Les (Gordy) Update

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myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 6/27/2008 5:03 PM (GMT -6)   
Les received some news yesterday that has changed his treatment course. With his permission I’m posting for him. I know you would want to know.

On his last visit to Houston Les didn’t have complete info as to his test results and his doctor’s plans when he left for home. By email yesterday his doctor’s assistant in Houston informed him of the following:

1. Doctor wants him to continue Lupron and add Zometa

2. CT of the chest shows “progression of pulmonary metastases” Due to the fact that a few lung nodules have increased in size chemotherapy should be started in next 2-3 months. Two clinical trials were suggested.

3. CT of abdomen & pelvis – “Ill-defined opacity of the right acetabulum which could relate to metastatic disease”

4. Whole Body Bone Scan – “Intense uptake in the right acetabulum that appears to be larger in extent compared to the previous study” Follow up bone scans recommended

Now, this is not the information Les was given when he left Houston and so you can imagine his shock. He will start researching this new information, the clinical trials and may go for another opinion.

I hope I've stated this all correctly but I'm sure Les will be on line before too long to straighten me out if I misspoke.
As you have been, please, keep Les and Carol in your thoughts & prayers.

Susan

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/27/2008 5:46 PM (GMT -6)   
I am very sorry to hear this news. I have grown to Love Les and Carol, and want them to know that my prayers and well wishes are very genuine and caring. We will stay very close to him and shower him with Love and support.

I guess I'm a note ahead, but Walt will be posting some not so good news as well after church tonight. Please visit his website for an update there.

This is not a good day for us at Healingwell, and this is a reminder of the very serious nature of our disease.

Both of these men are great members and I am truly in disbelief. My God bring peace to them and us here and what I would really like to see is some of these trials work well. Please, if you do pray, now is the time, and if you don't, send the very best positive energy you can.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2361
   Posted 6/27/2008 6:05 PM (GMT -6)   
It really saddened me to read this update about Les.  He and his family will be in my prayers for healing and peace in the midst of this unexpected turn toward the worse. 

jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 6/27/2008 6:06 PM (GMT -6)   

I am very sorry and surprised to hear this.  I'm also disappointed that Les was so ill informed.  He's an intelligent and well read guy and I doubt that he misunderstood so much.  This is just lousy.  I hate it. 

I have just read Walt's latest Caringbridge, Tony and I hate that, too.  It's all so discouraging and infuriating.

Bill


August of 2006, PSA up to 4.2 from 2.7 one year ago. 
October free and total PSA 12% free and 5.0 total.
A month, or so later, 4.7.
Late in the year decide on Image Guided IMRT.
Begin 43 treatments on January 23, 2007 and finish on March 23.
Four month post treatment PSA is 1.9.
Seven month PSA is 0.8.


dutchy
Regular Member


Date Joined Jun 2007
Total Posts : 75
   Posted 6/27/2008 6:24 PM (GMT -6)   
That's really terrible news for both Les and Walt. And to be so ill-informed is just infuriating. Am wishing them both of all the best in dealing with another setback. Dutchy
Dutchy's husband
Diagnosis: 7/6: PSA 1,946, multiple bone metastases in thoracic, lumbar spine, pelvis, bilateral ribs and proximal left tibia, 2 weeks Casodex (50 mg)

Treatment: 3 monthly Lupron injection (22.5 mg) + Zometa (4 mg IV). Added daily Casodex (50 mg) in September 2007.

25/06: PSA 407
20/08: PSA 3,7
29/09: PSA 0.7
14/10: PSA 0.17
18/12: PSA < 0.003
15/03: PSA <0.003
15/05: PSA <0.003

May 2008: diagnosed with advanced colon cancer


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 6/27/2008 6:43 PM (GMT -6)   
Dear Les and Walt

We are here for you guys.
age at dx 54 now 56
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
wear one for insurance now
ED still a problem
last PSA undetectable
 


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 6/27/2008 6:45 PM (GMT -6)   
It's hard not to be angry. My heart breaks for Les & Carol and I don't understand how he could have received such different news in person. It is absolutely heartbreaking and I will continue to pray for him and absolutely hate this disease. Very sad day at HW. :(
 
With that being said, I'm grabbing a paddle and rowing!  We are here with you Les!!! 


Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
Praying for a cured dad. First PSA 3 months!


Co-Moderator Prostate Cancer Forum


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 6/27/2008 7:03 PM (GMT -6)   
Ya know, I wish sometimes I could meet some of you to just say hi or give a hug. This all seems so cruel. I will keep Les and Walt in prayer.
Age 51 Kent Cindy 49
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 another round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th. Only took 1 1/2 hours. In recovery 1 hour.  Both nerves were spared.
Home 4-11. Cath out 4-22. Incision looks completly healed on the outside by 4-25.  Incontinence "a thing of the past" as of 5-28
lst PSA 0.04 June 3. YAY!!!
viagra up to 100 a day and feeling some change. Keep our fingers crossed.


