Well wishes for David ~ FLHW

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/30/2008 9:58 AM (GMT -6)   
Today is round two for David, So I wish him peace today and prayers and blessings too.  He wrote in his blog before about things I share with him.  For example, in the grand scheme of things when guys like David, Walt, Les and too many more here, have real tribulations going on and I have a sad birthday, I have to remember it's not about me.  The game plan I subscribe to is found in my Faith. 
 
Good Luck today, David.  I know the Lord is with you.
 
Tony


Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator

Post Edited (TC-LasVegas) : 6/30/2008 4:44:33 PM (GMT-6)


DanielleS
Regular Member


Date Joined Jul 2007
Total Posts : 57
   Posted 6/30/2008 10:20 AM (GMT -6)   
Thanks Tony - David and his family will be in my thoughts and prayers today.

Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 6/30/2008 4:40 PM (GMT -6)   
Tony-

It most certainly is about you. It's about all of us and each of us has the absolute right to feel down, depressed or whatever on any day of the year. I'm sorry it happened to you on your birthday.

Hell, I get depressed on Thursdays, April days, holidays (most holidays, in fact), sunny days - I don't discriminate.

You're fortunate in having something to which to turn when you feel that way, but you have every right to feel that way and to let us know about it.

And, of course, writing to someone who is in trouble, or down, has a very cathartic effect on the writer - helps him forget his problems for a little while. (Selfish, eh?)

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 6/30/2008 5:27 PM (GMT -6)   
We all have the right to feel down, my goodness we have cancer. the hope is we find a reason to get up as well. When my day goes sour, I think of all my friends here at hw and those battling issues in life. My life is good, maybe not what I would have chosen, but hey I got it, so I try hard to make the best of it. Do I get down?????? HECK YES.
We love you Tony, and I will personally say a prayer for David.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
cancer in 4 of 6 cores
92%
80%
37%
28%
 


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 6/30/2008 7:49 PM (GMT -6)   
Just checking in:

White blood counts were up, above the levels before my first treatments.
All other markers back to normal levels
No Nulasta required!!

PSA was 53.4, up but only 1 point!
Not expecting any real reaction until at least 3rd or 4th treatment.

I feel fine tonight, much better than first treatment (not that it was hard on me)
The doc and his PA said I looked REALLY good!!

That's all for tonight, hoping the Dex doesn't keep me up tonight!

smurf

BTW - Thanks for starting the thread Tony!!!!
Dx'd 2/18/05
PSA 219, bone mets, lymph node involvement
Gleason Score: 7
Current (6-9-08)
PSA: 52.02
Taxotere + Prednisone + Atrasentan
[started June 9th]
Clinical Trial:
http://www.clinicaltrials.gov/ct2/show/NCT00134056?term=prostate+AND+atrasentan&rank=2
Lupron
Personal Blog:
prostatecancerat42.blogspot.com


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 6/30/2008 8:21 PM (GMT -6)   
Looks like you're tolerating things well...you know we'll be rooting for you every step of the way!
I'm really glad you guys on chemo are helping us to better understand what is involved, how your doing with treatment and the effect on your lives.
I so much appreciate that.

Wishing you all the best David,
Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
PSA - Undetectable since 6/07/07

Link to journey:
http://www.healingwell.com/community/default.aspx?f=35&m=826731


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 6/30/2008 10:43 PM (GMT -6)   

Hi Tony,

I know I am speaking for most of us here who say, "Yes this forum is about every one of us..." and yet, the forum is also very much about David, Walt, Les, Tony, and others who show their courage and who are fearless to share their utmost challenges with us.  We watch your progress closely.  We cry when you cry.  We laugh when you laugh.  In the end, we share our humanity and that is a very good thing.  We learn so much from each other!

David, I'm so glad you are having some positive news.  God bless you.

Thanks to you all.

