Experiences with recovering from ED?

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Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 6/2/2008 1:40 PM (GMT -6)   
I am curious and would like to find out from others who have experienced the correction of ED following prostatectomy. Did you "gradually" recover function over a period of weeks or months once partial spontaneous activity started, or was it more a short term recovery? I am beginning to have some, 60 to 70% erections with no meds or injections, not suitable for activity but still something. I am curious if the rest of my journey is a time issue or not. Any help or info would be appreciated. I go tomorrow for my 9 month PSA, got my fingers crossed!!!

Randy
46 you when diagnosed, now 47
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Cialis 5 mg every night.
Success with BiMix


Pelahatchie
Regular Member


Date Joined Jul 2007
Total Posts : 86
   Posted 6/2/2008 3:04 PM (GMT -6)   

Hey lungman,

I had Da Vinci almost three years ago and I was fully sexually functional within three weeks after the surgery, I was 46 at the time.  I know from what I read here that I was very fortunate.  I also recently finished nine weeks of radiation therapy on March 6th 2008 and as of this writing I am still doing okay sexually though I feel like the radiation did take some of the wind out of my sails but so far not a big deal.

I guess my message here is don't give up and continue to work at it you should get some good results.  Good luck.

 

 


Age 45 at DX
 
DX 8/05 Gleason 5, Mayo clinic Second Opinion Gleason 6, PSA 2.8
 
Da Vinci surgery Dr. Dasari, Centennial Nashville 9/24/05
 
Pathology Report Gleason 6, 15 % on left side only very near to the edge of capsule, too close to call on margins, doc's said to watch it very closely, final decision T2A
 
PSA's have basically ranged from <.04 to .05 for two years.
 
no E.D. and no Incontinence, feel very blessed
 
PSA Nov 07 = .06
 
PSA Dec 10th 07 =.07
 
PSA Jan 4th 2008= .1
 
Started Guided IMRT on January 7th, 2008 to treat prostate bed and lymph nodes, completed on March 6th, 2008
 
PSA April 18th 2008 =.03


Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 6/2/2008 3:36 PM (GMT -6)   
Thanks for the reply, I hope you continue to have those low PSA's following RadTx. I am noticing some improvement as noted, I appreciate your encouragement.

Randy
46 you when diagnosed, now 47
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Cialis 5 mg every night.
Success with BiMix


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 6/2/2008 5:16 PM (GMT -6)   
It is a gradual process that takes up to 2 years. So, while it may plateau, don't give up hope. It also seems (from what I've read) to improve in fits and spurts. poor choice of words, but you know what I mean.
Paul
47 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6      (Biopsy 3/07 just suspicious)
10/07 PSA 5.06   (Biopsy 11/07  1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC  www.roboticoncology.com
Saved both nerve bundles.
Path Report:  Stage T2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
PSA 0 at six weeks
Pad free on March 14 - (10 weeks.)
ED - Take 100mg viagra every night.
Totally usable erections at 10 weeks.
 
 


StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 357
   Posted 6/2/2008 11:05 PM (GMT -6)   
I am nearing the two year mark, and am maybe at 50% with significant manual encouragement, as far as erections go. Not sure I'll see much better, but there has been some noticeable progress of late. But, I'm using injections now for best performance.
____________________

Prostate cancer diagnosed: May 15, 2006 (age 40)
Gleason score: pre-surgery 3+3=6; post-surgery 3+4=7
daVinci radical prostatectomy: July 25, 2006
size of tumor: approx 1.1 inches; negative margins from surgery

- number of pads/day at 3 months after surgery: 3 to 5
- number of pads/day at 4 months after surgery: 1 to 2
- number of pads/day at 6-18 months after surgery: 0 to 1

- 1st post-surgery PSA: 0 (Nov 2006); 2nd post-surgery PSA: 0 (Feb 2007)
- 3rd post-surgery PSA: 0 (May 2007); 4th post-surgery PSA: 0 (June 2007); 5th post-surgery PSA: 0

The search for timber: took Viagra/Cialis approx. every other day, ErecAid once a day, injections. Peyronie's diagnosed 7/5/07. Now on daily Cialis, L-arginine and pentoxyfylline. Peyronies has stabilized and significantly reversed.

- PGE1 batting average: .364 (4 for 11)
- Bimix #3 batting average: .722 (13 for 18) Bimix #1 batting average (11 for 11) = 1.000
- Trimix batting average: .500 (1 for 2) Grand total 29 for 42 = .690

"Lost in the valley without my horses, no one can tell me what my remorse is..."


Ripandburn
Regular Member


Date Joined Aug 2007
Total Posts : 125
   Posted 6/3/2008 7:30 AM (GMT -6)   
Unfortunately we all heal differently. Some never have a problem with ED from day one, and some have to work for a while to get it back. I have seen posts that are from guys that have gone 2 years.... and longer who got it back. Nerves take time to heal. But, you need to keep working things. Nothing will ever be completely the same as it was before. It is a fact that we all have to deal with. This is not a club that I am really happy to be a part of, but I am happy that all my PSA checks have been 0.
52 years old
T1c 3+3=6
DaVinci July 16, 2007
largest cancer .2mm
Bladder Sling installed during prostate removal
nerve sparing with both nerve bundles intact
all cancer contained within prostate nothing near margins
11 weeks post-op - no more pads
3 PSA's all < .1 - Undetectable


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 6/3/2008 8:25 AM (GMT -6)   

 

  Hey Rip...I was wondering where you had your surgery performed? I noticed you had the Bladder sling incorparated as part of your surgery. My surgeon is doing the same thing.....I just wondered if Dr. John Scott happened to be your Doc??   I'm just a few miles north of Indy.         Sorry didn't intend to hijack the thread...thanks  

 

  


 
   age: 53
   Pre-0p PSA  Feb. 08, 5.0
      4.22.08, 4.1
      PSA had spiked once about 8yrs ago to 5.0 three months later
      back to 2.9...then into the 1.2 range until my re-scheduled 
      "missed" appointment this past Feb.
      Biopsy 5.1.08 
      Gleason-3+4=7
      T2a
      5 of 15 cores positive
      Da Vinci scheduled..7.29.08..as I read somewhere on this 
      site....."the first show of the day"


Ripandburn
Regular Member


Date Joined Aug 2007
Total Posts : 125
   Posted 6/3/2008 9:52 AM (GMT -6)   
My guy was Hollensbe....but Hollensbe and Scott work as a team, so you might say we had the same surgeons. I have turned on my e-mail. I live on the northwest side of Indy.
52 years old
T1c 3+3=6
DaVinci July 16, 2007
largest cancer .2mm
Bladder Sling installed during prostate removal
nerve sparing with both nerve bundles intact
all cancer contained within prostate nothing near margins
11 weeks post-op - no more pads
3 PSA's all < .1 - Undetectable

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