Encouragement for a Friend ~ ChrisR

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/13/2008 3:21 PM (GMT -6)   
ChrisR said...
I am 42 years old...
 
Psa 2.4  11/03
Psa 2.57 8/06
Psa 2.75 7/07
PSa 2.75 2/3
 
4 out of 52 or 56 cores depending on who you ask.
All cores "small focus" or 2% to 5% from original pathologist.
Gleason 6 from Epstien and local pathologist.
 
I had my slides read at Ohio State University and they said they were in conclusive.  They had to send them to Johns Hopkins.
 
I was told from Dr. Partin that Gleason 6 was a default score and they don't go any lower then that.
 
Dr. Partin said "small focus" meant there was one cell in each slide.
 
I don't know how they can see or find one cell and how they can then grade it.
 
Anyway, none of this means anything because nobody can predict this cancer with any degree of accuracy.....I am just pissing in the wind with all of this.  I will get it removed and hold my breath every day for as long as I have left until recurrence happens....
You seem pretty down, Chris,
I went back and read all of your posts and I feel for you.  But you can, and will, beat this.  Think of those kids when you feel down.  I know that in a moment of blues I do and it helps.  Your numbers point to that group in the good.   There are many that have had this disease and walk away fine.  I have many examples, including my best buddies dad.  He had the disease at 49 and he is approaching 80.  And that was on old technology.  I tell you this because after I found out at 44, I was scared and did not know how I was going to deal with this.  The fact is that I can't explain why I don't get down more about it.  Everytime I tried putting a smile on and go to the next phase, I'd get knocked down again.  But I didn't stay down long.  I would like to have sent you an EM first, but I can reach out this way.  If you ever need anything, you are welcome to send me an EM.  I certainly Hope you can stay positive.  Not just to help you but those kids too.  You are going to beat this, and you will be the more wiser for it. 
 
God Bless You.  And be well,
 
Tony


Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 6/13/2008 3:49 PM (GMT -6)   

Chris,

Try to look at the bright side.  You seem to have a manageable case of PCa.  I mean that you appear to have an extremely high likelihood that it is contained and that it will NOT come back.

Using your pre-op numbers, I got the results below from the Han tables, which are provided by Johns Hopkins:

Recurrence Probability Following Radical Prostatectomy (by Han Table)

Probability of Biochemical Recurrence
(detectable PSA level) at
3 years after surgery: 1% (0-3)
5 years after surgery: 1% (0-5)
7 years after surgery: 2% (1-7)
10 years after surgery: 3% (1-9)

I realize these are just stats and every case is unique, but I like your odds.

Keep your chin up and have a good weekend.


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 6/13/2008 4:42 PM (GMT -6)   
Hey Chris,

Your numbers look good for long term recovery. I don't blame you for being down a little bit because finding out we have cancer is a shock to anyone. It takes a while for the full impact to hit us and your outlook on the situation will change with time. Nothing breeds success like success. A good post-op path report followed by a few zero PSAs will give you the confidence that you did the right thing and have a bright future cancer free.

It is my opinion that the most important ingredient in our successful battle with cancer, second only to our medical treatment is attitude. Good attitude carries through the rough times like surgery, getting dry and regaining our sexual function. And our attitude is what we choose it to be. It starts with what you have already done, research your options. Build confidence any way you can in your choice of treatment. Learn you surgeon's background and become his head cheerleader. Read the success stories here - there are many more long term successes than failures. Accept the fact that you have cancer - get used to it - then beat the h*** out of it...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 1/17/08 0.00. 
Next PSA test on 7/17/08
"Patience is essential, attitude is everything."


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 6/13/2008 7:19 PM (GMT -6)   

Chris feeling anxiety is normal when hearing the C word. It is however important to educate yourself and try hard to move past this state as quick as possible. I would love to chat further with you about this. Please email me sometime. We all hear truly care deeply about how you feel.

 

peace and love

Dale


My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
cancer in 4 of 6 cores
92%
80%
37%
28%
 


ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 825
   Posted 6/13/2008 7:37 PM (GMT -6)   

Dale,

Thanks for the offer.  I will be in touch....

Chris


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/20/2008 10:05 PM (GMT -6)   
Hey, Chris,
Still thinking of you. I hope you are well. Stay with us and know you are not alone...

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 6/20/2008 10:35 PM (GMT -6)   
Hey Chris,
The great majority here were all stunned and shocked when we received our diagnosis and thought the end of our world was nigh. True, you are younger than most but look at how early you have found the problem. Lower end Gleason, apparently very small volumes of tumour. I think Danmanbob has hit the nail on the head with the tables he posted. your prognosis would look pretty good to me. Start your research and ask plenty of questions and get a really good grip of what you're facing. Once you become fully informed you will realize that you can overcome this. despite your shock it is far better that you know now early in the piece than find it in 10 years when it may have a worse prognosis. Sure PCa causes problems but you will overcome them and be fine.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.1 undetectable

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