JustJulie's Brachytherapy Journey - Continued

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JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 5/30/2008 7:39 AM (GMT -6)   

Listed below is "our" Brachytherapy journey.  Because the original thread was locked, I have restarted it here so people can continue to follow it and ask any Brachytherapy questions they may have ...

At the request of Bluebird and for all of you on the prostate cancer journey I have taken this opportunity to record our journey down the Brachytherapy trail.

So the story begins. My husband was 44, in great health, the prime of his life and things were swell for us. He goes for his routine checkup and our doctor advised that he's a firm believer in preventative care so he's sending him for a PSA screening test – totally precautionary – everything looks good – you're young and in great shape – exercising regularly, etc. etc.

The first blood test comes back a little high – the doctor says – could be anything, stress, infection – take another test next week and we'll revisit it. Second test comes back with the same results. Hmmmm ….. doctor sends him to the urologist for a biopsy – better get this checked out – again precautionary …

He meets with the Urologist – lovely little exam – he says maybe we should just rule things out once and for all – let's arrange for a biopsy – again precautionary (I'm beginning to dislike this word by this time, it was lulling us into a false sense of security)… He goes for the biopsy, not exactly pleasant, but what needs to be done is done and we take some Tylenol and go home for some rest and await the biopsy results.

I make arrangements to attend the biopsy results with my husband. They call his name – he stands up and walks down the hall – I follow. He tells me to go back to the waiting room and the stand-off begins. I'm very stubborn when it comes to certain things – he told me to go back and I stood my ground telling him "I'm only going to tell you this once, regardless of the outcome, we are in this together and I'm not above making a scene if you don't let me in". Knowing I was serious he relented.

We waited for the doctor as the anxiety set it. In walks the young doctor and out comes the chart. There's good news and bad news … my heart was in my throat … "you have cancer" he tells my husband, "but it's early" … at that point I think we shut down – there it was on the table the big "C" word – it had been uttered and confirmed – where do we go now?

Keeping our emotions in check the doctor turned to us and said "I'm not going any further with this discussion right now. I'll give you some reading material, go home and I'll see you in a month because you are likely not hearing anything I've said to you as of a minute ago". While it might seem cold, he was right on the money – we were in shock and couldn't process anything – we wanted to run – we didn't know what to do or how to feel. Admittedly, I made it out of the office to the car and then I cried – how could this be happening?

I am inquisitive by nature so I threw myself into investigating options, definitions, outcomes whatever I could get my hands on. The month came upon us and we discussed all the options – every one of them terrified us. I had an idea of what I wanted to do but the decision was not mine, it had to be my husband's and I had to be supportive. We opted to talk to every doctor about every option and the journey began (again) …

The Urologist recommended treatments in this order – surgery if possible, then Brachytherapy and then external beam therapy so off we went to the Radiologists. The external beam radiologist was first – he was encouraging – "whatever option you choose will yield good results" he confirms. However, I would recommend Brachytherapy over external beam if you're a candidate. Candidate? What candidate? What was this a contest, you qualify or you don't? Little did we know that there were certain parameters to Brachytherapy. Slowly we were becoming overwhelmed – what if we didn't "qualify" .. He assured us that if Brachytherapy, for some reason, was not an option, we had him to fall back on.

Meeting number two was with the Brachytherapist. Lovely woman, very upbeat – not so lovely in my husband's eyes after yet another examination … We went through the usual questions, health – good; children – yes; planning on having any more – no; any signs or symptoms – NO – and that was the kicker – not a sign or symptom other than the precautionary blood test.

She sends my husband for some preliminary testing – MRI, x-ray ,etc. to see if he qualifies. His Gleason score says he does, now we had to see if his body would agree – you can't push a needle through a pelvic bone so everything had to be in alignment. Once again I found myself all alone in a waiting room –trying to make use of the unbearable loneliness – smiling at who walked by, thumbing through a magazine I didn't even have any interest in – reading the same sentence over and over and over again …

We return to the conference room and the doctor looks at him and says "you're young, we don't get very many men you're age"… My mind is screaming – I've heard that so many times now that I don't need to hear it again – it's like confirming that this shouldn't be happening. The tests come back, he's a favourable candidate. By this time we've talked the Urologist and the external beam radiologist and we know this: (a) the tumour is in a "bad" spot, bordering on another organ. If they don't cut enough, they could cut the tumour in half and leave some in, if they are generous in their removal they could nick the other organ and leave him incontinent at the age of 44 – whoa Nelly that's a big consideration … (b) external beam radiation is an option but the doctor would suggest Brachytherapy first … the meeting with the Brachytherapist is the final meeting …

