First Me, Now My Brother

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Ken S
Regular Member


Date Joined Nov 2006
Total Posts : 120
   Posted 5/29/2008 4:06 PM (GMT -7)   
I just got off the phone with my brother, he got the bad news about an hour ago. Gleason 7. He's numb and so am I so this post may be a little disjointed. He's in Jacksonville, FL and I'm in RI so we're both going to have high phone bills in the coming months. He's meeting with his Urologist next week to discuss options and I couldn't even think straight to tell him what questions for him to ask.

Statistics say that a man has a 1 in 6 chance of getting PCa in his lifetime but if a brother has PCa he has a 1 in 3 chance. Well I had it, and I have 3 brothers, so now 2 out of 4 of us have had it, what does that mean for my other 2 brothers?

A couple of weeks ago Richard (smilingoldcoot) posted an article about research being done at Shands U of F, which I believe is in Jacksonville. Is this THE place to go in the Jacksonville area?

In the next day or 2, when I get my thoughts together, I'm going to send him a list of questions to ask. I'm just hoping that he has better results then I did (positive margin).

One thing I did tell him was to log onto this site and ask away. Dispite the recent uproar it's still the best PCa peer to peer site on the net.

Ken
Age 54 (2006)
PSA: 2005 - 3.2, 2006 - 3.7
Biopsy 8/06, Gleason 6 (3+3), T1c
Radical Retropubic Prostatectomy 11/3/06
Memorial Hospital, Pawtucket, RI
Post-Op Biopsy, still Gleason 6 (3+3),
T2c, right apical margin positive
CT Scan 1/07, tumor discovered on right
kidney (unrelated to PCa)
Partial Nephrectomy 3/9/07
R.I. Hospital, Providence, RI
IMRT (37 Treatments) 4/23/07 - 6/14/07
PSA: 11/07 - less then 0.01
4/08 - 0.04


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 5/29/2008 4:10 PM (GMT -7)   
Hey Ken,

You gave your brother the best advice there is when you told him to log on here. With your support and ours, he has a leg up on recovery...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 1/17/08 0.00. 
Next PSA test on 7/17/08
"Patience is essential, attitude is everything."


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 5/29/2008 4:18 PM (GMT -7)   
Ken-
I'm so sorry to hear the news. I also have a family history of PCa and hate it!! The good news is that you are educated on the condition and will be such an asset to your brother and family during this time. You already directed him to an incredible resource here at HW.
I believe the odds are that if you have two family members that have Pca then your odds of getting it double and if there are three members in the family, then you are almost guaranteed to get it. sad I need to double check, but I remember reading that somewhere. It's depressing, but we both know this disease is VERY curable if caught early and hopefully this will benefit both our families! Hang in there and let us know how we can help! We are a team.

Doting
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
Praying for a cured dad. First PSA 3 months!


Co-Moderator Prostate Cancer Forum


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2268
   Posted 5/29/2008 4:19 PM (GMT -7)   
Sorry to hear about your brother's prostate cancer diagnosis, Ken.  There is a strong genetic component to this disease and fathers/brothers who have had it raise a red probability flag.
 
As Jim says, this is an excellent site for support and information. I did not find it until after I'd had surgery, but I sure could have used the site earlier.  But I can offer support and some information for others now.   Take care and hang in there...Tim

myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 5/29/2008 4:34 PM (GMT -7)   
Ken,
I'm so, so sorry to hear about your brother. This disease sucks.

We're from the Tampa Bay area and I can tell you Shands has a solid reputation. You will be a great help to him, it's understandable that you're just trying to deal with this right now. What you've learned will kick in and you know he will get support and knowledge here.

I wish you all the best,
Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
PSA - Undetectable since 6/07/07

Link to journey:
http://www.healingwell.com/community/default.aspx?f=35&m=826731


smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 5/29/2008 5:44 PM (GMT -7)   

Ken

I am in my RV at Navy Air Station Jacksonville and getting treatment at the U of Florida Proton Therapy Institute.  It is located downtown next door to UFShands Hospital.  This is a Proton radiation facility but they do conventional radiation also.  They do not do surgery at the proton center but with the size of Jacksonville I am sure if surgery is the route he chooses there are many find doctors here.

Feel free to give my email to your brother.  I will try and assist in any way I can. 

You and your brother need to not panic and realize that this can be dealt with. 

Best regards

Richard


Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
U of Florida Proton Therapy Institute
5/2/2008 LUPRON & Casodex
IMRT to start 5/16/2008 for approx 4 weeks with Proton to follow for approx 4 weeks
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM
 


Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 5/29/2008 9:03 PM (GMT -7)   

Ken:

Family history is definitely one of the "red flags" when watching for Pca.  You are twice as likely to get Pca if your father had it and three times as likely if a brother had it.  I was the last of three brothers to get it - my older brother lost his battle with it and my younger brother has had it return after having surgery.

I'm sure your brother will appreciate your support and make sure those other brothers start tracking their PSA's.  Best wishes to all of you.

Dutch


Diagnosed Feb 2001  (Age 65)  Currently 72
PSA 4.8      Gleason 3+3=6      Stage   T2b
Completed Proton Therapy @ Loma Linda - 2001 - No side effects.  My journey is at: http://www.healingwell.com/community/default.aspx?f=35&m=727565
7yr PSA - 0.2
Our responsibility now is to educate men about Pca, PSA and the importance of early detection. 
 
 
 


smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 5/30/2008 8:51 AM (GMT -7)   
I am the youngest of 3 brothers who had a father with PCa.  All had some form of prostate problems but I am the only one with diagnosed PCa.  Another one of those quirks that we can not totally understand.
 
I guess if there is a good side to cancer it waited till I was well into my 60s before wanting a fight.
 
Richard yeah tongue yeah
Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
U of Florida Proton Therapy Institute
5/2/2008 LUPRON & Casodex
IMRT to start 5/16/2008 for approx 4 weeks with Proton to follow for approx 4 weeks
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM
 

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