peyronies

I have had Peyronie's for 24 years...since age 33.

Was unusable for almost a year, but taking 400 mg of Vitamin E helped a lot.  It still has a curvature, but is usable for sex without any problems (qualifying comment....post surgery, it is usable when I inject).

I have peyronie's. It started in Jan 2008, and I was diagnosed with PCa in March 2008. It was very painful going from limp to erect and back again at first. It seemed to be settling out (painwise) by the time I had the surgery. If I stood up and looked down at it during an erection, it was staring straight back at me. The curve was significan to say the least.

Most doctors will tell you that you have to let it run its course for 12 -15 months before it stablizes enough for them to do anything about it. My wife is a physical therapist (PT) with connections in the UK where PTs do a lot more with dysfunctional sexual equipment. They say to jump on it asap with ultrasound, so my wife was giving me ultrasound treatments (with the doctor's approval) for several weeks prior to the surgery. - in an attempt to break up the plaque. I have not tried Vitamin E, because I was told that restricts clotting and was not a good thing before surgery.

Since surgery, (8 weeks now) my penis is surprisingly small, I get almost zero reaction to any stimulation, it has swollen a couple of times but nothing close to an erection, and of course everything is made more difficult by the fact that I am still leaking like a sieve.

At this point in time it is hard to believe that in December 2007 I was normal, (mostly) healthy, functioning guy. Now most days my crotch feels like a friggin train wreck. I can't think about it too much.

Good luck to all out there,
kcragman