TFT Redux-Destroy the cancer-Save the prostate

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Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 7/27/2008 12:58 PM (GMT -7)   
I'm reposting the links to my previous thread about Targeted Focal Treatment, where like a breast lumpectomy only the tumor itself is destroyed not the entire gland. The prostate cancer is located by a 3 Dimensional Saturation biopsy (in my case 45 cores taken) then destroyed later by targeted croysurgery.(Ice Balls)
 
Below are video links to the entire PCa special broadcast by a local TV station in The Denver area about whose anchorman also was diagnosed with Pca and his search for treatment. This was broadcast in all four parts in December 2007. I was diagnosed in October 2007, so it couldn't have been any more timely for me. In fact after watching it, was the first time I had felt any hope in my PCa. Later I was able to go through TFT, a treatment I sincerely believe will be a standard procedure soon for those diagnosed with early low risk PCa. Now it's stated that 57% after the 3D biopsy are eligible for it. Earlier when I underwent it the odds were 63%.
 
Each part is anywhere from 4 -7 minutes.
 
part 1
 
part 2 Options for Treatment
 
part 3 Deciding on Treatment
 
part 4 Getting Treatment
 
5/9/2008 Final update
 
I too have had the identical procedure done as Mike Landess had. In fact accoring to my urologist who is the Dr Barqawi in the videos and also the Director of Research was that my and Mike's PCa were very similar even by location. At this point I'm about to undergo my first post procedure PSA check. I'm still about 8-9 months away from the final biopsy. But according to Dr Barqawi all the 30+ who are now a year past have had no PCa turn up in a biopsy? Can it return? Sure it can but I would still have all the traditional treatments available. Hopefully it's gone for good and at worse could return years down the road where it won't be a primary health concern. In the meantime my life has returned to my pre PCa lifestyle except I rarely get up at night to pee anymore. And when I do it's because I drank before I went to bed. There has never been any incontinence and the worse experiences have been a day with a catheter after the 2nd biopsy and 4 days after the TFT. This is a clinical research study I do recommend for those with low risk prostate confined PCa. Although regretably it won't be of any help for now with those with advanced PCa. But for those thousands of men every year with similar diagonosis as mine this is as close to a cure as there is.
 
Below is a link to my Urologists site, to better understand the 3d biopsy and the TFT. Also this is where I initially began communicating with him about my psa numbers and my 12 needle biopsy. Soon afterwards I brought all that in to him with my first appointment. Now months later here I am as I said about to have my first post TFT testing. Looking back to last November when I was weighing surgery or brachytherapy I didn't believe where I am now could be possible. As I tell my  friends here, seriously channel 7 saved my prostate..I wasn't even a regular viewer of theirs... It was all luck and timing.
 
Age: 58
3 of 12 @5%
Psa: 2.3
3+3=6
Size: 34g
T-2-A
 
2/22/08
3D Mapping Saturation Biopsy
1 of 45 @2%
Psa:2.1
3+3=6
28g after taking Avodart
Catheter for 1 day
Good Candidate for TFT
(Targeted Focal Therapy)
Cryosurgery(Ice Balls)
Clinical Research Study
 
4/22/08
TFT performed at University of Colorado
Medical Center at Denver Fitzsimmons Campus
Catheter for 4 days
Slight soreness for 2 weeks but afterward
life returns as normal
 
Quarterly PSA tests to start and
another biopsy next April
 
 

Post Edited (realziggy) : 7/27/2008 2:10:13 PM (GMT-6)


Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 7/27/2008 1:05 PM (GMT -7)   
I've been meaning to repost the above thread for awhile. I was going to wait until the psa results. I go there Wednesday for  a blood test and will likely know the results a few days later. It will supposedly go down just a little at first. Although at TFT it was only 2.1 and never higher than 2.3. I was first discovered by DRE, but I digress. Today in Denver we are at the 15th day with above 90 degrees. So I decided it' was a good time to post this while the ole swamp cooler is going full power. I've been playing golf either in the mountains lately or like tomorrow starting at 6:40 before the heat comes. I feel like I'm back playing at St George Ut again in July...
 