We move from the conference room to the viewing room. We watch the video all about Brachytherapy – the preparations, the expectation, etc. My heart's in my throat again and my husband's turning white … breathe, just breathe, we can do this I tell myself still not quite so sure I'm convincing either one of us …

With respect to timeline, this meeting is in February of 2006. My husband was first screened in September and October of 2005 which is when the PSA appeared "spiked".

The Brachytherapy doctor comes back in to see if we have any questions – of course we have a few – she asks some more, we ask some more and she says "I'll give you my card, let me know what you decide". By that point my husband had already decided. He tells her "no offence but you're my last stop, you were the final doctor we were to meet with, we've made our decision". She looks up from her pad and he tells her "we're in – set the surgery date".

Oddly, at that point some sense of relief came over me – some sense of terror too, but more of a sense of relief. We had talked and talked and talked and weighed options and met with doctors and researched – all to the point of exhaustion. Although every doctor told us we had '"time", "time" was the one thing we didn't feel we had enough of – we had lost a lot of "time" in the investigative part of this journey and we wanted some back. "We've waited long enough" he told her, "we want to move on".

Surgery was booked for two months later – more waiting, and wondering, but at least we had a date. April came and we prepared for surgery – I arranged a ride to and from the hospital because I didn't want to drive and we picked up the necessary pre-surgery supplies. In retrospect, my husband says the prep before surgery was worse than the surgery. When they say "cleanout" they mean it – not the most pleasant experience for either party. Surgery day came and we played the "hurry up and wait" game as we waited anxiously for the surgery theatre. We spoke little as words were kind of hard to come by, crossword puzzles, a fortune spent in magazines did little to pass the time. Finally the call came and off we went – I went as far as I could and then retreated to the waiting room where I tried to work on knitting a sweater – I undid it more times than I care to admit – I could have had the whole thing knit if I could have followed a pattern that day.

After what seemed like an eternity the doctor came out with the "everything went well" speech – see you around discharge at 4:00". I had nowhere to go but back up to his room – I didn't want him to be alone when they wheeled him back up. The guy in the next bed was still downstairs in surgery so his wife and I chatted the best we could – funny how nothing is off limits when your husband has prostate cancer – seems anatomical parts become a part of "normal" conversation and no one thinks anything of it … I guess it's just a form of acceptance at that point.

We got the briefing before we were released – the number of seeds implanted – 91 in all - (my husband's were "stranded" seeds meaning they were strung together like pearls) as part of an experimental study he opted for. There is less chance of migrating seeds and they apparently line the prostate better – we thought what the heck – if we can help the hospital with the study and we're not at any risk – let's do our part. We were given the list of do's and don't and what to eat and drink and general guidelines for recovery – by this time everyone just wanted to go home.

We left the hospital with a fist full of medications for different things – urinary flow and antibiotics among other things – thank goodness for pill containers or we never would have figured out what was what and when it was taken. Add a rubber ring for comfort on the ride home and we were on our way. The next few days were uncomfortable with bruising and a fear of urinating after the catheter came out (yow) but things started to settle down and fatigue settled in. For a man who's not used to stopping for anything, this sure knocked him out – I guess his body decided if he wasn't willing to listen to his body, his body would take charge and it did, and he opted on several occasions for an afternoon nap. There were days when I would have loved to have crawled in beside him and slept for a week but with two boys in the house I had to carry on.

Speaking of boys (or girls for that matter), for those of you with young children it can be trying on them. My boys were 15 and 10 at the time and they reacted very differently to their father's diagnosis. My youngest, the naïve one, simply said "well, we’ll just get it fixed Daddy" and carried on. My oldest, however, was angry, very angry that this could be happening to his Dad and in a roundabout way, to him. He was volatile and angry and it troubled me so see him going though that. We worked through it but I think he was scared – he was old enough to know the "C" word and he knew the possible outcomes. I think reality hit him too when his younger brother announced in the car and unprovoked "you know we'll have to get tested – I know you don't like needles but we're going to have to start getting tested" – he was all of 10 years old – I cried.

