I went back and read your previous posts and I'm not sure how I missed your joining us back in March. And wouldn't you know it, I'm on a self imposed vacation from HW and I look in tonight and see you posting. First off ~ Welcome. This group is the best on the internet for helping each other. You and I are very close everywhere, and we have only a few 3b peers here. I, too, had bilateral SVI, but also I had margins consistent with carcinoma. I am a year ahead of you. I was fortunate to achieve an undetectable PSA, but like you, my doctors did not expect it to hold up. So I immediately went with HT, I declined a 6 round dose of Taxotere, and I debated with my medical oncologist, and my radiation oncologist at the same center on whether radiotherapy was beneficial. Eventually, I went with my RO after he produced the following study: Stanford Study on WPRT Post RP in High Risk Patients
I studied RTOG 94-13 in detail and the arm that still shows the most promise is Whole Pelvic Treatment with HT when performed as in the Stanford study post operatively. Even my medical oncologist said the 6 year numbers do show improvement in biochemical relapse rates. He remains skeptical for the long term rates, but I went with it anyway. I had IMRT with the WPRT method and I am in good shape a year later. My worst side effects are the games that HT plays with my mind. The radiation was a relative breeze. Some have not fared as well. A year and a half later, and three of four options selected, fatigue and depression are present but they both are more from the HT. Aside from, what I beginning to believe is permenant ED, all else functions well. I would not change the treatment modalities I selected. And as long as I can stay undetectable while on HT, I can avoid that talk with my oncologist.
Back to my vacation.
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09.
Years in Remission (3/23/07): 1
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