I thank James for allowing me to repost this knowing how unique this clinical research is. I've done it with out any forum commenting too as promised...Ziggy aka Rick  
Diagnosed 10/08/07
Age: 58
3 of 12 @5%
Psa: 2.3
3+3=6
Size: 34g
T-2-A
 
2/22/08
3D Mapping Saturation Biopsy
1 of 45 @2%
Psa:2.1
3+3=6
28g after taking Avodart
Catheter for 1 day
Good Candidate for TFT
(Targeted Focal Therapy)
Cryosurgery(Ice Balls)
Clinical Research Study
 
4/22/08
TFT performed at University of Colorado
Medical Center at Denver Fitzsimmons Campus
Catheter for 4 days
Slight soreness for 2 weeks but afterward
life returns as normal
 
Quarterly PSA tests to start and
another biopsy next April
 
 


Paralleli
Regular Member


Date Joined Jul 2008
Total Posts : 123
   Posted 7/27/2008 2:26 PM (GMT -7)   
Interesting stuff Rick, thanks. Also, best of luck with the PSA test. As you can see in my signature, mine took a hop last time and we’re now waiting to see if it I bounce or what. I’m a bit tired of the heat in Denver myself. We’re still depending on a whole house fan and good insulation. The past few summers are making rethink this approach. I’m not a golfer but I shoot a lot of sporting clays and skeet. It was not fun yesterday! Take care.
53 yrs
PSA 4.8
T1c – Gleason 3 + 3
IMRT 1/07 thru 2/07 (42 treatments)
PSA 6/07 – 0.76
PSA 12/07 – 0.36
PSA 6/08 – 0.72


Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 7/28/2008 1:05 PM (GMT -7)   
Merkelman said...
Interesting stuff Rick, thanks. Also, best of luck with the PSA test. As you can see in my signature, mine took a hop last time and we’re now waiting to see if it I bounce or what. I’m a bit tired of the heat in Denver myself. We’re still depending on a whole house fan and good insulation. The past few summers are making rethink this approach. I’m not a golfer but I shoot a lot of sporting clays and skeet. It was not fun yesterday! Take care.


Run don't walk and get a swamp cooler installed. Last year Xcel energy was giving $200 rebates for having one installed. It uses much less electricity than AC. Check if they're doing it again. I saw it last year at Lowes and told my neighbor about it. They aren't all that much I bought one about 10 years ago for $349 (but had free installation done by a friend). I should've done it years before..
Diagnosed 10/08/07
Age: 58
3 of 12 @5%
Psa: 2.3
3+3=6
Size: 34g
T-2-A
 
2/22/08
3D Mapping Saturation Biopsy
1 of 45 @2%
Psa:2.1
3+3=6
28g after taking Avodart
Catheter for 1 day
Good Candidate for TFT
(Targeted Focal Therapy)
Cryosurgery(Ice Balls)
Clinical Research Study
 
4/22/08
TFT performed at University of Colorado
Medical Center at Denver Fitzsimmons Campus
Catheter for 4 days
Slight soreness for 2 weeks but afterward
life returns as normal
 
Quarterly PSA tests to start and
another biopsy next April
 
 


Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 7/31/2008 9:32 AM (GMT -7)   
I had my quarterly psa and other tests yesterday. I hope to find out this afternoon the results. Along with the psa test. I also had to pee in a urine flow machine(which I wasn't told about before, so I peed right when I arrived at the hospital and had little later to emit). I also had a sonic screening of my bladder to see how much urine remained in it. There was also blood taken for testosterone and another vial for something else. This is all because of the clinical study I'm told. I'll edit this for the results later.


My PSA is down to .32 from 2.1. My doctor calls it excellent results. Don't forget I still have my prostate with only a small section of it having been frozen.
Diagnosed 10/08/07
Age: 58
3 of 12 @5%
Psa: 2.3
3+3=6
Size: 34g
T-2-A
 
2/22/08
3D Mapping Saturation Biopsy
1 of 45 @2%
Psa:2.1
3+3=6
28g after taking Avodart
Catheter for 1 day
Good Candidate for TFT
(Targeted Focal Therapy)
Cryosurgery(Ice Balls)
Clinical Research Study
 
4/22/08
TFT performed at University of Colorado
Medical Center at Denver Fitzsimmons Campus
Catheter for 4 days
Slight soreness for 2 weeks but afterward
life returns as normal
 
Quarterly PSA tests to start and
another biopsy next April
 
 

Post Edited (realziggy) : 7/31/2008 2:36:49 PM (GMT-6)


Paralleli
Regular Member


Date Joined Jul 2008
Total Posts : 123
   Posted 7/31/2008 2:20 PM (GMT -7)   
Good for you Ziggy, that is about an 85% reduction. Congrats!
53 yrs
PSA 4.8
T1c – Gleason 3 + 3
IMRT 1/07 thru 2/07 (42 treatments)
PSA 6/07 – 0.76
PSA 12/07 – 0.36
PSA 6/08 – 0.72


KC9AOP
Regular Member


Date Joined Jun 2008
Total Posts : 85
   Posted 7/31/2008 2:59 PM (GMT -7)   
WHOO WHOO!!!!

