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cave88
Regular Member


Date Joined Jul 2008
Total Posts : 76
   Posted 7/8/2008 9:48 PM (GMT -6)   
 
  In
april I had a routine blood test.  I was having gout like symtoms.  Dr tested for several things including psa.  uric acid level was high.  PSA was 3.06.  I was sent to an Urologist.  He did a dre and said I had a rather large prostate.  drew more blood and urine sample.  Scheduled an appointment for sept.  I got a phone call 7/09 today saying psa was now 4.0  Dr has scheduled a biopsy to be done on 7/24.  I have been checking web sites today.  I have read a lot about psa velocity and the relative age.  I am 44 yrs old.  What can I expect now?  What else can I do before the 24th beside worry?  I appreciate all advice.
 
Thank you

Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 7/8/2008 10:07 PM (GMT -6)   
First welcome. Second - take a breath, relax and don't panic. Knowledge is a good thing and is the best route to a sense of power. but on the other hand, there is so much you don't know, and CAN'T know at this point, that you may end up scaring yourself needlessly.
 
First, if it is cancer, celebrate the fact that you are catching it early. i was only 47 when i was diagnosed - only a few years older than you are now.  The good news, is that with your numbers - you will be fine. Velocity is a bit dicey with your numbers. A PSA score can vary wildly over a few weeks - exercise, ejaculation, riding a bike; it all will bump up a PSA. Don't panic. If it is cancer, you have some rough paddling ahead, but you will be fine. The good news of being young and having this, is that your recovery is almost always pretty good. This is not the end of your sex life or anything. If you want kids, you may want to visit a sperm bank!! LOL.
 
Stick around here, this is a great site with wonderful people. You're in the right place.
 
Take care of yourself and do something fun to take your mind off things.
Paul
47 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6      (Biopsy 3/07 just suspicious)
10/07 PSA 5.06   (Biopsy 11/07  1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC  www.roboticoncology.com
Saved both nerve bundles.
Path Report:  Stage T2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
PSA 0 at six weeks
Pad free on March 14 - (10 weeks.)
ED - Take 100mg viagra every night.
Totally usable erections at 10 weeks.
 
 


cave88
Regular Member


Date Joined Jul 2008
Total Posts : 76
   Posted 7/8/2008 10:27 PM (GMT -6)   
Thanks Paul.  I appreciate the feedback

cave88
Regular Member


Date Joined Jul 2008
Total Posts : 76
   Posted 7/9/2008 7:21 AM (GMT -6)   
Selmer,
thanks for replying. The urologist took the urine sample first, the dre, then the blood test. I did read yesterday that the dre could cause a temporary elevation of the psa. The urologist also said that he would be more concerned with the elevated psa if my testosterone level was low.
I don't know for sure but apparently this is the case. Neither Dr suggested anti-biotics.

Thank you

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 7/9/2008 7:53 AM (GMT -6)   
  tongue    Hi ~joliver88 and Loved Ones,

 

Welcome   to  ~ HealingWell ~

 

and

 

A   Special Warm Welcome  to  You !

 

Knowledge gives us POWER.  POWER takes away the fear.

 

~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~

 

 Click  on  link  below for important information that will help you ~ help us!!

 

  >>  Welcome New Members ~ to HealingWell

 

The information (link) listed above is to help you get around the forum! 

 

This is a journey best traveled with friends. 

 

Welcome ~ New Friend from all the members here... on HealingWell.com

 

 

Forum Moderators

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Roger G
Regular Member


Date Joined Apr 2008
Total Posts : 150
   Posted 7/9/2008 10:04 AM (GMT -6)   
Joliver,

Welcome to the forum and I hope you don't get an offer to join our club just yet. Paul offered some wonderful advice about relaxing and having some fun. Life is too short to spend it worrying about something you cannot control.

Do a little research and reading on the subject, go get the biopsy done (yes it will be a litteral pain in the ass), go for long walk, go watch a baseball game... get out and enjoy life! If the biospsy comes back negative, make plans to get you PSA checked regularly, and breath again ;)

Eitherway we are here to help.

