below zero libido

New Topic Post Reply Printable Version
28 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 7/16/2008 8:52 PM (GMT -6)   
I do not post many topics, but this one i feel as though I should, Now that I am one year into a two year Lupron run, my libido is sub zero, or should I say non existence. It is so low I can't even think about sex, my question to the men and women of the forum is this. Does this ever come back? I mean I realize that at my level of cancer that it is probably unlikely that I will ever be treatment free, but for my wife's sake I feel as though I owe her some affection. Any input would be helpful. I suppose this could be taken funny as well as serious.
 
peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
cancer in 4 of 6 cores
92%
80%
37%
28%
 


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 7/16/2008 9:02 PM (GMT -6)   
Dale - I hear you brother......not sure I have to worry about it ever coming back as I think I'm on Lupron for the duration.
We talked about this early on and agreed life was more important than sex. Doesn't make it any easier.....I feel for her....it's not fair.
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (6-30-08)
PSA: 53.40
Taxotere + Prednisone + Atrasentan
[started June 9th]
Clinical Trial:
http://www.clinicaltrials.gov/ct2/show/NCT00134056?term=prostate+AND+atrasentan&rank=2
Lupron
Personal Blog:
prostatecancerat42.blogspot.com


smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 7/16/2008 9:25 PM (GMT -6)   

Dale,

Brother, I know from where you speak. Anyone who finds humor in your post can only be called callous.  I face at least 2 years of hormone therapy unless somewhere along the road my Lord deems that enough is enough and I am allowed to stop.  I want you to know that it is not just PCa that can cause a man the problems we face.  The affects of medication for high blood pressure can as well.  I have a wife who is 20 years my junior so I believe that we can relate to those here who are in their 40s and 50s and face this delima.  I have no words of wisdom. I have only my prayers for you and anyone who suffers this fate. I hope that somewhere along the road of life I can provide my honey something that might be missing from what many consider a normal married life. There are many way to show your love for someone you love deeply. True love is not a shallow thing but something that is deep inside each of us.  The act of holding her in your arms and letting her know the deepest feelings in your soul can replace much of what you think your missing. Please do not sell your loved one short.  She may have an inter strength that you are not even aware of.  Never stop letting her know that with every fiber of your being that is pysically capable you love her.

Richard


Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
Jan & Feb & Mar all tests clear
MD Anderson = No surgery and No Proton only Hormone and IMRT
Contacted with Loma Linda and UFPTI in FL
Started Treatment at the U of Florida Proton Therapy Institute in April 2008
May 2, 2008 LUPRON & Casodex
IMRT to started  5/27/2008 Will get 42 treatments 25 IMRT and then 17 Proton
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM
 


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 7/16/2008 10:01 PM (GMT -6)   
Dale -- what does your wife think about this? Can you still give her affection without any actual intercourse? And is she happy with that?

If not, can you induce any kind of erections at all? You might find injections help or maybe just Viagra. And there are of course ways you can (try to!) satisfy her without actual penile penetration.

I appreciate that intercourse will seem a chore for you, but perhaps it is a chore you undertake for now because you love your wife. Think of it as payback time for all the chores she has probably undertaken for you. I don't know this for sure, but you might actually enjoy it somewhat once you get started. :-)

Not having had Lupron treatment, my questions/suggestions may be way off the mark or too personal. If so, please ignore them.
Age 63. Other than cancer, in good health; BMI 20
Pre-op: No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores
7 March 2008, RRP, non nerve sparing
Two nights in hospital; catheter and staples out after 7 days
Continent, no pads needed from the get-go
Post Op: Stage pT2 M- N-; clear margins and lymph nodes; Gleason 4+4=8; prostate weight: 37gm
6-week PSA: 0 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/16/2008 11:01 PM (GMT -6)   
I know, Dale, David,
It's hard to talk about yet a reality for a couple 'o forty-six year olds here and a soon to be. Also after a year and a couple months on Lupron, Ruth and I thrive on love and giving to each other. We do miss the physical aspect, and we tried everything, but it is what it is. This is serious as it is also depressing. I can't speak if it ever comes back. It hasn't. And my treatments continue too. What a day yesterday would have been if I knew what today was. 