 


Barry ~ (a.k.a. "Idaho") - Prostate Cancer Forum Moderator

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  09/11/2007  <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

3rd PSA  03/17/2008  <0.04

4th PSA  06/17/2008  <0.04

My web site: http://pca-info.blogspot.com


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 7/1/2008 6:26 PM (GMT -6)   
Barry - however.... "while you sleep, David is awake"
Last night all the steroids kept me awake again, just like after the first treatment.

I awoke at 1:30am after 2.5 hours of sleep and did not fall back asleep until 4:30
Not wanting to wake my wife, I watched a few shows on my iPod and was able to get a few more hours of sleep
this morning.

Work was much better this week, I was able to concentrate much better that after the first treatment and got a lot accomplished today.

The deep heartburn started again around noon, took some Zantac (thanks again for the tip Walt!) and things great this evening.

Thanks for all the prayers and well wishes!!

Hopefully I'll get a good nights sleep and be well rested for golf tomorrow afternoon!!
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (6-30-08)
PSA: 53.40
Taxotere + Prednisone + Atrasentan
[started June 9th]
Clinical Trial:
http://www.clinicaltrials.gov/ct2/show/NCT00134056?term=prostate+AND+atrasentan&rank=2
Lupron
Personal Blog:
prostatecancerat42.blogspot.com


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 7/1/2008 10:47 PM (GMT -6)   
David,
I love your style, brother.  yeah
 
I do hope you get some sleep so you can really enjoy that golf game!
 
Curious about the heartburn... I take Omeprazole by prescription and it works great for me!
 
All the best,
 

Barry ~ (a.k.a. "Idaho") - Prostate Cancer Forum Moderator

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  09/11/2007  <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

3rd PSA  03/17/2008  <0.04

4th PSA  06/17/2008  <0.04

My web site: http://pca-info.blogspot.com


anniea
Regular Member


Date Joined May 2007
Total Posts : 234
   Posted 7/1/2008 11:15 PM (GMT -6)   

Hi Tony,

 

You,my man by all means have every right to feel every feeling you are feeling. Lets not forget you are human, you have advanced prostate cancer and you lost your mother just recently.  Its okay to feel sad, bummed, and also feel like crying at times. The most important thing is let those feelings out and release them so they don't have a hold on you. I would venture to say you are positive 99.9% of the time so a little of the other is fine.

Thank you for updating us on David.  David I hope this round of chemo works to bring the PSA down and I too hope you can get a good night sleep.

 

Love & prayers to you both

Diana


Rick & Diana
Age 68/ 67@ Dx
6-30-06  PSA 2.54
1-22-07  PSA 4.98
1-26-07  PSA 5.09
Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09
Bone Scan 3-1-07 Clear
3-6-07 Triple Spinal Fusion (due to old back injury)
Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins
4-29-07 PSA 0.02
6-9-07   PSA 0.02
7-6-07   PSA 0.03
8-1-07   CT Scan & Chest X-Ray   Clean
9-26-2007 PSA 0.07
11/1/07 PSA 0.1
11/30/07 PSA 0.12
01/31/2008 PSA 0.3
03/01/2008 PSA 0.3
04/28/08 PSA 0.6
06/18/2008 PSA 0.74
06/24/08 45 mg Eligard 6 mo shot


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 7/3/2008 6:46 AM (GMT -6)   
Barry - regarding the heartburn...I'm taking Proscar.

BTW - played in my 9 hole golf league yesterday; shot 49 (breaking 50 from the Blue tees is good for me).
Had I not finished with two double boogies it would have been better. I am pleased I hit a number of real good shots!

There are a number of of 'things' going on in my family right now. My brother is St Louis has an infected gall bladder and will have surgery, my brother and sister-in-laws twins came 10 weeks early. The girl is doing fine, the little boy not so well. Please say a pray for little Sean......