We saw the doctor for a follow-up one month later – May 2006. There was another MRI and more x-rays and the PSA screening test. She did another exam – scary how you somehow get used to those exams – is that normal? Results were good – prostate was "flat" and PSA was coming down.

Because my husband's job is labour intensive, he was off work for the next three months. Some people can go back after a few days, some a few weeks – his job was all or nothing so it wasn't until July when he went back. Fatigue was still somewhat of an issue but not like at the beginning.

We were back to see the doctor in August – another PSA test – with good results PSA is down to 0.95! Whoo hooo – we finally let ourselves semi-celebrate. Things are looking "good" she says – see you in November.

We attempt to take our lives back into some sort of normalcy again – busier schedules, etc. November arrives before we know it and we're back at the blood lab. Even better results this time – at six months post-surgery the PSA is 0.61 and we can go back to the Urologist in February and don't have to see the Brachytherapy doctor until June – sounds promising and we allow ourselves to relax (just a little).

Knowing you are never really out of the woods is a scary thought – results are good but the journey is never really over. There will be more tests and more monitoring and before you know it, another dreaded biopsy. Is it worth it – absolutely –but it is draining. We've attempted to use our experience as an education – I've harped on friends and family about the importance of a yearly physical. From a woman's point of view, men have it easy compared to what we go through – get a physical – trust me, it's worth it. Because of my husband's diagnosis, my family doctor now routinely screens mean at the age of 40 for prostate cancer and women for ovarian cancer – while I would prefer not to be the reason for that testing, if he can save one more family with early diagnosis, it will have been worth it.

This experience has taught me a lot – I tried to instill in my children who, by no fault of their own, are now at a 50% higher risk of contracting prostate cancer, the importance of a balanced diet and exercise, the gift of life and the love of family.

If you've made it this far in our journey, bless you, there must be a reason you're here and it's most likely because you or someone you know is on the same journey – be not afraid – you are not alone and medicine is advancing faster than you know – take comfort in that.

Our next appointment is in February, 2007, I'll keep you updated as we continue this journey. For those of you who have helped me through with encouragement, information and advise – thank you from the bottom of my heart.

Update:  May, 2009

PSA score down again from 0.39 to 0.31 - no side effect and my husband is doing great.  For those following this journey, I will continue to provide updates to this running log so everything stays in one place.


Husband diagnosed in December 2005
PSA of 3.74
Gleason 6
Brachytherapy (91 stranded seeds) April 2006
PSA of 0.39 - November 2008 - whoo hooo!
PSA of 0.31 - May, 2009 - whoo hoo again!
 

Post Edited (JustJulie) : 5/20/2009 7:17:47 AM (GMT-6)


JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 5/30/2008 7:43 AM (GMT -6)   

Hi JustJulie,

I wonder if you'd mind answering a couple of questions for me?  What kind of seeds did you husband have? Where in the prostate WAS his cancer, left margin, right margin, middle etc.? Did he have EBR with it as well? PSA level and Gleason score when first detected?

We met today with the radiologist. My husband will have an MRI and an Ultrasound done on 6/16 and 6/17. After that he has to decide on what to do.  After speaking with both the surgeon, urologist and the radiologist it appears seeds would be the better option. Thanks for your help.    

In answer to your questions - my husband had 91 Iodine seeds planted - they were stranded seeds.  His cancer was located in the apex, which is the bottom of the prostate as I understand it.  No ERB.  His PSA level was 3.74 when diagnosed with a Gleason score of 6.
 
The only side effect he had that caused him any "trouble" if you can call it that was some fatigue - other than that, he would opt for Brachytherapy again without looking back.  Wishing you well on your decision and, if you have ANY other questions, please don't hesitate to post.
 
JustJulie

lvdgs
Regular Member


Date Joined May 2008
Total Posts : 70
   Posted 5/30/2008 11:27 AM (GMT -6)   
Thank you JustJulie.

If my husband goes this route, which I think he will if everything works out with the MRI and Ultrasound he will have the Iodine seeds. This doctor doesn't do the Rapid Strand anymore he's moved on to SourceLink. He explained it's like a Lego which snaps together so this way if they have to be adjusted he doesn't have to pull the whole string of seeds. It was the first I've heard of it but sounds good. His cancer is along side the margin on the right side and with seeds they can go around it to cover all the bases. With surgery they will remove the nerve on that side and neither option is fool proof as we all know.

