Study at the University of Arizona ~ Telephone Counselling.

New Topic Post Reply Printable Version
26 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/8/2008 1:37 PM (GMT -6)   
Hi Guys,
With Peters permission I am posting part of the letter I received in Email fron the University of Arizona.  Right now they have 43 study subjects and need 80 for the study to be considered.  This is a very well intentioned study funded by the Feds through the National Cancer Institute.  There isn't a person here that isn't qualified to lend them a hand.  You don't have to have an advanced case, any case is needed.  I told them I would attempt to see if any of my online friends may be interested.  Here is the letter I received, and if your are interested just contact Maria.
................................................................... 
I work at the Arizona Cancer Center in Tucson, Arizona through the College of Nursing. This cancer center is affiliated with University Medical Center, which has partnered with Nevada Cancer Institute. I am writing to you in hopes that you will be able to help me too. I am the Project Director for a Prostate Study. This study is for men diagnosed with prostate cancer and their partners (spouse, friend, son, etc.) and is funded by the National Cancer Institute. The purpose of this study is to test the effectiveness of a telephone delivered psychosocial counseling intervention compared to an educational control, on symptoms and quality of life for men with prostate cancer.

I would be happy to send you information on this study to see if you and your wife Ruth would be interested in participating. It's like a "support group" via telephone. We provide a lot of support and education for men with this diagnosis and their partner and you know how important that is. Also, if you participate in the study and see how helpful it is, then hopefully you would refer other men with this diagnosis as well. Do you attend support groups? Or if you have any suggestions/recommendations on how I might be able to reach more men with this diagnosis to make them aware of this study I would greatly appreciate it. Can you tell me if there is someone I could contact at Nevada Cancer Institute to let them know about our study? Any assistance that you can provide is greatly appreciated.

Thank you.
Maria Figueroa

Maria Figueroa
Program Coordinator
College of Nursing
The University of Arizona
1305 N. Martin
P.O. Box 210203
Tucson, AZ 85721-0203
Phone: (520) 626-4462
Fax #: (520) 626-7891
figueroa@nursing.arizona.edu

Post Edited (TC-LasVegas) : 9/28/2008 11:18:11 PM (GMT-6)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/2/2008 3:48 PM (GMT -6)   

Bump...They still need about 20 more volunteers...

They Also have added a website.  You can see it by Clicking Here.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/5/2008 10:54 AM (GMT -6)   
cool cool cool cool cool
cool  BUMP    cool
cool cool cool cool cool
 
 
I am in week 4 of this counseling.  My wife and I have a great marriage, but we do like this study.  Highly recommended for anyone and their significant other!!!
 
Tony

hawkfan75
Regular Member


Date Joined Jan 2007
Total Posts : 165
   Posted 9/5/2008 11:31 AM (GMT -6)   
I am also in the study.  While I feel that I haven't experienced serious pschycological issues with my cancer, talking out your feelings is a good thing to do.  They will learn so much by having a variety of people, discussing how they cope with this beast.  It's worth it....make the call.

Age 57 at diagnosis (2006),  PSA 4.7 (up from 3.2 one year previous)
Biopsy November 8, 2006 1 of 10 cores positive 5% LEFT Side Gleason 3+3
Robotic surgery January 19, 2007
Post Surgery Pathology Stage T3a, Gleason 3+4, positive margins and capsular penetration RIGHT Side
Post Surgery PSA:  March 5, 2007:  0.01    5 month PSA  0.08
Adjuvant therapy began June 26, 2007 with Zoladex injection
Radiation began August 23, 2007, ended October 8
First post radiation PSA, December 18, 2007:  0;  March 2008 - still 0;  July 2008 - 0
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/13/2008 10:57 AM (GMT -6)   
cool cool cool cool cool
cool  BUMP    cool
cool cool cool cool cool
 
I am in week 5 of this counseling.  My wife and I have a great marriage, but we do like this study.  Highly recommended for anyone and their significant other!!!
 
Tony

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/20/2008 4:37 PM (GMT -6)   
cool cool cool cool cool
cool  BUMP    cool
cool cool cool cool cool
 
Again...It's free!

livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 9/20/2008 7:57 PM (GMT -6)   
I think I will give them a call, thanks for the post.

peace to you
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/28/2008 2:39 PM (GMT -6)   
I just completed week #6. Ruth has one more seesion, I have two. This is a wonderful program. I am bumping this again. They need 34 more couples to complete the enrollment goals of the study.

