Posted 6/13/2008 7:30 AM (GMT -7)
Hi Quincy,
I am very sorry to mislead. Your post-op was positive and you did the right thing taking action. I mean to say, ALL positive findings from a biopsy should be rechecked by a second party. And I don't mean re-biopsy, I mean the slides re-checked by another pathology group. Your final pathology was confirmation that you did the right thing.

Selmer, PIN is no longer significant. It used to be used to confirm the need to take nerve bundles, but has since been classified as little importance.

aus, I've seen that report before and that debate is still to be determined for some small G6 and most <=G5 cancers in older men. But again they refer to confirmed cancers. Problem with that report is that it relies on hindsight. If a person has a 3+3 in a single core at clinical, many times it's upgraded to a 3+4 or higher post-op. IMHO then waiting is dangerous.

Chris, I appreciate your spirit. I agree with your approach and feel I have misled you guys. But pre-cancerous is different than cancerous. Before anyone takes a knife to you, have that second is what I'm saying.

I guess I should ease up on this by saying, no one has made a mistake here except the pathologist who states that cancer exists when it did not, and a patient having to go through what we go through when it is likely they did not have to. If a second opinion could be useful, this was the case. But once it is confirmed by a second pathology group, "take is out asap" is still a good decision whether by surgery or other means.
Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator

Posted 6/13/2008 7:49 AM (GMT -7)
Hi Sox
Well, this looks so good for you both. Our opinion would be that even if ONE sample showed cancer, you did the best thing (based on your family history listed in your signature) . . . the pre cancerous lesions would likely have developed over time (again based on the history) and this way you know for sure it's all gone. That kind of security can't be beaten.
;o) Linda & Bob
Bob (62) - Laproscopic Prostate Removal Sept 27, 2006 at age 60.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
Pathology - Gleeson 3 + 4; stage T2; cancer completely contained, even a second more aggressive, previously undetected cancer) PSA UNDETECTABLE Nov 2006; Feb, May, Oct 2007; May 2008.  WHOOO HOOOO! 
Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.

Posted 6/13/2008 8:51 AM (GMT -7)

Hi Sox,

I am very happy to hear you news,  you most likley will never suffer from Prostate Cancer. Yours and our prayers certainly may have been heard.

I am concerned that this may effect others who have insignificant sounding biopsies.  I for one was very close to watchful waiting. Here is my example.

Diagnosis

3+3 = Gleason 6, 1 of 10 needles at only 1%, 1 lobe involved., T1C

Post Surgical

3+4 = Gleason 7, 10% involvement in both lobes, encapsulated, bad margin, T2C

Your case is the exception to the rule it seems.  I am so happy for you but it is unlikely that we will see this again on this site.  I hope you have a special celebration planned.

All the best,

Frank

 


Diagnosed 01-08-08 @ 53 years old 
DRE normal - High PSA for 5 or more years
2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Current PSA 6 - Bone and Ct scans negative
clinicalg Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,5 hour surgery , 3 hour recovery
Unexpected Cardiac issues appear and disappear?
Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage - Erectile funtion back on line 9 days 
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on top of prostate distal from apex. 1 positve margin at urethra and bladder.
Six week PSA < 0.05 Ya Ba Da Ba Dooooooooooo.  Put a steak on the grill Wilma!!!!
Oncologist to discuss case with Urologist and Radiation Oncologist to consider radiation.
 

Posted 6/13/2008 9:01 AM (GMT -7)
You don't have cancer! That is fabulous! I have never heard of a situation similar to yours and am quite surprised! Regardless, you got an incredible outcome! What was your PSA?

Tony-Did you see his family history? Even if one core was positive, with his family history I think it would have been better to play it safe. Bad on the pathologist if they messed up, but with such a strong family history of PCa, getter done is what I think :)
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
Praying for a cured dad. First PSA 3 months!


Co-Moderator Prostate Cancer Forum

Posted 6/13/2008 9:18 AM (GMT -7)
I do understand the procedure may still have been a benefit for someone like Rod. That's a good thing, too. I think I'm reacting a bit. I am very happy for Rod that he does not have to worry about this anymore. I don't want to be misunderstood. This time, the mistake happened on a high risk patient. Imagine if it happened on someone with no risk factors...

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator

Posted 6/13/2008 11:39 AM (GMT -7)
I know I am dreaming about mine being "insignifigant."  I think once it is out things will change for the worse.  Even with 52 pokes they still can't predict this cancer with any accuracy.
Posted 6/13/2008 12:02 PM (GMT -7)
Hi Chris,
No they can't. And you are very right. This disease is an awful experience, and I certainly Hope we all do well. Given Rods family history he's going to have a lot less to worry about now. Certainly my intentions are in the right place by suggesting we ALL should get second opinions on our biopsy slides. And don't worry about the bad things and count on the good things. I know you will do well. My mantra is Stay Positive!

