dealing with side effects

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goody5
Regular Member


Date Joined Mar 2008
Total Posts : 66
   Posted 7/15/2008 5:49 AM (GMT -6)   
My Uncle is really suffering from fatigue, dizziness, intestinal distress, and muscle weakness (overall not feeling well at all).  Next week is his last week of radiation and he had his 2nd eligard shot about 6 weeks ago. Do you think some of this will subside after he is done radiation?  How can we help him?
Thanks  ( I have been lurking to keep up but due to other family illnesses haven't had much time to write)
Cheryl
Father diagnosed 13 years ago @ age 63
Watchful waiting until PSA jumped from 6 to 10
Cancer found in 1 core
Gleason score 6
Seeds implanted
PSA has been low since (don't know exact numbers)
 
Uncle (mother's brother) age 68
PSA jump from 2 to 8.6 in 18 months (2/08)
DRE was normal (2/08)
Biopsy (3/08) Cancer found
Bone scan (clear) 
Fine Needle Lymph Biopsy (Positive)
Gleason Score
(2) 4 + 3
(1) 3 + 3
(4) 4 + 3
7 of 12 cores positive
Pelvic Radiation started 6/2/08
Started Casodex and Eligard
First PSA on 4 weeks of hormones (.2)
 
 


smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 7/15/2008 9:54 AM (GMT -6)   

I suffer from abdominal cramping that the doctor believes is associated with IMRT radiation to the pelvic area.  Since I have gone to Proton and only the prostate is targeted I am getting better and the doctor believes it will be back to normal in a week or so. 

I wish your uncle better times after his radiation treatments are over.

Richard


Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
Jan & Feb & Mar all tests clear
MD Anderson = No surgery and No Proton only Hormone and IMRT
Contacted with Loma Linda and UFPTI in FL
Started Treatment at the U of Florida Proton Therapy Institute in April 2008
May 2, 2008 LUPRON & Casodex
IMRT to started  5/27/2008 Will get 42 treatments 25 IMRT and then 17 Proton
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM
 


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 7/15/2008 10:03 AM (GMT -6)   
My father's intestinal side effects cleared up once he completed radiation. However, he did take Imodium and the Imodium did the trick during treatment. He was taking afternoon naps during IMRT and once the radiation was complete, he was feeling a lot more energy. However, the HT will effect energy levels too. Tell your uncle that we are thinking about him and wishing him strength and wellness!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 3, 08 PSA .02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


goody5
Regular Member


Date Joined Mar 2008
Total Posts : 66
   Posted 7/16/2008 5:24 AM (GMT -6)   
Doting,
I will tell my uncle about immodium. They have him taking metamucil (or something like that to bulk up). Unfortunately, he is not able to take naps during the day due to work. One more week left of radiation and then he is done his 5 weeks. Hopefully, he will feel a little better.
Your dad and my uncle have similar cases except for the fact my uncle did not have his prostate removed. Thanks for your input.
Cheryl
Father diagnosed 13 years ago @ age 63
Watchful waiting until PSA jumped from 6 to 10
Cancer found in 1 core
Gleason score 6
Seeds implanted
PSA has been low since (don't know exact numbers)
 
Uncle (mother's brother) age 68
PSA jump from 2 to 8.6 in 18 months (2/08)
DRE was normal (2/08)
Biopsy (3/08) Cancer found
Bone scan (clear) 
Fine Needle Lymph Biopsy (Positive)
Gleason Score
(2) 4 + 3
(1) 3 + 3
(4) 3 + 4
7 of 12 cores positive
Pelvic Radiation started 6/2/08
Started Casodex and Eligard
First PSA on 4 weeks of hormones (.2)
 
 


goody5
Regular Member


Date Joined Mar 2008
Total Posts : 66
   Posted 7/16/2008 5:28 AM (GMT -6)   
Thanks Richard, I did not realize you did radiation and Proton ( I did not know it was an option).
I hope that you continue to feel well during your treatment.
Cheryl
Father diagnosed 13 years ago @ age 63
Watchful waiting until PSA jumped from 6 to 10
Cancer found in 1 core
Gleason score 6
Seeds implanted
PSA has been low since (don't know exact numbers)
 
Uncle (mother's brother) age 68
PSA jump from 2 to 8.6 in 18 months (2/08)
DRE was normal (2/08)
Biopsy (3/08) Cancer found
Bone scan (clear) 
Fine Needle Lymph Biopsy (Positive)
Gleason Score
(2) 4 + 3
(1) 3 + 3
(4) 3 + 4
7 of 12 cores positive
Pelvic Radiation started 6/2/08
Started Casodex and Eligard
First PSA on 4 weeks of hormones (.2)
 
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 7/16/2008 4:44 PM (GMT -6)   
I to experienced extreme fatigue with my radiation, and much of it did subside after i was finished. however hormone therapy does have some fatiguing effects as well. I believe though about three or four weeks after radiation you will see an improvement.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 7/16/2008 5:14 PM (GMT -6)   
Goody5-

When I was about to start radiation, my Rad Onc told me to expect bad diarrhea, but that immodium would really help. I also seem to remember his saying they would give me very strong Rx Immodium, but I'm not sure now if I'm remembering that part correctly.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - Finally got results from doc. A number of lung nodules have grown, but, more important to him, is the fact that the malignant lesion on my pelvis seems to have flared up and he wants me to start chemo. He said I could wait a few months, but I told him I want to start now. He to get me signed up for a clinical trial in nearby NY.


smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 7/17/2008 9:28 AM (GMT -6)   
There is a strong RX medication by persciption called LOMOTIL. It is stronger than Imodium and I use it only when my diarrhea gets really bad., I understand it is a form of narcotic and as such when I get it from a military pharmacy I have to sign for it.
 
Richard
Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
Jan & Feb & Mar all tests clear
MD Anderson = No surgery and No Proton only Hormone and IMRT
Contacted with Loma Linda and UFPTI in FL
Started Treatment at the U of Florida Proton Therapy Institute in April 2008
May 2, 2008 LUPRON & Casodex
IMRT to started  5/27/2008 Will get 42 treatments 25 IMRT and then 17 Proton
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM
 

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