Tony

Post Edited (TC-LasVegas) : 1/19/2009 9:45:29 PM (GMT-7)


hawkfan75
Regular Member


Date Joined Jan 2007
Total Posts : 165
   Posted 9/28/2008 11:02 PM (GMT -6)   
I also am in this study, with my 7th session tomorrow, and our final joint session next Monday.  Even before this study, I have worked hard to not let this disease run my life and my wife's as well.  Has cancer changed my daily look at things - you bet!  Am I more anxious about death - another you bet!  However, throughout my treatments I have worked to have the least amount of side effects and return to normalcy as best as I can.  It is difficult for me to access if this telephone counselling has helped me or my wife, but hopefully information they obtain will be benefitial to others.  If you are in this category, please contact U of A and get involved with this trial.

Age 57 at diagnosis (2006),  PSA 4.7 (up from 3.2 one year previous)
Biopsy November 8, 2006 1 of 10 cores positive 5% LEFT Side Gleason 3+3
Robotic surgery January 19, 2007
Post Surgery Pathology Stage T3a, Gleason 3+4, positive margins and capsular penetration RIGHT Side
Post Surgery PSA:  March 5, 2007:  0.01    5 month PSA  0.08
Adjuvant therapy began June 26, 2007 with Zoladex injection
Radiation began August 23, 2007, ended October 8
First post radiation PSA, December 18, 2007:  0;  March 2008 - still 0;  July 2008 - 0; Sept. 2008 - 0;
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/11/2008 12:52 PM (GMT -6)   

hawkfan75
Regular Member


Date Joined Jan 2007
Total Posts : 165
   Posted 10/11/2008 11:45 PM (GMT -6)   
I just completed my final counseling session in this study.  My wife and I now have the post surveys to take.  I had never thought about talking to a "shrink" about anything.  While my anxiety level about this beast has been high, a lot of my conversations helped put things in perspective.  I have really worked at keeping active and avoiding any of the side effects from my treatments.  I know there are many of us who are having problems dealing with all of this.  Please give the University of Arizona a call and get involved.  It's well worth it.
Age 57 at diagnosis (2006),  PSA 4.7 (up from 3.2 one year previous)
Biopsy November 8, 2006 1 of 10 cores positive 5% LEFT Side Gleason 3+3
Robotic surgery January 19, 2007
Post Surgery Pathology Stage T3a, Gleason 3+4, positive margins and capsular penetration RIGHT Side
Post Surgery PSA:  March 5, 2007:  0.01    5 month PSA  0.08
Adjuvant therapy began June 26, 2007 with Zoladex injection
Radiation began August 23, 2007, ended October 8
First post radiation PSA, December 18, 2007:  0;  March 2008 - still 0;  July 2008 - 0; Sept. 2008 - 0;
 
 


hawkfan75
Regular Member


Date Joined Jan 2007
Total Posts : 165
   Posted 10/16/2008 12:43 PM (GMT -6)   
I wanted to bump this up to the top again.  While I haven't had real depression concerning PC, there definitely has been anxiety.  The counseling - something I never considered - is worthwhile and simple to do.  They still need more candidates for their study, and will sign up those who are just prior to their treatments as well as in their treatments.  It costs nothing, so please consider calling them up and getting more information.

Age 57 at diagnosis (2006),  PSA 4.7 (up from 3.2 one year previous)
Biopsy November 8, 2006 1 of 10 cores positive 5% LEFT Side Gleason 3+3
Robotic surgery January 19, 2007
Post Surgery Pathology Stage T3a, Gleason 3+4, positive margins and capsular penetration RIGHT Side
Post Surgery PSA:  March 5, 2007:  0.01    5 month PSA  0.08
Adjuvant therapy began June 26, 2007 with Zoladex injection
Radiation began August 23, 2007, ended October 8
First post radiation PSA, December 18, 2007:  0;  March 2008 - still 0;  July 2008 - 0; Sept. 2008 - 0;
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/29/2008 1:04 AM (GMT -6)   
I have completed this course.

A+++++

I have a wonderful wife. But we both liked this course. I highly recommend it!

