okay since it is based on a blood test but the Tech did not have this info yesterday. The Uroligist is not addressing the hydroureteronephrosis yet as he hopes the tumor will shrink in time.

Again--thank you for your prayers


Karen--New York
Husbands Info:
Age of diagnosis--62
2/28/08--PSA 279   DRE--positive/rock hard
Flomax and Casadex started
Biopsy--3/7/08--187cc--Gleason 10--12 of 12 positive--Perineural and LV invasion identified
T4 bone met.--hydroureteronephrosis/right kidney
3/28/08--Lupron Inj. started
4/7/08--Zometa IV started
 
 
 


smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 5/15/2008 9:02 AM (GMT -7)   
hopemylove
I am so sorry that Larry and You are going through so much trouble.  I only have one kidney and my creatine is usually high so there have been times they won't use a contrast in tests.
I have lifted you and Larry up to the Lord for comfort and hope that you both can find some comfort and answers  in these trying times.
 
Richard
Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
U of Florida Proton Therapy Institute
5/2/2008 LUPRON & Casodex
IMRT to start 5/15/2008 for approx 4 weeks with Proton to follow for approx 4 weeks
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM
 


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 5/15/2008 5:03 PM (GMT -7)   
Karen,
I'm so sorry to hear of your difficulties. Your husband shouldn't have to deal with pain like that - has the oncologist discussed what can be done to keep him comfortable?

When a person is exhausted with constantly fighting this disease, side effects and pain - life becomes a long round of just trying to get through each day.

I found this site on line and it's called Cancer Care - they offer online, telephone or face to face counseling for the person with cancer, for the loved one or for the professional.

www.cancercare.org/get_help/counseling.php

Maybe they have something to offer you both. It won't hurt to check it out. And we will be here so please keep posting and know we care.

Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
PSA - Undetectable since 6/07/07

Link to journey:
http://www.healingwell.com/community/default.aspx?f=35&m=826731


hopemylove
Regular Member


Date Joined Apr 2008
Total Posts : 65
   Posted 5/15/2008 6:25 PM (GMT -7)   

Well, the good news is that Larry's PSA is down to 12 which is great. The bad news is that the Oncologist believes that he has another cancer along with the Prostate Cancer. He is going for a bladder scope tomorrow and a needle biopsy of a  node in his neck. Right now both of his kidneys are blocked andhe has 10 pounds of fluid backed-up. The oncologist thinks he may have lymphoma or bladder cancer. But the PSA is 12!!

Thank you for the continued prayers,

Karen eyes


Karen--New York
Husbands Info:
Age of diagnosis--62
2/28/08--PSA 279   DRE--positive/rock hard
Flomax and Casadex started
Biopsy--3/7/08--187cc--Gleason 10--12 of 12 positive--Perineural and LV invasion identified
T4 bone met.--hydroureteronephrosis/right kidney
3/28/08--Lupron Inj. started
4/7/08--Zometa IV started
 
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, February 19, 2018 5:17 AM (GMT -7)
There are a total of 2,930,803 posts in 321,568 threads.
View Active Threads


Who's Online
This forum has 160303 registered members. Please welcome our newest member, Angelrose.
322 Guest(s), 5 Registered Member(s) are currently online.  Details
RedLabel, tickbite666, FamilyGuy, testuser1234, straydog