Information on Cystoscopy Needed

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Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 7/14/2008 8:34 PM (GMT -6)   
My husband is going to have a Cystoscopy on Thursday. I'm a wreck.
Could you answer True or False. (Fun Game, Guys)

The Cystoscopy can be emotionally devastating for a male. (True or False)
Strong Antibiotics should be given before the Cystoscopy (True or False)
Strong Antibiotics should be given after the Cystoscopy (True or False)
The doctor should send patient home with pain pills. (True or False)
The rod they insert in the Penis should be flexible not rigid. (True or false)

I'm not sure what the doctor suspects. I do know that I, myself, am going to have a Cystoscopy the very next week. Any information will be appreciated
Cancer is suspected .

egor
Regular Member


Date Joined Jun 2008
Total Posts : 46
   Posted 7/14/2008 9:58 PM (GMT -6)   
Pam,
I've had 2 Cystoscopys and it's not really very traumatic. It takes only a few minutes and with the local anesthetic that's used, it's not really painful.
They gave me a Cipro just before the procedure and one more for the next day. I got no pain pills, nor did I need them.
I don't actually recall if the rod was flexible or not, I tried not to watch.
Other than being embarrassing, it's not a big deal.
The doctor can be looking for a variety of things from a blockage to bladder function to bladder cancer. Your husband certainly has a right to know why the procedure's being done.
Ed

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 7/14/2008 10:20 PM (GMT -6)   

    Pam,  I seem to be one of the "resident experts" of having things run up my pee hole here.  I have had one regular cystoscopy and FOUR contigen injections.  The cystoscopy is a flexible probe that articulates at the end so the Doctor can look at all areas of the urinary tract and bladder.  The way my doctor does them is one of the assistants (usually a young female!!!) is put some numbing jell down inside the penis using a squeeze applicator.  After several minutes the Doctor will lube the probe and insert it.  All I ever felt was a little pressure and a bit of burning.  Over all not that bad of an ordeal.  I was given one antibiotic tablet to take when I got home.  Some mild discomfort and blood urine the rest of the evening.  The next day all was fine.

   As far a contigen injections!!!   Those are done with a rigid metal probe that the needle goes up through.  Enough said about that!!!!!!

    If you want to read a detailed description of both procedures please look up KW's Journey.  I will be a few pages back when set on 100 post per page.

The Cystoscopy can be emotionally devastating for a male. (True or False)
Strong Antibiotics should be given before the Cystoscopy (True or False)
Strong Antibiotics should be given after the Cystoscopy (True or False)
The doctor should send patient home with pain pills. (True or False)
The rod they insert in the Penis should be flexible not rigid. (True or false)

Over all I would say False / Maybe / True / False / True

    Good luck to your and your man.

    KW

 


    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey in Dallas TX.
 
     


sterd82
Regular Member


Date Joined Sep 2006
Total Posts : 187
   Posted 7/14/2008 10:28 PM (GMT -6)   
Had one about a month ago.... kind of uncomfortable, but nothing traumatic...didn't take too long, and felt fine after a couple of hours.....AND I'M A REAL CHICKEN----worse to think about than having it actually done.
Sterd82
Age 47 - pre-surgery PSA 39
Open Radical Prostatectomy 6/9/2006
Pathological Stage T3a, Positive Surgical Margin
Gleason 3+4
PSA rose to .24 in November of 2006
6 month hormone therapy initiated December 1. 2006
36 sessions of IMRT Ended Feb 1, 2007
PSA as of May 25, 2007 undetectable
PSA as of November 29, 2007 undetectable
PSA as of May 14, 2008 undetectable
Next PSA November of 2008


jwb187
Regular Member


Date Joined Apr 2007
Total Posts : 101
   Posted 7/15/2008 6:23 AM (GMT -6)   
I've had Cysto's for years and for me they have always been a walk in the park. They are performed usually in the treatment room at the Dr's office or clinic. All they have ever done with me was put some numbing meds in the opening of the penis, then the Doc uses a fiber optic instrument to thread up the urethra and performs an examination of the inside of the bladder. This just takes a couple of minutes. The whole procedure takes less than 15 minutes including the numbing. Afterwards, I am always given an antibiotic, usually Levaquin or Cipro. I have a history of bladder tumors, a couple which have been cancerous, so that is the reason I have had so many. I hope this helps you, nothing to get excited about...jwb.
age: 62
PSA 4.57 - Positive DRE
Biopsy 3-19-07 - Gleason 4+4=8
Negative bone scan 3-20-07
DaVinci 4-24-07
Catheter out 5-01-07
post op pathology:
positive margin left side of prostate
left seminal vesicle involved (both removed)
No lymph node involvement
New gleason score 9
T3B....radiation consult on 5-9-07.
June 5, 2007 1st psa post surgery 0.62
June 27, 2007 second psa post surgery 0.59
June 27, 2007 started Lupron injection (24 mos)
September 6, 2007 scheduled to be marked and prepped for radiation therapy.
Start IMRT therapy on September 13, 2007.
September 26,2007 psa test .08
Finished IMRT therapy October 31!!!
January 17, 2008 psa test .<.05!!!!
April 8, 2008 psa test .<.05!!!!


beachlife
Regular Member


Date Joined Feb 2009
Total Posts : 473
   Posted 5/12/2011 11:40 AM (GMT -6)   
thanks for these posts guys. I've had many colonoscopies, and a prostate biopsy - not that bad. But my worries are slowly easing about the cystoscopy tomorrow.
Blogging my experience With UC.
http://lifewithcolitis.blogspot.com/
12-14-2010 - Strict TCM diet and herbal teas. (Traditional Chinese Medicine)

2000 - Ulcerative Colitis - Proctitis
Asacol -> Colazal -> Lialda 4x/day
Daily: 500mg Vit D + 160mg Saw Palmetto(5x/daily) + 1000mg Ester C(not daily as TCM says it will lead to immunity

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 5/12/2011 12:30 PM (GMT -6)   
Just remember this is a prostate site. We hav all had to park our modesty at the door. It could be a little embarrassing at first, but just realize you are just another penis to the cute little assistant.