Hurray for the low PSA. My biopsy was clear now but with my family history I am on high alert going forward.

I'll remember your post and check it out when/if I need it in the future.

Jim
 
I am age 47 - Father, Paternal Uncle and Maternal Grandfather had/have Prostate Cancer.
Father 74 years old, PSA = 10.6 Gleason = 5 + 5 = 10 (very aggressive) and high involvement in all cores. Seed therapy is the only option. Father died cancer free.
6/4/08 - At physical DRE normal, PSA test returns 4.4
6/20/08 - First Urologist visit. DRE and ultrasound finds nothing conclusive. Doctor says biopsy is the only safe way to go. Prostate volume is 40 grams.
7/11/08 - PSA test returns 4.1. Scheduled the Stereotactic Transperineal Prostate Biopsy for 7/21
7/21/08 - Had the biopsy.  Not so bad but sore on day 2. Back to work tomorrow
7/23/08 - Pathology comes back NO CANCER DETECTED!


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 7/31/2008 4:10 PM (GMT -7)   
Congrats on the low PSA!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 7/31/2008 7:03 PM (GMT -7)   
Good news, good deal......Glad it went the right way for you.,

James C.
Co-Moderator- Prostate Cancer Forum

Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07 ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08 Caverject started/stopped, aching. 2/24/08 .5ml Bimix started-success
7/31/08 ED- Viagra, pump continues, no response- Trimix .10ml x 2 weekly continues
Post Surgery PSA's:  3 mts-0, 6 mts.-0, 9 mts.-0.


Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 8/1/2008 9:54 AM (GMT -7)   
Thanks everybody. For what was expected to be not much of drop we were all surprised at the .32 PSA

As far as I'm concerned I have no doubt this procedure will be common soon. I can't see why it wouldn't. I'm still amazed as to where I am now compared to where I thought I'd be 8 months ago. It was all just timing and geography. That being residing where the clinical study is being conducted.

Jim you had the best news of all. Congrats on the negative biopsy. May they continue.
Diagnosed 10/08/07
Age: 58
3 of 12 @5%
Psa: 2.3
3+3=6
Size: 34g
T-2-A
 
2/22/08
3D Mapping Saturation Biopsy
1 of 45 @2%
Psa:2.1
3+3=6
28g after taking Avodart
Catheter for 1 day
Good Candidate for TFT
(Targeted Focal Therapy)
Cryosurgery(Ice Balls)
Clinical Research Study
 
4/22/08
TFT performed at University of Colorado
Medical Center at Denver Fitzsimmons Campus
Catheter for 4 days
Slight soreness for 2 weeks but afterward
life returns as normal
 
7/30/08
Psa: .32 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 8/1/2008 12:04 PM (GMT -7)   
Just had an evil little thought---- devil If you gotta have an annual followup biopsy, how long before they have biopsied out the whole gland?   tongue
James C.
Co-Moderator- Prostate Cancer Forum

Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07 ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08 Caverject started/stopped, aching. 2/24/08 .5ml Bimix started-success
7/31/08 ED- Viagra, pump continues, no response- Trimix .10ml x 2 weekly continues
Post Surgery PSA's:  3 mts-0, 6 mts.-0, 9 mts.-0.


Jack Z
Regular Member


Date Joined Jul 2008
Total Posts : 43
   Posted 8/1/2008 1:04 PM (GMT -7)   

Very interesting news coverage. Thanks for the information.

Is UC the only center in the US doing this therapy? If not where else.

Thanks

Jack

 

 


Male: 63
PSA: 12.5
Biopsy 7-29-08 12 cores taken. Results due 7-19-08 fingers crossed!
Current situation/symptoms: Back pain, some flow problems, Dr. says prostate is "hard" not soft...no nodes on examination. His opinion based on the hardness of my prostate and 12.5 PSA biopsy will more than likely be positive.


Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 8/1/2008 1:26 PM (GMT -7)   
James C. said...
Just had an evil little thought---- [img]/community/emoticons/devil.gif[/img] If you gotta have an annual followup biopsy, how long before they have biopsied out the whole gland? [img]/community/emoticons/tongue.gif[/img]


I remember thinking after the mapping biopsy that my prostate had shrunk 20% before that with the avodart, and then they took 45 cores how much was left?
Diagnosed 10/08/07
Age: 58
3 of 12 @5%
Psa: 2.3
3+3=6
Size: 34g
T-2-A
 
2/22/08
3D Mapping Saturation Biopsy
1 of 45 @2%
Psa:2.1
3+3=6
28g after taking Avodart
Catheter for 1 day
Good Candidate for TFT
(Targeted Focal Therapy)
Cryosurgery(Ice Balls)
Clinical Research Study
 
4/22/08
TFT performed at University of Colorado
Medical Center at Denver Fitzsimmons Campus
Catheter for 4 days
Slight soreness for 2 weeks but afterward
life returns as normal
 
7/30/08
Psa: .32 
 

Post Edited (realziggy) : 8/1/2008 2:34:43 PM (GMT-6)


Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 8/1/2008 1:33 PM (GMT -7)   
Jack Z said...
Very interesting news coverage. Thanks for the information.

Is UC the only center in the US doing this therapy? If not where else.

Thanks

Jack


Below is from my urologist's site:

Q: Is this procedure done anywhere else in the US?

A: Yes, in few private practices around the US, some urologists attempted to treat one side of the prostate and perform extensive biopsy on the contralateral (other) side of the prostate. Our study is the first trial of targeted focal cryotherapy performed at an academic institution and received approval of the local ethical (IRB) and scientific (PRMC) committees.

In the original thread I had posted on this someone had linked a Urologist in Florida that was doing something similar. Someone posted it was done in Louisiana too, although I wouldn't vouch for either. There was someone from Texas here who was in contact with my Urologist and taking avodart(smaller the gland the less needles needed) before doing the 3D mapping biopsy but I never heard anymore on that. I know from being at the hospital there were guys traveling there from New York and Oklahoma to be part of the study.
Diagnosed 10/08/07
Age: 58
3 of 12 @5%
Psa: 2.3
3+3=6
Size: 34g
T-2-A
 
2/22/08
3D Mapping Saturation Biopsy
1 of 45 @2%
Psa:2.1
3+3=6
28g after taking Avodart
Catheter for 1 day
Good Candidate for TFT
(Targeted Focal Therapy)
Cryosurgery(Ice Balls)
Clinical Research Study
 
4/22/08
TFT performed at University of Colorado
Medical Center at Denver Fitzsimmons Campus
Catheter for 4 days
Slight soreness for 2 weeks but afterward
life returns as normal
 
7/30/08
Psa: .32 
 


hawkfan75
Regular Member


Date Joined Jan 2007
Total Posts : 165
   Posted 8/1/2008 8:35 PM (GMT -7)   

This subject has brought up another point in my mind.  After a positive needle biopsy, how many should have the extensive 3-D mapping that it appears you had prior to the TFT?  I had only one positive core out of 12, and a small amount there as well.  I seriously considered seed therapy or external beam radiation.  After settling on surgery instead, my surgeon and I were very surprised to find the majority of my cancer on the other side and with positive margins there.  I hate to think what I would be going through now with my PSA had I chosen another therapy.  Following the poor pathology report, I was able to use the salvage radiation as a backup, now knowing the extent of my cancer.  Had I had the extensive mapping, would my surgeon have handled things differently, taking more tissue around the prostate on that other side?  Should more of us have the extensive mapping before making a decision on treatment?  That would be a tremendous cost, but..........

A second question - after your TFT therapy, is surgery still in the picture if there is a reoccurance?

Bottom line - the more varied treatments that are used and studied, the better it will be for those who join us later with this disease, and even for us.