Tony

Post Edited (TC-LasVegas) : 1/19/2009 9:45:45 PM (GMT-7)


mgl
Regular Member


Date Joined Feb 2007
Total Posts : 122
   Posted 10/29/2008 5:13 PM (GMT -6)   

Tony I called the number and they returned the phone call, they said they would be sending me something in the mail

thanks for the tip

mike


50 years old
gleason 3+4=7 psa5.8 clinical stageT3a
Da vinci surgery April10 2007 Mayo clinic Rochester, Mn.
extraprostatic extension Gleason -same
pelvic lymph nodes -negative
Catheter out April 19
psa aug 2007 0.28
37 treatments IMRT ended 10/26/07
psa Jan 29 2008 0.10
psa april 30 0.14
psa aug 21, 0.16


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 10/29/2008 8:27 PM (GMT -6)   
Tony, Ill call tomorrow...Di
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Waiting for activation October 28 2008


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3257
   Posted 10/29/2008 11:31 PM (GMT -6)   
Tony, My wife and I were just looking for counseling today. I will call tomorrow. Todd

hawkfan75
Regular Member


Date Joined Jan 2007
Total Posts : 165
   Posted 11/4/2008 10:48 AM (GMT -6)   
I've noticed a few new posters who understandably are having a lot of stress surrounding the discovery and treatment of their cancers.  Please give the people from the University of Arizona a call.  Besides the fact that they need more participants, the telephone counseling is free and benefitial.   I don't think I've gone one day since my pathology report without having some thoughts about my cancer, but talking about this is very helpful.

Age 57 at diagnosis (2006),  PSA 4.7 (up from 3.2 one year previous)
Biopsy November 8, 2006 1 of 10 cores positive 5% LEFT Side Gleason 3+3
Robotic surgery January 19, 2007
Post Surgery Pathology Stage T3a, Gleason 3+4, positive margins and capsular penetration RIGHT Side
Post Surgery PSA:  March 5, 2007:  0.01    5 month PSA  0.08
Adjuvant therapy began June 26, 2007 with Zoladex injection
Radiation began August 23, 2007, ended October 8
First post radiation PSA, December 18, 2007:  0;  March 2008 - still 0;  July 2008 - 0; Sept. 2008 - 0;
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 11/17/2008 1:16 PM (GMT -6)   
open still!!!!!!!!!
Until February. Great for newbies and Vets alike!

Tony

Post Edited (TC-LasVegas) : 1/19/2009 9:45:58 PM (GMT-7)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/6/2008 11:24 PM (GMT -6)   
C'mon...Make the call...
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/28/2008 9:03 PM (GMT -6)   
Please jump in and help UA accomplish their goals. But I'm telling you, this is a great program and it's free! FREE! FFFRRREEE!

Post Edited (TC-LasVegas) : 1/19/2009 9:46:12 PM (GMT-7)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 1/9/2009 2:04 AM (GMT -6)   
Time is running out!!!!!!

Please, please, please consider this program...I loved it and so many have been blessed with this very free program....

Don't be macho, don't be shy, don't miss this great opportunity....Maria is a wonderful lady...Adrian a great counselor, Terry a great and caring lady....Last chance here...

Tony

Post Edited (TC-LasVegas) : 1/19/2009 9:46:24 PM (GMT-7)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 1/19/2009 11:45 PM (GMT -6)   
This is a very real and excellent freebie. My new friend at the University of Arizona has requested leave to post here to fill the last few spots in this study. Again the is research on the value of telephone counseling for prostate cancer patients and their wives/partners. I loved it, it was worth my time, and I know you will too.

Tony

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 1/21/2009 2:34 AM (GMT -6)   
I am bumping this again! Excellent payment plans...It's free and the University of Arizona sent gift cards for use at WalMart. LOL you might call now!

Cool stuff!

Tony

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/21/2009 8:42 AM (GMT -6)   
I e-mailed them and Maria told me that they didn't need me because I wasn't having treatment anymore! So I said thanks anyway and after thinking about it, I emailed back and told her but I'm still on Testosterone theropy! She said well then thats a different story so I'm now signed up waiting for paperwork to come in the mail! Thanks for the advice!
Pete
55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. 55 and still alive and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on an aircraft carrier heading for Hong Kong and the other on a Gator Freighter stationed in Norfolk, Va. I am one proud PaPa! 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 1/21/2009 11:49 AM (GMT -6)   
I will contact Maria and let her know that watchful waiting after primary treatment is a treatment option, and that the effects of primary treatment can leave us with ED for which we receive residual treatment in a matter that is difficult for many. I may even contact Terry Badger as well. I won't mention a specific case. Thanks for the post, Pete!

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 15, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!

New Topic Post Reply Printable Version
26 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Monday, September 24, 2018 6:35 AM (GMT -6)
There are a total of 3,006,005 posts in 329,292 threads.
View Active Threads


Who's Online
This forum has 161818 registered members. Please welcome our newest member, demonsss.
245 Guest(s), 2 Registered Member(s) are currently online.  Details
Deep_sleep, Pammie