Who gets prostate cancer

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/8/2008 5:55 PM (GMT -6)   
Food for thought.
 
According to the National Cancer Institute, there were 1,721,290 men, of all races, living with Prostate Cancer on January 1, 2001, in the United States. Of that number, 11,639 were under 50 years of age, or less than 1% (0.7%) and only 50,210 (2.9%) were under 55 y/o. As you would expect, the overwhelming majority of these had been diagnosed with the disease sometime within the previous 1 to 10 years. In fact, of ALL PCa survivors, those having been diagnosed within the previous 10 years amounted to 89%, or over 1,500,000 of the total. The remainder had survived for up to 26 years after being diagnosed.

The complete breakdown of the numbers, by age, were as follows:

<40 = 394,
40-44 = 1,755,
45-49 = 9,490,
50-54 = 38,571,
55-59 = 90,530,
60-64 = 162,986,
65-69 = 257,893,
70-74 = 357,653,
75-79 = 376,996,
80-84 = 256,652,
85+ = 168,370

Total = 1,721,290 (as of 1-1-2001)
 
Look how lucky I was...LOL!  I wonder what percentage of the 40-44 group was advanced?  Oh, well.  Doesn't matter.  Let's see the next decade.
 
Tony


Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 6/8/2008 6:19 PM (GMT -6)   
I was one of the lucky ones that had advanced, but I was in the next age group.
Lets keep getting the info out there so we can stop this disease.

peace to all
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
cancer in 4 of 6 cores
92%
80%
37%
28%
 


smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 6/8/2008 7:10 PM (GMT -6)   
It is my humble opinion that the numbers are skewed because so few in the lower age brackets are even tested.  So many of those diagnosed at 50 and above could have actually had PCa a long time.  It is this reason we must fight to get men to start being tested at least by 40. 
 
Richard yeah tongue yeah
Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
U of Florida Proton Therapy Institute
5/2/2008 LUPRON & Casodex
IMRT to start 5/16/2008 for approx 4 weeks with Proton to follow for approx 4 weeks
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM
 


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 6/8/2008 7:16 PM (GMT -6)   
I saw 3 Dr's before chosing my surgeon. One of them told me that virtually all men who live to the age of 85 will have prostate cancer - it is only a matter of degree. I asked him point blank how early this disease strikes, and he said he had just performed the robotic surgery on a 41-year-old, and another guy in his practice had just diagnosed a 35-year-old with PCa.
Good grief...
kcragman
Age: 52
March 2006: PSA 2.5
Dec 2007:   PSA taken for insurance application. I did not see the results until late Jan '08 - after I was rejected. Their lab said PSA 4.5. PSA again in Feb '08: 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were cancerous and the 6th did not look good.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.
Post op: Gleason 9 (4+5). 15% of prostate involved. Negative margins. Lymph nodes and associated glands all appear to be cancer free.


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 6/8/2008 8:08 PM (GMT -6)   
Nice job, Tony.
 
Just tells me we all should get tested earlier and earlier.  The test is so inexpensive... less than a few cold remedies.

Barry ~ (a.k.a. "Idaho") - Prostate Cancer Forum Moderator

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  09/11/2007  <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

3rd PSA  03/17/2008  <0.04

My web site: http://pca-info.blogspot.com


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2291
   Posted 6/8/2008 10:50 PM (GMT -6)   

I agree with Richard that the numbers are likely skewed, especially in the under-50 group.  I think that the over-50 numbers are skewed as well, because so many physicians do not test for PSA and those who do don't use the latest prostate cancer expert opinions about follow-up for lower PSAs.

If my primary care physician hadn't been alert to my PSA velocity I might still be out there walking around with a prostate cancer time bomb.  Would it now be outside the prostate? Would it by now have spread to the seminal vesicles? The lymph glands?  The hip bones?

As it turned out my prostate cancer was found in the earliest, most treatable stage.  I'm thankful it was.  I'm a lucky unlucky guy!

 



Age 59  PSA quadrupled in 1 yr (0.6 to 2.5) 
DRE neg  1 of 12 biopsies pos (5%) 
Open surgery June 2006 
Cancer confined to prostate (1 pea-sized area) 
T2a  Gleason 5 (3+2)  PSA's < 0.1  


Roger G
Regular Member


Date Joined Apr 2008
Total Posts : 150
   Posted 6/9/2008 7:52 AM (GMT -6)   
With those kind of odds, I'm going out to purchase a lottery ticket!!

