Night time visits

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landcrab
Regular Member


Date Joined Feb 2008
Total Posts : 25
   Posted 5/25/2008 5:58 AM (GMT -6)   
Hi I,m now 4 months post op and I still need to visit the toilet once during the night, same as before the rp, also I still experience urgency at certain times. I would have expected to have made it thro the night by this stage, does anybody have this problem.
diagnosed pc Nov 2007 after small lump
found during routine examination
gleason 7 (3+4 ) psa 4.6.
Da Vinci Jan 2008.
post op pathology report gleason 7 (4+3)
positive margin right side nerves spared.
no incontinence problems.
ed is a problem.
psa 3 weeks post op .5
psa three months post op .3
wait and watch possible rt.


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 5/25/2008 6:11 AM (GMT -6)   
I go at least once during the night, sometimes twice.....6+ months post-op.

Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 5/25/2008 6:25 AM (GMT -6)   
I am 8 months post op, and go at least 2 times per 8 hr night. Usually around 2 hours after going to bed then again about 3 hrs later. I stop liquids at 6pm and got to be at midnight, most nights. This is nothing new for me, as went every hour or two most of my adult life. Near the end of my havng a prostate, I had severe prostate enlargement (110 gm. wt.) and was having much difficulty with retention,urgency and ability to have a good stream...Thankfully, all that has gone, with the removal, except I still have to get up a couple times or more a night. A really good tradeoff in my opinion.
James C.

Age 60
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07 ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08 Caverject started/stopped, aching. 2/24/08 .5ml Bimix started-success
5/7/08 ED- Viagra, pump, no response- Trimix .075ml continues
Post Surgery PSA's: 3mts- 0, 6mts-0


Johnny Canuck
Regular Member


Date Joined Jan 2008
Total Posts : 88
   Posted 5/25/2008 7:28 AM (GMT -6)   
...coming up to 3 months post-brachy, and once, maybe twice a night, depending on coffee/alcohol intake.
Age: 54
Gleason Score: 3+3=6
PSA: 3.33
Biopsy:7/8 Positive
Stage: "Bulky" T1c
Prostate Size: 27cc
 
Diagnosed: December 05, 2007
Brachytherapy: February 26, 2008
68 seeds, (Iodine 125). 
 
Walk my path at:
 
 


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 5/25/2008 10:39 AM (GMT -6)   
I'm about 18 month post op and need to visit the little boys room at least once per night, usually around 2 or 3 am.

Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
Open RP 28 Nov 06
Post op staging T3
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA test Mar., 08 =.04 
 
 


Salty_clark
Regular Member


Date Joined Apr 2008
Total Posts : 95
   Posted 5/25/2008 10:44 AM (GMT -6)   
I am 25 days out from my da Vinci surgery and have experienced wakeups and getups for the bathroom 3 or 4 times per night...wear guards pads day and night and usually have to change before going back to bed.....but, last night I, perhaps, reached a milestone..I was able to sleep the entire night from midnight to 0730 this morning without one instance of urgency to go.  I certainly hope this is the start of something good.  I am, however, flowing as usual this morning.  I am able to stay relatively dry while sitting but flows rapidly upon standing...I have been able to clamp down and make it to the bathroom more times than not so I think I am making progress.  Also, I might say that last evening I attended a family party, you know, big steak dinner and all the other accompaniments and I wore an apparatus that I got from Argus Medical and stayed dry all evening as the urine was collected in a bag attached to a cup receptacle.  I really felt normal...and believe me, it felt great.  I plan to use the apparatus each time I go out of the house as well as short times in the house.  the apparatus consists of a set of tight boxer briefs with a pocket in front to hold the cup receptacle and a little 600 cc bag that hangs from the bottom of the receptacle to collet the urine.  I went to the bathroom once during the entire evening and drained the bag...I drank a lot of liquid and enjoyed the freedom and the ambience immensely.
Anyone who wishes to know more about the apparatus I would be happy to furnish the info.
Age 75 at DX 76 on 9 May 08
DRE positive with nodule 15 Jan 08
PSA 3.8 18 Jan 08
Biopsy 11 Mar 08 Gleason 8 (4+4) on the right 3 out of 12 positive <5%. Gleason 7 (4+3) on the left 1 out of 11 positive <5%.
Bone scan and CT scan Negative 12 Mar 08
Robot Assisted da Vinci prostectomy with Dr Fagin in Austin scheduled for 30 April 08.
- - - - - - - -
da Vinci successfully completed by Dr Fagin as scheduled.
Path Report:
Gleason downgraded to 3+4=7
Tumors confined to the prostate.
Bilateral tumor on right side 5 of 10 levels and on left side tumor present in 9 of 10 levels.
Margins Negative.
Extraprostatic Extension Negative
Seminal Vesicle Invasion Negative
Stage pT2c
As far as it goes for me and the fence post I am cured. But I am required to keep an eye out for the PSA due in a couple of months.
May anyone who reads this have the luck that has been bestowed upon me.


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2286
   Posted 5/25/2008 11:29 AM (GMT -6)   
One of the good things about the catheter was not having to get up in the middle of the night to make my bladder gladder.  I am 2 years post-op and the urinary issues are resolved. 
 
