heartfelt thankyous for such great support and advice

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soxfans4life
Regular Member


Date Joined Apr 2008
Total Posts : 63
   Posted 5/22/2008 3:13 PM (GMT -6)   
eyes  I can't even say how much we appreciate all the support in this pre-davinci week ! Rod and I are doing ALOT that was mentioned (thanks for all the good advice) and plan on a sunny relaxing memorial day weekend. I will post with smiles of relief after the 27th and try to hang tight until then. Please say a prayer for him and I will keep you all with me as our cheering squad in the waiting room! Annie  

dx. 3-08  @ age 63. gleason 6 . 1 out of 12 cores positive. 4th biopsy in 8 years. previous 3 negative. followed closley due to family hx.grandfather, father and 2 uncles dx. with prostate cancer. dre negative, cat and bone scan negative. davinci scheduled for may 27, 2008. 2 daughters, retired hospital administration, air force family years ago.


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2358
   Posted 5/22/2008 3:45 PM (GMT -6)   
The pre-surgery jitters go with the territory and I know what you are going thru right now.  My wife and I remember the experience well.  You and Rod will get thru it ok, and be on the healing side before you know it.
 
Glad you found this forum, and gladder still that you plan to stick around for awhile. You are in my prayers for a superbly successful surgery and recovery.  Take care and hang in there...Tim


Age 59  PSA quadrupled in 1 yr (0.6 to 2.5) 
DRE neg  1 of 12 biopsies pos (5%) 
Open surgery June 2006 
Cancer confined to prostate (1 pea-sized area) 
T2a  Gleason 5 (3+2)  PSA < 0.1  


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 5/22/2008 6:51 PM (GMT -6)   
You will get through it O.K. We all had those same jitters and fears. Shortly all thoughts of the op will be past history as you both charge forward in his recovery. Then it's on to the next step.......worrying about upcoming PSA results. Like all here you will take those in your stride as well. Good luck and hang in there. Onward and upward!
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.1 undetectable


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 5/22/2008 10:04 PM (GMT -6)   
Hi Annie,
I remember when I was the one saying thank you just before my surgery. You are so right, being able to talk about this with those who have lived through the experience is just priceless. I remember asking the questions, loving the frinds answers, and being able to even just vent. but now you thank all of us, and now that I'm well passed a year at this, I want to say Thank You to YOU. It was great getting this information when I needed it, and it's also great to give it when the likes of you need it. I think all of the veterans will say this too. Because I was so touched by this support, I remain here to help others. Good Luck and GET WELL!!!!!

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


CT
Regular Member


Date Joined Apr 2008
Total Posts : 25
   Posted 5/22/2008 11:46 PM (GMT -6)   

I just went in for my first post op follow up appt with my doc this morning.  The da vinci is the way to go.  My doc has done both open and da vinci and firmly believes he can do a da vinci better.  I believe him.  I had the da vinci surgery on 4/8/08.  I was back at work for a few hours 16 days after surgery (only 6 days after the cath was taken out).  Then 1/2 days a week later....then full days the last couple of weeks.  Incontinence was a bit of a problem for the first week after the cath was taken out, then 3 pads, 2 pads, 1 pad over the last couple of weeks.

I suppose I looked at it like I really had no choice....at my age, overall health, physical condition, and activity level surgery was the only way to go.  Then it became a choice of which method. 

Good luck....although you (your husband) really doesn't need good luck....you just need a good doc and good anatomy tongue


Age: 50 (March 2008)

DX 1/08 @ 49 yo

7/05: PSA 2.6 DRE Normal

9/07: PSA 3.4 DRE Normal

1/08: Biopsy 1 of 12 cores with 10% involvement, T1c, Gleason 3+3=6

4/08/08:  Da Vinci Rad. prostectomy @ Banner Thunderbird, 5 hrs.

                Advised both nerve bundles spared

                Post Op Pathology Report: Tumor confined w/in prostate, pT2c, NX, DX 

    Gleason is 3+3=6, bilateral with 15% total involvement near apex

                Margins and Seminal Vesicles negative!!!