Peace.

Tony


Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
 

Post Edited (TC-LasVegas) : 7/16/2008 10:05:29 PM (GMT-6)


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 7/17/2008 5:50 AM (GMT -6)   
This has been a wealth of information, and I am amazed at how much love there is in the world. I do love my wife very much and she is handling this remarkably well, we find ourselves doing things together more even though there is no affection. I mean we do hold hands, and hug and smile, and talk more than ever. Tony can probably relate to this, I have tried different things for ED and nothing seems to work, and then one time I did get a phantom erection in the night and it hurt so bad I thought I was going to scream. With the location and intensity of the IMRT, Lupron, and stil on casodex, I think I just have to wait it out. My hope is for us metastatic guys that we are able to spend a year or two with no treatment. Not sure I see it happening this way.
You guys are awesome as are your wives. I hope they all get to read this.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
cancer in 4 of 6 cores
92%
80%
37%
28%
 


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 7/17/2008 6:52 AM (GMT -6)   
Dear Dale,
I can speak from the other side....the wife. Pete and I have been married for many happy years with lots of good sex before Pca. I am ten years younger than he is. He was on lupron for one year five years ago.....Yes, about three months after he stopped taking it, his libido began to come back...He tried all the pills and shot and pump....He was just beginning to get erections and we were very hopeful...Unfortunately, his PSA began to rise, so he had the choice of going back on lupron or have salvage surgery.
Now we both wish he had chosen the lupron. The doctor told him of the side effects of the surgery after he had had the radiation before, but we were thinking that the operation would be better than the lupron. How wrong we were. Dealing with total incontinence and no chance of intercourse now.....But, I love him so much, and we have many years of great history.....He constantly tells me how much he loves me, and that I am pretty, and that if he dies, I should remarry and that I deserve more, and things like that. I cant even tell you how much that means to me. Women dont need to have sex to be happy. No one ever died from lack of sex. I try to be cheerful and find that when I try to be cheerful, I am. I also am an artist. I have a love of painting and of course our children and grandchildren. Women have much more to think about than sex. I am sure that your wife loves you and understands and also is sad for you ...She isnt sad for herself.... Just hold her and give her orgasms without your you know what.. You are still her MAN! Best of luck and we all understand. Di
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
In line for AUS possibly in Sept 08


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/17/2008 10:47 AM (GMT -6)   
Di,
My wife is very understanding. And that means alot. But there's also what I call now the prime factor. In a matter of six months I do so many harsh things to my body that I am not confident that this will ever come back. And science part of this becomes moot because it's now the mental part of being struck with this like I have in my prime. Because of the way we now communicate, I love my wife more than ever. But I wish I would have...

Dang it. I was doing well without depression.

Tony


Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
 

Post Edited (TC-LasVegas) : 7/17/2008 10:12:42 AM (GMT-6)


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 7/17/2008 11:30 AM (GMT -6)   
Tony, I really understand. I know that your wife understands what you are going through even though you can't imagine that she does. You have your youth on your side. I believe you will get back everything in full. I like what you have at the bottom of your posts: STAY POSITIVE! Di
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
In line for AUS possibly in Sept 08


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 7/17/2008 5:50 PM (GMT -6)   
WOW the emotional scars this disease leaves, thanks so far for everyone opening up their minds and souls to this. I to fight the hard truth that I probably will never have sexual intercourse again, and I, like tony nothing seems to create an erection and quiet honestly I have given up. My wife is extremely loving and supportive and for that I am thankful. I to agree with Tony, if only I had of known 20 years ago that this facet of life would be removed, I can assure there are things I would have done better at.
Divo, you mentioned being an artist. Would you please email me, I would like to see some of your work.

peace and love to all
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
cancer in 4 of 6 cores
92%
80%
37%
28%
 