Age 57 at diagnosis (2006),  PSA 4.7 (up from 3.2 one year previous)
Biopsy November 8, 2006 1 of 10 cores positive 5% LEFT Side Gleason 3+3
Robotic surgery January 19, 2007
Post Surgery Pathology Stage T3a, Gleason 3+4, positive margins and capsular penetration RIGHT Side
Post Surgery PSA:  March 5, 2007:  0.01    5 month PSA  0.08
Adjuvant therapy began June 26, 2007 with Zoladex injection
Radiation began August 23, 2007, ended October 8
First post radiation PSA, December 18, 2007:  0;  March 2008 - still 0;  July 2008 - 0
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/1/2008 9:40 PM (GMT -7)   
Hawk,
You are in line with my studies.  While I hope for continued success with Ziggy's progress (honestly), there are still challenges ahead to stay diligent with.  I wasn't going to post this but I hope Ziggy takes it for what it's worth.  And he probably already knows this.  Biopsies will become a way of life with his  treatment option.  Keep in mind it is still a study. But this may become a real option. 
 
Ziggy I have done some research.  While we have differences, we are in a boat together.  I am a national advocate and can say that this option is a possibility. For the record, I never blocked a post about this type of treatment.  There is only one center in the US approved for this treatment option.  The University of Colorado headed by Dr. David Crawford.  The researcher is Al Barqawi.  To my understanding there is no other approved researcher in the US.  But this treatment is taken seriosly by Peter Scardino at Sloan Kettering and Tom Peloscik who wrote in the cancer network the following posted by the prostate cancer infolink:
 
 
While this article is critical of this treatment option it contains guidlines for it's future eveluation.
 
Ziggy, I have never criticized your treatment option, and will remain hopeful for you that it is successful.  (I never locked a thread in my life and never could).  I remain an advocate and I invite you to join another network if you are interested to post your story.  Peace. 
 
Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
 


Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 8/1/2008 9:51 PM (GMT -7)   
hawkfan you have to realize with present day mainstream treatments now you really don't need to pinpoint the cancer. That's because be it radical surgery or radiation the end result is the removal or total destruction of the entire prostate. All that's needed before that is a positive 6-12 needle biopsy. The 3D mapping biopsies show a more aggressive cancer now in 43% of those afterward who are then excluded from TFT and recommended a more radical treatment. When I had it done it was at 37%. I don't know how that corresponds to those whose PCa after surgery is upgraded by pathology, but I bet it's fairly close. As far as cost goes I had a 3 week delay in the mapping biopsy because my insurance initially turned it down. My Doctor had that overturned on a peer to peer appeal. I understood why it was initially refused by insurance. It was because that the cost of that biopsy($23,000)and that it would make no difference for my eventual outcome with traditional treatments. I assume when you have the director of research explain TFT they approved it. The total cost now may be less than radical surgery but I'm not sure there. I was kind of leaning toward brachytherapy somewhat. But of course the TFT TV news special totally changed that.

As far as what options are available to me if PCa returns? I have all options, surgery, radiation. Only a portion of my prostate has been frozen by argon. That's nowhere near the total destruction that radiation does. You can see an example on that on part 5 of the area frozen. Hopefully too if it reoccurs it may be a few years and if I have the same low psa I'm guessing I'll likely die of something else before I do of Pca then. But it is still a clinical study after all there are no guarantees, but I go along somewhat with the thought like breast cancer went more from mastectomy to lumpectomy future PCa treatments will do more and more of that.
Diagnosed 10/08/07
Age: 58
3 of 12 @5%
Psa: 2.3
3+3=6
Size: 34g
T-2-A
 
2/22/08
3D Mapping Saturation Biopsy
1 of 45 @2%
Psa:2.1
3+3=6
28g after taking Avodart
Catheter for 1 day
Good Candidate for TFT
(Targeted Focal Therapy)
Cryosurgery(Ice Balls)
Clinical Research Study
 
4/22/08
TFT performed at University of Colorado
Medical Center at Denver Fitzsimmons Campus
Catheter for 4 days
Slight soreness for 2 weeks but afterward
life returns as normal
 
7/30/08
Psa: .32 
 


Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 8/1/2008 10:08 PM (GMT -7)   
TC-LasVegas said...
Hawk,
You are in line with my studies. While I hope for continued success with Ziggy's progress (honestly), there are still challenges ahead to stay diligent with. I wasn't going to post this but I hope Ziggy takes it for what it's worth. And he probably already knows this. Biopsies will become a way of life with his treatment option. Keep in mind it is still a study. But this may become a real option.



