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Age, PSA, Gleason, treatment option and incontinence/ED results

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Age, PSA, Gleason, treatment option and incontinence/ED results  
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Posted 6/11/2008 6:56 PM (GMT -7)
Curious to know your age, PSA, Gleason, treatment option and how things went/are going with continence and ED.

I was 56 at time of diagnosis/surgery, PSA 14, post-op Gleason 9, open surgery.....still slightly incontinent....a few leaks a day.... after almost 7 months.  Still impotent...using Viagra, pump and injections.

If ED is no longer an issue, it would be interesting to know what progress you experienced when....such as impotent for X months, then 50%, then whatever....and so on.

Danman Bob, Born 1951

Nerve-sparing, open prostate surgery November 13, 2007

Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer

Post-op pathology stated that cancer was confined to the prostate

Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)

100 MG Viagra 3 times a week beginning December 2007

Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008

30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008

Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008

Posted 6/11/2008 7:23 PM (GMT -7)
Age 61, PSA 7.6, Gleason 3+3/6, open radical prostatectomy, continent 2 days after removal of catheter, still nothing in the ED department after 8 1/2 mts., using generic Viagra, pump and Trimix injections.  3rd and 6mt PSA's <.1

 

James C.
Moderator- Prostate Cancer


Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07 ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08 Caverject started/stopped, aching. 2/24/08 .5ml Bimix started-success
5/7/08 ED- Viagra, pump, no response- Trimix .075ml continues
Post Surgery PSA's:  3 mts-0, 6 mts.-0

Posted 6/11/2008 8:17 PM (GMT -7)

Age 58. PSA 1.7 nodule felt. Pre surgery biopsy gleason 4+4 =8 open radical surgery, nodes and margins clean. Post 4+3 =7. No continence problems after catheter removal, no ED but better with viagra. Biopsy 6-08 nodule felt and cancerous, radiation tomotherapy to start June 19th for 8 weeks.

Bob

Age 59 at diagnosis

PSA 1.7  Nodule felt. Biopsy 4+4 T2B

1-30-06 Surgery, Infiltrating adenocarcinoma.Nodes & margins clear

Post op Gleason 7  T2c 4+3 PSA .04

12-07 PSA jump .14  (11 Months)

12-07 Nodule felt -  biopsy negative

PSA .16

PSA .17

4-3-08 PSA .32 ouch

4-15-08  Nodule size increased.

5-8-08 PSA still .32

5-15-08 Bone scan clean, nodule size increased. Biopsy scheduled for 5-22-08

5-30-08 Biopsy came back cancerous. Next step consultation with oncology 6-5-08 for further scans & test. Pain in hips and lower back for three months now.

Posted 6/11/2008 8:22 PM (GMT -7)
Hi DanmanBob,
As you can see by my signature, I'm almost 72 now. Took me a while, but after 18month+ now, I'm at about 90% to pre op condition without meds. With meds probably 100% (can't remember.........getting old).
At 6 month I was probably at about 40%; at 12 Month about 75% (all without meds).
As you can see, it was a slow but steady progress.
Viagra, or the equivalent thereof, didn't make as much of a different to me as it seams to do for other men.
I'm not complaining. I just wish that my PSA would stop rearing its ugly head!
All the best to you and don't give up hope.

Magaboo
Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
open RP 28 Nov 06
Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05

Post Edited (Magaboo) : 6/11/2008 10:03:07 PM (GMT-6)

Posted 6/11/2008 8:46 PM (GMT -7)

Great Post Danman,

Here's mine:
Age 44 at Dx. (46 in two weeks) confused
Treatment Option: DaVinci (Failed), Added IMRT, HT, supplements ~ Able to reach undetectable!!!!! yeah
ED: No Function since HT eyes
Continence: 98% Good.  (2% if I have wine, dribble light) scool
15 Mos, Post Op. smurf

Considering...I am a lucky man. :-)

Tony

Age 45 (44 when Dx)

Pre-op PSA was 19.8

Surgery on Feb 16, 2007 @ The City of Hope

Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)

HT began in May, '07 with Lupron and Casodex 50mg

IMRT radiation for 38 Treatments ending August 3, '07

Current PSA (May 9 '08): <0.1

I will continue HT until May '09. 

