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Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 6/17/2008 5:36 PM (GMT -6)   
Gordy, I wanted to give you another WOOOOHOOOO!! It is so great to see the "undetectable" on your signature!! We truly celebrate with you!  Keep 'em coming! 
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
Praying for a cured dad. First PSA 3 months!


Co-Moderator Prostate Cancer Forum


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 6/17/2008 5:49 PM (GMT -6)   
Thank you.

I'm pedaling as fast as I can!

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - PSA undetectable, T is 20 and only one nodule has grown (from 8mm to 12mm). Feeling much more confident than after 2/2008 reports


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/17/2008 5:49 PM (GMT -6)   
I second the motion and, clink, cheer the emotion.  And vette on, brother!
 
Tony

Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 6/17/2008 5:54 PM (GMT -6)   
Thank you, my friend.
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - PSA undetectable, T is 20 and only one nodule has grown (from 8mm to 12mm). Feeling much more confident than after 2/2008 reports


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2299
   Posted 6/17/2008 6:33 PM (GMT -6)   
Gordy said...
Thank you.

I'm pedaling as fast as I can!

-Les

"Life is like riding a bicycle. You won't fall off unless you stop pedaling."  Claude Pepper (late U.S. Senator)

biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 6/17/2008 11:35 PM (GMT -6)   

Great going Gordy.  Go gas the Vette...

Jim


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted Yesterday 1:02 AM (GMT -6)   
Yes! Same from me Gordy. Congratulations and may all you PSA tests be "undetectable".

Magaboo
Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
open RP 28 Nov 06
Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted Yesterday 4:32 AM (GMT -6)   
A heartfelt congratulations on the PSA front and may it continue to be so.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.1 undetectable


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted Yesterday 7:18 AM (GMT -6)   
We just caught up to your news yesterday! That's a big woohoo from us (as we find yet another excuse to bend our elbows in celebration!). It's a rollercoaster ride for sure and here you are at undetectable.
Husband: Age 67
PSA had doubled in 14 mos to 4.3/Gleason 6
da Vinci 8/06 in Austin with Dr. Randy Fagin
Post surgical path shows encapsular penetration; possible bladder neck involvement.
PSAs remain undetectable; no further treatment at this time.
Next PSA: April 08


Quincy3
New Member


Date Joined Jun 2008
Total Posts : 19
   Posted Yesterday 5:57 PM (GMT -6)   
Out freakin' standing tongue
Diagnosis 7/07
open radical 12/07
PSA pre-op 1.4 gleason 3+3 clean margins
First psa post-op 3/08 0.006
Second psa post-op 6/08 >0.01


ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 825
   Posted Yesterday 6:17 PM (GMT -6)   

Gordy,

Kickin a?? and takin' names.....

Way to go.....


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted Yesterday 7:02 PM (GMT -6)   
You guys are all too much!!

Thank you.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - PSA undetectable, T is 20 and only one nodule has grown (from 8mm to 12mm). Feeling much more confident than after 2/2008 reports


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted Yesterday 10:36 PM (GMT -6)   

Gordy the man!  He takes no prisoners! tongue

Rock on, Les!

Barry


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 6/20/2008 6:08 AM (GMT -6)   
Thanks Barry. I appreciate it.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - PSA undetectable, T is 20 and only one nodule has grown (from 8mm to 12mm). Feeling much more confident than after 2/2008 reports


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 9/15/2008 5:36 PM (GMT -6)   
Hey Les,

I hope you are hanging in there - that your confidence is still high. You never know which switch turns on the lights.

Jim
Age 74. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 7/17/08 0.00. 
Next PSA test on 1/28/09
Lung cancer dxed on 5/16/08.  Surgery on 6/25/08  T1N1M0 - Stage IIA  Start chemo in September 08
"Patience is essential, attitude is everything."


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 9/15/2008 5:44 PM (GMT -6)   
way to go Les, I think of you often. I hope you have many more wonderful results.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/15/2008 6:10 PM (GMT -6)   
I think of you every day, Les.

Every day!!!

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 9/15/2008 7:10 PM (GMT -6)   
Hey Les

How many speeding tickets in the vette?

Mika
age at dx 54 now 56
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
Tossed the pads this spring
ED still a problem
first year PSA less than zero
 


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 9/15/2008 8:38 PM (GMT -6)   
Showin the love Les! Thinking of you!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 9/16/2008 5:46 AM (GMT -6)   
VERY COOL!! Keep up the good work my NJ homeboy!
Your friend,
Pete
55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. Fighting to stay upbeat daily. I am's what I am's and that's all that I am's! (Popeye)  55 and still alive!!! Feel free to pray for me, I can use all the help I can get!!!


Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 9/16/2008 6:42 AM (GMT -6)   
Great News Les,
Just caught the thread, and couldn't be happier! Don't slow down now!
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical
October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist November 2005 - Biopsy negative
July 2006 - PSA 5.9 at regular Physical October 2006 - After several more rounds of anti-biotics PSA 8.1 November 2006 - Second biopsy - Positive December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one partial nerve able to be spared. Margins clear.
February 2007 - Three to four pads a day, no erection with viagara.
April 2007 - First Post-Surgical PSA 0.02. Down to one pad a day.
July, 2007 - Six Month Post-op: PSA 0.04 No change in ED.
October, 2007 - Nine Month Post-op: PSA back down to 0.02! Almost totally dry! Only slight improvement in ED - Will try injections if not improved by next appointment.
January 2008: One Year Post-OP PSA 0.02 still dripping, but improving. Tried 500 dose of MUSE for ED, no luck. Will try 1000.
July, 2008 PSA 0.04 again, will recheck in October. Use .15cc Trimix injections, partial success. Will try .20cc.


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 9/16/2008 5:03 PM (GMT -6)   
WHOA Kids! Jim thanks for the kind thoughts, but things have turned for the worse.

Just about the time of my, much regretted, rant which caused a mass exodus of most of the oldtimers, I was told that many of the nodules on my lungs and the lesion on my pelvis had grown in size and that the time for chemo was nigh. I opted for a clinical trial of the standard Taxotere with Prednisone and a new drug called Sprycel (generic dasatinib) made by Bristol Myers Squibb (BMS). Sprycel has proven to be a lifesaver for folks with chronic myeloid leukemia (CML) for whom the standard drug, Gleevic, has stopped working after two or three years. Because the cells of my tumors share a particular protein with the cells of CML sufferers, BMS is hopeful (as am I) that Sprycel will be effective against my type of solid tumor.

Needless to say, each of the drugs I'm taking has its own wonderful set of side effects and I've been given even more drugs to combat them. Talk about Catch-22!

And, for the icing on the cake, my wife Carol was diagnosed with breast cancer, had a lumpectomy and just finished ten sessions of a new kind of brachytherapy called MammoSite. (For those on the other side of my rant who might be thinking "I told you so", know that Carol is a believer.)

For those who expressed admiration for my "courage" before this latest turn of events (which I could never comprehend), I tell you that I am not courageous, and am very depressed.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - Finally got results from doc. A number of lung nodules have grown, but, more important to him, is the fact that the malignant lesion on my pelvis seems to have flared up and he wants me to start chemo. He said I could wait a few months, but I told him I want to start now. He to get me signed up for a clinical trial in nearby NY.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/16/2008 5:51 PM (GMT -6)   
Les,
I was on the other side of the "rant" and know, I regret it because my point wasn't worth you leaving us. And everybody's back any how. And now you are too. You are most welcome. I am so sorry that you and Carol have to deal with this stuff. You ever want to chat you know you are very welcome here.

Les I have improved my depression issues. Plus I decided to stay here becuase these are very loving people.

This forum is about support. For the guys, the girls, and regardless of religous. I have no I told you so's in me. I just miss my friend.

Stay here, my friend. And try to stay positive!

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 9/16/2008 6:09 PM (GMT -6)   
Les, We are with you man.....My husband wanted to blow his brains out when all the cancer stuff came back....BUT, he looked around and saw our kids and grandkids and all of our friends....Life is precious...no matter how much time we have ....We are dying from our first birthday.....Let's celebrate and try to be cheerful with each day........God...I know , it is hard....I was at the doctors today with my own problems...but, life goes on each day, in each family, in each city, state, country. We are all here for just our limited time....but we will forge ahead each day.
...and this is a great site....You can say whatever you feel, and someone will respond with a positive thought. Tony is just wonderful and so are the many others....
I have a wonderful quote from Samuel Beckett: What sky! What light! Ah in spite of all it is blessed thing to be alive in such weather... samuel beckett
Diane
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Waiting for activation October 21 2008


hopemylove
Regular Member


Date Joined Apr 2008
Total Posts : 65
   Posted 9/16/2008 6:27 PM (GMT -6)   

Les,

You and Carol are in my thoughts and I hope that the chemo trial is a success for you. The side-effects of chemo can be so frustrating, but it is so important to keep a positive attitude and to try to keep your body as strong as possible during the process. Sleep often, laugh more and love daily.

Karen eyes


Karen--New York
Husbands Info:
Age of diagnosis--62
2/28/08--PSA 279   DRE--positive/rock hard
Flomax and Casadex started
Biopsy--3/7/08--187cc--Gleason 10--12 of 12 positive--Perineural and LV invasion identified
T4 bone met.--hydroureteronephrosis/right kidney
3/28/08--Lupron Inj. started
4/7/08--Zometa IV started
5/15/08--PSA 12
5/20/08--Tubes placed in kidneys (through back)
5/21/08--diagnosed Neuro Endocrine Prostate carcinoma
5/28-30/08--1st round Chemo
6/18-20/08--2nd round Chemo
7/2/08--blood clot--Coumadin started
7/10/08--Stop chemo--cancer not responding
7/20-24--hospitalized for some type of seizure
7/24--New chemo given-no response
8/20/08--Start Hospice
 
 
 

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