hubby w/ prostate cancer very confused

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bayoub2
Veteran Member


Date Joined Sep 2006
Total Posts : 2861
   Posted 7/23/2008 3:13 PM (GMT -6)   
Pat was diagnosed in 12/06 with an aggressive strain of PC. PSA was 10. He was 55, excellent health, thought it was BPH. Robotic prostatectomy in 1/07, radiation and hormone shots in April thru July. All PSAs since then have been 0.
Right after surgery, doc told me they had removed the mass and some valves and some bladder tissue, but there were still threads coming off the main mass that were so small he could not get or would take out so much it would kill him or something....needless to say I don't remember very well...
In other words, it will come back. So what are the PSA tests testing at this juncture? The oncologist has left the area so we are kind of lost....are there other scans or tests that could help us get a early handle obn this?Also, new development, he is sleeping (no exaggeration) 16-20 hours per day for last 3-4 weeks, altho says there is no pain.
Any advice from you gents (and ladies would be appreciated)-we have a gorgeous 11 yr old daughter and I would love to have her Dad at least at her graduation.
 
Thanks and God bless mags

Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 7/23/2008 3:52 PM (GMT -6)   
Welcome to HW. I wish you and your family didn't have to be here, but you have found an incredible source of education and support. Do you have any information regarding your husband's post op patholgoy report? I'm assuming from what you have written that his cancer was not contained, however, it would be useful to know where the cancer has spread.
The combination of HT and radiation can be brutal on an energy level! My father was exhausted while he was on both, but he wasn't sleeping anywhere near 16-20hrs. I would definitely contact the radiation oncologists office and get a copy of the records and ask to speak with one of the doctors there. Good luck and keep us posted!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


bayoub2
Veteran Member


Date Joined Sep 2006
Total Posts : 2861
   Posted 7/23/2008 4:28 PM (GMT -6)   
thank u for fast response-20 hours a day is NOT just depression-radiation stopped over a year ago so u can see my concern-will call his urologist or radiologist tomorrow-hope the best for your dad-thanks to all mags

BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 7/23/2008 6:21 PM (GMT -6)   
bayoub2,
If there is one thing definite about PCa it is that there are no definites. Despite the surgeons call on margins your husband appears to have very good surgical and follow up radiation results with no detectable PSA in 18 months. That in itself is excellent news. There are times however when the whole journey gets you down and you get fed up with the whole thing. I cannot think of anything related to PCA that would be causing him to sleep so long unless of course he is also undergoing hormone therapy as well at the present time. I hope others may have an answer.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.1 undetectable


don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 7/23/2008 7:22 PM (GMT -6)   

Hi Bayoub2,

I do not know about PCa causing someone to sleep for this length of time. However, I do have some experience with heart problems. ( Quadruple bypass in 1998 at age 48) I would get your husband to a good cardiologist for a thorough check up. Excessive sleeping and fatigue are characteristic of heart and artery issues. I agree with BillyMac that after this length of time the effects of PCa treatment should have subsided. Some of the hormones can effect the heart according to my research although I can not recall which ones. Some internet research for the hormone your husband is taking should offer some guidance. (I am currently taking Lupron and in the middle of radiation treatment) My apologies if this adds to your concerns but it is the only thing that comes to mind.

Good luck and best wishes for your husband's full recovery and graduation attendance.

Regards,

Don


Diagnosed 04/10/08
Age 58
PSA 21.5 (first and only test resulted from follow up visit to emergency room for kidney stone. first time for kidney stone too)
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear
Chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Lupron injection on May 15 and every four months for next two years
Starting IMRT/IGRT on July 7, 2008. 45 treatments scheduled
 
 


smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 7/23/2008 8:11 PM (GMT -6)   

bayoub2

I also was a Gleason Score of 10.  I graduate tomorrow from the U of Florida Proton Therapy Institute after 42 radiations; a combination of Hormone therapy, IMRT and Proton. 

I know that I have lost a lot of energy and my wife is kinda like your honey. She sleep way more than I think is necessary and believe she as your honey is suffering from depression.  I am not a medical pro but even though he has completed radiation he could still be suffering from depression. Please don't rule depression out. THere is nothing wrong as this disease can and does affect us all in many different ways.

Please keep in touch and if I can help please contact me.

Richard aka smilingoldcoot

 


Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
Jan & Feb & Mar all tests clear
MD Anderson = No surgery and No Proton only Hormone and IMRT
Contacted with Loma Linda and UFPTI in FL
Started Treatment at the U of Florida Proton Therapy Institute in April 2008
May 2, 2008 LUPRON & Casodex
IMRT to started  5/27/2008 Will get 42 treatments 25 IMRT and then 17 Proton
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM
 


hawkfan75
Regular Member


Date Joined Jan 2007
Total Posts : 165
   Posted 7/23/2008 9:01 PM (GMT -6)   

Bayoub2

I agree that a cardiologist should be called in.  In addition, hormone therapy can, in some cases, cause extensive fatigue.  While I have been keeping active, I do feel that I don't have as much energy as before.  My brother, who had hormones in conjunction with his PC 10 years ago, had a lot of fatigue with the hormones, and quit them because of it.  I'm starting my second year and want to make it through two years like my doctors feel is necessary.  Perhaps a different hormone would be better...


Age 57 at diagnosis (2006),  PSA 4.7 (up from 3.2 one year previous)
Biopsy November 8, 2006 1 of 10 cores positive 5% LEFT Side Gleason 3+3
Robotic surgery January 19, 2007
Post Surgery Pathology Stage T3a, Gleason 3+4, positive margins and capsular penetration RIGHT Side
Post Surgery PSA:  March 5, 2007:  0.01    5 month PSA  0.08
Adjuvant therapy began June 26, 2007 with Zoladex injection
Radiation began August 23, 2007, ended October 8
First post radiation PSA, December 18, 2007:  0;  March 2008 - still 0;  July 2008 - 0
 
 


bayoub2
Veteran Member


Date Joined Sep 2006
Total Posts : 2861
   Posted 7/24/2008 6:44 AM (GMT -6)   
you are all very kind-we live in Katrinaville and have large gaping holes in the fabric of our health care-soooo many mds left. The heart connection is a good one-primary has set up sleep study and eeg.
He has always been so heart healthy, perfect bp, pulse and cholesterol but Katrina and cancer takes its heavy toll....will be calling for referrals this am-let u know God bless u and your loved ones-as always , I find great camaraderie and comfort here Mags
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