Proton Beam Radiation Therapy candidate....

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Regular Member

Date Joined Apr 2008
Total Posts : 63
   Posted 7/5/2008 5:18 PM (GMT -6)   
Greetings All

Following my last visit to my urologist, when he told me he knew nothing at all about Proton Radiation Therapy, I was quite fortunate in that the radiation oncologist he referred me to knew quite alot about it, and in the end recommended I go to the University of Florida Proton Therapy Institute.

What a joy it is to encounter a happy, personable, knowledgeable doctor who actually has time to listen to me. It's been too long for me, for sure. My follow-up PSA was back up to 10.6, so there is some urgency to begin a treatment. I asked all the questions I could think of and he answered them all satisfactorily. He said he thought his treatments with IMRT would yield about the same results as PBRT, but that there could be more severe side effects, such as rectal burn. Finally, when I told him I felt the Proton treatments would be best for me, he suggested I go to UFPTI.

Tomorrow I will start the admission process by forwarding all my tests and records, and then a few weeks wait for a consultation appointment. If accepted, then another 4/5 weeks for a workup, and then another 4/5 weeks before the treatment actually begins. There will likely be 44 treatments over a two month period.

I'll try to keep up a weekly log, and post whatever seems might be of benefit. Those seeking treatment options should consult the YANA site for hundreds of personal histories of patients and their results. This site is of tremendous value in choosing a treatment:

Pre-Diagnostic PSA record, begun 1995 at age 58..... now 70:
1995 - 1.2, 1997 - 1.7, 1998 - 1.4, 1999 - 1.7, 2000 - 3.4, 2001 - 2.0,
2002 - 4.6 on 6/6, 4.1 on 7/24, 3.5 on 10/1 at urologist's office
2003 - 2.3, 2004 - 2.7, 2005 - 3.2 on 7/15, 2006 - no test????
2007 - 5.8 on 2/5, 5.7 on 6/16
2008 - 10.4 on 2/29, 8.8 on 4/21 --- Scheduled biopsy for 5/6/2008.
2008 - 10.6 on 7/2. Radiation oncologist suggests either IMRT or Proton Beam

5/22/2008 -- Results of biopsy
4 of 12 cores show adenocarcinoma:
LLM - Gleason 3+3=6, PTI=10%, LM - Gleason 3+3=6, PTI=2%
LLA - Gleason 3+4=7, PTI=25%, LA - Gleason 3+3=6, PTI=20%
Clinical Stage: T2a
RLB - There is focal acute prostatitis
LLM - There is focal perineural invasion
LLA - There is focal perineural invasion
Partin Table:
OC - 33%, CP - 52%, SV+ -10%, LN - 4%

I have selected Proton Beam Radiation Therapy at Univ of Florida Proton Institute

Regular Member

Date Joined Oct 2006
Total Posts : 444
   Posted 7/5/2008 11:51 PM (GMT -6)   
Best of luck on your proton treatments. I was fortunate to find my proton mentor on YANA who was so helpful to me. Please keep us informed of your progress!

-69 years young!
-29 core biopsy 9/27/06 at age 68
-PSA 7.1, Stage T1c, Gleason 7 (3+4) [less than 20% in one area], Gleason 6 [less than 5% in two other areas], Negative DRE, bone scan and Endorectal MRI. 
-Completed 39 Proton radiation treatments 2/22/07-4/18/07.   
-PSA History: 7.1 pre-treatment; post treatment: 2.1 (3 mo.), 2.4 (6 mo.), 1.7 (9 mo), 1.6 (12 mo.).  Radiation oncologist said: the 3-mo. drop of 70% exceeded expectations; the slight 6-mo. bump up was not a cause for concern now; expected drop in 12-18 mo. is 75%.
-The following is a link to My Journey With Prostate Cancer -- Proton RadiationTherapy.  

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