This is so interesting that there are so many differing opinions here

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smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 7/15/2008 9:44 AM (GMT -6)   

biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 7/15/2008 6:08 PM (GMT -6)   
However, this is a prostate cancer forum. Prayer and religion are off topic, IMHO.

Jim
Age 74. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 1/17/08 0.00. 
Next PSA test on 7/17/08
Lung cancer dxed on 5/16/08.  Surgery on 6/25/08  T1N1M0 - Stage IIA
"Patience is essential, attitude is everything."


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 7/15/2008 7:21 PM (GMT -6)   
Thanks Tony....a HOT topic ( could we say "capsacin"!!) Thanks for this and also for your information in your other post about the hot stuff! Pete is still taking it although I noticed today he didn't....! divo
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
In line for AUS possibly in Sept 08


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 7/15/2008 7:50 PM (GMT -6)   
This is so interesting that there are so many differing opinions here. Even though I have tried to fit in and be politically correct, however the truth is with out my relationship with the Lord, I am not sure I could deal so easily with my fight against an enemy like cancer. I appreciate everyone's position, and I also appreciate whatever works in your life, funny thing is though it seems like for non believers there is some bitterness. I will never attempt to convert anyone here nor speak scripture, even though I would love to, but I guess to let my secret out of the bag I to pray daily for comfort, and peace, and some sort of healing for all people involved here, whether it be emotionally or spiritually. I just happen to love everyone here.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 7/15/2008 7:55 PM (GMT -6)   
Read this quick before it's edited: I don't know how many times I have to say the same thing. I don't care who or what you pray to or for.

"I will not specifically point out someone who has asked not to be included but often I offer up a prayer for the masses and if that includes you tough, that is my RIGHT." Nobody is arguing with you - what you've said is all I'm asking. Period.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - Finally got results from doc. A number of lung nodules have grown, but, more important to him, is the fact that the malignant lesion on my pelvis seems to have flared up and he wants me to start chemo. He said I could wait a few months, but I told him I want to start now. He to get me signed up for a clinical trial in nearby NY.


Bob D
Regular Member


Date Joined Mar 2008
Total Posts : 199
   Posted 7/15/2008 8:06 PM (GMT -6)   

Wow, This did not slow down the "do not pray for me" thread. This is just the other side of that discussion.

 

biker90 said...
However, this is a prostate cancer forum. Prayer and religion are off topic, IMHO.

Jim


Age 59, psa 4.7 in Jan. 08. Biopsy: one positive sample out of 13. 1% of one sample cancer. Prostate removed on 3/5/08. Nerves spared. Cath out 12 days later. Continence good. No pads needed since 6/10/08. First PSA: Less than 0.1 on 6/17/08. First erection five days post op and have been improving well since then. Full erection now possible (less than four months post op) with the assistance of Cialis. I am pleased with the progress so far. Married to same wonderful woman for 39 years.
She is still beautiful and sexy as ever. A great help in my recovery !!


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 7/15/2008 8:29 PM (GMT -6)   

As a neutral observer in this battle of words, I will be very happy when we discuss prostate cancer here again instead of religion or lack of religion.

Just my humble opinion.

DanMan


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 7/15/2008 9:16 PM (GMT -6)   

Tony, I said nothing about people not having a right to discuss their beliefs...just expressed that I (DanMan, not speaking for anyone or any entity but yours truly) will be happy when the topics are about prostate cancer and not religion.  The fact that you are very religious means nothing to me.  The fact that Gordy is not religious means nothing to me.  The fact that you have information and insights into prostate cancer mean a lot to me.

My personal belief is that we have beaten this topic to death since Gordy posted his deal many days ago.  Those who want to pray will pray.  Those who do not will not.

In NO WAY did I say that anything posted in Gordy's thread or smilingoldcoot's thread violated any rules and if I felt that something did, I would have sent a moderator a note of inquiry if it bothered me in some way.

My post had nothing whatsoever to do with any other forum or web site.  If I was trying to express a thought about another site, in all likelihood I would have posted at that particular site.


