Proton Beam facilities??

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corynski
Regular Member


Date Joined Apr 2008
Total Posts : 63
   Posted Yesterday 10:31 AM (GMT -6)   
Hello All,

I have pretty much made up my mind to pursue the Proton Beam treatments. My question is: does anyone have experience with the MPRI in Bloomington, Indiana, or the University of Florida's Proton Beam facility in Jacksonville. Anyone know of a reason to choose one over the other?

Thanks

charley/70/east tn.
_____________________________________________________________________________

Pre-Diagnostic PSA record, begun 1995 at age 58..... now 70:
1995 - 1.2, 1997 - 1.7, 1998 - 1.4, 1999 - 1.7, 2000 - 3.4, 2001 - 2.0,
2002 - 4.6 on 6/6, 4.1 on 7/24, 3.5 on 10/1 at urologist's office
2003 - 2.3, 2004 - 2.7, 2005 - 3.2 on 7/15, 2006 - no test????
2007 - 5.8 on 2/5, 5.7 on 6/16
2008 - 10.4 on 2/29, 8.8 on 4/21 --- Scheduled biopsy for 5/6/2008. On a graph, the PSA rise looks exponential, i.e. a growth function.

*****************************************************************
5/22/2008 -- Results of biopsy
4 of 12 cores show adenocarcinoma:
LLM - Gleason 3+3=6, PTI=10%, LM - Gleason 3+3=6, PTI=2%
LLA - Gleason 3+4=7, PTI=25%, LA - Gleason 3+3=6, PTI=20%
Clinical Stage: T2a
Comments:
RLB - There is focal acute prostatitis
LLM - There is focal perineural invasion
LLA - There is focal perineural invasion
Partin Table:
OC - 33%, CP - 52%, SV+ -10%, LN - 4%
No treatment selected yet.....


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted Yesterday 10:37 AM (GMT -6)   

Congratulations on making a decision.

smilingoldcoot is in Jacksonville now for proton treatment.  He should be able to provide more information for you.

Good luck!!!!


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted Yesterday 12:03 PM (GMT -6)   

charley

I would apply to both and see who gets you in first.  I think both have coordinators who work with patients to find housing.  There are 2 military RV parks here and some stay at Flagmingo RV Park north of town.  Those staying there like it.  I pay approximately $100 week here at NAS JAX and I believe Flamingo is $600 month.  I have heard housing is 1000 month and up but most seem to find places. 

For Florida call (904)588-1800, or toll free (877)686-6009 that will be the switch board.  Ask to speak to Katie Mahoney. She has housing information.  No information on Bloomington but look them up  on the net and call.

Richard yeah tongue yeah


Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
Jan & Feb & Mar all tests clear
MD Anderson = No surgery and No Proton only Hormone and IMRT
Contacted with Loma Linda and UFPTI in FL
Started Treatment at the U of Florida Proton Therapy Institute in April 2008
May 2, 2008 LUPRON & Casodex
IMRT to started  5/27/2008 Will get 42 treatments 19 IMRT and then 23 Proton
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM
 


smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted Yesterday 12:23 PM (GMT -6)   

Charley

have you looked at this video? It is linked on my website but here it is if anyone is interested.

http://www.mpri.org/flash/presentation.html

Richard yeah tongue yeah


Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
Jan & Feb & Mar all tests clear
MD Anderson = No surgery and No Proton only Hormone and IMRT
Contacted with Loma Linda and UFPTI in FL
Started Treatment at the U of Florida Proton Therapy Institute in April 2008
May 2, 2008 LUPRON & Casodex
IMRT to started  5/27/2008 Will get 42 treatments 19 IMRT and then 23 Proton
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM
 


corynski
Regular Member


Date Joined Apr 2008
Total Posts : 63
   Posted Yesterday 3:24 PM (GMT -6)   
Thanks Richard

Florida is coming up over MPRI, for a number of reasons. My treatment period may extend over turkey day and I could go see my son in WPB. My neuropathy acts up in cold weather. And Florida must have real state of the art equipment, as new as it is.

I was thinking it could run a couple of thousand for housing. I may try a small mobile home, like the old Spartan trailer I lived in once in Lake Worth. I'll call the Flamingo.

