For the Incontinent

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Salty_clark
Regular Member


Date Joined Apr 2008
Total Posts : 95
   Posted 5/27/2008 5:38 PM (GMT -6)   
Today I am 4 weeks out from my da Vinci and it was a good day.  Following surgery I have experienced the unrelenting flow into my guards pads and felt the sogginess of the wet noodle often as I tried to stay dry throughout each day.  There has been some success as I have been able to squeeze sufficiently to make it to the bathroom and I still do that all the time that I am wearing pads...but I have never felt the complete dryness that occurred today since before my operation.  The dryness today was caused by using a collection device called the AFEX system.  It consists of tight boxer briefs, a cup receptacle and a 500 cc urine collection bag suspended at the bottom of the cup receptacle.  The cup fits into a little pocket at the front of the briefs.  I got up this morning, did my usual cleanup and donned the device and departed my home for my first venture outside the house since my operation.  I was able to visit 4 doctors' offices and get prescriptions and drop off path reports, have breakfast in a nice restraurant, go to the military hospital pharmacy to fill a script and generally to enjoy the freedom of a dry underpinning over a several hour period...believe me it was wonderful.  I was out most of the day.  I did go to the restroom and drain the bag on two occasions and when I opened the drain at the bottom of the bag and dispensed with the urine in the toilet bowl I felt almost normal again.  It is not my intention to endorse the afex system or any other system for folks in our situation except to say "it works for me." It is not for sleeping time as pads are a requirement then though I did get one of their overnight pads to try out.  If anyone in similar situation wants to check further their URL is http://www.arcusmedical.com/afex_overview.htm
 
Incidentally I tried Alpha Dry system and found it to be totally uncomfortable and couldn't wear their device more than about a half hour at a time and would have to take it off for relief.  Let me know if I can provide any more info to any interested party.

Age 75 at DX 76 on 9 May 08
DRE positive with nodule 15 Jan 08
PSA 3.8 18 Jan 08
Biopsy 11 Mar 08 Gleason 8 (4+4) on the right 3 out of 12 positive <5%. Gleason 7 (4+3) on the left 1 out of 11 positive <5%.
Bone scan and CT scan Negative 12 Mar 08
Robot Assisted da Vinci prostectomy with Dr Fagin in Austin scheduled for 30 April 08.
- - - - - - - -
da Vinci successfully completed by Dr Fagin as scheduled.
Path Report:
Gleason downgraded to 3+4=7
Tumors confined to the prostate.
Bilateral tumor on right side 5 of 10 levels and on left side tumor present in 9 of 10 levels.
Margins Negative.
Extraprostatic Extension Negative
Seminal Vesicle Invasion Negative
Stage pT2c
As far as it goes between you, me and the fence post I am cured. But I am required to keep an eye out for the PSA due  toward the end of June.


smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 5/27/2008 6:44 PM (GMT -6)   
Salty
 
Great that you found what works for YOU.  My you experience additional improvement in your post op life.
 
God be with you and bless you.
 
Richard & Debbie
Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
U of Florida Proton Therapy Institute
5/2/2008 LUPRON & Casodex
IMRT to start 5/16/2008 for approx 4 weeks with Proton to follow for approx 4 weeks
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM
 


anglophile
Regular Member


Date Joined Apr 2008
Total Posts : 82
   Posted 5/28/2008 7:14 PM (GMT -6)   
I'm glad you found something you are comfortable with. Are you also doing Kegels also to try and control your urges and leakage? My doctor advised against things like that because he said they keep you from working on the root of the problem -- it's just easier going like that, so you don't recover continence as quickly. He told me this after asked about using a slip-on device somewhat like that to catch any drips.

BTW, I had my first post-op physical therapy with bio-feedback on recognizing and controlling the pelvic muscles and the hour was a gold mine of information for me. I used some of the things I learned from it at work today and definitely saw an improvement in my leakage.
Age 59 - diagnosed in Jan. 08 after biopsy
da Vinci Robotic Prostatectomy 4/11/08 - both nerves spared
Catheter removed 4/25/08
Prostate Pathology:
Gleason Grade 6 (3+3)
Apex: neg
Base: positive (tumor present at right and left base)
Peripheral Margins: neg
No extra postatic extension seen
Tumor corresponds to a AJCC/pTMN stage II
High-grade HGPIN present
Continence: 1 pad night, 2 during day


Salty_clark
Regular Member


Date Joined Apr 2008
Total Posts : 95
   Posted 5/29/2008 10:33 AM (GMT -6)   
Thanks Anglophile for your comments...to answer your question...yes I am doing kegels on a very regular basis.  However, I have not seen any progress toward an ultimate solution to the incontinent problem.  More time is needed I am sure...and I am confident that I will regain full continenence in time.  During the mean time I am going to continue using the collection device intermittently throughout this period.  I am a bit of an unconventional fellow who questions these doctors' advice on this subject.  They think that we are little children and are unable to see the benefits and to recognize that there are mental aspects to this problem too.  The brief respites that I enjoy in not feeling the soggy nature of our problem is well worth the non-acceptance of their majestical guidance in this small area.  I respect my surgeon for his mastery of the da Vinci process and he did a marvelous job...but I do not have the same respect for decisions by other doctors that have not walked in my shoes...technical areas yes I follow and will do my utmost to achieve and make a daily part of my medical routine.  But to say that using a collection device will cause you to not do the routine exercises and actions that ultimately will bring us to continency is a bit beyond the pale and I simply do not accept.  Maybe I am just a cantankerous ole cuss and just maybe it goes with my frames of reference in having lived to my age of 76 but I feel that many doctors should just leave out a lot of the subjectiveness as pertains to the patient and stick with the objective aspects of the case.
 
With repect I remain
 
Salty
Age 75 at DX 76 on 9 May 08
DRE positive with nodule 15 Jan 08
PSA 3.8 18 Jan 08
Biopsy 11 Mar 08 Gleason 8 (4+4) on the right 3 out of 12 positive <5%. Gleason 7 (4+3) on the left 1 out of 11 positive <5%.
Bone scan and CT scan Negative 12 Mar 08
Robot Assisted da Vinci prostectomy with Dr Fagin in Austin scheduled for 30 April 08.
- - - - - - - -
da Vinci successfully completed by Dr Fagin as scheduled.
Path Report:
Gleason downgraded to 3+4=7
Tumors confined to the prostate.
Bilateral tumor on right side 5 of 10 levels and on left side tumor present in 9 of 10 levels.
Margins Negative.
Extraprostatic Extension Negative
Seminal Vesicle Invasion Negative
Stage pT2c
As far as it goes between you, me and the fence post I am cured. But I am required to keep an eye out for the PSA due  toward the end of June.

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