A HealingWell Blessing ~ Meeting our Brothers! ~ Blessed by Bluebirds!!!

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/18/2008 10:43 AM (GMT -6)   
Hi Gang,
I see yet still, after being here a year and a half, new guys coming in and being almost brought to tears by the excellent responses they are greeted with when they arrive here.  It happened to me in December '06.  Scared and chasing around answers I found this site seemingly waiting for me.  But it's just the nature of this site and it's wonderful people.  Now I'm a veteran here, over a thousand posts, not all useful, but for the most part I care enough about you all that I, like VaFan ~ Cindy says, just want to give back.  While worried and with late stage disease I still needed a boost on how to cope with this disease.  Enter Walt Whited in September last year.  War-eagle Walt.  Facing adversity much higher than my own, he brought the highest level of Hope and courage and inspired me to no end.  Walt's inspirational story gives us all Hope.  My friendship with Walt will add something else tonight ~ a handshake.  And probably a tear and hugs.  This will be a very blessed meeting of two friends just trying to make the best of things.   Wish us well.  And I will post pictures and such on my site.
 
See you tonight, buddy!!!!!!!
 
Tony


Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator

Post Edited (TC-LasVegas) : 6/19/2008 10:22:54 PM (GMT-6)


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 6/18/2008 11:08 AM (GMT -6)   
I am so happy for you both!! I will be thinking of you guys tonight!!!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
Praying for a cured dad. First PSA 3 months!


Co-Moderator Prostate Cancer Forum


smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 6/18/2008 11:26 AM (GMT -6)   
Tony and Walt
 
Two brothers who are most deserving of the opportunity to met and hug.  I will be with you guys in spirit this weekend.
 
Richard yeah tongue yeah
Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
Jan & Feb & Mar all tests clear
MD Anderson = No surgery and No Proton only Hormone and IMRT
Contacted with Loma Linda and UFPTI in FL
Started Treatment at the U of Florida Proton Therapy Institute in April 2008
May 2, 2008 LUPRON & Casodex
IMRT to started  5/27/2008 Will get 42 treatments 19 IMRT and then 23 Proton
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM
 


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 6/18/2008 4:15 PM (GMT -6)   
Have a great time and enjoy!

WAR EAGLE!
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
PSA - Undetectable since 6/07/07

Link to journey:
http://www.healingwell.com/community/default.aspx?f=35&m=826731


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 6/18/2008 6:54 PM (GMT -6)   
I agree Tony this site has brought much comfort to many people. I to am glad you and Walt are meeting. We all look forward to you reporting on this visit.

peace and much love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
cancer in 4 of 6 cores
92%
80%
37%
28%
 


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 6/18/2008 7:33 PM (GMT -6)   
You guys are such an inspiration.


Mika
age at dx 54 now 56
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
wear one for insurance now
ED still a problem
last PSA undetectable
 


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 6/18/2008 10:34 PM (GMT -6)   

Hey Tony, Walt,

Wherever we are in the world, we will feel the positive energy brought about you too getting together!  yeah

Thanks for the courage and hope you give us all by example!

Kind regards,

 


Barry ~ (a.k.a. "Idaho") - Prostate Cancer Forum Moderator

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  09/11/2007  <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

3rd PSA  03/17/2008  <0.04

My web site: http://pca-info.blogspot.com


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/19/2008 1:29 AM (GMT -6)   
Well it's 2:30 here in 'Bama. I am in a very beautiful home, and met Walter. He's not as tall as I expected....LOL. Just kiddin.

We are truly blessed.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 6/19/2008 5:23 PM (GMT -6)   
I hope you guys had as wonderful a time as Bill (jetguy) and I had. You both deserve it.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - PSA undetectable, T is 20 and only one nodule has grown (from 8mm to 12mm). Feeling much more confident than after 2/2008 reports


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 6/19/2008 10:15 PM (GMT -6)   

Glad you got there in good shape, Tony.

Have a great time and tell War Eagle "Hi!" from all of us.

Idaho


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/19/2008 10:18 PM (GMT -6)   
Thank you Les,
We had a great day today. Walt showed us around Trussville and I am very much liking this community, and it's people. We picked up Ruthie at 2:30pm and have been hangin' at the War Eagle residence. Walt's wife has been working, (she is an NP on a 24 hour shift), but we will meet her tomorrow.
 
Special Note:
This morning Walt and I sat at the breakfast table.  His property is a couple acres with beautiful scenery behind.  Amazingly, the first birds I see in Alabama are ~ Bluebirds.  No Kiddin'.  Coincidence?  I think not.  More like a blessing!

Tony


Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator

Post Edited (TC-LasVegas) : 6/19/2008 10:21:34 PM (GMT-6)


anniea
Regular Member


Date Joined May 2007
Total Posts : 234
   Posted 6/19/2008 10:23 PM (GMT -6)   

Hi Tony & Walt,

Here's hoping you 2 have a wonderful time getting to know each other in person and a toast to many more meetings in the years to come. Have a wonderful & relaxing visit.

 

Best Wishes to you both

Love

Diana


Rick & Diana
Age 68/ 67@ Dx
6-30-06  PSA 2.54
1-22-07  PSA 4.98
1-26-07  PSA 5.09
Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09
Bone Scan 3-1-07 Clear
3-6-07 Triple Spinal Fusion (due to old back injury)
Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins
4-29-07 PSA 0.02
6-9-07   PSA 0.02
7-6-07   PSA 0.03
8-1-07   CT Scan & Chest X-Ray   Clean
 9-26-2007 PSA 0.07
11/1/07 PSA 0.1
11/30/07 PSA 0.12
01/31/2008 PSA 0.3
03/01/2008 PSA 0.3
04/28/08 PSA 0.6


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/19/2008 10:25 PM (GMT -6)   
Thank you Diana! I'd Love to make Albuquerque as well.

How 'bout the bluebird sighting. I'm sending Lee a EM.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 6/20/2008 8:24 PM (GMT -6)   
Hi Tony,
 
The bluebird sighting was a gift!  We miss our little bird and her kindness. 
 
Having said that, I really appreciate all that you do!

Barry ~ (a.k.a. "Idaho") - Prostate Cancer Forum Moderator

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  09/11/2007  <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

3rd PSA  03/17/2008  <0.04

My web site: http://pca-info.blogspot.com


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/20/2008 9:39 PM (GMT -6)   
Thank you so much, Barry.

I am really enjoying this vacation.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted Today 6:49 AM (GMT -6)   
Tony - that is so cool to be able to meet HealingWell friends. I've been out of touch for a while and was wondering where Bluebird was. It's great to see a lot of familiar names here, but a little sad to see so many new ones. but this is the place to be! Jeff has been trying to survive the housing decline as he owns a residential remodeling company here in MD and business is very slow. we keep telling ourselves if he can survive cancer, he can make it through this, too. take care, kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump
8/07 - 1 yr PSA <0.1
9/1/07 - achieved erection with Viagra - no pump!
3/08 - 18 mo PSA <0.1
tried Levitra - works much better than Viagra - fewer side affects


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted Today 8:50 AM (GMT -6)   
Hi Kat,
My Bluebird sighting just took a bigger tone...I spoke to Lee last night by phone. She just returned from a nice vacation and seemed very much at peace. When I was at Walts we called here and all yelled a big hello into her voice mail. And may peace remin with her!!!!

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator

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