Spreading the word

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maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 782
   Posted 5/27/2008 5:49 PM (GMT -7)   
Everywhere I go, when I meet new people, I question the man as to whether he has had a PSA test and DRE, I am constantly amazed at the number of men my age and younger who have not bothered, however when I tell them my story, their resolve changes, and almost all get the test, including most of my bowling club, my hairdresser and some of his clients, the hairdresser now asks his clients if they have had the test, so hopefully more men will have the test, and fight Pca.
 
Regards Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7  right side tumour adenocarcinoma stage T2a
RP on 30th July,
Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck, free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.
 
Post op PSA 0.5 26th Sept.
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 5/27/2008 6:19 PM (GMT -7)   
We do the same. We were just saying how many lives could be saved if men knew what we do. If the word was out like breast cancer awareness then it would be so much better. I have a mammogram and pap smear every year even though there is no family history. If the news shows would pick up on this we could get the word out as they have with colon cancer. If men knew it starts with a simple blood test, maybe more would have it done.

C
Age 51 Kent Cindy 49
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 another round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th. Only took 1 1/2 hours. In recovery 1 hour.  Both nerves were spared.
Home 4-11 - incision looks completly healed on the outside by 4-25
Cath out 4-22 dripping some
5-25 only uses a pad if going out "just in case". No dribbling to speak of.
Cialis 5 mg at night to start. Didn't agree with system. Viagra 50 mg daily. Was having erections but now not I guess due to the fact we can't afford for him to take the Viagra everyday.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 5/27/2008 6:31 PM (GMT -7)   
Same here.

In fact I wear the blue ribbon on the lapel, or the blue wrist band. (The ribbon strikes up more conversation). I am able to silence a group with my story. but I try to make light of things and remind them that I am speaking in Hope that they are listening.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


GBINAB
Regular Member


Date Joined Apr 2008
Total Posts : 203
   Posted 5/27/2008 8:19 PM (GMT -7)   
VaFan said...
We do the same. We were just saying how many lives could be saved if men knew what we do. If the word was out like breast cancer awareness then it would be so much better. I have a mammogram and pap smear every year even though there is no family history. If the news shows would pick up on this we could get the word out as they have with colon cancer. If men knew it starts with a simple blood test, maybe more would have it done.

C


Hi VaFan
I seen in your profile you have had success with Viagra and erections, but could not afford it , you should get the generic brand that works real well and way cheaper from AllDayChemist and order it on line ...many on this board do as i have recently as well.

Good Luck !!

GB
April 2007 PSA 8.4 for last 6 months biopsy shows PC 3+3=6
June 13 2007 Went for open RP with Dr. Christopher Johnson at St. Francis Hospital NY. with nerve sparing of both sides.
4 days later home for Fathers Day, and Catheter.
Removal of catheter 10 days later , incontinence next to nothing, no pads used from the get go.
1 month PSA next to not detected

ED is a longer battle:1 month out start using occasionally Cialis and 50MG Viagra to promote blood flow with no response for 6 months.
3 months and 6 months PSA not detected
ED 6 months mark starting with VED therapy and being more aggressive with meds , in addition taking Folgard supplement daily.
April 2008 10 month out and start seeing some serious improvements with ED while using Meds and VED , can achieve erections, Mid nights erections almost on a regular basis , and uncontrolled 90 % erections spontaneously.
1 year visit on June 13 2008 woohoooo!!!

UPDATE: 5/12/2008 ED:
With Viagra Usable erection for intercourse after about 11 months out !!!woooohooooo


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 5/27/2008 9:02 PM (GMT -7)   

    I second on both accounts.  I tell all the guys 40 or older they need to get checked.  I also use ADC for my generic Viagra.  They can keep their Viva Viagra!!!!!

    Good Luck,  KW


    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
 
     


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 5/28/2008 7:37 AM (GMT -7)   

 

  As new as I am to this forum and the "club" as many have discribed it to me....I tell as many that will listen to get checked. I know the number of check-ups went up after I shared my results with the guys I work I with. Also directing those with high  PSA's whoseDr's were telling them they hadn't reached the proper "number" yet to validate a biopsy or further investigation!   Who also had the some of the same symptoms you all have shared....