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 6/27/2008 7:09 PM (GMT -6)   
This goes to show how much we all need each other. This week in my weekly meditation I actually wrote about what it means to be friends. Even though we are online friends, I feel so close to everyone. My prayer is that thru Les and Walt's weakness, we all can be strong, and share in this burden in an emotional and spiritual way. My heart goes out to fighters, as well as caregivers. Like I always say "life is great when you are livin a dream", let's help Les and Walt back to the road to recovery so we can all share this dream of life and happiness together.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 6/27/2008 7:19 PM (GMT -6)   

Les &n Walt:

No words to convey how lousy this whole mess is, but know you will both be in our thoughts.  Take care and stay strong.

Dutch



anniea
Regular Member


Date Joined May 2007
Total Posts : 234
   Posted 6/28/2008 12:33 AM (GMT -6)   

Hi Everyone,

Thank you for the update on Les, Myman. I am so saddened to hear this news on Les just this past week he reached out to help me with the names of back surgeons for Rick. Both Les and Walt and all of our friends here will once again be in my prayers. I hate cancer in general but lung and prostate cancer have been so brutal in our family I think I hate these 2 the most.

My Very Best Wishes to All

 

Diana 


Rick & Diana
Age 68/ 67@ Dx
6-30-06  PSA 2.54
1-22-07  PSA 4.98
1-26-07  PSA 5.09
Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09
Bone Scan 3-1-07 Clear
3-6-07 Triple Spinal Fusion (due to old back injury)
Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins
4-29-07 PSA 0.02
6-9-07   PSA 0.02
7-6-07   PSA 0.03
8-1-07   CT Scan & Chest X-Ray   Clean
9-26-2007 PSA 0.07
11/1/07 PSA 0.1
11/30/07 PSA 0.12
01/31/2008 PSA 0.3
03/01/2008 PSA 0.3
04/28/08 PSA 0.6
06/18/2008 PSA 0.74
06/24/08 45 mg Eligard 6 mo shot


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 6/28/2008 1:08 AM (GMT -6)   

'Still in shock about the news regarding Les and Walt.

I know everyone will lend their support and prayers to help our good friends.

God bless both of you, brothers.

Kindest regards,

Barry


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 6/28/2008 7:40 AM (GMT -6)   
Thank you so much, Susan. No words here can express that inner pain and sadness that rises with the news. A new fight begins with another round of finding strong emotions and physical fortitude to deal with it. No matter where any of us are in these travels, we are indeed in it together.
Husband: Age 67
PSA had doubled in 14 mos to 4.3/Gleason 6
da Vinci 8/06 in Austin with Dr. Randy Fagin
Post surgical path shows encapsular penetration; possible bladder neck involvement.
PSAs remain undetectable; no further treatment at this time.
Next PSA: April 08


smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 6/28/2008 10:34 AM (GMT -6)   
Susan
 
Words are so hard to find to express what we feel.  We will continue our prayers and wish that something comes Les's way that helps.
 
Richard sad
Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
Jan & Feb & Mar all tests clear
MD Anderson = No surgery and No Proton only Hormone and IMRT
Contacted with Loma Linda and UFPTI in FL
Started Treatment at the U of Florida Proton Therapy Institute in April 2008
May 2, 2008 LUPRON & Casodex
IMRT to started  5/27/2008 Will get 42 treatments 25 IMRT and then 17 Proton
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM
 


Robbie98
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 6/28/2008 10:58 AM (GMT -6)   
I have only just joined this forum after hearing myself I have PC. I so far have had encouraging news about my own condition but posts like this remind me how things can change so quickly and what seems so unfairly.

Although I dont know of Les and Walt but I do know the importance of the bonds on a forum such as this can give strength and encouragement for everyone fighting the condition.

I will have you both in my thoughts for your future

Keep strong

Rob

lifeline
Regular Member


Date Joined Aug 2007
Total Posts : 67
   Posted 6/28/2008 7:27 PM (GMT -6)   
Les and Walt: I am so sorry to hear about your news. You are both strong fighters and after you've had time to digest this, i know that both of you will continue kicking this disease in the butt. You are both in my prayers and my thoughts. I will say extra prayers for both of you. Stay strong and never give up the fight. Lifeline

DanielleS
Regular Member


Date Joined Jul 2007
Total Posts : 57
   Posted 6/30/2008 10:10 AM (GMT -6)   
Les, I'm sorry the communication in your case was handled so poorly.  I know you are strong and will choose the best treatment.  Please know that we are right along side you in this battle. 

JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 6/30/2008 11:23 AM (GMT -6)   
You are both in my thoughts and prayers.
 
JustJulie
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