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 7/17/2008 6:36 PM (GMT -6)   
I thought twice about writing this but figuring you can all relate I decided to anyway. After reading all of these posts, I started to cry. I couldn't figure out why it was hitting me so hard. Then Kent said that the day before his surgery and the last time were able to make love, that I cried afterwards. He said I knew in my heart what life was going to have in store. The next day the surgery wasn't until 1:30 and he wanted to make love again before we went. I was scared and wouldn't because I stupidly (word?) thought it would affect the surgery in some way. I wish I had that time back. I don't know why I would deny both of us. Just naive I guess.
As you can see by my signuture that things are trying to come back but it will still be a long road before we can have traditional sex again. I don't care, just sometimes gets to me, I guess. I know so many of you do not even have that and it hurts to know this. I just want you all to know I think of you all the time and wish you all the best in all recovery.

C
Age 51 Kent Cindy 49
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 another round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th. Only took 1 1/2 hours. In recovery 1 hour.  Both nerves were spared.
Home 4-11. Cath out 4-22. Incision looks completly healed on the outside by 4-25.  Incontinence "a thing of the past" as of 5-28
lst PSA 0.04 June 3. YAY!!!
July 08 (3mths post op) Cialis 10 mg every other day. Erections starting to return. Movement during the day on its own(its alive!).


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 7/17/2008 7:05 PM (GMT -6)   
thanks for writing Cindy, and I am glad you are able to share your emotions with us. Love is an amazing thing and the sad truth is when we finally figure it out, sometimes it is to late. Life is full of challenges and this is just one more, I am betting you and Kent will one day be able to resume making love, and just think with the new found love you have for each other, since going thru this it will make that time even better.
I have grown to appreciate all that my wife and family do for me, things that in the past I took for granted, I to hope to see the day that I can oh well I better stop dreaming.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
cancer in 4 of 6 cores
92%
80%
37%
28%
 


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 7/17/2008 7:10 PM (GMT -6)   
Thank you, Dale...here I go again...the waterworks are flowing tonight.
Age 51 Kent Cindy 49
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 another round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th. Only took 1 1/2 hours. In recovery 1 hour.  Both nerves were spared.
Home 4-11. Cath out 4-22. Incision looks completly healed on the outside by 4-25.  Incontinence "a thing of the past" as of 5-28
lst PSA 0.04 June 3. YAY!!!
July 08 (3mths post op) Cialis 10 mg every other day. Erections starting to return. Movement during the day on its own(its alive!).


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/17/2008 7:13 PM (GMT -6)   
Dale,
This is a great thread. I now see this all the time for the late stage guys and I don't think that's well understood when the discussion of prostate cancer comes up. more than half the guys have issues with this at some point. Most can medicate out of it. But once you have surgery, radiation, Casodex and Lupron...The ability to have intercourse is rare. And most don't. But I tell you we are the young guys. With a little 'off topic' help we can always stay positive about it. Ruth and I always make best of the time we have together.

All I can say is Kent is a lucky man...Thanks to our sweet Cindy...I do recall the last time. Quite well. Thank you for the nudge to recall it.

Tony


Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
 


dutchy
Regular Member


Date Joined Jun 2007
Total Posts : 75
   Posted 7/17/2008 7:53 PM (GMT -6)   
Wasn't sure whether I was going to reply, but here I am. I am 17 years younger than my husband and we've been together for almost 4 years. When my husband was diagnosed with advanced PCa, we made a road from Phoenix to Lake Tahoe and got married in Las Vegas. We knew from that he would be on Lupron for an indefinite period and that his libido would be reduced to below zero. In the beginning, viagra worked all right but later on it didn't work that well. The latter was a bigger problem for my husband than for me. Frankly, I have never thought of not having sex as an 'issue'. It is simply the way it is, and I really don't think about it a lot. We're closer than ever, share emotions easily and try to be as 'touchy' as we can. At the end of the day, intimacy is worth much more than sex. Dutchy
Dutchy's husband
Diagnosis: 7/6: PSA 1,946, multiple bone metastases in thoracic, lumbar spine, pelvis, bilateral ribs and proximal left tibia, 2 weeks Casodex (50 mg)

Treatment: 3 monthly Lupron injection (22.5 mg) + Zometa (4 mg IV). Added daily Casodex (50 mg) in September 2007.

