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James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 5/22/2008 9:25 AM (GMT -6)   
Welcome to Healing Well, sure hate you are here....I see in another post you have already joined in,and you said you posted a long reply and it didn't show. I can't find it either, so here's your chance to post again..... tongue

In the meantime, you could fill out your signature with the basics of your journey so far, and post it here, so we can know a little more about your situation. open the Control Panel function above and click edit profile. After your create it, then post to the thread below to add it to the list.

http://www.healingwell.com/community/default.aspx?f=35&m=1067963&p=1
 

Again, welcome

 

 

 

Post Modified ~ Link Activated

 ~TC-LasVegas~

Post Edited By Moderator (TC-LasVegas) : 5/26/2008 11:35:30 AM (GMT-6)


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 5/24/2008 12:02 PM (GMT -6)   
James C. Thanks for the welcome. I am not a frequent chat room guy so this is all fairly new to me. I managed to get my profile updated, and I think I might shoot soxfans4life another message.

As my doctor said the day they removed the catheter, "you are part of the club now!"
Age: 52
March 2006: PSA 2.5
Dec 2007:   PSA taken for insurance application. I did not see the results until late Jan '08 - after I was rejected. Their lab said PSA 4.5. PSA again in Feb '08: 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were cancerous and the 6th did not look good.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.
Post op: Gleason 9 (4+5). 15% of prostate involved. Negative margins. Lymph nodes and associated glands all appear to be cancer free.


Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 5/24/2008 6:26 PM (GMT -6)   
Welcome, and stay with us, this is the best site online. I have learned much here, from others with real world experience, you will find it invaluable.
Randy
46 you when diagnosed, now 47
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Cialis 5 mg every night.
Success with BiMix


smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 5/24/2008 6:35 PM (GMT -6)   
Welcome Ragman
 
I lived (was stationed down town KC and also at RG for 7 years and I have a brother retired USAF who lives in Belton.
 
Hope you have many years of low PSA and success fighting this think we battle.
 
Richard yeah   tongue yeah
Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
U of Florida Proton Therapy Institute
5/2/2008 LUPRON & Casodex
IMRT to start 5/16/2008 for approx 4 weeks with Proton to follow for approx 4 weeks
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 5/24/2008 9:24 PM (GMT -6)   
I to welcome you, wish you did not have to be here, but it is the best place to share thoughts, emotions, ideas, and spirituality. Be yourself and know we support you.


peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
 


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 5/26/2008 12:12 PM (GMT -6)   
Thank you for all of the welcomes. It is great to have so many electronic "friends" out there - but good grief - what a reason to come together.

Smilingoldcoot - Please keep me updated on the proton therapy. My sister researched that before I went radical. In my situation we thought it was a little too experimental, but who knows? In 5 years it might be the treatment of choice.

Thanks,
Age: 52
March 2006: PSA 2.5
Dec 2007:   PSA taken for insurance application. I did not see the results until late Jan '08 - after I was rejected. Their lab said PSA 4.5. PSA again in Feb '08: 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were cancerous and the 6th did not look good.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.
Post op: Gleason 9 (4+5). 15% of prostate involved. Negative margins. Lymph nodes and associated glands all appear to be cancer free.


smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 5/26/2008 3:42 PM (GMT -6)   

ragman

Not to push any one treatment, but Protons have been around for almost 15 years now and new facilities are being constructed in Oklahoma City, Hampton Roads, VA, Philadelphia , and northern Ill. The fact that only 5 centers exist in the US makes it difficult financially to go and stay some place up to 3 months.  Currently the 5 US centers are running behind as more and more people are looking at this treatment option.

I have never heard one negative statement about proton treatment except it's cost.  And now even Medicare covers 80% and as a retired militry person 

Some say it will be the gold standard in 5 years.

Richard yeah tongue yeah


Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
U of Florida Proton Therapy Institute
5/2/2008 LUPRON & Casodex
IMRT to start 5/16/2008 for approx 4 weeks with Proton to follow for approx 4 weeks
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM
 

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