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 7/15/2008 9:21 PM (GMT -6)   
Perhaps it is because those of us who are non-believers see those who are overtly religious sometimes taking the opportunity, not just to offer their well wishes (e.g. you are in my prayers) which are usually well received, but by their overly enthusiastic declarations of faith and religiosity on a cancer forum, are surreptitiously suggesting that other sufferers should also turn to their particular Lord and master for their salvation and peace. I mean what sort of low life comes on a prostate cancer forum trying to sell a quack cure to those with a potentially fatal disease in order to line his/her pockets..........by the same token, what sort of person sees their presence on that same forum as an opportunity, while they are here, to constantly declare their religiosity and often asking those vulnerable sufferers to also consider turning to their Lord for salvation and peace (perhaps there is some sort of brownie points system in play). How would it be received if I declared for example that I was an avowed satanist (don't get your knickers in a knot....I'm not) and while suggesting you would be mentioned in my evening rituals, asked that you turn to the Lord of the Underworld and ingest brimstone for salvation. All Gordy asked was that you Christian soldiers cease praying for him and it has been interpreted as a personal attack on each of your beliefs that in turn needed to be defended, sometimes by having a go at him rather than complying with his simple request. Incidentally, the post by Livinadream (for whom I have great respect) has inadvertently given an example of this covert preaching (albeit not deliberate) i.e. we non-believers are bitter (which by implication could be cured by becoming religious, no doubt)......no,we are far from bitter....................the vast majority of us are also filled with compassion for our fellow man......compassion that comes from our hearts and common humanity rather than instructions from above. Now don't take this as an attack on anyone or their beliefs ...............I sincerely embrace all my fellow sufferers and their wives but surely this is not the place for religion or politics. Your religion, as is your politics, is a private matter and there is no need for the constant declaration and praise on a cancer forum, so what do you all find about keeping it to yourself so offensive. We respect you, why not respect us?
Much peace, good wishes and love to all,
Bill

Sitting here I just thought of a solution...............why not have a section at the top under the links posts entitled "For The Religious With PCa"...........there, all those of you with deep religious beliefs could place their posts of declarations of belief and discussions of your particular faith and its impact regarding PCa without fear of being seen as preaching to others that don't want to hear. Of course, opposition to such a section could well be seen as showing that the real motives in making religious declarations is-----------------?
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.1 undetectable

Post Edited (BillyMac) : 7/15/2008 10:02:51 PM (GMT-6)


montee
Regular Member


Date Joined Mar 2007
Total Posts : 315
   Posted 7/15/2008 9:57 PM (GMT -6)   
Since the days of Patrick Henry, Jefferson and others in the founding of our country, 2 things that have never been private is politics and religion.  While this is Prostate forum, it is 1st a "Healing Well" forum and for some of us, our faith, prayer and prayer of intercession by others have helped us in our recovery.  Like Tony Snow said, having cancer will strengthen your faith, grow closer to God and you will find out who your friends are.
 
In my own situation, I was not suppose to be undetectable 1 month post op, much less almost 2 years. I give credit to my surgeon and his skills, but I also give praise to God for listening to those many prayers that were lifted up in my name in my town and other towns.
diagnosed sept 2006 @ 54 years old, live in Georgia
 biopsy report gleason 3+4=7, right lobe only
psa 4.7  (psa rose 1 point per year for 3 years, urologist said still under 4 and no concern.  If I can find out about PSA velocity, why didn't he know!)
Told not to have surgery at Dana Farber as cancer had already penetrated prostate, in seminal vesicles, would have positive margins. Would only treat with radiation and HT
RP Emory Atlanta December 2006
Path-negative margins, negative lymph nodes
negative seminal vesicles, multifocal perineural invasion, both lobes involved
40% gland involved
gleason 3+4=7
Fully continent 2 weeks post catheter removal
1st psa April 2007-<0.04
 6 Mos PSA <0.04
9 mos PSA still <0.04
12 mos PSA still <0.04
15 mos PSA <0.04 (3-21-2008) 
18 mos PSA <0.04 (6-25-2008)


hawkfan75
Regular Member


Date Joined Jan 2007
Total Posts : 165
   Posted 7/15/2008 10:29 PM (GMT -6)   
In an era where far too many people follow the "political corectness" ideal, smilingoldcoot offers a breath of fresh air.  You go guy!!!