I would like to sincerely wish you all the best over this holiday weekend. Enjoy all that this country had to offer because of the freedom and independence we hold so dear (and sometimes take for granted!)
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (6-30-08)
PSA: 53.40
Taxotere + Prednisone + Atrasentan
[started June 9th]
Clinical Trial:
http://www.clinicaltrials.gov/ct2/show/NCT00134056?term=prostate+AND+atrasentan&rank=2
Lupron
Personal Blog:
prostatecancerat42.blogspot.com


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/3/2008 10:17 AM (GMT -6)   
Hi David,
You know I am always on the prayer wagon. Sean, and your brother are in them. My Nephews and Nieces are very close to me. I just had a Nephew in town last weekend and we had a great time. He and I have played frisbee golf many times. Though you sound like you would kick my butt. I am looking forward to a great three day weekend. We have a simple weekend planned. It will be around 115 degrees here and that makes me want to go up in the mountains. Of course when it's 115 here, EVERYBODY has a hot flash. But I may take my dirt bike up a few thousand feet and relax and look down on Vegas! Peace!

God Bless you, buddy, be well...

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 7/3/2008 5:00 PM (GMT -6)   
Correction: I'm taking Zantac for heartburn, not Proscar, a little chemo-brain mix up this morning!!
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (6-30-08)
PSA: 53.40
Taxotere + Prednisone + Atrasentan
[started June 9th]
Clinical Trial:
http://www.clinicaltrials.gov/ct2/show/NCT00134056?term=prostate+AND+atrasentan&rank=2
Lupron
Personal Blog:
prostatecancerat42.blogspot.com


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 7/26/2008 7:58 PM (GMT -6)   
I had treatment number three last Monday. So what did I do this week? How about this;
Monday: chemo #3. The steroids kept me up, I got three and a half hours of sleep
Tuesday: I friend called, asked how I was felling and if I wanted to attend the "Tom Petty and the Heartbreakers" concert. Well sure I did!
Wednesday: after five hours of sleep, I played in my golf league and shot my best round of the year, 43 on nine holes!
Thursday: 7:30am conference call and normal day of work etc.
Friday: 1/2 day of work then a Golf Tournament
Saturday: usual disc golf game then a movie with my son (Journey to the Center of the Earth; entertaining but not much else)

So here I am at 9:00pm on Saturday and I am pooped!!

My PSA has not dropped but it has stabilized. We are looking forward to the next test on August 11th!
I am experiencing metallic tongue and trying to combat the effects by avoiding hot liquids (I need a coffee!!) and lemon drops etc.

Peace everyone, I'm off for a good nights sleep!
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (6-30-08)
PSA: 53.40
Taxotere + Prednisone + Atrasentan
[started June 9th]
Clinical Trial:
http://www.clinicaltrials.gov/ct2/show/NCT00134056?term=prostate+AND+atrasentan&rank=2
Lupron
Personal Blog:
prostatecancerat42.blogspot.com


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 7/27/2008 6:35 AM (GMT -6)   
Thanks for the updates David, you are a great inspiration to many. This forum is an unbelievable source of goodwill and support, even when we do get in little spats. We love you dude, and I am sure there is much more work for you to do on this great earth.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 7/27/2008 8:52 AM (GMT -6)   
David-
I hope you sang your heart out at Tom Petty! You truly are an inspiration to all of us! Glad to hear you are not slowing down, but your PSA is. Keep us posted and keep on keeping on! God Bless!

Chayna
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 8/11/2008 8:24 PM (GMT -6)   
I had a long day at the Oncologist office; chemo treatment and regular monthly visit fell on the dame day.
So blood work, doctor visit, chemo prep, chemo, zometa, and a Lupron shot!

Oh, and did I mention my PSA? Down 25% to 39.98!!!

Now i just have to deal with the Dex high tonight and the fact I won't get any sleep!

(I need to update my signature)
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (6-30-08)
PSA: 53.40
Taxotere + Prednisone + Atrasentan
[started June 9th]
Clinical Trial:
http://www.clinicaltrials.gov/ct2/show/NCT00134056?term=prostate+AND+atrasentan&rank=2
Lupron
Personal Blog:
prostatecancerat42.blogspot.com


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/11/2008 8:29 PM (GMT -6)   
Awesome!,
I'll be up late tonight. If you get bored...you have my number.