Years in Remission (3/23/07): 1

Visit my Journey at:

http://www.caringbridge.org/visit/tonycrispino

And at:

http://prostatecancerinfolink.ning.com/profile/TonyCrispino

STAY POSITIVE!

Prostate Cancer Forum Moderator

Posted 6/11/2008 10:23 PM (GMT -7)
59 at diagnosis..........PSA reached 4.1 at one stage.......DRE clear......Gleason 4+3=7 at biopsy
Da Vinci robotic......focal extraprostatic extention but surgical margins clear.....Gleason upped to 4+4=8
Incontinence fairly good after 3 months but at 9 months if I really physically exert myself and forget to squeeze I'll lose a few drops. .......E.D. ----alas that's another story. Nerves could not be saved (because of invasion) and drugs do nothing noticable although I maintain a 1/2 tab of Cialis every second day. Vaccuum pump used fairly regularly to try to maintain condition. Nine months PSA undetectable.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.1 undetectable

Posted 6/12/2008 4:59 AM (GMT -7)
Age: 54

PSA: 1.9

Pre Surgery Gleason: 3+3 = 6

Post Surgery Gleason: 3+4 = 7

Continence: 95% good from day one

ED: 70% functional. Actually I don't see any difference with Cialis or Levitra both 20mg.

First post Surgery PSA scheduled for 6/17/08

Biopsy done 3/2008
Pre surgery: Gleason 6 (3+3), involving left lobe
DRE=15gm with indurated left base and mid prostate
Cores positive: left base medial, left base lateral, left mid medial and left mid lateral (4 of 12)
Clinical stage t2b.
Prostate Carcinorna 185
DaVinci Surgery on 4/21/2008 in Austin by Dr Randy Fagin.

Pathologist report upgraded to a Gleason 7 (3+4)

Clinical stage upgraded also to a T3a

Margins Clear

Posted 6/12/2008 5:11 AM (GMT -7)

Age 49 when diagnosed; PSA 3.0; Gleason 6; DaVinci surgery May 21, 2007; pathology report was Gleason 7 (3+4), negative margins, negative capsular penetration, negative seminal vesicals, lymph nodes left intact (common practice I was told by my surgeon if he feels that there is an excellent chance the cancer is confined to the prostate); out of pads at five weeks after catheter removal, although I would still experience some stress incontinence at times for the next several weeks; first feelings of semi-erections felt about three weeks after catheter removal

 

One year post-op all my PSA tests (five) have been <0.1, fully continent, still using Cialis but generally can achieve erections that are about 80% of what I could achieve before surgery.

 

Hope this helps.

 

Jack

Biopsy: Diagnosed March 25, 2007. PSA 3.0. Gleason 6. Five of twelve samples positive with <5% each. No perineural invasion seen.

Surgery: May 21, 2007, Florida Hospital, Orlando,FL
Post-op Pathology: Upgraded to Gleason 7 (3+4), negative margins, negative capsular penetration, negative seminal vesicles, lymph nodes left intact, multifocal perinural invasion, 15% of prosate involving cancer in both lobes. T2c

Continence/Erections Out of pads at five weeks. Fully continent and can achieve erections.

Post Surgery PSA: Five tests, all <0.1
Family history: Great-great grandfather died from PC. My Father had his prostate removed at age 67 in 1997 and has had an undetectable PSA ever since. I was diagnosed at a much earlier age and had a more agressive cancer than my father. Go figure.

Posted 6/12/2008 6:04 AM (GMT -7)
48 at diagnosis 11/8/06, PSA 6.22, Gleason 3+3=6. DaVinci January 2007, Pathology report 4+3=7 capsul contained but very close to margin hard to call. Dry by 14 weeks never used more that one pad after the first two days. ED run and running with out any medication with in one month. PSA returned on 3rd post surgery test, 10 months after surgery - just completed 36 salvage radiation treatments on June 4th 2008. Things still holding and working and now waiting to see if PSA begins to retreat.

