Posted 5/29/2008 3:22 PM (GMT -6)
Have we all forgotten why we are here? I have set back and watched as the battle goes on. Does anyone remember that we are all quests here that must adhere to the rules and regulations? Does anyone remember that we are here to offer HELP and SUPPORT for EACH OTHER?
Maybe I'm wrong, but I see nothing wrong with what the moderators, both present and past, have done. This is a public site. Check out how many people look at each thread. Anyone can visit. That is why we have rules about language and graphic discriptions. That is why we also share our e-mail addresses, so we can discuss these very personal matters with each others. This is not a site for personal agenda's.
As a patient with Advanced Prostate Cancer (non-curable) ungoing chemotherapy, I find this battle very sad. I can find nothing good that will come out of it. It does not make us stronger, it only weakens the whole group. I see the same thing in life every day. Will we only choose to follow the rules we want too? Will we fight to see who is in charge? I don't have time for all this. But I guess my time, or lack there of, might just be more important than some.
Let's get back to our purpose and put all of this behind us. We all have more important battles to fight. We all need to feel the love and support that lives here. We all need each other.
Love and peace,
Age: 55 ( still alive at 55)
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007 Bone mets
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 6.34 12/2007
Radiation (15 treatments) started on bone mets 12/2007
PSA 6.72 1/2008
PSA 8.23 2/2008 - Starting prednisone for 30 days
PSA 14 2-29-2008 - start chemo on 3/12
PSA 12.82 3/1/2008 round one chemo
PSA 12.24 4/2/2008 round two chemo
PSA 10.86 4/24/2008 round three chemo
PSA 10.4 5/15/2008 round four chemo - increase dosage next month
"I will persist without exception - I will find a way where there is no way"