Take care.


Age: 43 (2008)
DRE Small Ridge on prostate, PSA 1.5
07/2007: Diagnosed cancer, T2c, Gleason 3+4=7
09/2007: Laparoscopic prostectomy @ Hamilton General, 4 hrs.
              Both nerve bundles spared
              Pathology Report: Tumor confined w/in prostate
              T2c, Gleason is 3+3=6
              Went home with JP drain
10/2007: Made return trip to hospital.  All urine was comming out JP drain.
10/2007: Catheter removed. Next to no leakage
11/2007: 1st PSA <.003 :)
              ED: Started Viagra, no response yet.
12/2007: Had confidence to go padless!!!!!
12/2007: ED:  Stopped Viagra as it's causing hemroid problems.
01/2008: 2nd PSA <.003 :)
              ED: next to no response.
04/2008: 3nd PSA <.003 :)
              ED: next to no response.  Changed the Viagra prescription.
 

Post Edited (Roger G) : 7/9/2008 3:36:09 PM (GMT-6)


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 7/9/2008 10:51 AM (GMT -6)   
I was told you have an 80% chance of the biopsy being negative. So the odds are on your side.

There is another string on this site where everybody discusses exactly what they went through in their biopsy. It is not a lot of fun, but it is certainly not the worst thing that has ever to me. Just relax and keep breathing and you'll get through it.

From the "let's get real" category of advice: If you and the significant other have an active sex life, I would "get busy" now and enjoy it, because things down the road might change.
Good luck,
kcragman
Age: 52
March 2006: PSA 2.5
Dec 2007:   PSA taken for insurance application. I did not see the results until late Jan '08 - after I was rejected. Their lab said PSA 4.5. PSA again in Feb '08: 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were cancerous and the 6th did not look good.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.
Post op: Gleason 9 (4+5). 15% of prostate involved. Negative margins. Lymph nodes and associated glands all appear to be cancer free.


slm61
New Member


Date Joined Jul 2008
Total Posts : 6
   Posted 7/9/2008 11:40 AM (GMT -6)   
joliver,
 
Sorry to hear about the circumstances of course and I'll pray that the outcome is in your favor. If you have the Bio done make sure they do a cleaning prep. You'd think this is SOP but they didn't on me and it went septic (infection to near death). I'm not sure if that was the cause, but you would think they at least would see fit to do it. God Bless.

Age 47
Physical 9/07 indicates oblong sphere in PS, PSA=3.5 doc recommends bio
Bio indicates 3+3=6 GS, T2a, PS=40.8cc, PC=65%, nodule in left apex
Bio went urosepsis (infected), w/PICline for 4 weeks
All CT/Bone scans (negitive)
4/08 PSA=4.9
+Blood clotting factors, under treatment=normal
1st Recommendation=IMRT
2nd Recommendation=DeVinchi
3rd Recommendation=Open Surgery
 
Secheduled DeVinchi for 7/31/08


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 7/9/2008 1:17 PM (GMT -6)   
Hey Joliver,

The only way you can possibly make you situation worse is to do nothing. Take an agressive stance because cancer is an agressive foe and the earlier action is taken to defeat it, the better your outcome will be. Read some of the stories of the young guys with "normal" PSAs that have advanced prostate cancer.

Got cancer, get rid of it...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 1/17/08 0.00. 
Next PSA test on 7/17/08
Lung cancer dxed on 5/16/08.  Surgery on 6/25/08  T1N1M0 - Stage IIA
"Patience is essential, attitude is everything."


smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 7/9/2008 2:37 PM (GMT -6)   
joliver
 
Let me add my welcome to you and wish you the best outcome. 
 
I can refer you to these 2 websites if you have not already found them.
 
 
If I can answer any questions please ask.
 