Wonderful news!

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
 


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 9/2/2008 6:11 PM (GMT -6)   
Just back from treatment #5.
All went well from a treatment perspective but test results leave a little to be desired.
My PSA was 'stable' at 41.36 - of course our hopes were up, but we fight on!
My INR is still low so they have increased my dosage of Coumadin.
Hopefully the INR reacts finally, I am really tired of the self-injections of Lovenox in my belly!!
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (9-2-08)
PSA: 41.36
Taxotere + Prednisone + Atrasentan
[5th Treatment on September 2]
Clinical Trial:
http://www.clinicaltrials.gov/ct2/show/NCT00134056?term=prostate+AND+atrasentan&rank=2
Lupron
Personal Blog:
prostatecancerat42.blogspot.com


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/2/2008 6:49 PM (GMT -6)   
Hi David,
Carry on my friend. At least it stayed stable. You are always in my thoughts and prayers. Be well and Good luck with the Golf Tournament!!!

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
 


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 9/2/2008 9:47 PM (GMT -6)   
David,

I wish you rest, peace and a belly that doesn't hurt!
It's wonderful that you can share with us how this treatment is working for you. You'll never know how many people you're helping in their treatment decisions.

Bless you,
Susan

IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 9/2/2008 10:37 PM (GMT -6)   
Hi David,

Thank you for the update on your progress. We are with you as you continue the fight!

God bless you for your tenacity and courage.

Kind regards,

Barry ~ (a.k.a. "Idaho")

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  09/11/2007  <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

3rd PSA  03/17/2008  <0.04

4th PSA  06/17/2008  <0.04

My web site: http://pca-info.blogspot.com


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 9/2/2008 10:40 PM (GMT -6)   
Hey David,

Thank you for your great attitude in the face of adversity. I just got off Coumadin and the belly shots do get tiresome. I start chemo this Friday (lung cancer).

Lets get well together...

Jim
Age 74. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 7/17/08 0.00. 
Next PSA test on 1/28/09
Lung cancer dxed on 5/16/08.  Surgery on 6/25/08  T1N1M0 - Stage IIA  Start chemo in September 08
"Patience is essential, attitude is everything."


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 9/3/2008 11:44 AM (GMT -6)   
Biker - we'll be praying for you!
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (9-2-08)
PSA: 41.36
Taxotere + Prednisone + Atrasentan
[5th Treatment on September 2]
Clinical Trial:
http://www.clinicaltrials.gov/ct2/show/NCT00134056?term=prostate+AND+atrasentan&rank=2
Lupron
Personal Blog:
prostatecancerat42.blogspot.com


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 9/22/2008 8:12 PM (GMT -6)   
Here is an update after today, treatment number 6

PSA: 39.57, down from 41.98
Not a lot, but a baby step in the right direction!

Chemo again is being tolerated very well. I'll likely be up tonight watching the final season of 'The Wire', perhaps
reading a little, likely praying a lot.

My INR (Coumadin marker) is now up to 1.8 and the doc raised my dosage with the hope we'll get it over the required level of 2.0
by next Monday. I sure hope so, I tired of injecting myself in the stomach. I am bruised all the way across my abdomen.

Friday is our forth annual golf tournament, a sold out affair. If all goes according to plan we will have raised $100,000 is three years!!

Life is a so many things; a blessing, a challenge, painful, joyful, peaceful!

Blessing to all of you, whatever that means to you individually.
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (9-2-08)
PSA: 41.36
Taxotere + Prednisone + Atrasentan
[5th Treatment on September 2]
Clinical Trial:
http://www.clinicaltrials.gov/ct2/show/NCT00134056?term=prostate+AND+atrasentan&rank=2
Lupron
Personal Blog:
prostatecancerat42.blogspot.com

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