I did my air force time at Orlando AFB, Pinecastle (McCoy then I think) and a three month vacation down at Homestead AFB. I originally was working with the TM 61 Matador guided missile in 1956, but there wasn't enough equipment to keep us all busy. So they sent me to Homestead to learn the B-47 and spend my afternoons on the beach. What a life it was. We would get a gang of fellows together and drive all the way up to Ohio and back on the long weekends. Those were the days, before florida got crowded. And I remember watching some hot shot full colonel who was a real B-47 jockey. On take-off at Pinecastle with that amazing aircraft he would have the wheels up before he was three-quarters of the way down the runway, and not more that 50 feet off the ground. What a character.

charley
_____________________________________________________________________________

Pre-Diagnostic PSA record, begun 1995 at age 58..... now 70:
1995 - 1.2, 1997 - 1.7, 1998 - 1.4, 1999 - 1.7, 2000 - 3.4, 2001 - 2.0,
2002 - 4.6 on 6/6, 4.1 on 7/24, 3.5 on 10/1 at urologist's office
2003 - 2.3, 2004 - 2.7, 2005 - 3.2 on 7/15, 2006 - no test????
2007 - 5.8 on 2/5, 5.7 on 6/16
2008 - 10.4 on 2/29, 8.8 on 4/21 --- Scheduled biopsy for 5/6/2008. On a graph, the PSA rise looks exponential, i.e. a growth function.

*****************************************************************
5/22/2008 -- Results of biopsy
4 of 12 cores show adenocarcinoma:
LLM - Gleason 3+3=6, PTI=10%, LM - Gleason 3+3=6, PTI=2%
LLA - Gleason 3+4=7, PTI=25%, LA - Gleason 3+3=6, PTI=20%
Clinical Stage: T2a
Comments:
RLB - There is focal acute prostatitis
LLM - There is focal perineural invasion
LLA - There is focal perineural invasion
Partin Table:
OC - 33%, CP - 52%, SV+ -10%, LN - 4%
No treatment selected yet.....

Post Edited (corynski) : 6/22/2008 3:29:05 PM (GMT-6)


sterd82
Regular Member


Date Joined Sep 2006
Total Posts : 187
   Posted Yesterday 8:28 PM (GMT -6)   
I only talked to the people in Bloomington, IN --- I think they've had the proton facility in place for five years...I had an appointment, but went a different route. They tied in with IU, I beliebe --- top notch cancer facility (Lance Armstrong went there to get cured!)
Sterd82
Age 47 - pre-surgery PSA 39
Open Radical Prostatectomy 6/9/2006
Pathological Stage T3a, Positive Surgical Margin
Gleason 3+4
PSA rose to .24 in November of 2006
6 month hormone therapy initiated December 1. 2006
36 sessions of IMRT Ended Feb 1, 2007
PSA as of May 25, 2007 undetectable
PSA as of November 29, 2007 undetectable
PSA as of May 14, 2008 undetectable
Next PSA November of 2008


Roger G
Regular Member


Date Joined Apr 2008
Total Posts : 150
   Posted Today 7:45 AM (GMT -6)   
Just an FYI.

A new Proton Beam facility will be built in Michigan.
 
http://www2.med.umich.edu/prmc/media/newsroom/details.cfm?id=347
Age: 43 (2008)
DRE Small Ridge on prostate, PSA 1.5
07/2007: Diagnosed cancer, T2c, Gleason 3+4=7
09/2007: Laparoscopic prostectomy @ Hamilton General, 4 hrs.
              Both nerve bundles spared
              Pathology Report: Tumor confined w/in prostate
              T2c, Gleason is 3+3=6
              Went home with JP drain
10/2007: Made return trip to hospital.  All urine was comming out JP drain.
10/2007: Catheter removed. Next to no leakage
11/2007: 1st PSA <.003 :)
              ED: Started Viagra, no response yet.
12/2007: Had confidence to go padless!!!!!
12/2007: ED:  Stopped Viagra as it's causing hemroid problems.
01/2008: 2nd PSA <.003 :)
              ED: next to no response.
04/2008: 3nd PSA <.003 :)
              ED: next to no response.  Changed the Viagra prescription.
 

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