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War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 6/28/2008 10:22 AM (GMT -6)   
We got the news yesterday morning on my blood work from round five of chemo. On round five and round six we increased the dosage from 165mg to 195mg of Tax. It did kick my butt this last time, so we expected a decrease in the old PSA. No luck. It went up from 12.98 to 13.62. Makes you wonder if the beating is worth it all. It is! We are now talking seriously about a clinical trial, coming off chemo and prednizone (yes!!!) and changing to a pill every three weeks. I don't have much info yet but I will pass it on when we talk with the oncologist again in three weeks. This trial has been done overseas and the results showed a drop in PSA in 50% of the test subjects. Don't you love being called a "test subject". It reminds me of the movie Elephant Man........"I am not an animal, I'm a man". Anyway, all my other blood work was great, blood pressure is still up some, but I feel this is caused by the anxiety of wanting to know what the PSA is.
I was real down yesterday when we got the news, but phone calls from TC and several friends nipped that right in the bud. The fight goes on. The War Eagle spirit still soars.
Last night our Celebrate Recovery Band played in Sylaguaga, Alabama at a music festival. Big crowd, great crowd. All it took was the first song, "Evermore" by Hillsong United to make all my problems go away. To see 2000 people standing together, outside, at a football stadium, worshiping can only do you good. We will play again this Friday night for a 4th of July gathering at my church, Clear Branch UMC. Pray for strength, we will do a full blown concert of about one hour. It is amazing how when I sing the pain is gone and my worries disapear. Better than any Lortab. We then will sing Sunday night at our prayer service. I will offer up to God all of you for healing and strength. Les this means you too brother, if you don't mind.
I love you all and WE will get through this.  
 
It is time to go, Johnnie is calling. She must be adding to the Honey Do List.
 
Peace, Love, and a HUGE War Eagle to all,
 
Walt
Age: 55 ( still alive at 55)
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007 Bone mets
Casodex 4/2007
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 6.34 12/2007
Radiation (15 treatments) started on bone mets 12/2007
PSA 6.72 1/2008
PSA 8.23 2/2008 - Starting prednisone for 30 days
PSA 14 2-29-2008 - start chemo on 3/12
PSA 12.82 3/1/2008 round one chemo
PSA 12.24 4/2/2008 round two chemo 
PSA 10.86 4/24/2008 round three chemo
PSA 10.4 5/15/2008 round four chemo - increase dosage next month
PSA 12.98 6/5/2008 round five chemo
PSA 13.63 6/26/2008 round six chemo
 
"I will persist without exception - I will find a way where there is no way"


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/28/2008 11:07 AM (GMT -6)   
Sigh,
Walter give my Love to Johnnie. And also all those wonderful new friends I have made. But most of all, you my brother. War Eagle!

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 6/28/2008 11:17 AM (GMT -6)   

I hate to hear this news Walt, my prayer is that you will respond to this trial and it will be approved for the care of many. You are a great man and a wonderful advocate to the healing power of faith. Oh by the way you are not a test subject you my friend are a loving human being. Hang in there Walt and know we all love you very much.

 

peace and love

Dale


My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 6/28/2008 11:34 AM (GMT -6)   
Walt Buddy-

I'm not talking yet (still in my funk), except to say that my choices for chemo are a clinical trial with taxotere and dastinib (dastinib is a tablet) or carboplatin and taxotere.

Ans also to say, of course, that I'm pulling for you and envy you your faith.

Hang in there and War Eagle.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - PSA undetectable, T is 20 and only one nodule has grown (from 8mm to 12mm). Feeling much more confident than after 2/2008 reports


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 6/28/2008 12:57 PM (GMT -6)   
I'm so sorry for your bad news. If I can guess, I think you will see this as another door opening and so shall we. You know, we're right behind you and Johnnie.

War Eagle to each and every one,
Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
PSA - Undetectable since 6/07/07

Link to journey:
http://www.healingwell.com/community/default.aspx?f=35&m=826731


hopemylove
Regular Member


Date Joined Apr 2008
Total Posts : 65
   Posted 6/28/2008 2:30 PM (GMT -6)   

My thoughts and prayers are with you and your wife as you continue forward. Sing so that the whole world can hear.