Richard
aka smilingoldcoot
 
Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
Jan & Feb & Mar all tests clear
MD Anderson = No surgery and No Proton only Hormone and IMRT
Contacted with Loma Linda and UFPTI in FL
Started Treatment at the U of Florida Proton Therapy Institute in April 2008
May 2, 2008 LUPRON & Casodex
IMRT to started  5/27/2008 Will get 42 treatments 25 IMRT and then 17 Proton
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 7/9/2008 2:46 PM (GMT -6)   

joliver, I agree with Selmer on this situation.  It seems you have been fast tracked past any of the steps for determing a need for a biopsy.  In my case, and with most cases, I had elevated PSA, and was referred to the Urologist.  He did a dre, found my prostate enlarged, but no abnormalities felt.  He started me on a 3 week course of antibiotics and antinflammatory meds, then 3 weeks to clear that out of my system, and brought me back for a retest on the PSA.  In my case, the PSA had dropped from 7.6 to 6.7 after the meds, so we scheduled a biopsy.  He got 16 samples, 5 of which came back with cancer, all in the left lobe.  I had open surgery, and the rest is history.  The post-surgical Pathlogy report didn't change the Gleason score. 

As has been said, an enlarged prostate in itself will give higher psa, as will having a dre before the blood test.  My prostate was a whopping 110 grams, at surgery, the normal is 25 to 30 grams, but I still had the cancer.  You might consider talking with the doctor and requesting that he go along the lines of a psa retest without a dre or sex within 3 days beforehand, then a round of antibiotics and antinflamatories, then retest to see what you have then.  At that point you will have enough info to make a decision as to how to proceed.  This is just my personal opinion and I ain't doctoring, so take it for what its worth.... eyes


James C.
Co-Moderator- Prostate Cancer Forum

Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07 ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08 Caverject started/stopped, aching. 2/24/08 .5ml Bimix started-success
7/4/08 ED- Viagra, pump continues, no response- Trimix .10ml x 2 weekly continues
Post Surgery PSA's:  3 mts-0, 6 mts.-0

Post Edited (James C.) : 7/9/2008 5:04:53 PM (GMT-6)


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 7/9/2008 3:48 PM (GMT -6)   

Good luck with whatever course of action you pursue.

I had 7 weeks of antibiotics, as I DID have a prostate infection with obvious symptoms....but my PSA rose 5 points during that period of time...actually rose that much in the final 3.5 weeks.

So, prostatitis or some other reason for being elevated could be the cause of the elevated PSA, or it could be due to cancer.

If I were in your shoes, I would call the urologist and ask why he did not pursue a few weeks of antibiotics first.  He might have a very good answer.

With that said, do not let the act of having a biopsy bother you.  In my case and in most that I have read about here, it was a minor inconvenience.  A little shot of lidocaine dulled the pain and it was over in a few minutes.

Whatever you decide, I wish you the best.

DanMan


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 7/9/2008 6:29 PM (GMT -6)   
Joliver88-

Pay close attention to the advice from Selmer and James C. When you read my signature at the bottom of this post, you'll see that I've been around a bit.

Don't ever be hesitant to ask a doctor why s(he) did or did not do something. And don't hesitate to fire a doctor in whom you've lost confidence. Doctor Strum, who is both a PCa doctor and PCa sufferer, reminds us that "MD does not stand for "medical deity".

While I agree with the others that you are probably in very good shape re: PCa, you must never forget that this might be the most important battle you will ever fight and timidity has no place in this battle. You must take charge of your your future.

I hope I haven't scared you - it wasn't my intention. I just want you to be an informed patient.

Good luck.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - Finally got results from doc. A number of lung nodules have grown, but, more important to him, is the fact that the malignant lesion on my pelvis seems to have flared up and he wants me to start chemo. He said I could wait a few months, but I told him I want to start now. He to get me signed up for a clinical trial in nearby NY.