  I too wear the blue wrist band. My girlfriend picked those up real quick....she's a ER nurse and I'm real lucky to have her in my corner(not because she's a RN, but because of who she is)  She's been with me at every major Dr's appointment....I'll keep that ADC vs Viagra tip tucked away as well. You guys have so much info and support....and gals....I thank you all again.

 


 
   age: 53
   Pre-0p PSA  Feb. 08, 5.0
      4.22.08, 4.1
      PSA had spiked once about 8yrs ago to 5.0 three months later
      back to 2.9...then into the 1.2 range until my re-scheduled 
      "missed" appointment this past Feb.
      Biopsy 5.1.08 
      Gleason-3+4=7
      T2a
      5 of 15 cores positive
      Da Vinci scheduled..7.29.08..as I read somewhere on this 
      site....."the first show of the day"


GBINAB
Regular Member


Date Joined Apr 2008
Total Posts : 203
   Posted 5/28/2008 7:42 AM (GMT -7)   
Bluenose said...
As new as I am to this forum and the "club" as many have discribed it to me....I tell as many that will listen to get checked. I know the number of check-ups went up after I shared my results with the guys I work I with. Also directing those with high PSA's whoseDr's were telling them they hadn't reached the proper "number" yet to validate a biopsy or further investigation! Who also had the some of the same symptoms you all have shared....

I too wear the blue wrist band. My girlfriend picked those up real quick....she's a ER nurse and I'm real lucky to have her in my corner(not because she's a RN, but because of who she is) She's been with me at every major Dr's appointment....I'll keep that ADC vs Viagra tip tucked away as well. You guys have so much info and support....and gals....I thank you all again.


Good Luck on your Journey and welcome to the CLUB as you call it now as well ....

GB :-) :-)
April 2007 PSA 8.4 for last 6 months biopsy shows PC 3+3=6
June 13 2007 Went for open RP with Dr. Christopher Johnson at St. Francis Hospital NY. with nerve sparing of both sides.
4 days later home for Fathers Day, and Catheter.
Removal of catheter 10 days later , incontinence next to nothing, no pads used from the get go.
1 month PSA next to not detected

ED is a longer battle:1 month out start using occasionally Cialis and 50MG Viagra to promote blood flow with no response for 6 months.
3 months and 6 months PSA not detected
ED 6 months mark starting with VED therapy and being more aggressive with meds , in addition taking Folgard supplement daily.
April 2008 10 month out and start seeing some serious improvements with ED while using Meds and VED , can achieve erections, Mid nights erections almost on a regular basis , and uncontrolled 90 % erections spontaneously.
1 year visit on June 13 2008 woohoooo!!!

UPDATE: 5/12/2008 ED:
With Viagra Usable erection for intercourse after about 11 months out !!!woooohooooo


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 5/28/2008 5:06 PM (GMT -7)   
Dear Maldugs.

Almost every day I share my prostate testimony will at least one man who could be in the danger zone for prostate cancer. I have even talked my employer into PSA tests to be included in our annual health fair. So, we need to get out there and take the word to the street( quoting one of my favorite movies). We need to educate our brothers so we can get rid of this disease!!.

Take care everyone

Mika
age at dx 54 now 55
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
wear one for insurance now
ED still a problem
last PSA undetectable
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 5/28/2008 5:08 PM (GMT -7)   
Mal it is critical that we continue to get the news out. Thanks for doing your part. Take a look back at a thread here on the forum called Symptoms prior to diagnosis. It still amazes me how the silent killer sneaks upon us.
May the grace of the Lord continue to be with you.

peace and love
dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Johnny Canuck
Regular Member


Date Joined Jan 2008
Total Posts : 88
   Posted 5/29/2008 7:47 AM (GMT -7)   
It is now late spring in the Great White North, and yesterday was my first foray out in shorts, sandles and sleeveless T...which reveals the radiation trefoil I had tattooed on my upper arm prior to brachytherapy.
 
That also generated my first spontaneous discussion with a complete stranger about the importance of PSA tests.
 
"Yes, in fact I am radioactive. Here's why..."
Age: 54
Gleason Score: 3+3=6
PSA: 3.33
Biopsy:7/8 Positive
Stage: "Bulky" T1c
Prostate Size: 27cc
 
Diagnosed: December 05, 2007
Brachytherapy: February 26, 2008
68 seeds, (Iodine 125). 
 
Walk my path at:
 
 

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