Norskie
norskie

Age 49, PSA 6.22 on 9-26-06

Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous

Gleason score 3+3=6 After Surgery Pathology report 4+3=7 a couple agressive Grade 5 cells found

Da Vinci surgery 01-09-07 UW Madison

Pathology Report- cancer 100 % capsual contained 1-18-07

1st & 2nd Post PSA Blood Test .1 and less - Undetectable

3nd Post PSA Blood Test 01-17-07 .3

March 27th PSA .4 Begin Salvage Radiation April, 14 2008

Incontenence-Pad free since end of May 07 4 1/2 months post surgery 

ED back to 95% prior to surgery - no medication required.

Posted 6/12/2008 10:16 AM (GMT -7)
I was 46 when diagnosed following biopsy due to an elevated PSA of 9.9. My pre-op Gleason was 3 + 3, the same post op. I chose DaVinci surgery, negative margins and lymph nodes. I had no issues with continence, only used one pad and am grateful for this. ED has been a longer battle, nothing even with Cialis, Viagra for a couple of months. Started injections (Bimix) with success at about approx 4 mos. At about six months, I started to have some natural erections with meds, but not usable. I have noticed, however, that the situation continues to improve, and can now have a usable erection without meds, it just doesn't last long enough before going away. This also seems to be resolving with passage of time. It is my hope that soon the meds will be like a firetruck, great if you need it, but hopefully you never have to call on it!!
46 you when diagnosed, now 47
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01, 9 Month PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Cialis 5 mg every night.
Success with BiMix

Posted 6/12/2008 11:19 AM (GMT -7)

Like it says below, my age at diagnosis was 54, nodule felt during DRE, highest PSA was 4.7, dropped to 3.7 from Sept to Dec before surgery, had RP at Emory, Gleason 3+4=7. Continent 2 weeks post catheter removal.  Have erections without help, but cannot sustain and have intercourse without Lavetra.  Feel Blessed.

Ron

diagnosed sept 2006 @ 54 years old, live in Georgia

 biopsy report gleason 3+4=7, right lobe only

psa 4.7  (psa rose 1 point per year for 3 years, urologist said still under 4 and no concern.  If I can find out about PSA velocity, why didn't he know!)

Told not to have surgery at Dana Farber as cancer had already penetrated prostate, in seminal vesicles, would have positive margins. Would only treat with radiation and HT

RP Emory Atlanta December 2006

Path-negative margins, negative lymph nodes

negative seminal vesicles, multifocal perineural invasion, both lobes involved

40% gland involved

gleason 3+4=7

Fully continent 2 weeks post catheter removal

1st psa April 2007-<0.04

 6 Mos PSA <0.04

9 mos PSA still <0.04

12 mos PSA still <0.04

15 mos PSA <0.04 (3-21-2008) 

Posted 6/12/2008 11:34 AM (GMT -7)

Surgery at 54. Pre-surgery 3+3 (6) one of ten needles 1%. PSA 6.2 T1C

DaVinci March 28th, 3+4 (7) sad   10% total, both lobes, no prostatic extension, seminal vessels clear, fat around prostate clear,cancer considered contained with a bad margin sad   T2C PSA undetectable, Oncologist recomending radiation at 3 months..

At 10 weeks continence 1-2 light pads daily, night mostly dry.  Walking lifting still leak alot.  I feel I am making progress. scool

ED-had erection with catheter in (ouch). Early after surgery morning erections. Unusual for I did not have them much at all before surgery.  Morning erections gone now, able to get erections with visual and mental stimulation.  Better with viagra but o.k. without.  Trying intercourse but the leaking is definetly a problem.  I still feel lucky in this area. tongue

Frank

Diagnosed 01-08-08 @ 53 years old 

DRE normal - High PSA for 5 or more years

2004 Biospy negative - 2008 Biopsy positive (01-08-08)

10 cores, 1 positive and at 1% of that one core

Current PSA 6 - Bone and Ct scans negative

clinicalg Staged at T1C - Gleason 3+3 = 6

Robotic Da Vinci performed March 27th, 2008

University of Chicago,5 hour surgery , 3 hour recovery

Unexpected Cardiac issues appear and disappear?

Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage - Erectile funtion back on line 9 days 

Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on top of prostate distal from apex. 1 positve margin at urethra and bladder.

Six week PSA < 0.05 Ya Ba Da Ba Dooooooooooo.  Put a steak on the grill Wilma!!!!