Pain is minimal, risk fir infection is actually less than a catheter, but the antibiotics are a good idea anytime you stick things into your bladder.

In the over all scheme of things, no worse than having a physical fir the Army with 50 other naked guys.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2680
   Posted 5/12/2011 12:48 PM (GMT -6)   

My understanding is that the bladder is inflated with a saline solution during the cysto procedure.  I was completely unaware of this.  There's no sensation of it being done.

I peed after the procedure as directed, but at that time, with my large prostate and urinary problems, I obviously failed to empty my bladder.  I didn't know that it had been pumped full of liquid.  On the way home, I had two choices:  pee all over the driver's seat, or pull over and pee on the side of the road.  Of course, I chose the side of the road option, but it was more than a little embarrassing.

The procedure itself was no big deal, but don't be in a hurry to leave until you're sure you've emptied your bladder.

 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/12/2011 1:03 PM (GMT -6)   
Pam,

I have had 8 done, but under conditions of being in pain prior to the scoping. With men, they only use flexible scopes, because of how us guys are "plumbed". For women, the scope is usually shorter and rigid, as its a shorter path and a stright path to the bladder.

The real trick is to have the doctor use a lot of lydacaine gel to numb. And it needs to numb a good 10-15 minutes to work best, some docs are in a hurry and want to proceed before inserting the scope.

If your husband is not circumsised, insertion can be more difficult, depending on how easily his fore skin can roll back to expose the tip of his urethra.

There will be feelings of pressure, more than any pain as a rule. And it feels creepy coming back out.

An antibiotic after for a day or two seems to be the norm.

I have had far worse done to me than the scopes. He should do fine.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3893
   Posted 5/12/2011 1:28 PM (GMT -6)   
KW's experience and mine are the same..Including the young, female assistant..

The THOUGHT of what they are doing is FAR worse that what they are actually doing...Just stare at the ceiling and relax..
Age 68.
PSA age 55: 3.5, DRE normal.
age 58: 4.5
61: 5.2
64: 7.5, DRE "Abnormal"
65: 8.5, " normal", biopsy, 12 core, negative...
66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
67 4.5 DRE "normal"
68 7.0 3rd biopsy positive, 4 out of 12, G-6,7, 9
RALP Sept 3 2010, pos margin, one pos vesicle nodes neg. Post Op PSA 0.9 SRT, HT. 2-15-'11 PSA 0.0

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 5/12/2011 1:33 PM (GMT -6)   
Pamela Neckpain said...
My husband is going to have a Cystoscopy on Thursday. I'm a wreck.
Could you answer True or False. (Fun Game, Guys)

The Cystoscopy can be emotionally devastating for a male. (True or False) FALSE - IT'S SCARY GOING IN, NOT DEVASTATING

Strong Antibiotics should be given before the Cystoscopy (True or False) - I BELIEVE I HAD THEM

Strong Antibiotics should be given after the Cystoscopy (True or False) - DO NOT RECALL TAKING ANY BUT COULD MAKE SENSE TO AVOID POSSIBLE INFECTION

The doctor should send patient home with pain pills. (True or False) - FALSE

The rod they insert in the Penis should be flexible not rigid. (True or false) IT IS FLEXIBLE, JUST AS THE URETHRA IS


I'm not sure what the doctor suspects. I do know that I, myself, am going to have a Cystoscopy the very next week. Any information will be appreciated

I HAD MINE FOR KIDNEY STONES. IT'S A WAY TO LOOK INTO THE BLADDER.
Cancer is suspected .

Susan R
Veteran Member


Date Joined Dec 2010
Total Posts : 511
   Posted 5/12/2011 2:30 PM (GMT -6)   
I went in with Michael when he had his done. They numbed his penis, which included putting this numbing cream in the hole, which wasnt so nice, but wasnt really uncomfortable (he told me) otherwise, they put a clip on his penis to hold it up straight, the clip was not painful and I dont think he even knew that was happening. The Dr came in, he put the "tube" inside the penis, we watched the camera, looked like walking down a pink hall (haha, what a way to look at it, but the best way to describe it) The Dr told him he would feel some pressure as he pushed into the bladder, he did, then they filled the bladder with water, looked around and then said "gonna pull it out" And it was out in seconds. The whole thing took about 5 minutes. The dr left, Michael got up from the table went to the bathroom, he was still numb so didnt feel anything. Cleaned off, got dressed and came back into the room. He said his first pee when getting home burned slightly but otherwise, it was a painless and really uneventful procedure.

We were concerned about it as well. But you will come to find that this is really not a big deal and you will wonder afterwards why you worried about it.

Good luck

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 5/12/2011 5:10 PM (GMT -6)   
Yeah, mine went exactly as Susan described.
40 years old - Diagnosed at 40
Robotic Surgery Mount Sinai with Dr. Samadi Jan, 2011
complete urinary control and good erections with and without meds
Prostate was small, 34 grams.
Final Gleason score 7 (3+4)
Less than 5% of slides involved tumor
Tumor measured 5 mm in greatest dimension and was located in the right lobe near the apex.
Tumor was confined to prostate.
The apical, basal, pseudocapsular and soft tissue resection margins were free of tumor.
Seminal vesicles were free of tumor.
Right pelvic node - benign fibroadiopse tissue. no lymph node is identified.
Left pelvic node - one small lymph node, negative for tumor (0/1)

AJCC stage: pT2 NO MX
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