rob's neck and stomach

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lifeline
Regular Member


Date Joined Aug 2007
Total Posts : 67
   Posted 7/26/2008 5:03 PM (GMT -6)   
Hi everyone: I know it's been awhile. I hope everyone is doing good. Roughly a month ago Rob started vomiting. This doesn't happen all the time, every once in a while. It comes out of the blue then he's okay for a few more days or even a week. It comes on suddenly, only bile, no blood and no stomach pain. This also happens when he gets stressed. Does anyone have any ideas what could cause this. Is it possible that the chemo can do this since he's had 9 rounds of chemo already. We are worried that the cancer has spread to his stomach.  Also, i think that i mentioned in earlier posts that the rad doctor could not do anymore radiation to his upper neck. A few days ago, he started having pain right at the top of his neck. At first it was only once in awhile but yesterday it started and hasn't let up. I guess this means that the tumours have started growing again. Does anyone know of anything else that we could ask the doctors to try? If we don't come up with suggestions they aren't overly helpful. I'm really scared that the tumours will continue to travel to his head. Haven't told him this. If anyone has any ideas we would really appreciate them.  Thanks everyone.  Lifeline 

livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 7/26/2008 8:41 PM (GMT -6)   
Sorry to hear all this, and I wish I could offer some comforting words, but this is one time you better depend on the doctors. This sounds like serious stuff. If you are not getting satisfactory answers from your current doctor do not hesitate to get another opinion. There are some great cancer specialty hospitals around the country. Since there is no signature I am not sure what else to say. Just know we all love you guys and care deeply for your well being.

peace and love
dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 7/26/2008 9:29 PM (GMT -6)   
Dale-

Lifeline is in northern Canada. When she told me where (I can't remember now) I tried searching for cancer centers in the area, but struck out.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - Finally got results from doc. A number of lung nodules have grown, but, more important to him, is the fact that the malignant lesion on my pelvis seems to have flared up and he wants me to start chemo. He said I could wait a few months, but I told him I want to start now. He to get me signed up for a clinical trial in nearby NY.


hopemylove
Regular Member


Date Joined Apr 2008
Total Posts : 65
   Posted 7/26/2008 10:16 PM (GMT -6)   

Lifeline,

What type of chemo has Rob already received? How long ago was last treatment? We were told that nausea and vomiting can occur sometimes 5-7 days after treatment. Is he treating PCa or a secondary cancer? Is he receiving anti-nausea medication with chemo and at home? Have the doctors redone CTs and other tests to verify cancer progression? Does Rob have any pain management plans already in place? Has an MRI of the brain been done?

My husband's cancer is progressing, but the doctor's continue to do tests to gauge progression. They are also very aggressive with pain mangement. Without a signature I am not sure what has been tried so far. Any more info available? I will keep you in my thoughts and prayers. I an sorry I cannot help more at this time.

Karen


Karen--New York
Husbands Info:
Age of diagnosis--62
2/28/08--PSA 279   DRE--positive/rock hard
Flomax and Casadex started
Biopsy--3/7/08--187cc--Gleason 10--12 of 12 positive--Perineural and LV invasion identified
T4 bone met.--hydroureteronephrosis/right kidney
3/28/08--Lupron Inj. started
4/7/08--Zometa IV started
5/15/08--PSA 12
5/20/08--Tubes placed in kidneys (through back)
5/21/08--diagnosed Neuro Endocrine Prostate carcinoma
5/28-30/08--1st round Chemo
6/18-20/08--2nd round Chemo
7/2/08--blood clot--Coumadin started
7/10/08--Stop chemo--cancer not responding
 
 
 


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 7/27/2008 9:47 PM (GMT -6)   
Lifeline,
I am sorry to hear of your Rob's latest trials. I sure wish I could offer helpful advice on the pain front but I have no ideas. I would do a little jumping up and down though with his doctors about pinpointing the exact cause.........the "grin and bear it" attitude by some stoic patients and doctors is not necessary and they sometimes need a little nudge. The squeaking wheel really does get the attention. So far as the vomiting and nausea goes, this may well be an aftermath of the chemo treatment. I could in no way be seen as a new age health nut but I have found through personal experience that consuming a probiotic such as Yakult (provided it's O.K. by the docs) can sometimes settle nausea or digestive tract upsets. I don't know if there is much to the claims touted by health stores of restoring intestinal bio-flora killed by antibiotics etc, but it seems to work. (at least for me). I sure hope things start to improve for you both and you get the answers you deserve.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.1 undetectable


dutchy
Regular Member


Date Joined Jun 2007
Total Posts : 75
   Posted 7/27/2008 10:07 PM (GMT -6)   
Lifeline, I would ask for scans/tests to get clarity about what is happening. Depending on the level of pain your husband is dealing with, I would consider putting a pain management plan in place. Does your hospital have a palliative care team who focus on the quality of your husband's life (pain management, the nausea etc. etc.), or a pain management specialist? Take care, Dutchy
Dutchy's husband
Diagnosis: 7/6: PSA 1,946, multiple bone metastases in thoracic, lumbar spine, pelvis, bilateral ribs and proximal left tibia, 2 weeks Casodex (50 mg)

Treatment: 3 monthly Lupron injection (22.5 mg) + Zometa (4 mg IV). Added daily Casodex (50 mg) in September 2007.

25/06: PSA 407
20/08: PSA 3,7
29/09: PSA 0.7
14/10: PSA 0.17
18/12: PSA < 0.003
15/03: PSA <0.003
15/05: PSA <0.003

May 2008: diagnosed with advanced colon cancer


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 7/28/2008 9:55 AM (GMT -6)   
Just wanted to bump your post back up to the top! Thinking of you both and wishing I had more answers.
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum

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