25/06: PSA 407
20/08: PSA 3,7
29/09: PSA 0.7
14/10: PSA 0.17
18/12: PSA < 0.003
15/03: PSA <0.003
15/05: PSA <0.003

May 2008: diagnosed with advanced colon cancer


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 7/17/2008 8:21 PM (GMT -6)   
Tony and Dale,
You are both such wonderful people. Thank you for making me feel better when its y'all that are going thru so much.
Cindy
Age 51 Kent Cindy 49
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 another round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th. Only took 1 1/2 hours. In recovery 1 hour.  Both nerves were spared.
Home 4-11. Cath out 4-22. Incision looks completly healed on the outside by 4-25.  Incontinence "a thing of the past" as of 5-28
lst PSA 0.04 June 3. YAY!!!
July 08 (3mths post op) Cialis 10 mg every other day. Erections starting to return. Movement during the day on its own(its alive!).


hopemylove
Regular Member


Date Joined Apr 2008
Total Posts : 65
   Posted 7/17/2008 8:52 PM (GMT -6)   

My husband has been on Lupron since diagnosis and has since been diagnosed with a second cancer that has caused intense pain throughout his body. I have changed his dressings on his nephronomy(sp?) tubes and held his bags as he showers. This past week he spent 8 days in the hospital with complications  (bowel impactions) and with incredible pain. I rubbed his feet and legs for hours to help distract him from the pain. Although it has been a while since we have had sex and we will never have intercourse again, I feel we have become far more intimate in the past 4 months than in the 30 years we have been enjoying sex. I can remember the last time we had sex and I cherish the memory, but I now enjoy every moment I have with him with a deep understanding of passion and love. In many ways, rubbing his feet has expressed my love for him far more than intercourse ever could. I am 13 years younger than Larry and at times he worries about me not getting my fair share (sex) but I hope he understands that the touch of his hand or the sound of his voice are far more important in the grand scheme of things.

I don't want to sound insensitive to those who are battling ED--for I truly feel for you all, but life without sex is far better than no life at all.

GB,

Karen

 


Karen--New York
Husbands Info:
Age of diagnosis--62
2/28/08--PSA 279   DRE--positive/rock hard
Flomax and Casadex started
Biopsy--3/7/08--187cc--Gleason 10--12 of 12 positive--Perineural and LV invasion identified
T4 bone met.--hydroureteronephrosis/right kidney
3/28/08--Lupron Inj. started
4/7/08--Zometa IV started
5/15/08--PSA 12
5/20/08--Tubes placed in kidneys (through back)
5/21/08--diagnosed Neuro Endocrine Prostate carcinoma
5/28-30/08--1st round Chemo
6/18-20/08--2nd round Chemo
7/2/08--blood clot--Coumadin started
7/10/08--Stop chemo--cancer not responding
 
 
 


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 7/17/2008 9:05 PM (GMT -6)   
Listen, all of you, I know exactly how it is....I remember the last time we made love...Jan 12 2001...It is amazing that right after, I thought, "This may be the last time" because Pete went on Lupron two weeks before... But, as sad as it is, (and I have tears now,) I am so happy that Pete is still with me. That is what women think...We just want you guys with us.....! Today he wore the clamp for 3 hours, getting ready for the AUS operation in a month or so...It is painful, and I don't think the doctors really understand when they do all these treatments about the outcomes emotionally for the guys and their families...Pete says that the doctors should have to wear a clamp for a few hours before they recommend them..! Probably true...We had a very good talk tonight, I think because of the posts here. Thank you to VaFan,Dutchy, Tony.LV, Livingadream,Piano, and SmilingOldcoot,FLHW...You guys are in the trenches... xxDi
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
In line for AUS possibly in Sept 08