Once again, thanks for your help.

JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 11/20/2008 3:09 PM (GMT -6)   

After considerable searching I found this continuation thread.  I was beyond thrilled to share the news that my husband's PSA has just come back at 0.39!  We are so relieved after the last scare of a jump to 1.8 - this is truly reason to celebrate - please just us in our rejoicing and my continued thanks to those who have continued to support me on this journey.

JustJulie


Husband diagnosed in December 2005
PSA of 3.74
Gleason 6
Brachytherapy (91 stranded seeds) April 2006
 


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 11/22/2008 8:53 AM (GMT -6)   
JustJulie- as one of the real veterans around here, you probably have no idea how many folks you've helped from those of us who came on in the "early" days of this forum to now and for those who lurked then and continue to do so.

It's so wonderful to hear this excellent news.
Husband: Age 67
PSA had doubled in 14 mos to 4.3/Gleason 6
da Vinci 8/06 in Austin with Dr. Randy Fagin
Post surgical path shows encapsular penetration; possible bladder neck involvement.
PSAs remain undetectable; no further treatment at this time.
Next PSA: April 08


JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 11/24/2008 8:42 AM (GMT -6)   
GreenAcres:
 
I truly believe in giving back and I have received so much information and support from this forum I think it's only fair to support those who need information on treatment options or just a thought to help them through the day.  We've all been someone on this road and we know how hard it can be - just having this forum has helped me survive - if I can help just one person, that makes me happy.
 
Husband diagnosed in December 2005
PSA of 3.74
Gleason 6
Brachytherapy (91 stranded seeds) April 2006
PSA of 0.39 - November 2008 - whoo hooo!
 


JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 4/7/2009 1:42 PM (GMT -6)   

Just bumping this up for those interested in the Brachytherapy option ...

Small update:

Ontario's loss is British Columbia's gain - our Brachytherapist is moving her practice to British Columbia - anyone in that province considering this treatment will be lucky to cross paths with Dr. Juanita Crook.

 


Husband diagnosed in December 2005
PSA of 3.74
Gleason 6
Brachytherapy (91 stranded seeds) April 2006
PSA of 0.39 - November 2008 - whoo hooo!
 


Jon2009
New Member


Date Joined Apr 2009
Total Posts : 13
   Posted 5/11/2009 9:12 PM (GMT -6)   
JustJulie, thanks for this thread. I go for my biopsy 5/29 and although hoping for the results to be negative I'm doing a lot of research now about the treatment options. So far I'm leaning towards brachytherapy if I get the undesirable biopsy result, provided brachytherapy would be an option for me. I'm 49 and have an active sex life and brachytherapy appears to have the lowest risk in that regard while producing a similar cure rate as the other options.

Jon
Age:  49
PSA 4/08:  1.7
PSA 3/09:  3.6
PSA 4/09:  6.0


Squirm
Veteran Member


Date Joined Sep 2008
Total Posts : 744
   Posted 5/12/2009 12:50 AM (GMT -6)   
Just curious if you guys also considered proton beam?

JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 5/12/2009 7:42 AM (GMT -6)   
We have not looked back since choosing Brachytherapy and it must be becoming more popular as our local hospital is now offering it as a treatment.
 
With respect to proton therapy - it was never offered here.
Husband diagnosed in December 2005
PSA of 3.74
Gleason 6
Brachytherapy (91 stranded seeds) April 2006
PSA of 0.39 - November 2008 - whoo hooo!
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/12/2009 7:48 AM (GMT -6)   
Julie,

So glad you husband is doing so well, may it continue that way for a long, long time.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10 doubled in 3 months, new test in six weeks, then possibly off for salvage radiation
 
 


KeyWestPirate
Regular Member


Date Joined May 2009
Total Posts : 60
   Posted 5/12/2009 9:06 AM (GMT -6)   
Great, detailed story. The WHY behind the treatment decision is very important to newly diagnosed patients. There are often individual variables that make the decision more difficult, like your husband's tumor location.

Congratulations on your husband's recovery. You have every right to be proud of your crucial part in his decision. Please continue to provide followup as the months roll by. NONE of us are out of the woods yet, and may never be. I thought that I was done, but recent posts prove that we can NEVER quit watching.

