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DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 5/20/2008 7:52 PM (GMT -6)   
On November 13, 2007 I had open prostate surgery.
 
On December 5, 2007 I had my catheter removed.
 
On December 10, 2007, a left groin hernia made its unfortunate appearance.
 
On January 14, 2008, I had hernia surgery.
 
On May 20, 2008, I flew from California to Illinois to Wisconsin, walked a mile or so in 3 airports, walked to dinner here in Madison and am now in my hotel room.  For the first time since my surgery, I went the entire day without wearing pads for my incontinence and the results were very good.
 
Not proclaiming myself continent yet....still worry about coughing and REAL strenuous exercise like running or heavy, extended yardwork....but this is a milestone worth smiling about for me.
 
Thanks for allowing me to share this small moment in my journey.


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 5/20/2008 8:00 PM (GMT -6)   
Thanks for sharing Danman Bob. I agree this forum is wonderful to share our thougths feelings and emotions. Glad you are improving.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 5/20/2008 8:01 PM (GMT -6)   
Thank you Danman for reminding all of us things do improve.

Congrats.

If you don't mind, My email address is in my profile. I would like to ask you something offline. Can you Email me? I will send you my question.

Tony


Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


Valentine08
Regular Member


Date Joined Mar 2008
Total Posts : 30
   Posted 5/20/2008 8:49 PM (GMT -6)   
Danman, thanks for the update and congrats.  It's details like these that make this site so very valuable.  Your experience offers hope to all who are still in a more liquid state.  So did you schlep luggage too?  That could put the system to a test.
Age 59
PSA ; PSA 9/07=3.4; '06=3.2 DRE Negative; '05=2.4; '04=1.7
Biopsy 11/07 =  Stage T1c, 12 cores, 2 positive
Gleason score= 3+3=6
DaVinci Robotic RP surgery: 2/14/08
Path report: Gleason= 3+4=7; Stage T2c


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 5/20/2008 8:49 PM (GMT -6)   
Things like this are important "milestones" worth sharing . . thank you Danman and way to go!!!!
;o) Linda & Bob
Bob (62) - Laproscopic Prostate Removal Sept 27, 2006 at age 60.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
Pathology - Gleeson 3 + 4; stage T2; cancer completely contained, even a second more aggressive, previously undetected cancer) PSA UNDETECTABLE Nov 2006; Feb, May, Oct 2007; May 2008.  WHOOO HOOOO! 
Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 5/20/2008 8:52 PM (GMT -6)   
Thanks you for sharing that - every step made is not a small thing.

All the best to you on your continued progress,
Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
PSA - Undetectable since 6/07/07

Link to journey:
http://www.healingwell.com/community/default.aspx?f=35&m=826731


Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 5/20/2008 9:07 PM (GMT -6)   

Great to hear - your post will give others hope.  Have a great rest of your trip!!!

Dutch


Diagnosed Feb 2001  (Age 65)  Currently 72
PSA 4.8      Gleason 3+3=6      Stage   T2b
Completed Proton Therapy @ Loma Linda - 2001 - No side effects.  My journey is at: http://www.healingwell.com/community/default.aspx?f=35&m=727565
7yr PSA - 0.2
Our responsibility now is to educate men about Pca, PSA and the importance of early detection. 
 
 
 


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 5/20/2008 9:23 PM (GMT -6)   

Valinetine,

Yes, carried my luggage...but only a laptop/briefcase and a small rollerbag, so not that much.


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 5/20/2008 10:27 PM (GMT -6)   
Congrats DanMan!  I remember that feeling very well.
 
As the Beatles sang,

 

 I've Got To Admit It's Getting Better; A Little Better All the Time!


D.O.B - 8/9/52

PSA: First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06.  Both lobes involved.  Six out of eight cores positive - from 100 percent to 90, to 60, to 50, two 20s and two zeros.

Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.  Volume of tumor much less than biopsy suggested.  12 percent overall.

First post-surgery PSA -- Undetectable, 2/20/07

Second post-surgery PSA -- Undetectable, 9/11/07

Third post-surgery PSA -- Undetactable, 2/15/08

Surgery for bilateral inguinal hernia repair, 4/4/08 

Post Edited (PianoMan) : 5/20/2008 9:37:23 PM (GMT-6)


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 5/20/2008 11:29 PM (GMT -6)   
Well done DanmanBob, another step on the road to recovery.
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.1 undetectable


41diagnosed
Regular Member


Date Joined Jun 2007
Total Posts : 176
   Posted 5/20/2008 11:41 PM (GMT -6)   
I remember that feeling well.  It's a great milestone and gets better still.  Congrats!