Age 57 at diagnosis,  PSA 4.7 (up from 3.2 one year ago)
Biopsy November 8, 2006 1 of 10 cores positive 5% LEFT Side Gleason 3+3
Robotic surgery January 19, 2007
Post Surgery Pathology Stage T3a, Gleason 3+4, positive margins and capsular penetration RIGHT Side
Post Surgery PSA:  March 5, 2007:  0.01    5 month PSA  0.08
Adjuvant therapy began June 26, 2007 with Zoladex injection
Radiation began August 23, 2007, ended October 8
First post radiation PSA, December 18, 2007:  0;  March 2008 - still 0
 
 


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 7/16/2008 5:35 AM (GMT -6)   
Prayer is in the same category as unproven supplements or drugs. We should demand that they be properly tested before we start using them. Fortunately, some simple tests will prove conclusively whether prayer does or does not work:

Test 1.
Take a glass jar and a small piece of of paper colored on one side and white on the other. Place the paper white side up and seal the jar. Have a trustworthy person place the jar in a secure place. The object for the believers is, through prayer, to flip the paper colored side up. This is something that we all could try at our next dinner party!

Test 2.
Lest you say that prayer doesn't work like that, in the interest of science I am prepared to be a guinea pig. Having had non-nerve sparing surgery and now having ED, it is most unlikely that I will spontaneously regain my natural function within the next month. Therefore the challenge is, through prayer, to restore my natural function sometime in the next month. I suggest me as the subject, as if there should be any adverse affects, I believe I can withstand them. But I am willing to step aside for a more deserving non-nerve spared person. I suggest we don't try this at our next dinner party :-)
Age 63. Other than cancer, in good health; BMI 20
Pre-op: No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores
7 March 2008, RRP, non nerve sparing
Two nights in hospital; catheter and staples out after 7 days
Continent, no pads needed from the get-go
Post Op: Stage pT2 M- N-; clear margins and lymph nodes; Gleason 4+4=8; prostate weight: 37gm
6-week PSA: 0 


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 7/16/2008 6:13 AM (GMT -6)   
Great post Piano! Laughter is the best medicine. Ill bet even God is laughing at that one!! Let's just leave this topic.....di
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
In line for AUS possibly in Sept 08


Johnny Canuck
Regular Member


Date Joined Jan 2008
Total Posts : 88
   Posted 7/16/2008 6:29 AM (GMT -6)   
If I may be permitted my two bits worth...
I am not a religious person. But I can recognise the value of prayer and belief on many levels...as a focus, as meditation, as positive thinking, as a comfort. I have no problem with it conceptually, except where folks try to substitute prayer for medical treatment. Then I question the wisdom.
 
Look at it this way. In the very culturally diverse university environment in which I worked, some bright spark decided that it was insensitive to wish somebody a Merry Christmas because it was not a festival practiced by all faiths. My take was that in my family, at that time of year, the nicest thing one could wish upon another is for a Merry Christmas. Therefore I would continue to do so...not as a challenge or a blunt instrument, but as a sincere expression of good will.
 
So...if someone of any faith wishes to offer up a prayer for my poor abused prostate, I'll gratefully accept the sentiments. If they insist I join them. I'll keep smiling, and back away slowly. I figure it's all about respect.


Age: 54
Gleason Score: 3+3=6
PSA: 3.33
Biopsy:7/8 Positive
Stage: "Bulky" T1c
Prostate Size: 27cc
 
Diagnosed: December 05, 2007
Brachytherapy: February 26, 2008
68 seeds, (Iodine 125). 
 