I too would like to hear stories from other, less-conventional treatment survivors, like Proton Beam and HIFU.

It's also nice to hear what is happening in a market OTHER than the US (different provider system & different financial motivations).

JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 5/12/2009 9:16 AM (GMT -6)   

All:

I will have an update next week as my husband's follow up with the Urologist in next week.  Here's hoping for continued good results.

If any of you have any other Brachytherapy questions, please don't be afraid to ask anything - and I mean anything.

For those of you living in the Durham Region in Ontario, you will be pleased to know that the Durham Region Cancer Centre in Oshawa, Ontario is now offering Brachytherapy as an alternative to going downtown to Princess Margaret.

JustJulie


Husband diagnosed in December 2005
PSA of 3.74
Gleason 6
Brachytherapy (91 stranded seeds) April 2006
PSA of 0.39 - November 2008 - whoo hooo!
 


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4268
   Posted 5/12/2009 10:54 AM (GMT -6)   
Julie,
I'm scheduled for brachetherapy next week, followed by 5 weeks of IMT. The only difference is that I went on Casodex and Proscar for 3 months prior to the procedure and my PSA dropped form 30 to 0.6 in four weeks.
Was there any foods that your husband could't tolorate? I heard stay away from caffine, raw fruits and veggies, and anything spicy.
JT

64 years old.

I had an initial PSA test in 1999 of 4.4. PSA increased every 6 months reaching 40 in 5-08. PSA free ranged from 16% to 10%. Over this time period I had a total of 13 biopsies and an endorectal MRIS all negative and have seen doctors at Long Beach, UCLA, UCSF and UCI. DX has always been BPH and continue to get biopsies every year.

In 10-08 I had a 25 core biopsy that showed 2 cores positive, gleason 6 at less than 5%. Surgery was recommended and I was in the process of interviewing surgeons when my wife's oncologist recommended I get a 2nd opinion from a prostate oncologist.

I saw Dr Sholtz, in Marina Del Rey, and he said that the path reports indicated no tumor, but indolant cancer clusters that didn't need any treatment. He was concerned that my PSA history indicated that I had a large amount of PC somewhere that had yet to be uncovered and put me through several more tests.

A color doppler targeted biopsy in 11-08 found a large tumor in the transition zone, gleason 6 and 7. Because of my high PSA Dr. suspected lymph node involvement, 30% chance, and sent me to Holland for a Combidex MRI, even though bone and CT scans were clear.

Combidex MRI showed clear lymph nodes and a 2,5 cm tumor in the anterior. I was his 1st patient to come up clear on the Combidex which has a 96% accuracy,

I've been on a no meat and dairy diet since 12-08 and PSA reduce to 30 while I awaited the Combidex MRI.

The location of the tumor in the anterior apex next to the urethea makes a good surgical margin very unlikely. Currently on Casodex and Proscar for 8 weeks to shrink my 60 mm prostate. Treatment will be seeds followed by 5 weeks of IMRT while continuing on Casodex and Proscar. So far no side affects from the Casodex.

As of April 10 and 7 weeks on Casodex and Proscar PSA has gone from 30 to 0.62 and protate from 60mm to 32mm. Very minor side affects. Doc says all this indicates tumor is not aggessive

Awaiting schedule for seed impants

 


JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 5/12/2009 11:04 AM (GMT -6)   

John:

Best wishes for you procedure - before you know it you'll be on the recovery side and I wish you well there too!

We heard the same things, spicy foods, caffeine, etc. but our doctor, who is fabulous, said if you crave it, try it but in MODERATION.  That is the key - and if you crave more than one thing on the "no no" list, try only one so you will be able to tell which "no no" is the culprit.  Raw veggies may cause you some discomfort, not necessarily from the Brachytherapy but the digestion process.

We also heard no alcohol but my husband loves an ice cold beer so he tried that in moderation and he was fine.

Best of luck to you - please kee p me posted.

 


Husband diagnosed in December 2005
PSA of 3.74
Gleason 6
Brachytherapy (91 stranded seeds) April 2006
PSA of 0.39 - November 2008 - whoo hooo!
 


mjluke
Regular Member


Date Joined Jan 2009
Total Posts : 189
   Posted 5/12/2009 12:38 PM (GMT -6)   

Julie:

Congratulations on your success and continued good health to you both. I am scheduled for Brachytherapy next week- I am prepared for ED and incontinence but please tell me that I don't have to wait six weeks before I can golf again.