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 7/9/2008 8:31 PM (GMT -6)   
This is what makes this site so great is the sharing that takes place. Here is my input for what it is worth. I was 45 when diagnosed and unfortunately for me it had a bad outcome, because the cancer had already escaped the prostate and spread into the lymph nodes. I can't imagine not having a biopsy. I mean a few moments pain for a lifetime of knowledge. Personally I think this could be a life or death decision. Is that being to forward? probably so, but you are a young man and deserve to know, good, or bad what you are dealing with, and the only way I know to tell for sure is the biopsy. Now here me say this, I have total and utmost respect for everyone on this forum, and I can assure you that most are much smarter and wiser than I. Please stay with us and keep us informed of what you do and the outcome. Also remember that whatever decision you make will be correct and we will all support you.

peace and love my friend
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
cancer in 4 of 6 cores
92%
80%
37%
28%
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 7/9/2008 9:14 PM (GMT -6)   
I would probably ask for a biopsy. Then just see what it shows. Hope you do not have to join the PCa club. But were here if you do.

KW
    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
 
     


cave88
Regular Member


Date Joined Jul 2008
Total Posts : 76
   Posted 7/10/2008 8:32 AM (GMT -6)   
Everyone,
Thank you very much for all of the feedback. I had a couple of days off from work so I called and had the biopsy moved up to today. I will let you know what the outcome is. I truly appreciate all the info everyon has provided.

joliver

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 7/10/2008 9:16 AM (GMT -6)   
Good luck, hope the procedure is minimal for you.  

James C.
Co-Moderator- Prostate Cancer Forum

Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07 ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08 Caverject started/stopped, aching. 2/24/08 .5ml Bimix started-success
7/4/08 ED- Viagra, pump continues, no response- Trimix .10ml x 2 weekly continues
Post Surgery PSA's:  3 mts-0, 6 mts.-0


Jetlagged
Regular Member


Date Joined Jul 2008
Total Posts : 29
   Posted 7/10/2008 11:34 AM (GMT -6)   
I was in the same boat as you, and after going through it I'll say that the comments here are spot on. It may NOT be cancer (could be good ole' fashioned swollen prostate which all men get eventually), but if it is you are very early and your odds of success are very, very high. I know it's tough, but take a deep breath and continue to network and reach out. I learned as much or more on boards like this than I did in doctor's offices'. Keep us posted.
Robotic RP 12/07
Age 46
Pre-surgical PSA 5.02
Bone scan/Chest X-ray clear
All margins, seminal vesicles, lymphs clear
Three Post-surgical PSA's <0.01


Rock50
Regular Member


Date Joined Nov 2006
Total Posts : 264
   Posted 7/10/2008 1:19 PM (GMT -6)   
I think you made the right decision.  I know I would have never quit thinking about it.  To me the unknown can be worse than anything.  Hey if its negative you went through a little pain but received a heck of a lot of relief.  If it is positive, thank god you did it.  In any case I will be thinking of you and good luck.

Prostate Cancer, Removed by Da Vincie Robotic
in Aug. 2006 
Poorly Differentiated Adenocarcinoma involving Left and Right Lobes involving 80% of the Specimens
Gleason 4+4=8
Pathologic Stage T2C No Mx
Age at Diag. 51
1 year PSA .02
DES Stent Placement on 12/31/07


cave88
Regular Member


Date Joined Jul 2008
Total Posts : 76
   Posted 7/10/2008 10:06 PM (GMT -6)   
Well,
I had the biobsy today. It was rather unconfortable but I survived. I was a little dizzy from the ordeal. A lot of blood in my first urination. I didn't even think about it until I had left the office but he said I had a rather small prostate 18cm. He stated that because of my small prostate and psa 4.02 is why he suggested the biopsy. I thought he originally said I had a rather large prostate. I could have been wrong. I guess now I just wait on the results.
Thanks again everyone

DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 7/10/2008 10:56 PM (GMT -6)   
Hope it turns out well for you.
Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


cave88
Regular Member


Date Joined Jul 2008
Total Posts : 76
   Posted 7/14/2008 8:36 PM (GMT -6)   
I have read alot that the size of the prostate can influence a psa reading. I believe that everyone is indicating that a large prostate could lead to inflated psa numbers. What about a small prostate? I swear the urologist said that I had a large prostate after the dre, but I know he said that I had a small prostate after the biopsy (18cm). If a large prostate gives higher psa readings would a small prostate give a reading that should actually be higher than the actual psa reading? I am still waiting on the biopsy results. Again, thanks to everyone who has responded.
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