Palliative care

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dutchy
Regular Member


Date Joined Jun 2007
Total Posts : 75
   Posted 6/23/2008 7:45 PM (GMT -6)   
The palliative care team at Dartmouth/Hitchcock has been wonderful in providing support to improve my husband's quality of life. The team provides expert advice on dealing with fatigue, emotions and other side-effects of chemo. I was wondering whether this is common in other hospitals? I also appreciate that there always seem to be Reiki masters or masseurs in the infusion room, which really contributes to the well being of patients getting chemo, and their caregivers. www.curetoday.com as an article on this new specialization in palliative care. Dutchy
Dutchy's husband
Diagnosis: 7/6: PSA 1,946, multiple bone metastases in thoracic, lumbar spine, pelvis, bilateral ribs and proximal left tibia, 2 weeks Casodex (50 mg)

Treatment: 3 monthly Lupron injection (22.5 mg) + Zometa (4 mg IV). Added daily Casodex (50 mg) in September 2007.

25/06: PSA 407
20/08: PSA 3,7
29/09: PSA 0.7
14/10: PSA 0.17
18/12: PSA < 0.003
15/03: PSA <0.003
15/05: PSA <0.003

May 2008: diagnosed with advanced colon cancer


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 6/23/2008 8:36 PM (GMT -6)   
Hi Dutchy,
 
I can't give you feedback on your question, but the care you described for your husband sounds wonderful.  You are such a wonderful support for your husband.  Thank you for your example.
 
Please give your husband our best.
 
Kind regards,
 
Barry

myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 6/23/2008 9:51 PM (GMT -6)   
Hi dutchy,

It's good to hear of the wonderful care your husband is getting, that's so important. Whatever can be done to ease his discomfort is a good thing.
Moffitt Cancer Center where Don goes has programs for the patient and caregiver - the interest is in the whole person. All we need do is ask and they are so helpful.

My heart goes out to you both - please know you are cared about and we're here for you.

Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
PSA - Undetectable since 6/07/07

Link to journey:
http://www.healingwell.com/community/default.aspx?f=35&m=826731


hopemylove
Regular Member


Date Joined Apr 2008
Total Posts : 65
   Posted 6/24/2008 5:57 PM (GMT -6)   

Hi Dutchy,

When my husband first began his chemo, we had to go to the local hospital as it was a holiday week and the oncologist did not want to wait a week to begin. Our experience there was not the best. The room was really crowded and it was very loud and impersonal. I don't believe it was the nurses fault as they tried hard to create a positive environment, but it was an awful experience. Our second round of treatment was given in the oncologist office where their are individual "stations" with alot more privacy and the nursing staff is wonderful. As this is also palliative care--it would be nice if more was offered to help all aspects of being--mind, body and soul, but it is much better than the oncology ward at the hospital. I am so glad to hear that you and your husband are receiving all possible comforts available during this time.

I have been thinking of you and yours and continue to pray for comfort and peace.

Karen eyes


Karen--New York
Husbands Info:
Age of diagnosis--62
2/28/08--PSA 279   DRE--positive/rock hard
Flomax and Casadex started
Biopsy--3/7/08--187cc--Gleason 10--12 of 12 positive--Perineural and LV invasion identified
T4 bone met.--hydroureteronephrosis/right kidney
3/28/08--Lupron Inj. started
4/7/08--Zometa IV started
5/15/08--PSA 12
5/20/08--Tubes placed in kidneys (through back)
5/21/08--diagnosed Neuro Endocrine Prostate carcinoma
5/28-30/08--1st Chemo
 
 
 


dutchy
Regular Member


Date Joined Jun 2007
Total Posts : 75
   Posted 6/25/2008 7:37 AM (GMT -6)   
Karen, how is your husband doing? How is he dealing with his chemo? Does he have a lot of side effects? It's a different ball game. Are you doing ok? Take good care of yourself, Erlien
Dutchy's husband
Diagnosis: 7/6: PSA 1,946, multiple bone metastases in thoracic, lumbar spine, pelvis, bilateral ribs and proximal left tibia, 2 weeks Casodex (50 mg)

Treatment: 3 monthly Lupron injection (22.5 mg) + Zometa (4 mg IV). Added daily Casodex (50 mg) in September 2007.

25/06: PSA 407
20/08: PSA 3,7
29/09: PSA 0.7
14/10: PSA 0.17
18/12: PSA < 0.003
15/03: PSA <0.003
15/05: PSA <0.003

May 2008: diagnosed with advanced colon cancer


hopemylove
Regular Member


Date Joined Apr 2008
Total Posts : 65
   Posted 6/25/2008 10:56 AM (GMT -6)   

Erlien,

Larry is tolerating the chemo well--just very tired and loss of hair, but he is experiencing a lot of pain. The oncologist continues to work with the pain meds and I hope he can reach a point of being comfortable. This is a whole new ball game and it is a struggle every day to remain positive. My children and grandson are a great source of continuity for both Larry and I. Larry no longer receives his Zometa, but I guess at this point the Prostate cancer is the least of our worries as the new cancer is so aggressive and causing so many side effects.

Thank you for your support. I will continue to pray for you and your husband and I hope God holds you gently in his hands.

Karen


Karen--New York
Husbands Info:
Age of diagnosis--62
2/28/08--PSA 279   DRE--positive/rock hard
Flomax and Casadex started
Biopsy--3/7/08--187cc--Gleason 10--12 of 12 positive--Perineural and LV invasion identified
T4 bone met.--hydroureteronephrosis/right kidney
3/28/08--Lupron Inj. started
4/7/08--Zometa IV started
5/15/08--PSA 12
5/20/08--Tubes placed in kidneys (through back)
5/21/08--diagnosed Neuro Endocrine Prostate carcinoma
5/28-30/08--1st Chemo
 
 
 


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 6/26/2008 6:36 AM (GMT -6)   
Erlien and Karen, my thoughts and prayers are with both of you. Take it a day at a time and be sure to take care of yourselves, too. I'm sure that's not easy but hang in there. God bless you all....kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump
8/07 - 1 yr PSA <0.1
9/1/07 - achieved erection with Viagra - no pump!
3/08 - 18 mo PSA <0.1
tried Levitra - works much better than Viagra - fewer side affects


simo
New Member


Date Joined Feb 2010
Total Posts : 1
   Posted 2/26/2010 8:53 AM (GMT -6)   
Dutchy I am more than happy to hear that your husband did great on hormone terapy. I am a new member and have some questions for all of you that have expirienced mets prostate canser. My father is on hormone terapy bicadex + zoladex + zometa. His psa 70 and gleason 4+5, bone mets (pelvic, spine, shoulders,..) In two months we will hear about his first psa after HT and at tis time he is a little bit yelow in his face (jaundice). My question is: did anyone of you have this kind if side effect on HT?

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 2/26/2010 9:26 AM (GMT -6)   
simo, first, welcome to the Forum. You are posting on a year and half old thread, and I don't think any of those on this thread, except for mkat, posts here anymore. So don't be disappointed if you get no responses. In the meantime, I am gonna move your post to a thread of it's own and hope someone newer can help you.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
32 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN

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