By now you've got some doctors in mind and some hospitals. The first thing I do when I get a doctor's name is check him/her out on Google. Find out what schools he attended, what hospitals he's worked in and whether he's a Diplomate of the American Board of whatever specialty - in this case urology.
Also Google the hospitals you're considering. They usually list the professionals in each department. Google each of the docs as above. It's very important to do what I call "due diligence". It's much better to get it right the first time, than to have regrets and try to undo what's been done.
Liking the doctor is also a big part of it. If you have insurance, ask how many 2nd opinions they'll pay for. And ask several times - you'll get different answers from different people. I had 5 "2nd opinions". The first person I asked at my insurance company said they wouldn't pay for any 2nd opinions. Horse hockey!!!
And, yes, it's scary as hell. But you'll find out that it's not nearly as bad as you've imagined.
Dx PSA 26.5 Gleason 7 (4+3) @Age 611/2005
Start Casodex and Zoladex
PSA drops to <0.01 7/2005-8/2005
5 weeks of IMRT and then HDR brachy1/2007
Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT1/2007
CT scan of pelvis picks up a nodule at bottom of left lung5/2007
CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.6/2007
Thoracic surgeon removes wedge of left lung for biopsy6/2007
Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.8/2007
2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 272/2008
Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.6/2008
Trip to Houston - Finally got results from doc. A number of lung nodules have grown, but, more important to him, is the fact that the malignant lesion on my pelvis seems to have flared up and he wants me to start chemo. He said I could wait a few months, but I told him I want to start now. He to get me signed up for a clinical trial in nearby NY.
Post Edited (Gordy) : 7/7/2008 7:39:42 PM (GMT-6)