God Bless,

Karen eyes


Karen--New York
Husbands Info:
Age of diagnosis--62
2/28/08--PSA 279   DRE--positive/rock hard
Flomax and Casadex started
Biopsy--3/7/08--187cc--Gleason 10--12 of 12 positive--Perineural and LV invasion identified
T4 bone met.--hydroureteronephrosis/right kidney
3/28/08--Lupron Inj. started
4/7/08--Zometa IV started
5/15/08--PSA 12
5/20/08--Tubes placed in kidneys (through back)
5/21/08--diagnosed Neuro Endocrine Prostate carcinoma
5/28-30/08--1st Chemo
 
 
 


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 6/28/2008 4:42 PM (GMT -6)   
We find great strength in good friends....
and it is friends like you, Walt and Les, that help keep us strong! yeah
 
Thank you, for you... and God bless you both in your continued journey.
 
Kind regards,
 
Barry (a.k.a "Idaho")

BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 6/28/2008 6:08 PM (GMT -6)   
That's a tough break on the PSA news but it great to see you rallying the forces for the next battle against PSA and the bloody disease that's causing it. Best wishes for the next round and here's to you being the victor. (including a win on points!)
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.1 undetectable


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 6/28/2008 6:28 PM (GMT -6)   
Walt,
Its not good to hear your news about PSA level but its so good to hear about your faith. I have been to those gatherings that you talked about and there can be no better feeling than to be with all those people worshipping. You sound like such a wonderful person and I pray for you and your wife the strength you need to get through this time.
C
Age 51 Kent Cindy 49
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 another round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th. Only took 1 1/2 hours. In recovery 1 hour.  Both nerves were spared.
Home 4-11. Cath out 4-22. Incision looks completly healed on the outside by 4-25.  Incontinence "a thing of the past" as of 5-28
lst PSA 0.04 June 3. YAY!!!
viagra up to 100 a day and feeling some change. Keep our fingers crossed.


norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 6/29/2008 9:04 PM (GMT -6)   
Walt

You are in my prayers myfriend, you have the faith and you will succeed in beating Pca. As the saying goes you may not have won this battle but will win the war in the end.

Norskie
norskie
Age 49, PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Surgery Pathology report 4+3=7 a couple agressive Grade 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
1st & 2nd Post PSA Blood Test .1 and less - Undetectable
3nd Post PSA Blood Test 01-17-07 .3
March 27th PSA .4 Begin Salvage Radiation April, 14 2008
Incontenence-Pad free since end of May 07 4 1/2 months post surgery 
ED back to 95% prior to surgery - no medication required.


dutchy
Regular Member


Date Joined Jun 2007
Total Posts : 75
   Posted 6/30/2008 4:55 AM (GMT -6)   
I admire your resilience and the way you deal with set backs. Keep my fingers crossed that your luck will turn for the better! Dutchy
Dutchy's husband
Diagnosis: 7/6: PSA 1,946, multiple bone metastases in thoracic, lumbar spine, pelvis, bilateral ribs and proximal left tibia, 2 weeks Casodex (50 mg)

Treatment: 3 monthly Lupron injection (22.5 mg) + Zometa (4 mg IV). Added daily Casodex (50 mg) in September 2007.

25/06: PSA 407
20/08: PSA 3,7
29/09: PSA 0.7
14/10: PSA 0.17
18/12: PSA < 0.003
15/03: PSA <0.003
15/05: PSA <0.003

May 2008: diagnosed with advanced colon cancer


DanielleS
Regular Member


Date Joined Jul 2007
Total Posts : 57
   Posted 6/30/2008 9:04 AM (GMT -6)   
I understand how discouraging the slight rise in PSA must be but I have confidence you and your doctors will find the right treatment path for you.  Look forward to hearing more about the clinical trial.  Is it possible to add another drug to the Taxotere - I have read it is often more effective when combined with another drug.  Your friends here are with you 100 percent of the way. 
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