I still wake up occasionally with a need to urinate, but my urologist said that is probably more a result of liquid intake before bed than any lingering incontinence or other urinary problems.  If I limit liquids a few hours before bedtime, I'm usually good to sleep thru the night. 
Age 59  PSA quadrupled in 1 yr (0.6 to 2.5) 
DRE neg  1 of 12 biopsies pos (5%) 
Open surgery June 2006 
Cancer confined to prostate (1 pea-sized area) 
T2a  Gleason 5 (3+2)  PSA < 0.1  


elofdahl
New Member


Date Joined Mar 2008
Total Posts : 19
   Posted 5/25/2008 11:43 AM (GMT -6)   
I've been "dry" since cath removal, but my bladder capacity is only about 2/3 what it was before surgery.  I have to get up at least once at night.  If I drink a few beers before bedtime, I may have to get up 3 times.

Eddie
Age 55
PSA 6.7
Needle biopsy: T1c Gleason 3+4=7...2 of 10 cores
Non-Robotic laparoscopic RP on 3/4/2008
Specimen pathology: T2C organ confined with clear margins. GS lowered to 6!
100% urinary continence since cath removal on 3/11/2008
ED resolved with Levitra
4/18/2008  1st PSA undetectable
 


Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 5/25/2008 12:35 PM (GMT -6)   
Ocassionally, I will need to go about 1 or 2 AM, but if I judicious with fluid intake, nothing but water no later than 5 or 6 PM, I usually don't have to go, which is new for me following surgery.
46 you when diagnosed, now 47
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Cialis 5 mg every night.
Success with BiMix


Roger G
Regular Member


Date Joined Apr 2008
Total Posts : 150
   Posted 5/25/2008 4:03 PM (GMT -6)   
Eddie,

Your bladder capacity is exactly the same as before... It's the darn valve at the end which does not want to hold the darn back. More keigles and longer walks.

Like most everyone else I REALLY watch what I drink after 6pm, and don't have issues. Yipee a complication I dont.

Prior to surgery it was twice a night.

Roger
Age: 43 (2008)
DRE Small Ridge on prostate, PSA 1.5
07/2007: Diagnosed cancer, T2c, Gleason 3+4=7
09/2007: Laparoscopic prostectomy @ Hamilton General, 4 hrs.
              Both nerve bundles spared
              Pathology Report: Tumor confined w/in prostate
              T2c, Gleason is 3+3=6
              Went home with JP drain
10/2007: Made return trip to hospital.  All urine was comming out JP drain.
10/2007: Catheter removed. Next to no leakage
11/2007: 1st PSA <.003 :)
              ED: Started Viagra, no response yet.
12/2007: Had confidence to go padless!!!!!
12/2007: ED:  Stopped Viagra as it's causing hemroid problems.
01/2008: 2nd PSA <.003 :)
              ED: next to no response.
04/2008: 3nd PSA <.003 :)
              ED: next to no response.  Changed the Viagra prescription.
 


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 5/25/2008 5:37 PM (GMT -6)   
Greetings, everyone.  This is one area that is not much different post surgery than pre surgery.  I usually get up 2 times a night.  I don't have any continence issues but I was hopeful to be able to sleep through the night after my surgery. It just hasn't happened. David 

Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
Great wife and family who take very good care of me


KrisP
Regular Member


Date Joined Mar 2008
Total Posts : 162
   Posted 5/25/2008 5:47 PM (GMT -6)   
I'm five weeks post surgery and I find I wake up about 3-4 times every night. I'm pretty certain it's not the urge to go to the bathroom but I figure as I'm awake I'll  go and empty the bladder. Most of the time nothing much comes out.
Kris
Biopsy done 3/2008
Pathology report: Gleason 6 (3+3), involving left lobe
DRE=15gm with indurated left base and mid prostate
Cores positive: left base medial, left base lateral, left mid medial and left mid lateral (4 of 12)
Clinical stage t2b.
Prostate Carcinorna 185
DaVinci Surgery on 4/21/2008 in Austin by Dr Randy Fagin.
Pathologist report upgraded to a Gleason 7 (3+4)
Clinical stage upgraded also to a T3a
Margins Clear


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 5/25/2008 10:16 PM (GMT -6)   

I am once or twice a night, but figure it's the amount of fluid I drink -- lots! 

Once recently I was away overnight, slept through the night, and slept in the next morning (about 10 hours) all without needing a toilet visit. That day I had drunk only the amount of fluid normal people drink.

Still I think I'll try the suggestion of last drink by 6pm -- it would be nice to last through the night.


Age 63. Other than cancer, in good health; BMI 20
Pre-op: No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores
7 March 2008, RRP, non nerve sparing
Two nights in hospital; catheter and staples out after 7 days
Continent, no pads needed from the get-go
Post Op: Stage pT2 M- N-; clear margins and lymph nodes; Gleason 4+4=8; prostate weight: 37gm
6-week PSA: 0
No erections (of course!)
Experimenting with VED and Bimix
 

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