Walk my path at:
 
 


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 7/16/2008 8:59 AM (GMT -6)   
Keeping it PC: Prostate Cancer

HealingWell is above all, a place for Prostate Cancer patients and their families to come and receive support and education from other patients regardless of religion, race or political affiliation. I respect all members that come here and hope that HW can continue to be a haven for all to come, learn and heal well.
While, I agree with many of you that religion is a part of your healing process, I respect those of you who don't feel religion is a part of their journey and are uncomfortable with the topic. I don't feel that any threads need to be deleted or edited, however, I do feel that we all need to be extremely careful of separating ourselves from one another. (believers vs. nonbelievers) We are all part of the prostate cancer family.
I don't feel that we need another thread for the "religious" members of HW, I feel that we just need to continue to focus our energy on healing, while being respectful of others. With that being said, I'm waving an olive branch :-)

All the best to each and every single one of you,

Doting
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 3, 08 PSA .02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 7/16/2008 4:04 PM (GMT -6)   
Honestly this has been a great thread and has kept me coming back to HW several times a day to check it out. Everyone here is wonderful and we have such a bond that I do not think anyone outside of cancer could ever understand. Sharing is healing and what we have here is sharing albeit of a religious nature, regardless it is keeping us communicating, caring, nurturing, and yes loving. This is a special place and I am proud to be a part of it. Thanks for allowing this thread to roll on. We will fight this battle together and by gosh we might just have some fun and fight each other along the way. Behind the scenes sitting at our computers we are all smiling and realizing we truly are friends.

peace and love to all
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 7/16/2008 5:07 PM (GMT -6)   
Dale- HERE! HERE!


BillyMac- You've said it better than I ever could. Thank you.
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - Finally got results from doc. A number of lung nodules have grown, but, more important to him, is the fact that the malignant lesion on my pelvis seems to have flared up and he wants me to start chemo. He said I could wait a few months, but I told him I want to start now. He to get me signed up for a clinical trial in nearby NY.


mozart250
Regular Member


Date Joined Jan 2007
Total Posts : 102
   Posted 7/16/2008 5:52 PM (GMT -6)   
Having just read the assorted prayer and no prayer threads, my two cents (using an allegory).

As some of you may know, my passion is the piano. In my old age, I am rediscovering the joy of my youth. Right now
I am working on a Chopin Scherzo (in b-flat minor..opus 31), Franck Prelude, Chorale, and Fugue, and a very
difficult Beethoven piano sonata (op. 7 in E-flat major). I hope to be entering the Boston Amateur Piano Competition next year
and perform this music.

Now, I know that none of this is related directly to Prostate Cancer, but still piano is an important part of my life. I hope
that at least in the spirit of friendship I can share with y'all something that is my passion..

Now, understand that I am not trying trying to convert any of you here to the piano. I understand that there may be some
here who are perfectly happy and content with their own instruments, and I am fine with that. I also understand that there
may be some on this forum who choose not to play any instrument at all. Although I might personally think you are missing out
on the great joy of knowing an instrument, I will respect your wishes.

Now if it were possible, I would consider it a great honor to play a concert for y'all if any of you had a desire to listen.
However, I realize that some of you might be totally bored with Classical music, and for you I will totally understand if you
choose not need to attend my concert.

Even though I have no intentions of seeking converts to my instrument, I would hope that in the spirit of mutual friendship
and respect, I can at least share how important my instrument is in my life and what my instrument means to me. My instrument
has provided great comfort in my life as I recover from this dread disease, and I hope I can have the liberty to share this all
with y'all.

However, I promise that I will not be obnoxious in sharing about the passions in my life, and if I ever
cross the line, the moderators certainly have my permission to take action.
52 Year Old DBA by profession; amateur pianist by passion.
 