 
63 years old-tumor discovered on digital exam- biopsy December 2008-
4 of 12 samples positive-all on right side
Gleason 3+3=6
PSA-3
Otherwise excellent health.
 
  "There may come a day when the courage of men will fail, but it will not be this day."


JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 5/12/2009 12:40 PM (GMT -6)   

mjluke:

Good luck to you on your Brachtherapy - my husband did not and still does not suffer from ED or incontinence and, while you may need a nap after a round of golf, if you're feeling up to it - enjoy a round for me!

Best wishes and thanks, everyone for giving this thread some new life!

Regards from the wife of a fellow Brachytherapy patient,

JustJulie


Husband diagnosed in December 2005
PSA of 3.74
Gleason 6
Brachytherapy (91 stranded seeds) April 2006
PSA of 0.39 - November 2008 - whoo hooo!
 


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4268
   Posted 5/12/2009 4:07 PM (GMT -6)   
mjuke,
My radioligst, who is a golfer, said I could golf in two days and also riding dirt bikes wouldn't be a problem.
JT

64 years old.

I had an initial PSA test in 1999 of 4.4. PSA increased every 6 months reaching 40 in 5-08. PSA free ranged from 16% to 10%. Over this time period I had a total of 13 biopsies and an endorectal MRIS all negative and have seen doctors at Long Beach, UCLA, UCSF and UCI. DX has always been BPH and continue to get biopsies every year.

In 10-08 I had a 25 core biopsy that showed 2 cores positive, gleason 6 at less than 5%. Surgery was recommended and I was in the process of interviewing surgeons when my wife's oncologist recommended I get a 2nd opinion from a prostate oncologist.

I saw Dr Sholtz, in Marina Del Rey, and he said that the path reports indicated no tumor, but indolant cancer clusters that didn't need any treatment. He was concerned that my PSA history indicated that I had a large amount of PC somewhere that had yet to be uncovered and put me through several more tests.

A color doppler targeted biopsy in 11-08 found a large tumor in the transition zone, gleason 6 and 7. Because of my high PSA Dr. suspected lymph node involvement, 30% chance, and sent me to Holland for a Combidex MRI, even though bone and CT scans were clear.

Combidex MRI showed clear lymph nodes and a 2,5 cm tumor in the anterior. I was his 1st patient to come up clear on the Combidex which has a 96% accuracy,

I've been on a no meat and dairy diet since 12-08 and PSA reduce to 30 while I awaited the Combidex MRI.

The location of the tumor in the anterior apex next to the urethea makes a good surgical margin very unlikely. Currently on Casodex and Proscar for 8 weeks to shrink my 60 mm prostate. Treatment will be seeds followed by 5 weeks of IMRT while continuing on Casodex and Proscar. So far no side affects from the Casodex.

As of April 10 and 7 weeks on Casodex and Proscar PSA has gone from 30 to 0.62 and protate from 60mm to 32mm. Very minor side affects. Doc says all this indicates tumor is not aggessive

Awaiting schedule for seed impants

 


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4274
   Posted 5/12/2009 6:07 PM (GMT -6)   

Hi Guys:

This looks like a convention of the HW seed folks!  Julie, I look forward to hearing your hubby's results next week...I trust they will be great as usual!

Jon, I truly hope your biopsy comes back negative and that your can forget about us.  But...if not, you should consider the full range of choices and you will get plenty of advice and wisdom on this site.  If you have some time to kill, you can read my brachytherapy journey via the link in my signature.  I'm still "new" relative to Julie, but all goes well (and I mean ALL) and I would be happy to answer any brachy questions you may have.  I get my first post-op PSA test next month - 6 months post procedure and I'm figuring on nothing but good news.

JohnT...I have May 19 penciled in on my calendar and you will have all of my best wishes that day...I'm sure it will be a breeze.  And, I agree with Julie re moderation and you should not have any big issues.  I think I may have told you that caffeine made me "go", so that was the only thing I really gave up.

mj...don't know where you got the idea about incontinence...that is VERY unlikely.  You may have a little frequency or urgency but it should not be a big deal.  The ED MAY happen but, if so, it should be 2-3 years down the road.  Early on those problems should not exist at all.  And, you should have no problem with golf within a couple of days.  Within 2 days I was totally back to normal (I just waited the prescribed 2 weeks for sex).