Thanks Tony
Age: 43 (2008)
DRE Small Ridge on prostate, PSA 1.5
07/2007: Diagnosed cancer, T2c, Gleason 3+4=7
09/2007: Laparoscopic prostectomy @ Hamilton General, 4 hrs.
              Both nerve bundles spared
              Pathology Report: Tumor confined w/in prostate
              T2c, Gleason is 3+3=6
              Went home with JP drain
10/2007: Made return trip to hospital.  All urine was comming out JP drain.
10/2007: Catheter removed. Next to no leakage
11/2007: 1st PSA <.003 :)
              ED: Started Viagra, no response yet.
12/2007: Had confidence to go padless!!!!!
12/2007: ED:  Stopped Viagra as it's causing hemroid problems.
01/2008: 2nd PSA <.003 :)
              ED: next to no response.
04/2008: 3nd PSA <.003 :)
              ED: next to no response.  Changed the Viagra prescription.
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/9/2008 8:32 AM (GMT -6)   
I'll try to be conservative with this statement.

When you think about these numbers, and they are likely skewed a bit, But I would guess that there are 15,000 Americans under the age of 50 that have this disease and don't even know it. And most won't find out until they are 50 when a routine test is run. These guys will make up a large number of the advanced stage group. So, I believe, early testing can pick up some of these guys early enough to keep them out of the advanced stages. I am convinced that getting the word out is the right thing to do.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


Kark60
Regular Member


Date Joined Jun 2008
Total Posts : 91
   Posted 6/10/2008 2:42 PM (GMT -6)   
There appears to be several of us on this forum with prostate cancer under the age of 50. I had no family history or symptoms that would draw my attention to that part of my body. I also never "shyed-away" from the doctor or any type of recommended screenings. In fact, I've been watching cholesterol very closely for the past several years. No doctor ever suggested a PSA to me. It was something "to do" at age 50 (along with a colonoscopy). If they had ever hinted that a PSA was a good idea, I certainly would have done it!!

I am 47 and learned about the POSSIBILITY of having prostate cancer after having a free biometric screening at a "wellness fair" provided by my employer. The fair included a voluntary biometric screening for blood sugars, cholesterol, and a "throw-in" PSA for men. The PSA came back at 13.7, which lead me to my family doctor, then a urologist, then a biopsy, then a diagnosis, and then robotic surgery (all within about two months).

While I realize it is not productive to be angry about all of this; I'm still angry because I doubt my PSA went from "normal" to 13.7 in a brief period of time. If I had been regularly screened beginning at age 40, or even 45, I might have caught this earlier and I am coming to an understanding that a lower PSA means better long-term outcomes.

I also feel very lucky for the wellness fair. Without the free biometric test, who knows how much longer it would have been before my cancer was discovered!!

Thanks for letting me "vent." The bottom line is I favor earlier testing. I'm living proof it is valuable...
Husband and father of two (current ages 4 and 6).
Age when diagnosed: 47 (current)
Biopsy showed cancer only on left side.
Pre-surgery PSA: 13.7
Pre-surgery Gleason: 4+3=7
Pre-surgery Staging: T2
CT Scan, Bone Scan, PET Scan: Clear
Robotic Surgery on May 28, 2008, at Barnes Hospital in St. Louis
Catheter for 8 days with infrequent "stress" leaking.


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 6/10/2008 2:56 PM (GMT -6)   
Kark,
 
I agree that men should be screened routinely much earlier...probably by age 40 even without a history in their family.
 
As for rapid PSA increase, mine went from 1.8 in 2006 to 14 in 2007.  My urologist had a patient go from 0.4 to 30 in six months, so sometimes it does move quickly.
Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/2/2008 2:52 PM (GMT -6)   
Bump ~ FYI
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/5/2008 9:56 AM (GMT -6)   
cool cool cool cool cool
cool  BUMP    cool
cool cool cool cool cool
 
 
Just because.  These numbers do tell a story even though the younger crowd is not tested.

SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 9/5/2008 11:57 AM (GMT -6)   
I should play the lottery :)...naw I keep my luck for 0's!!!!
Age 37
 
Diagnosed 7/2008
Da Vinci Surgery 7/2008
First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008
Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008
Prostate MRI: Normal 7/2008
Biopsy : 6 out 12 Postive all on right side, Gleason 7 (3+4).
PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
First PostOp PSA: 9/2008


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 9/5/2008 12:59 PM (GMT -6)   
Hmmmm....7 year old data...bet the numbers aren't even the same or the same spread today between ages. I bet the 40 and under crowd has grown based on some of the posts I see here. I have mixed feelings about that, as I hate to see so many young people have to deal with this disease as it seems that the younger they are the more aggressive the cancer is. Anyway...good info regardless...keep it up Tony
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal-Gland 38 cc
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral (Perineural Invasion present at base)
Gleason (3+3) 6  Stage T1C
Robotic Surgery scheduled Sept 18, 2008


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 9/7/2008 6:59 PM (GMT -6)   
Tony, Really wonderful work that you are doing. We have two sons 34, and 39....My husband, Pete was diagnosed at 65, although, he probably had it earlier...His father also had it...dx at 70...The problem is: what to do? what avenue to take? radiation, surgery, cryo, ....There are many options today, depending on gleason psa etal, and yet we are left to try to decide for ourselves. The side effects sometimes are so difficult, whichever route you take. We chose radiation, and seeds....which turned out not to get it all. Then with the salvage surgery five years later, we are dealing with major side effects.. Once decided, there is no looking back...we are forging ahead, and pulling hard on the oars of good fortune. That is all one can do....Diane
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu


siennese
New Member


Date Joined Sep 2008
Total Posts : 5
   Posted 9/7/2008 8:10 PM (GMT -6)   
Thanks for bumping this thread, Tony. When my partner was diagnosed, his doctor told him that he'd very likely had cancer for at least the last 12 years. I don't know if that's an accurate assessment, but if so, that means he could have been diagnosed at 47. I wonder how things would have changed for him if he'd known earlier (even a year earlier, when his PSA began to rise).
Wishing the best to you,
Siennese
Partner diagnosed at age 59 (2008)
7/2008 -- PSA 4.3
7/2008 -- biopsy, cancer in 6 of 12 needles, Gleason 3+3=6
8/2008 -- RP performed. Both nerve bundles spared.
Pathology report:
Gleason 3+4=7
Tumor in both lobes, with positive right margin and bilateral apical margins
Seminal vesicles clear; lymph nodes clear
Stage T2C

Catheter out after 10 days. Continence improving slowly.

First PSA -- coming soon....


cave88
Regular Member


Date Joined Jul 2008
Total Posts : 76
   Posted 9/19/2008 7:55 PM (GMT -6)   
There was a Dr on the radio in Ft Wayne Indiana this afternoon promoting free prostate screening for men over the age age of 50. I was the first caller. Had to ask the question why 50 to 75? I even told how I know 80 year olds who still jet-ski. The Dr gave the usual statistical analysis of why 50 to 75 and slow growing. I think its great that they were on the radio promoting free testing and raising the awareness. However, according to the 2001 stats, testing ages 50 to 75 will cover 52% of those with PCa. Just my two cents on the subject.
age:  44
1st psa Apr 08 3.06
2nd psa 6/16/8 4.02,  DRE showed nothing abnormal
biopsy 7/10/08 positive 5 of 12
Da Vinci 8/04/8 Parkview Memorial in FT Wayne IN 
gleason 3 + 3 = 6
prostate 27 g, 4 x 4 x 3.1 cm
Stage:  pT2cNXMX
margins:  apical margin involved
no extraprostatic extension of tumor
seminal vesicle involvement: absent
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/19/2008 8:54 PM (GMT -6)   
I will be a volunteer from December 8-11 at the Bellagio hotel here in Vegas. We are delivering free PSA tests to the willing! There is no age restrictions!

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, May 25, 2018 7:06 AM (GMT -6)
There are a total of 2,965,858 posts in 325,284 threads.
View Active Threads


Who's Online
This forum has 162990 registered members. Please welcome our newest member, Nakuul Dhami.
376 Guest(s), 12 Registered Member(s) are currently online.  Details
John_TX, JacksWorldOGuts, wayup, Dimitri71, AnxietyKelller, Mark FW, RobLee, fiddlecanoe, elvin, straydog, Jack & Diane, iPoop