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 7/17/2008 9:05 PM (GMT -6)   
Listen, all of you, I know exactly how it is....I remember the last time we made love...Jan 12 2001...It is amazing that right after, I thought, "This may be the last time" because Pete went on Lupron two weeks before... But, as sad as it is, (and I have tears now,) I am so happy that Pete is still with me. That is what women think...We just want you guys with us.....! Today he wore the clamp for 3 hours, getting ready for the AUS operation in a month or so...It is painful, and I don't think the doctors really understand when they do all these treatments about the outcomes emotionally for the guys and their families...Pete says that the doctors should have to wear a clamp for a few hours before they recommend them..! Probably true...We had a very good talk tonight, I think because of the posts here. Thank you to VaFan,Dutchy, Tony.LV, Livingadream,Piano, and SmilingOldcoot,FLHW...You guys are in the trenches... xxDi
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
In line for AUS possibly in Sept 08


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/17/2008 9:11 PM (GMT -6)   
Well stated, Karen,
There is someone who is alway worse off at various times in life. I truly do feel your plight. And Ruth and I do still have quality time together. A recent death in my family reminds me that I can make the best of time I should spend with loved ones. My thoughts and more are with you and your husband.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
 


hopemylove
Regular Member


Date Joined Apr 2008
Total Posts : 65
   Posted 7/17/2008 9:14 PM (GMT -6)   

Tony,

I'll take as many "and more" as possible! Thank you.

GB,

Karen eyes


Karen--New York
Husbands Info:
Age of diagnosis--62
2/28/08--PSA 279   DRE--positive/rock hard
Flomax and Casadex started
Biopsy--3/7/08--187cc--Gleason 10--12 of 12 positive--Perineural and LV invasion identified
T4 bone met.--hydroureteronephrosis/right kidney
3/28/08--Lupron Inj. started
4/7/08--Zometa IV started
5/15/08--PSA 12
5/20/08--Tubes placed in kidneys (through back)
5/21/08--diagnosed Neuro Endocrine Prostate carcinoma
5/28-30/08--1st round Chemo
6/18-20/08--2nd round Chemo
7/2/08--blood clot--Coumadin started
7/10/08--Stop chemo--cancer not responding
 
 
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted Yesterday 5:05 AM (GMT -6)   
The out pouring of love in this thread is still melting my heart. There is so much here at HW, and I think it is worth stating that intimacy probably means as much if not more than sex it self. As a man let me say thanks to all the understanding wives. We are blessed and we know it.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
cancer in 4 of 6 cores
92%
80%
37%
28%
 


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted Yesterday 5:59 AM (GMT -6)   
well, after reading these posts, I am so touched by what everyone has gone through. I've always told Jeff that sex is more than intercourse, but he's always had a hard time convincing himself of that. I'm not sure if he would think differently if things would have worked out differently for him. I almost didn't reply because it seems to be a bit trifle, but I just wanted to let you know that you've all touched me today and I will keep you in my thoughts and prayers. kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump
8/07 - 1 yr PSA <0.1
9/1/07 - achieved erection with Viagra - no pump!
3/08 - 18 mo PSA <0.1
switched to Levitra - works much better than Viagra & Cialis - fewer side affects


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted Yesterday 7:57 PM (GMT -6)   
thanks for writing Kat, and I agree with you this thread has touched me in so many ways. I hope folks that have not read it yet do so.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted Today 7:09 PM (GMT -6)   
Such wonderful people here. Hi Kat! Your thoughts and prayers are most welcome.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
 

New Topic Post Reply Printable Version
28 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Friday, July 20, 2018 3:30 PM (GMT -6)
There are a total of 2,983,713 posts in 327,142 threads.
View Active Threads


Who's Online
This forum has 161938 registered members. Please welcome our newest member, PixiPixel.
440 Guest(s), 14 Registered Member(s) are currently online.  Details
DBwithUC, SergeFL, ezhoe, Startech, Gemlin, jeff8787, miljake, Cmburks, JEA8, Garion, sierraDon, FLBeachgal, gerdy, borborygmi