A question about Lupron, Casodex and sex

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dkob131
Regular Member


Date Joined Apr 2008
Total Posts : 364
   Posted 5/15/2008 6:19 PM (GMT -6)   
I had a lupron shot exactly one month ago and have been taking one tablet of Casodex a day for the same length of time.  My wife and I decided to try and fool around just a little while ago, to my surprise everything worked.  I achieved an erection and actually was able to ejaculate.
 
In most instances I wouldn't be posting this in a public forum but I'm concerned that the medications aren't working.  Has anyone had any experience with this timeline and what have the results been.
 
I'm taking the meds to attempt to shrink the tumor down and bring my PSA down before I have HDRT and follow that up with IMRT.
 
Any responses would be appreciated.
 
Dave
 54 y.o.
 Diagnosed 4/10/08
 DRE Normal
 PSA-4.1
 Biopsy- 12 cores, 4 positive highest 4+4=8
 Bone scan, CT scan and Chest X-ray clear 4/16/08
 Urologist suggested surgery 4/16/08
 MRI on 4/24/08 clear no suggestion of lymph node   involvement.
 Now trying to decide on treatment choice.


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 5/15/2008 7:13 PM (GMT -6)   
dkob131-

Not everyone becomes impotent on those drugs. OTOH, in another month or two, you might not have to worry whether the meds are working or not.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.


dkob131
Regular Member


Date Joined Apr 2008
Total Posts : 364
   Posted 5/15/2008 7:17 PM (GMT -6)   
Thanx for the reply. This disease really plays with your mind.

Dave
 54 y.o.
 Diagnosed 4/10/08
 DRE Normal
 PSA-4.1
 Biopsy- 12 cores, 4 positive highest 4+4=8
 Bone scan, CT scan and Chest X-ray clear 4/16/08
 Urologist suggested surgery 4/16/08
 MRI on 4/24/08 clear no suggestion of lymph node   involvement.
 Now trying to decide on treatment choice.


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 5/15/2008 7:23 PM (GMT -6)   
"This disease really plays with your mind." An understatement!

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 5/15/2008 7:28 PM (GMT -6)   
Hi Dave,
I had some functionality after surgery. But after one year on Lupron/Casodex there is no libido and full ED. It started about 5-6 months into the HT.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


dutchy
Regular Member


Date Joined Jun 2007
Total Posts : 75
   Posted 5/17/2008 1:53 AM (GMT -6)   
Same here Dave. We also worried that lupron wasn't working when my husband first started Lupron/Casodex. Enjoy it while you can!!!!!!!!! Eventually the Lupron/Casodex will catch up with you. Dutchy
Dutchy's husband
Diagnosis: 7/6: PSA 1,946, multiple bone metastases in thoracic, lumbar spine, pelvis, bilateral ribs and proximal left tibia, 2 weeks Casodex (50 mg)

Treatment: 3 monthly Lupron injection (22.5 mg) + Zometa (4 mg IV). Added daily Casodex (50 mg) in September 2007.

25/6: PSA 407
20/8: PSA 3,7
29/9: PSA 0.7
14/10: PSA 0.17
18/12: PSA < 0.003
15/3: PSA <0.003


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 5/17/2008 7:23 AM (GMT -6)   
Dave one of the reasons they give Casodex is for the flare effect of Lupron. I to was able to get strong erections and ejaculate shortly after surgery, however I just had my third Lupron shot in March and now I to have zero libido and I am impotent. Fighting this disease is a mind game and without the love and support of family and friends it can be tough. I pray that you have a great support system.
Don't worry about the drugs not working, THEY WILL

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
 

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