June and Aug 2006:  PSA 4.6.  DRE prostate enlarged.  Second opinion
Sep  2006:  Biopsy results positive one lobe.  Gleason 3+3.
Nov  2006:  RPA performed at Fletcher Allen in Burlington VT.
Nov  2006:  Pathology report: Stage T3a and Gleason 3+4.
Dec  2006:  PSA 0.1
Feb, May  2007:  PSA 0.0 (under 0.1)
Aug, Nov  2007 and Feb 2008:  PSA 0.1
Mar-May  2008:  IMRT Radiation..completed May 1, 2008 
 
Trying my hand at blogging.


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 7/16/2008 6:18 PM (GMT -6)   
Mozart250-

In one of my past lifetimes I had a piano rebuilding and servicing business. And of all the types of music I like, classical is my favorite. You'll have no quarrel with me.
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - Finally got results from doc. A number of lung nodules have grown, but, more important to him, is the fact that the malignant lesion on my pelvis seems to have flared up and he wants me to start chemo. He said I could wait a few months, but I told him I want to start now. He to get me signed up for a clinical trial in nearby NY.


mlbsm
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 7/16/2008 6:27 PM (GMT -6)   
I have never really left, I look in on the site at least every other day because you guys have the information I'm looking for and its relevant.

I started with Frank back in March or so, and have ditched the diapers, am still waiting for the Lupron to
wake junior back up by leaving my system, and, developed a hernia that will now bring me back to the table because of my stupidity in doing things the Doctor told me not to do. My bad!

I stopped all posting on this site after I almost got castrated by a couple of fellow posters for suggesting that a fellow poster had an agenda that included religion.

This is a great site for Prostate Cancer, and there are some truely great people on it. Rather than be a problem, I withdrew rather than start a war over being preached to and looked upon as a heathen.

When Tony asked us to go onto the caringbridge site and visit with a little angel named Hanna, i did so and I have been back to "See" her again and to pray for her. That is my right and I did it.

On the other hand, when it's suggested I'm some kind of athiest if I chose not to trust a particular company who has a religious agenda as their primary motivation, I take exception. Again, rather than fight, I withdrew.

I believe everyone should feel comfortable here. I believe everyone has something to say that should be heard. I believe if someone tells you that something you say makes them uncomfortable, you should stop saying it.

I didn't want to leave, I simply felt like I was the only one naked at a black tie dinner. Uncomfortable is the way I would describe it and that's not the way this forum is supposed to be.

Merry Christmas,

Billy
DIAG. 2/08
DRE POSITIVE
PSA 6.8
CONTAINED, LEFT SIDE, GLEASON 9
LUPRON, (3 MO.) 2/28
SURG, SCHED. 3/26/08
RRP, 3/26, HOME 3/31
BIOPSY REPORT:
GLEASON SCORE, 3+4
TUMOR CONFINED TO THE PROSTATE, INKED EXTERNAL SURFACE FREE OF INVOLVEMENT.
VD AND SV CLEAR AS WELL AS LYMPH NODES AND A BLADDER SECTION.
INCONTINENCE EBBING FAST
ED, FLAT TIRE. MAYBE LUPRON?
PSA 5/21 O.O1 UND
PSA 6/30 O.OI UND
TEST. 10 SHREDDED TIRE STILL LUPRON
INCON. HISTORY
PSA 9/30


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2291
   Posted 7/18/2008 3:16 PM (GMT -6)   
mozart250 said...
Having just read the assorted prayer and no prayer threads, my two cents (using an allegory).

As some of you may know, my passion is the piano. In my old age, I am rediscovering the joy of my youth. Right now
I am working on a Chopin Scherzo (in b-flat minor..opus 31), Franck Prelude, Chorale, and Fugue, and a very
difficult Beethoven piano sonata (op. 7 in E-flat major). I hope to be entering the Boston Amateur Piano Competition next year
and perform this music.

Now, I know that none of this is related directly to Prostate Cancer, but still piano is an important part of my life. I hope
that at least in the spirit of friendship I can share with y'all something that is my passion..