 
42 yo. now
 
5/07 PSA 4.65 at routine physical
6/07 biopsy positive for cancer...Gleason 3+4...diagnosed at 41 y.o.
6/07-9/07 manic research and interviews with physicians across the country in search of the "right" decision.  I went to Mass General in Boston, Loma Linda, University of Chicago and Northwestern.
9/17/07 - Radical Retropubic Prostatectomy Surgery at Northwestern Memorial in Chicago by Dr. William Catalona.  Thankful the father of the PSA test was right here in Chicago.
 
Post op pathology was Gleason 3+4 with negative margins, no seminal vesicale involvement, no lymphatic or vascular invasion, bladder and urethral free and tumor volume was 5% of 27.3g.  
 
9/27/07 - Catheter removal...let the games begin...
 
12/07 - Threw out the pads.  I only had to use 1 pad per day for protection against minor drips. 
 
I started Trimix 8 weeks after surgery with success.
 
I hope someday I won't need injections, but I hope more that my PSA stays at 0 forever.
 
 
 


JCL
Regular Member


Date Joined Jul 2007
Total Posts : 242
   Posted 5/21/2008 7:00 AM (GMT -6)   
Congratulations! Just goes to show that hope and perseverance pays off.
Biopsy: Diagnosed March 25, 2007. PSA 3.0. Gleason 6. Five of twelve samples positive with <5% each. No perineural invasion seen.
Surgery: May 21, 2007, Florida Hospital, Orlando,FL
Post-op Pathology: Upgraded to Gleason 7 (3+4), negative margins, negative capsular penetration, negative seminal vesicles, lymph nodes left intact, multifocal perinural invasion, 15% of prosate involving cancer in both lobes. T2c
Continence/Erections Out of pads at five weeks. Fully continent and can achieve erections.
Post Surgery PSA: Four tests, all <0.1
Family history: Great-great grandfather died from PC. My Father had his prostate removed at age 67 in 1997 and has had an undetectable PSA ever since. I was diagnosed at a much earlier age and had a more agressive cancer than my father. Go figure.


wallypm
Regular Member


Date Joined Apr 2008
Total Posts : 48
   Posted 5/21/2008 7:17 AM (GMT -6)   
Congratulations, gives me hope that there's light at the end of the tunnel.
Age 70 -  Diagnosed late March
PSA 5.52 - stage T2b,T2c
Gleason 7 (4+3)
quad heart bipass 4/06
surgery on 4/28/2008, Greensboro NC by David Grapey
path report showed  lymph nodes clear cancer has spread to the margins gleason (4+3)
catheter removed 5/8


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 5/21/2008 10:02 AM (GMT -6)   
No milestone is small! Congrats on your HUGE accomplishment and thanks for sharing!!!!
DX July 15, 2007. PSA 5.5
Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
Praying for a cured dad. First PSA 3 months!


positivelife
Regular Member


Date Joined Feb 2008
Total Posts : 42
   Posted 5/21/2008 12:12 PM (GMT -6)   
Well done Danman. Congrats and thanks for sharing your journey with us. I still am not confident about going totally pas free.

Pos
Dx Age 48 Nov 07
PRE OP
Psa 4.5, Biopsy 2/8 cores positive Gleason 3+3
No perineural or lymphovascular invasion in the biopsy specimen.
Rushed to RRP without much research- Jan 08

POST OP
Geason 3+3 ,10% both lobes, There is perineurial invasion
No extraprostatic spread seen , Seminal vesicles normal,Nerves spared
Cancer close to apex but margins clear T2c NXMX
Incontinence pretty bad until April 08- suddenly down to 1 pad
ED - started cialis once every 2 or 3 days from April but no improvement
1st post op Psa <.1 (May 08)


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 5/21/2008 3:54 PM (GMT -6)   
Hey Danman,
 
Boy I like to here that news.  Way to go.  Let me know when your here in Chicago again. I would love to have lunch with ya or somtin.
 
My leaking faucet is slowing down but not as fast as I would like of course.  1-2 pads during a heavy work day,  1-2 in evening and 1 Big Moe at night.  I had my first two dry nights and then last night, what the heck....  It seems when I sleep like a little baby I leak like a big baby.
 
Not even two months out so I dont have any real complaints I think I am doing fine.
 
All the very best to you and your successes.
 
Frank 
Diagnosed 01-08-08 @ 53 years old 
DRE normal - High PSA for 5 or more years
2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Current PSA 6 - Bone and Ct scans negative
clinicalg Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,5 hour surgery , 3 hour recovery
Unexpected Cardiac issues appear and disappear?
Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage - Erectile funtion back on line 9 days 
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on top of prostate distal from apex. 1 positve margin at urethra and bladder.
Six week PSA < 0.05 Ya Ba Da Ba Dooooooooooo.  Put a steak on the grill Wilma!!!!
Oncologist to discuss case with Urologist and Radiation Oncologist to consider radiation.
 

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