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Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 7/10/2008 6:36 PM (GMT -6)   
yeah  
I had my year and a half follow up this week and my PSA was undetectable.  While I expected this would be the result it is always good to when they inform you.  I am still not having any normal erections and I talked with my surgeon for a long time about it.  We discussed implants but he was not ready to recommend it to me.  He still thinks I will continue to improve.  He wanted me to try MUSE so I have filled a prescription for some.  I do not have a lot of confidence it will work but what the heck, I will try anything.  Injections work but the need to plan and allow enough time afterwards just does not lend itself to a lot of fun.  I will continue to fight the ED.
 
Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06, 6/25/07, 1/8/08
No more pads as of 1/13/07
Began injections in April '07
 


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 7/10/2008 7:50 PM (GMT -6)   
What are the pro's and con's of MUSE?  Seems (??) that relatively few here use it.
 
Trying to remember, are you a Caverject, trimix, bimix or quadmix guy now?
 
Thanks.
Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 7/10/2008 8:08 PM (GMT -6)   
Tamu- Congrats on your PSA!! Great news!

Hey Danman-
There are a few old threads regarding the Muse. If you type Muse in the google box at the top of the page, you should be able to pull them up. I believe the Muse is used in less than 1% of the ED population, which explains why you haven't gotten much response. However, I do believe it works in approx. 30% of men. Hopefully you will get a few more responses!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 3, 08 PSA .02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 7/10/2008 8:09 PM (GMT -6)   
Tamu

Great news on the undetectable PSA, may you have a lifetime of great big 0's

Norskie
norskie
Age 49, PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Surgery Pathology report 4+3=7 a couple agressive Grade 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
1st & 2nd Post PSA Blood Test .1 and less - Undetectable
3nd Post PSA Blood Test 01-17-07 .3
March 27th PSA .4 Begin Salvage Radiation April, 14 2008
Incontenence-Pad free since end of May 07 4 1/2 months post surgery 
ED back to 95% prior to surgery - no medication required.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 7/10/2008 8:13 PM (GMT -6)   
That's great news, Tamu.  Gotta love those good reports we're getting this week.  Hope the ED problem improves quickly....

James C.
Co-Moderator- Prostate Cancer Forum

Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07 ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08 Caverject started/stopped, aching. 2/24/08 .5ml Bimix started-success
7/4/08 ED- Viagra, pump continues, no response- Trimix .10ml x 2 weekly continues
Post Surgery PSA's:  3 mts-0, 6 mts.-0


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 7/11/2008 7:26 PM (GMT -6)   
DanmanBob,

I am a Bimix guy. I did give the MUSE a try and it did produce an erection firm enough for penetration and that was at 500 mg dose. My surgeon said that if I handled that okay to give him a call and he would raise the dose. I might try another dose and see how it goes. I had a little ache but no burning. One thing I noticed with the Muse that I do not get with the injection is the head of the penis is larger. Maybe this is because the MUSE is inserted closer to the head.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06, 6/25/07, 1/8/08
No more pads as of 1/13/07
Began injections in April '07
 


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 7/14/2008 4:58 PM (GMT -6)   

Tamu,

As one who always reads your posts, I'm glad to see your doing so well with the PSA.  Being a year and a half out now, it's got to give you a better level of comfort.

I wish you continued undetectables,

Susan


Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
PSA - Undetectable since 6/07/07

Link to journey:
www.healingwell.com/community/default.aspx?f=35&m=826731


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 7/14/2008 6:53 PM (GMT -6)   

Dear Tamu,

I'm happy to hear your news.  You were one of the guys who helped me the most.  My very best to you, old friend.

Regards,

Bill


August of 2006, PSA up to 4.2 from 2.7 one year ago. 
October free and total PSA 12% free and 5.0 total.
A month, or so later, 4.7.
Late in the year decide on Image Guided IMRT.
Begin 43 treatments on January 23, 2007 and finish on March 23.
Four month post treatment PSA is 1.9.
Seven month PSA is 0.8.


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 7/15/2008 5:58 AM (GMT -6)   
Tamu, congrats on another undetectable test! that is our lifetime goal, isn't it? Jeff continues to see improvement in the ED area, but it is unpredictable. he's actually had a couple of erections without the use of anything in the past couple of months, and he is going on his second year anniversary. so there is hope....kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump
8/07 - 1 yr PSA <0.1
9/1/07 - achieved erection with Viagra - no pump!
3/08 - 18 mo PSA <0.1
switched to Levitra - works much better than Viagra & Cialis - fewer side affects


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 7/15/2008 10:11 AM (GMT -6)   
Hey Tamu,

Congrats on the big Zero....

The ED battle continues here too. Planning is a pain but better than the alternative. I guess the kitchen floor quickie is gone forever...

Jim
Age 74. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 1/17/08 0.00. 
Next PSA test on 7/17/08
Lung cancer dxed on 5/16/08.  Surgery on 6/25/08  T1N1M0 - Stage IIA
"Patience is essential, attitude is everything."

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