And, Key, glad to see you on a brachy thread.  I know your original idea was that this was for 85 year olds with renal failure, so I trust you see that most of us are a bit younger than that...and still alive and kickin'

My best to all of you, especailly John and mj who get seeded next week.

Tudpock

 


Age 62
Gleason 4 +3 = 7
T1C
PSA 4.2
2 of 16 cores cancerous
27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 5/1/09.

jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 5/12/2009 8:54 PM (GMT -6)   
JustJulie sounds trippingly on the tongue.  Wonderful to hear from you and most pleased at hubby's results.  Best to you - just the best.  You do good work here.
 
Regards,
 
Bill
August of 2006, PSA up to 4.2 from 2.7 one year ago. 
October free and total PSA 12% free and 5.0 total.
A month, or so later, 4.7.
Late in the year decide on Image Guided IMRT.
Begin 43 treatments on January 23, 2007 and finish on March 23.
 
Wow, almost two years behind.  I had a typical radiation bounce that
scared me, but it seems to be ok.  PSA is about 1.0 which is ok for
a rad guy at this stage of the game.
 
Got my FAA medical certificate back four months after starting my
treatment.  It's still a First Class, just jumping through a few hoops.


mjluke
Regular Member


Date Joined Jan 2009
Total Posts : 189
   Posted 5/13/2009 8:36 AM (GMT -6)   

Tudpock- My post about accepting ED and incontinence but concerned about being unable to golf for six weeks was not supposed to be taken literally. I thought that would be obvious- particularly to a golfer such as yourself.. I am fully aware of the generally positive outcomes of Brachytherapy.

JT: I am encouraged that you  and Tudpock were golfing within a couple of days. In the meantime a pamphlet given to me at the clinic states-" activities such as jogging, biking and contact sports should not be resumed before six weeks following implant."

I will have a chat with my Brachytherapist about this- My guess is that a couple of days wait will be fine.



 
63 years old-tumor discovered on digital exam- biopsy December 2008-
4 of 12 samples positive-all on right side
Gleason 3+3=6
PSA-3
Otherwise excellent health.
 
  "There may come a day when the courage of men will fail, but it will not be this day."

Post Edited (mjluke) : 5/13/2009 7:49:42 AM (GMT-6)


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4274
   Posted 5/13/2009 11:42 AM (GMT -6)   

mj...sorry, I got the golf part but took the ED/incontinence part too literally.  I'm never sure who knows what and was trying to be helpful. 

Glad you're aware of what to expect and I wish you all the best...JohnT is May 19, what is your date?

Tudpock


Age 62
Gleason 4 +3 = 7
T1C
PSA 4.2
2 of 16 cores cancerous
27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 5/1/09.

mjluke
Regular Member


Date Joined Jan 2009
Total Posts : 189
   Posted 5/13/2009 2:01 PM (GMT -6)   
Tudpock :  I understand fully and as always appreciate your response. I am also scheduled for May 19.
 
63 years old-tumor discovered on digital exam- biopsy December 2008-
4 of 12 samples positive-all on right side
Gleason 3+3=6
PSA-3
Otherwise excellent health.
 
  "There may come a day when the courage of men will fail, but it will not be this day."


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4274
   Posted 5/13/2009 4:02 PM (GMT -6)   

mj...by the way, I forgot to tell you and JohnT one of the advantages of brachy.  You can get up and pee at night and don't need to turn on the lights!

Seriously, good luck on the 19th.  I'll be thinking about both of you on that day and be looking for your follow up postings. 

Best,

Tudpock


Age 62
Gleason 4 +3 = 7
T1C
PSA 4.2
2 of 16 cores cancerous
27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 5/1/09.

JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 5/19/2009 12:51 PM (GMT -6)   

Whoo hooo - a reason to celebrate!

For those following our Brachytherapy journey - today's result was 0.31 (down from 0.39) and we are thrilled!

Thanks for all those who have kept us in their thoughts and prayers.

JustJulie


Husband diagnosed in December 2005
PSA of 3.74
Gleason 6
Brachytherapy (91 stranded seeds) April 2006
PSA of 0.39 - November 2008 - whoo hooo!
 

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