Oncologist to discuss case with Urologist and Radiation Oncologist to consider radiation.

Posted 6/12/2008 1:06 PM (GMT -7)
Interesting post Danman....all the info makes for good reading.

Age: 62
Diagnosis PSA: 4.57
Positive DRE
Failed Da Vinci
supplemental: IMRT 35 zaps, HT (Lupron) 2 years.
ED: No function
Continence: 95% down from 100% had a cysto 6 mos ago.
14 Months Post Op.
Feel fine, see the doc every 3 mos.
age: 62
PSA 4.57 - Positive DRE
Biopsy 3-19-07 - Gleason 4+4=8
Negative bone scan 3-20-07
DaVinci 4-24-07
Catheter out 5-01-07
post op pathology:
positive margin left side of prostate
left seminal vesicle involved (both removed)
No lymph node involvement
New gleason score 9
T3B....radiation consult on 5-9-07.
June 5, 2007 1st psa post surgery 0.62
June 27, 2007 second psa post surgery 0.59
June 27, 2007 started Lupron injection (24 mos)
September 6, 2007 scheduled to be marked and prepped for radiation therapy.
Start IMRT therapy on September 13, 2007.
September 26,2007 psa test .08
Finished IMRT therapy October 31!!!
January 17, 2008 psa test .<.05!!!!
April 8, 2008 psa test .<.05!!!!

Posted 6/12/2008 2:53 PM (GMT -7)
I don't know if this is a help or a hindrance: I have no ED problems to date I have very good control I was told by my surgeon the day I was interviewed for possible surgery I would be no worse , OR BETTER than I was on the day of surgery other than some time for healing which went very well . Of course thats the good news, I still had/have cancer which I've found to be with most cases that have had a positive margin I am Finished with “Proton” radiation therapy as of February and awaiting further PSA results of which I have very positive feelings about . I've heard a lot about ED. Not having a problem with I am uncertain how to respond again the Cancer I have felt would be the main focus anything else is just a bonus. March Madness 54     06'  PSA 8 up from 3.2 14 months prior April  25 06 DaVinci City of Hope CA PSA   .0 April 06’ - Nov.07’ Nov.   07 PSA rising trend .1-.2 Dec.    07-Feb 08’ Radiation Loma Linda CA “Proton”    March 08' PSA .15 ( up Next) June    08'
Posted 6/12/2008 3:14 PM (GMT -7)
I was diagnosed June of 2007, nodule felt on prostate during DRE intial PSA was 13.5, had biopsy next day and surgery two weeks later, day before surgery psa had risen to 16.3. A RP was attempted however the lymph node disection came back positive for three nodes so surgery was aborted. I then went on Lupron, 44 IMRT's, 20 days of Casodex. I have been impotent since surgery and so far no medication has helped that. Just last week was put back on Casodex due to testosterone rising.
Great post Tony, thanks a bunch

peace and love
Dale
My PSA at diagnosis was 16.3

age 46 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8

I had 44 IMRT's

Casodex

Currently on Lupron

I go to The Cancer Treatment Center of America

Married with two kids

latest PSA 5-27-08 0.11

cancer in 4 of 6 cores

92%

80%

37%

28%

Posted 6/12/2008 9:36 PM (GMT -7)
Hi Danman Bob,

See signature for a lot of the info you wanted.

Fairly continent 6 weeks after surgery.  Stress incontinence remaining, but not bad.

ED still an issue after 10 months.  Doing rehab via Osbon vacuum device and ED prescription drugs.  Injections may be in my future.  However, surgeon says she's seen improvement in patients between 12 and 24 months following surgery as well.

Great post... thank you.