4/18/08:  Staples and Catheter removed. Drip, drip, drip, drip...


anniea
Regular Member


Date Joined May 2007
Total Posts : 234
   Posted 5/23/2008 12:34 AM (GMT -6)   

Hi Annie,

1st I love your name. It is my user name and was supposed to be my 1st daughter's name but a sister-in-law who gave birth a month before me stole my name for her daughter. A fantasic name you have there.

As for the up coming surgery please know that you will have alot of people here saying a little prayer for you and your hubby. We will ask that you both get thru this surgery safetly and that you will have a good post op pathology report and on your way to a good recovery and many happy years in front of you both.

Warm Wishes

Diana


Rick & Diana
Age 68/ 67@ Dx
6-30-06  PSA 2.54
1-22-07  PSA 4.98
1-26-07  PSA 5.09
Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09
Bone Scan 3-1-07 Clear
3-6-07 Triple Spinal Fusion (due to old back injury)
Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins
4-29-07 PSA 0.02
6-9-07   PSA 0.02
7-6-07   PSA 0.03
8-1-07   CT Scan & Chest X-Ray   Clean
 9-26-2007 PSA 0.07
11/1/07 PSA 0.1
11/30/07 PSA 0.12
01/31/2008 PSA 0.3
03/01/2008 PSA 0.3
04/28/08 PSA 0.6


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 5/24/2008 12:17 PM (GMT -6)   
Annie: I'll try to summarize what I said in my first email that disappeared. I am 19 days post-op right now.
1. Pre-op: Eat, drink & make merry, but be prepared to cut it off two nights before the surgery. I had to fast, and I spent most of the last day drinking a gallon of foul stuff that cleaned me out. I was not a happy camper. ** If you live far from the hospital, consider staying in a hotel the night before and the night after surgery. We did that. We walked to the hospital Monday morning, and after I was settled in Monday evening my wife walked back and got a good nite's rest. We spent a chunk of change, but it was worth it for her.
2. I've had knee & shoulder surgery and this is nothing like that. This is almost pain-free in the surgical area. I was doped up Monday nite, on Tylenol3 + Codine Tues, and I was down to regular Tylenol by Thursday. Major issue for me was butt pain. I STILL cannot sit comfortably. The Dr said that was normal. Not sure why. If you have any kind of donut pillow, or even a child's swimming inner tube, that could make the ride home a LOT more comfortable.
3. Monday afternoon and Tuesday morning were not a lot of fun, but I really did not have much pain. I woke up with 2 IV's, a drain, and a catheter coming out of me. Everything but the catheter was gone by Tues afternoon. The catheter is particularly bothersome, but it is more inconvenient than anything thing else. For me, the leg bag was almost worthless. I just carried the "big bag" around the house with me all week.
4. The patient will be fine before & during the surgery. He'll be knocked out and won't feel a thing. Just be supportive and positive and as calm as possible, and you guys will sail right thru it. Good luck, kcragman
Age: 52
March 2006: PSA 2.5
Dec 2007:   PSA taken for insurance application. I did not see the results until late Jan '08 - after I was rejected. Their lab said PSA 4.5. PSA again in Feb '08: 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were cancerous and the 6th did not look good.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.
Post op: Gleason 9 (4+5). 15% of prostate involved. Negative margins. Lymph nodes and associated glands all appear to be cancer free.


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 5/24/2008 2:17 PM (GMT -6)   
Hi Annie,
 
I'm so glad you found this wonderful site prior to surgery.  I went through the experience through self-study, but found these good folks on healing-well last year, eight days following my surgery.
 
I can tell you from personal experience that you'll receive wonderful support after the surgical experience.
 
God bless Rod for an effective procedure and comfort throughout.
 
We'll keep you in our prayers.
 
Kind regards,

Barry ~ (a.k.a. "Idaho") - Prostate Cancer Forum Moderator

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  09/11/2007  <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

3rd PSA  03/17/2008  <0.04

My web site: http://pca-info.blogspot.com

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