another scar tissue question

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2498
New Member


Date Joined Apr 2008
Total Posts : 10
   Posted 6/17/2008 11:35 PM (GMT -6)   
I had my open surgery March 25 and recent psa test was good. The problem I'm having is that I've got to pee awfully frequently without a lot of volume and a real weak stream (more like a fast drip, often).

So I'm pretty sure they are going to have to go back in there somehow and unclog the neck of the funnel, where things have been sewn back together.

My fear is that they'll stretch things out too far and I will start leaking a lot more. I've been pretty lucky so far--using a panty liner every day, just in case--but a lot of times it is actually kind of hard to urinate, even when I feel like I've really, really gotta go!

(I seem to have all of the symptoms of the guys in the 'Flomax' commercials, but I know for sure that the cause is not the same!)

Anyway, I'm looking for advice/reassurance/encouragement from anyone who's had this same experience. My surgeon says this happens with about one of every 25 or 30 fellows who have the surgery, so I'm hoping to get some responses from fellows who have been in the same boat.
age 56, retired UAW/Ford tradesman (30 and out!), Shelby Township, Michigan
11/07 gen'l practitioner thought he felt a little ridge w/ DRE, PSA was 2.8
referred to urologist, biopsy 1/25/08
diagnosed 2/08--6 of 12 showed positive (4+3)
sister reminded me that Dad had had surgery at Johns Hopkins
phoned JH, flew to Baltimore for consult 3/10/08
open surgery 3/25/08 "went perfect"--also fixed hernia at same time
clear margins means (I think) we're sure as we can be the cancer is gone
post-op pathology real good, still 4+3, but seems to have been confined to prostate
catheter out 4/7/08 (Whew!)


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 6/18/2008 8:53 AM (GMT -6)   
 
Others with more experience will be along shortly probably. In the meantime, welcome, hate you have to be here.... tongue
 
 
 
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Post Edited (James C.) : 6/19/2008 8:11:05 AM (GMT-6)


broker59
Regular Member


Date Joined Apr 2007
Total Posts : 88
   Posted 6/18/2008 9:02 AM (GMT -6)   
nono  2498, WELCOME!
 
I had a lot of scar tissue from a previous shaving of the prostate, my cath was in almost 3 weeks. I did get up a lot also, but I continued to do the kegile exercises, and that helped.  I used to drink quite a bit of ice tea, & coffee, and the Dr. told me that is not good. Try to delay going to bathroom, let the volume build in the bladder, maybe that will help!
 
Continue on the road to good health! yeah   Broker!
Broker 59


Date of Dx 3/20/07

PSA: 2.5
Gleeson: 3+4
Stage: T2
Bone Scan: Clean

Date of Surgery: 6/21/07  Open RP
 
Post Opp: ALL NEGATIVE margins & L/N, S/V.
Cath out after 18 days = BIG RELIEF!!!
 
PSA: 7/23/07 0.01
PSA: 9/04/07 0.01
PSA: 12/04/07 undetectable.
PSA: 3/12/08 UNDETECTABLE!!!!!
PSA: 6/13/08 UNDETECTABLE!!!!!!


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 6/18/2008 10:50 AM (GMT -6)   

2498,

You probably have read in the previous post on scar tissue that I did experience a stricture.  But since my leaking never did let up and since my bladder never did fill up while I was up and walking around, my symptoms were not the same as you are experiencing.  Had my spincter began working after surgery, I probably would have had those symptoms.

I too dreaded the process of removing the stricture because I feared I never would regain continence.  I never did but uro said it had nothing to do with the stricture.  Perhaps this will encourage you.  But more than encouraging you, I really hope you are staying in closse touch with your uro.  Perhaps you are, but you did not state it in your post. 

Are you experiencing any blood in your urine?  That was the main symptom I had.  When I would walk my two miles per day, my pad would show blood.  But since you evidently do not leak the way I did...do, you probably would not notice any blood in urine.

Whatever the problem, be assured the docs can help.  This disease is never easy to deal with and I know by experience it produces all kinds of negative emotions, but your docs can help. 

Gene214


Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Bio-feedback (4) 08-07 (no improvement)
Scheduled for AUS & implant 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP scheduled 7-08
63 years old at time of nerve-sparing surgery


2498
New Member


Date Joined Apr 2008
Total Posts : 10
   Posted 6/18/2008 6:46 PM (GMT -6)   
Well, today my guy here in Michigan ran a camera up there and we took a look at the scar tissue. That's what the problem is, all right. He's going to run a tiny little scalpel in there July first and try to open things up. Says the place where I'm spliced back together is supposedly not the same place where the valve is, so he can ream the join out a little without damaging the valve.

But I still could start leaking...because the reason I haven't been leaking so far might be just because of the scar tissue and not because the valve is actually working like it's supposed to! Oh, well...
age 56, retired UAW/Ford tradesman (30 and out!), Shelby Township, Michigan
11/07 gen'l practitioner thought he felt a little ridge w/ DRE, PSA was 2.8
referred to urologist, biopsy 1/25/08
diagnosed 2/08--6 of 12 showed positive (4+3)
sister reminded me that Dad had had surgery at Johns Hopkins
phoned JH, flew to Baltimore for consult 3/10/08
open surgery 3/25/08 "went perfect"--also fixed hernia at same time
clear margins means (I think) we're sure as we can be the cancer is gone
post-op pathology real good, still 4+3, but seems to have been confined to prostate
catheter out 4/7/08 (Whew!)


Roger G
Regular Member


Date Joined Apr 2008
Total Posts : 150
   Posted 6/18/2008 9:20 PM (GMT -6)   
Good luck and please let me know how it goes. I suspect I'll have to have the same procedure. I'll be talking to my uroligist in three weeks.

My stream is weak and dribbily (a new word). If I push hard I can get a good stream, but I did not think I had to do this once the prostate was gone. Almost the same push I had prior to surgery.


Age: 43 (2008)
DRE Small Ridge on prostate, PSA 1.5
07/2007: Diagnosed cancer, T2c, Gleason 3+4=7
09/2007: Laparoscopic prostectomy @ Hamilton General, 4 hrs.
              Both nerve bundles spared
              Pathology Report: Tumor confined w/in prostate
              T2c, Gleason is 3+3=6
              Went home with JP drain
10/2007: Made return trip to hospital.  All urine was comming out JP drain.
10/2007: Catheter removed. Next to no leakage
11/2007: 1st PSA <.003 :)
              ED: Started Viagra, no response yet.
12/2007: Had confidence to go padless!!!!!
12/2007: ED:  Stopped Viagra as it's causing hemroid problems.
01/2008: 2nd PSA <.003 :)
              ED: next to no response.
04/2008: 3nd PSA <.003 :)
              ED: next to no response.  Changed the Viagra prescription.
 


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 6/18/2008 11:25 PM (GMT -6)   

Welcome 2498,

Great to see you on the forum.  As you can see there are others here in the same "boat."

I hope you find support and comfort here.  I wish you all the best in your treatment and hope your health care professionals find the right path for your recovery.

Kind regards,


Barry ~ (a.k.a. "Idaho") - Prostate Cancer Forum Moderator

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  09/11/2007  <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

3rd PSA  03/17/2008  <0.04

My web site: http://pca-info.blogspot.com

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