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator

Posted 6/13/2008 12:08 PM (GMT -7)
TC,
 
Thanks.  I just don't understand why Dr. are so positive before the surgery, when they know things can get much worse afterwards.  If you had heard Dr. Partin he was acting like I was getting my tonsils out.  "You caught it early, your cancer is as small as it gets, you will see your grand kids born."  He knew I have a 2 and 7 year old.  Even asked if I wanted to have more kids.  How can they be so positive when they know that biopsies aren't even close sometimes?  I left his office thinking I would have no trouble with this ever again, until reality set in after re-reading what goes on here to people.
 
Yes, this sucks for everyone.  This cancer is completely un-predictable no matter how you present.
 
 
Posted 6/13/2008 12:50 PM (GMT -7)
I am 42 years old...
 
 
Psa 2.4  11/03
Psa 2.57 8/06
Psa 2.75 7/07
PSa 2.75 2/3
 
4 out of 52 or 56 cores depending on who you ask.
All cores "small focus" or 2% to 5% from original pathologist.
Gleason 6 from Epstien and local pathologist.
 
I had my slides read at Ohio State University and they said they were in conclusive.  They had to send them to Johns Hopkins.
 
I was told from Dr. Partin that Gleason 6 was a default score and they don't go any lower then that.
 
Dr. Partin said "small focus" meant there was one cell in each slide.
 
I don't know how they can see or find one cell and how they can then grade it.
 
Anyway, none of this means anything because nobody can predict this cancer with any degree of accuracy.....I am just pissing in the wind with all of this.  I will get it removed and hold my breath every day for as long as I have left until recurrence happens....
 
 
 

Post Edited (ChrisR) : 6/13/2008 2:00:39 PM (GMT-6)

Posted 6/13/2008 12:56 PM (GMT -7)

Ouch!
Hang in there Chris.  If you can, add a signature with you info.  it will help us all better understand from where you are coming. 

Here's the signature link:
https://www.healingwell.com/community/default.aspx?f=35&m=1067963

Tony
Posted 6/13/2008 1:35 PM (GMT -7)
I am 42 years old...
 
 
Psa 2.4  11/03
Psa 2.57 8/06
Psa 2.75 7/07
PSa 2.75 2/08 same as 7 months before
 
4 out of 52 or 56 cores depending on who you ask.
All cores "small focus" or 2% to 5% from original pathologist.
Gleason 6 from Epstien and local pathologist.
 
I had my slides read at Ohio State University and they said they were in conclusive.  They had to send them to Johns Hopkins.
 
I was told from Dr. Partin that Gleason 6 was a default score and they don't go any lower then that.
 
Dr. Partin said "small focus" meant there was one cell in each slide.
 
I don't know how they can see or find one cell and how they can then grade it.
 
Anyway, none of this means anything because nobody can predict this cancer with any degree of accuracy.....I am just pissing in the wind with all of this.  I will get it removed and hold my breath every day for as long as I have left until recurrence happens....
 
 
 

Post Edited (ChrisR) : 6/14/2008 7:16:12 PM (GMT-6)

Posted 6/13/2008 4:03 PM (GMT -7)

Hang with us Chris.  Keep talking it out.  We are all with you on this.

Frank

 


Diagnosed 01-08-08 @ 53 years old 
DRE normal - High PSA for 5 or more years
2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Current PSA 6 - Bone and Ct scans negative
clinicalg Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,5 hour surgery , 3 hour recovery
Unexpected Cardiac issues appear and disappear?
Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage - Erectile funtion back on line 9 days 
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on top of prostate distal from apex. 1 positve margin at urethra and bladder.
Six week PSA < 0.05 Ya Ba Da Ba Dooooooooooo.  Put a steak on the grill Wilma!!!!
Oncologist to discuss case with Urologist and Radiation Oncologist to consider radiation.
 

Posted 6/13/2008 6:05 PM (GMT -7)
Selmer,
 
I did have a biopsy because my PSA was high for my age.  My gland size is 36.2cc I was told. 
 
Thanks for everyones support.  I know there are a lot of people here who would trade places with me and I feel for everyone.  I just seem to be having a hard time lately with this.  I am 42 and like many other we hopefully have a lot of years left to deal with this.  Not to mention none of us want to put our family through this either.
 
I just feel from reading everyones journey on the site that no matter how "well off" you are the tables can always turn on you.
 
I guess I am still scared and feel I will be the rest of my life no matter what any Dr. tells me.
 
Thanks again all.

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