Frank1205 Update

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Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 7/2/2008 5:55 PM (GMT -7)   
Hi All,
 
Just had my 4 month follow up with my Urologist and here is what I know.  My 4 month PSA is undetectable below 0.05.  My six week PSA was done at my local Hosp and I learned that their testing only goes to 0.01 and I cant use them any more and need to search for a better local lab. 
 
My Urologist instilled confindence in me to wait on the radiation for the bad margin.  He said 50% of patients with bad margins have PSA failure.  50 % of those with radiation follow ups with no PSA rise get radiation when they did not need it.  He stated that my PSA needs to be watched every three months and if it just blinks he recomends Radiation. I am leaning toward agreeing with him but will still meet with the Radiation Oncologist to get his opinion. Urologists seem to be conservative with this.   
 
My cancer was located in an unusual spot.  At the top Distal at the apex right by the urethra.  He thinks he made an indentation with a Robotic tool and when they inked it, this dimple caused the margin.  He said a positive margin is a positive margin though. 
Anyway 4 month PSA of 0000000000000000000000000000's I feel good.
 
Thanks for the replies on my earlier post I truly appreciate it.
 
I just got my summer back.
 
Oh and for you Golfers.  I dont Golf much and did so for the first time since surgery.  Felt great,  golfed ok but did I leak.  I am down to 1 light pad at 4 months but during my game I went through 3 pads.  Make sure you take extra with you for your first couple of games.
 
Take care all
 
Frank
 
 
Diagnosed 01-08-08 @ 53 years old 
DRE normal - High PSA for 5 or more years
2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Current PSA 6 - Bone and Ct scans negative
clinicalg Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,5 hour surgery , 3 hour recovery
Unexpected Cardiac issues appear and disappear?
Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage - Erectile funtion back on line 9 days 
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on top of prostate distal from apex. 1 positve margin at urethra and bladder.
Six week PSA < 0.05 Ya Ba Da Ba Dooooooooooo.  Put a steak on the grill Wilma!!!!
Oncologist to discuss case with Urologist and Radiation Oncologist to consider radiation.
 


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 7/2/2008 6:25 PM (GMT -7)   
frank1205: sounds like you have a plan. one question, why can't you use the first lab if the equipment goes to .01 and you are less than .05. are you wanting to know if it goes below .01? my psa has been .04. i will ask my doctor how low his psa machine goes.
 
Age 48
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
decision - surgery (robotic)
surgery may 9, 2008 - houston, tx
pathology report -gleason 8
margins clear
4 week and 6 week PSA .04 (undetectible)
continence ok during day - 1 pad
night time different story
kegel's twice a day 20 reps


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 7/2/2008 8:35 PM (GMT -7)   

Hi Frank,

The reasoning of your urologist sounds good to me.  I do like the idea of getting a second opinion.  Having a little more info can help in making your decision.

'Glad you had fun with golf, even if it was a little wet! tongue

All the best to you, Frank.

Kind regards,


Barry ~ (a.k.a. "Idaho") - Prostate Cancer Forum Moderator

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  09/11/2007  <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

3rd PSA  03/17/2008  <0.04

4th PSA  06/17/2008  <0.04

My web site: http://pca-info.blogspot.com


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 7/3/2008 11:20 AM (GMT -7)   

My original post was incorrect.  My first PSA was only able to establish less than 0.1 (first generation).  My second PSA was less than 0.05 (second generation)  Doc wants second generation PSA equipment not 1 or 3 just 2nd.

Sorry for the confusion.  Your right Rob2.  Thats why I post.  My brothers and sisters here are a good 2nd set of eyes.

Frank

 

 


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 7/6/2008 8:15 PM (GMT -7)   
A little late, but CONGRATS! Love to see the zeroes!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
Praying for a cured dad. First PSA 3 months!


Co-Moderator Prostate Cancer Forum


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 7/6/2008 8:28 PM (GMT -7)   
Good news Frank. Hope the second generation is good to you always...

swim
 


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 7/7/2008 9:19 AM (GMT -7)   
Frank - your PSA results look great! Sounds like your doc is cautious with the radiation which is good and talking to a radiologist is good, too. More information and looking at all options only makes for a more informed patient.

Enjoy the golf,
Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
PSA - Undetectable since 6/07/07

Link to journey:
www.healingwell.com/community/default.aspx?f=35&m=826731

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