Posted 5/27/2008 5:35 PM (GMT -7)


I am much like pcdave,  I chose proton but am getting a combo of hormone, IMRT, and proton.  Medicare covered 80% and Tricare for life (retired military) cover the remainder.

I had my first hormone shot May 2nd along with daily 50 mg Casodex, my first IMRT was today and I was told I will have a total of 42 treatments.

There are many options but you are you own best advocate for what treatment you choose.

Richard and Debbie

Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
U of Florida Proton Therapy Institute
5/2/2008 LUPRON & Casodex
IMRT to start 5/16/2008 for approx 4 weeks with Proton to follow for approx 4 weeks
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM

Posted 5/28/2008 6:39 AM (GMT -7)
Thanks so much for the info everyone. Being out in the country and single is a major drawback I see, but that just means alot of driving, about 40 miles to the nearest location. Fortunately I have a nurse friend whose father my age had a successful RRP in Knoxville, so I'll be talking to his surgeon soon hopefully. My urologist is a radiation oncologist so I'll check out his background in depth. I'll talk with him about treatment options next week. And I've finished Dr. Walsh's book so it's time for some action.

I was impressed with Andy Grove's story, and his work with Michael Milikin (sp?) at the Prostate Cancer Foundation. Milikin's story is also quite amazing to be sure:

I think I'm still waiting for the enormity of this to hit me. We're so fortunate for the progress that has been made in the last decade or two with this disease. My father had no PSA readings for warning and it's hard for me to imagine him getting a DRE, to be honest.

Pre-Diagnostic PSA record, begun 1995 at age 58..... now 70:
1995 - 1.2
1997 - 1.7
1998 - 1.4
1999 - 1.7
2000 - 3.4
2001 - 2.0
2002 - 4.6 on 6/6, 4.1 on 7/24, 3.5 on 10/1 at urologist's office
2003 - 2.3
2004 - 2.7
2005 - 3.2 on 7/15
2006 - no test????
2007 - 5.8 on 2/5, 5.7 on 6/16
2008 - 10.4 on 2/29, 8.8 on 4/21 --- Scheduled biopsy for 5/6/2008. On a graph, the PSA rise looks exponential, i.e. a growth function.

5/22/2008 -- Results of biopsy
4 of 12 cores show adenocarcinoma:
LLM - Gleason 3+3=6, PTI=10%
LM - Gleason 3+3=6, PTI=2%
LLA - Gleason 3+4=7, PTI=25%
LA - Gleason 3+3=6, PTI=20%
Clinical Stage:
RLB - There is focal acute prostatitis
LLM - There is focal perineural invasion
LLA - There is focal perineural invasion
Partin Table:
OC - 33%
CP - 52%
SV+ -10%
LN - 4%

No treatment selected yet.....

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