Now, understand that I am not trying trying to convert any of you here to the piano. I understand that there may be some
here who are perfectly happy and content with their own instruments, and I am fine with that. I also understand that there
may be some on this forum who choose not to play any instrument at all. Although I might personally think you are missing out
on the great joy of knowing an instrument, I will respect your wishes.

Now if it were possible, I would consider it a great honor to play a concert for y'all if any of you had a desire to listen.
However, I realize that some of you might be totally bored with Classical music, and for you I will totally understand if you
choose not need to attend my concert.

Even though I have no intentions of seeking converts to my instrument, I would hope that in the spirit of mutual friendship
and respect, I can at least share how important my instrument is in my life and what my instrument means to me. My instrument
has provided great comfort in my life as I recover from this dread disease, and I hope I can have the liberty to share this all
with y'all.

However, I promise that I will not be obnoxious in sharing about the passions in my life, and if I ever
cross the line, the moderators certainly have my permission to take action.

Mozart250--Best to you on learning and performing the Beethoven Piano Sonata # 7--a darnably difficult piece with its lickety-split scales and large leaps all over the keyboard. 
It may interest you to know that I listened to recordings of all the Beethoven Piano Sonatas as an important part of my emotional recovery from prostatectomy.  As Victor Hugo writes, “Music expresses that which cannot be put into words and cannot remain silent"

DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 7/18/2008 4:58 PM (GMT -6)   

Billy, for what it is worth, I tried to offer you support when that happened...even mentioned to one of the moderators at that time that I thought you were being verbally abused.

I pray EVERY DAY......many times in fact.....but I do not believe people should be preached at here, be they believers in a supreme being or not.

Very glad to see you back posting.  Have thought of you and your wonderful wife often.

DanMan Bob


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


mozart250
Regular Member


Date Joined Jan 2007
Total Posts : 102
   Posted 7/19/2008 7:21 AM (GMT -6)   
Aw shucks..I did not make the post to brag in any way.

I was just pointing out that is should be ok for people to open up and share what is really important to them in a safe environment..as long as it is kept to sharing. That's all. I'll cut out now.
52 Year Old DBA by profession; amateur pianist by passion.
 
June and Aug 2006:  PSA 4.6.  DRE prostate enlarged.  Second opinion
Sep  2006:  Biopsy results positive one lobe.  Gleason 3+3.
Nov  2006:  RPA performed at Fletcher Allen in Burlington VT.
Nov  2006:  Pathology report: Stage T3a and Gleason 3+4.
Dec  2006:  PSA 0.1
Feb, May  2007:  PSA 0.0 (under 0.1)
Aug, Nov  2007 and Feb 2008:  PSA 0.1
Mar-May  2008:  IMRT Radiation..completed May 1, 2008 
 
Trying my hand at blogging.


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 7/19/2008 6:17 PM (GMT -6)   
I believe it would be prudent of those with deep religious convictions who insist on their right to preach their declarations of faith to all and sundry on a cancer forum, to read mlbsm's and DanManBob's posts carefully.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.1 undetectable

Post Edited (BillyMac) : 7/19/2008 6:21:15 PM (GMT-6)


KC9AOP
Regular Member


Date Joined Jun 2008
Total Posts : 85
   Posted 7/19/2008 11:57 PM (GMT -6)   
Not to belabor anything...

I suggest to use phrases like "please pray/send positive thoughts /etc." so those who are actually offended by any religious reference can see you are trying to accommodate them.
I am age 47 - Father, Paternal Uncle and Maternal Grandfather had/have Prostate Cancer.
Father 74 years old, PSA = 10.6 Gleason = 5 + 5 = 10 (very aggressive) and high involvement in all cores. Seed therapy is the only option. Father died cancer free.
6/4/08 - At physical DRE normal, PSA test returns 4.4
6/20/08 - First Urologist visit. DRE and ultrasound finds nothing conclusive. Doctor says biopsy is the only safe way to go. Prostate volume is 40 grams.
7/11/08 - PSA test returns 4.1. Scheduled the Stereotactic Transperineal Prostate Biopsy for 7/23

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