Barry ~ (a.k.a. "Idaho") - Prostate Cancer Forum Moderator

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  09/11/2007  <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

3rd PSA  03/17/2008  <0.04

My web site: http://pca-info.blogspot.com

Posted 6/12/2008 11:10 PM (GMT -7)
im as follows,43 y.o.@ diognosis,gleason 6 with 6 core biopsy had divinct may 29th 08  just 15 days ago using 1 pad a day,none at night 2 days after cath removal had good usable sex with viagra no e,d, before surgery consider myself lucky sure it w[ll be better in time /post surgery gleason 7     

Diagnosed November 2007

PSA 3.9 / Gleason 6 / TC1 6 cores 1 shows 25%

Sugery scheduled 5/29/08 - City of Hope - Dr. Mark Kawachi

 and now for the new ive been waiting for

 FINAL PATH REPORT:gleason upgraded to 3+4 T2c bilateral disease,tumor involvment 5%

extra prostatic extention:absent

seminal vesical invasion :absent

pathological staging:pTNM pT2 ORGAN CONFINED

margins free of carcinoma

usable erections ;6-6-08 with little blue pill

continence; 1 pad a day, dry at night

Posted 6/13/2008 4:43 AM (GMT -7)

i am 48.  surgery (robotic may 9).  no erection since about 1 month before surgery.  doctor thinks it was stress related.  i am dry during the day with the exception of some leakage when i stand up.  also, if i have a full bladder i can't hold it long.  night time i get up about 3 or 4 times to go to the bathroom.  if i am in a deep sleep i wake up with pads full.   i am happy with the progress am continuing my kegels 2 times a day.  1 month psa .04.  i am taking it a day at a time. 

 

Age 48

occupation accountant

PSA increased from 2.6 to 3.5 in one year

biopsy march 2008 - cancer present gleason 7

decision - surgery (robotic)

surgery may 9, 2008 - houston, tx

pathology report -gleason 8

margins clear

waiting on first psa post surgery

continence ok during day - 1 pad

night time different story

kegel's twice a day 20 reps

Posted 6/13/2008 8:40 PM (GMT -7)
Great Post Bob.. all of us can use that info and statistics for comparison,

i Have read every response as well , mostly it seems that with open surgery the time lines are the same (given it is Nerve sparing one) and a bit faster recovery with the DaVnci.

Today i am exactly one year post op.

open Surgery June 2007 at age 53 , Dr. Christopher Johnson St. Francis Hospital , Long Island NY

Psa next to 0 at 1, 3, 6 and 12 months.
Fully continent the day after catheter removal

ED: at 3 months no response ,with or without oral meds
at 6 months seing some improvements , at 50 %wit Meds
Using VED for therapy and meds (Viagra) and at 9 months 70%
at one year 80% without any help (meds or Pump) an 90% with Meds

Was told today by my surgeon that i a right on schedule !!! so i am feeling blessed as well !!
Good Luck and be patient it does take time , and you on the right path!!

GB
:-) :-)
April 2007 PSA 8.4 for last 6 months biopsy shows PC 3+3=6
June 13 2007 Went for open RP with Dr. Christopher Johnson at St. Francis Hospital NY. with nerve sparing of both sides.
4 days later home for Fathers Day, and Catheter.
Removal of catheter 10 days later , incontinence next to nothing, no pads used from the get go.
1 month PSA next to not detected

ED is a longer battle:1 month out start using occasionally Cialis and 50MG Viagra to promote blood flow with no response for 6 months.
3 months and 6 months PSA not detected
ED 6 months mark starting with VED therapy and being more aggressive with meds , in addition taking Folgard supplement daily.
April 2008 10 month out and start seeing some serious improvements with ED while using Meds and VED , can achieve erections, Mid nights erections almost on a regular basis , and uncontrolled 90 % erections spontaneously.
1 year visit on June 13 2008 woohoooo!!!

UPDATE: 5/12/2008 ED:
With Viagra Usable erection for intercourse after about 11 months out !!!woooohooooo

Posted 6/14/2008 8:31 AM (GMT -7)

Hi

No surgery but may I participate?

Age 68 at DX

PSA 4.9 - 7.7 - 3.3 - 6.24

Gleason 10 down graded to 9 by MD Anderson

The only incontinence problem I have had is frequent going and weak flow.

I had already been into advancing ED for over 10 years.  By the time of DX I was already forgetting what an erection was for.

I had some success with the little blue pill but it sure was expensive in the beginning. 

Now with Hormone THerapy I don't much think about it. 

Maybe once this cancer is killed I will think again about how to achieve an erection and what to do with it.

An understanding wife is sure a blessing!

