Treatment delay again

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smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted Yesterday 6:04 PM (GMT -6)   
Our appointment as  it turned out last Friday that was only a run thru scrimage without radiation.  Today was supposed to be my first radiation day. Just before we left for UFPTI I got a call that said my appointment had been delayed until Wednesday.  While I was sending out emails to friends and family giving them the information, the phone rings and they have now rescheduled me for Thursday afternoon.  At this rate we will be here all summer.  Also, with Memorial day just around the corner I suspect that will be another lost day.  It has now been over 4 months since my diagnosis.  All we can do is be patient. I suspect the international conference at UFPTI has something to do with the delay.   They said Dr. Nichols had not completed my treatment plan. ?????
 
We had been hoping to get out of here finished before Debbie's sister has kidney cancer surgery around mid July and be able to make her family annual reunion in Texas during July also.   Not sure anymore.
 
Keep us in your prayer. 
 
Richard yeah tongue yeah
Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
U of Florida Proton Therapy Institute
5/2/2008 LUPRON & Casodex
IMRT to start 5/16/2008 for approx 4 weeks with Proton to follow for approx 4 weeks
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM
 


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted Yesterday 6:55 PM (GMT -6)   
The odd few days of course would not make any difference to your treatment but it sure must be exceedingly frustrating. All dressed up and nowhere to go :-) Good luck and a successful treatment when it finally gets going. I will be thinking of you.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.1 undetectable


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted Yesterday 8:29 PM (GMT -6)   
Sometimes the waiting is the hardest part. Once the radiation gets going and you can measure and feel the results, it will all be worth. My prayers are with you and I am hoping for you a speedy recovery.

peace to you
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
 


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted Yesterday 8:30 PM (GMT -6)   
What a bummer!! We will be thinking of you and hoping things get going soon! God Bless!

Chayna
DX July 15, 2007. PSA 5.5
Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
Praying for a cured dad. First PSA 3 months!


Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted Yesterday 8:55 PM (GMT -6)   

Richard:

Boy, sure sorry to hear about this delay, but you seem to be taking it in stride.  You must have more patience than I would have.   Will have you in our thoughts for Thurs.

Dutch


Diagnosed Feb 2001  (Age 65)  Currently 72
PSA 4.8      Gleason 3+3=6      Stage   T2b
Completed Proton Therapy @ Loma Linda - 2001 - No side effects.  My journey is at: http://www.healingwell.com/community/default.aspx?f=35&m=727565
7yr PSA - 0.2
Our responsibility now is to educate men about Pca, PSA and the importance of early detection. 
 
 
 

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