Richard yeah tongue yeah

Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana

Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 

Jan & Feb & Mar all tests clear

MD Anderson = No surgery and No Proton only Hormone and IMRT

Contacted with Loma Linda and UFPTI in FL

May 2, 20008 LUPRON & Casodex

IMRT to started  5/27/2008 Will get 42 treatments 19 IMRT and then 23 Proton

Turn Stumbling Blocks into Steping Stones and Keep Smiling

Our Journey is on WWW.GLEASON10.COM

Posted 6/15/2008 9:45 AM (GMT -7)
I was 70 at time of robotic surgery, PSA 5.52 Gleason 7.  Given option of surgery, radiation treatment (8wks) or seeds plus radiation treatment(4wks) watchful waiting was not reccommended nor were other newer forms of treatment discribed as experemental??   post surgery PSA 0 at 4 weeks.  tongue Still incontinent at 6 weeks 7/8 pads day.  mad Most problems when walking or active. Have had BM problems therefore must stay on stool softeners.

Age 70 -  Diagnosed late March

PSA 5.52 - stage T2b,T2c

Gleason 7 (4+3)

quad heart bipass 4/06

surgery on 4/28/2008, Greensboro NC by David Grapey

path report showed  lymph nodes clear cancer has spread to the margins gleason (4+3)

catheter removed 5/8

Post surgery PSA 0  at 4 weeks

Posted 6/15/2008 1:02 PM (GMT -7)

yeah  allypm

Would you mind listing the treatments that were indicated as experimental?  I assume the list was provided by your urologist or doctor?

Thanks and the best to you in your recovery

Richard yeah tongue yeah

Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana

Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 

Jan & Feb & Mar all tests clear

MD Anderson = No surgery and No Proton only Hormone and IMRT

Contacted with Loma Linda and UFPTI in FL

Started Treatment at the U of Florida Proton Therapy Institute in April 2008

May 2, 2008 LUPRON & Casodex

IMRT to started  5/27/2008 Will get 42 treatments 19 IMRT and then 23 Proton

Turn Stumbling Blocks into Steping Stones and Keep Smiling

Our Journey is on WWW.GLEASON10.COM

Posted 6/15/2008 3:27 PM (GMT -7)
Age 62 during treatment.

PSA 5.0 (12% free)'

Gleason 3+3 = 6

IGRT (External beam radiation)'

No incontinence, or ED issues.
August of 2006, PSA up to 4.2 from 2.7 one year ago. 

October free and total PSA 12% free and 5.0 total.

A month, or so later, 4.7.

Late in the year decide on Image Guided IMRT.

Begin 43 treatments on January 23, 2007 and finish on March 23.

Four month post treatment PSA is 1.9.

Seven month PSA is 0.8.

Posted 6/15/2008 5:46 PM (GMT -7)
I echo smilingoldcoot's comments on ED. That's not a big concern for me at this stage, since I am still incontinent. My wife and I have actually grown much closer through all of this.

Nine weeks post-op with the Da Vinci robotic surgery and down to two pads every 24 hours. Just did a strenuous three-mile hike at 8,200 feet with my daughter today -- the most strenuous exercise I've done since surgery. I walk about 1 1/2 miles every day.
Age 59 - diagnosed in Jan. 08 after biopsy
da Vinci Robotic Prostatectomy 4/11/08 - both nerves spared
Catheter removed 4/25/08
Prostate Pathology:
Gleason Grade 6 (3+3)
Apex: neg
Base: positive (tumor present at right and left base)
Peripheral Margins: neg
No extra prostatic extension seen
Tumor corresponds to a AJCC/pTMN stage II
5 wks post-op Continence: 1 pad night, 2 during day
7 wks post-op Continence: 2 pads every 24 hours
First post-op PSA at 7 wks: 0.1

Posted 6/15/2008 8:06 PM (GMT -7)
HT, IMRT and HDR Brachytherapy - no ED and no incontinence.

But, reading all above and what seem to be more and more similar stories on this site of late, I'm reminded of when a urologist told me he was at a meeting with several of the top urologists in the country and they spoke of how they "wished they could come up with a better treatment than the barbaric one currently in use" - speaking, of course, of prostatectomy.

I feel for you guys.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - PSA undetectable, T is 20 and only one nodule has grown (from 8mm to 12mm). Feeling much more confident than after 2/2008 reports

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