Ziggy I have done some research. While we have differences, we are in a boat together. I am a national advocate and can say that this option is a possibility. For the record, I never blocked a post about this type of treatment. There is only one center in the US approved for this treatment option. The University of Colorado headed by Dr. David Crawford. The researcher is Al Barqawi. To my understanding there is no other approved researcher in the US. But this treatment is taken seriosly by Peter Scardino at Sloan Kettering and Tom Peloscik who wrote in the cancer network the following posted by the prostate cancer infolink:



http://prostatecancerinfolink.net/2008/07/24/is-focal-cryotherapy-appropriate-for-localized-disease/



While this article is critical of this treatment option it contains guidlines for it's future eveluation.



Ziggy, I have never criticized your treatment option, and will remain hopeful for you that it is successful. (I never locked a thread in my life and never could). I remain an advocate and I invite you to join another network if you are interested to post your story. Peace.



Tony


Tony I always said this was a clinical study. As far as biopsies becoming a way of life as you said. I don't know where you get that from. Yes I will have regular psa tests. But all those who have had this so far only have the year after biopsy as of now. Could that change? maybe. I've also said and just posted today that the only approved site for this study if The University of Colorado Hospital. Also My Doctor is the researcher you mention Dr Barqawi. Also the head of Urologic Oncology Dr Crawford stopped by to consult on my 3D mapping biopsy when I learned its results. I said I think this is the future but it's just my opinion is all.

So what are you trying to say Tony? That I should take this somewhere else? That this forum isn't the place for information on a clinical PCa study or what? I'm confused by your wording. Are you or are you not threatening to use your influence and lock this thread???
Diagnosed 10/08/07
Age: 58
3 of 12 @5%
Psa: 2.3
3+3=6
Size: 34g
T-2-A
 
2/22/08
3D Mapping Saturation Biopsy
1 of 45 @2%
Psa:2.1
3+3=6
28g after taking Avodart
Catheter for 1 day
Good Candidate for TFT
(Targeted Focal Therapy)
Cryosurgery(Ice Balls)
Clinical Research Study
 
4/22/08
TFT performed at University of Colorado
Medical Center at Denver Fitzsimmons Campus
Catheter for 4 days
Slight soreness for 2 weeks but afterward
life returns as normal
 
7/30/08
Psa: .32 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/1/2008 10:25 PM (GMT -7)   

Easy, Ziggy!
Stay here and post there.   It's that simple.  No criticism intended.  But maybe an olive branch.  I have no influence.  I am just a student of this disease.  I have a much more problematic condition that I hope you will avoid.  Peter Scardino states in his evaluation his position of 3 to 6 month biopsies, but it is only opinion.  But as you say an annual biopsy is scheduled.  Many men won't want that option more than once.  But you may be a pioneer. 

The site I invite you to is not against your option.  They allow ALL walks of life.  I could not be a valid advocate if I intrude on any options.  So I yield.  Join this forum and post in it.  Expect criticism but hold your ground.  You will get support. 

www.prostatecancerinfolink.ning.com

I am a man of peace... that may surprise you!

 

Revised the site!  Sorry!

Tony



Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
 

Post Edited (TC-LasVegas) : 8/1/2008 11:30:24 PM (GMT-6)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/1/2008 10:31 PM (GMT -7)   
Ziggy,
I messed up the website. I have revised it.

Post Edited (TC-LasVegas) : 8/1/2008 11:34:34 PM (GMT-6)


Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 8/2/2008 10:54 AM (GMT -7)   
TC-LasVegas said...
Easy, Ziggy!
Stay here and post there. It's that simple. No criticism intended. But maybe an olive branch. I have no influence. I am just a student of this disease. I have a much more problematic condition that I hope you will avoid. Peter Scardino states in his evaluation his position of 3 to 6 month biopsies, but it is only opinion. But as you say an annual biopsy is scheduled. Many men won't want that option more than once. But you may be a pioneer.

The site I invite you to is not against your option. They allow ALL walks of life. I could not be a valid advocate if I intrude on any options. So I yield. Join this forum and post in it. Expect criticism but hold your ground. You will get support.

www.prostatecancerinfolink.ning.com

I am a man of peace... that may surprise you!



Revised the site! Sorry!

Tony


Ok I'll check out the site later and maybe I will post in it. I know I can only defend a clinical study so much if criticized. It is what it is after all, something new.

I know you have a more serious condition than I do. Just by what I've seen since my diagnosis it appears those who get PCa in their 40s have a much more aggressive and serious disease. I can't think of any exceptions to that but there may well be some I can't recall. There's also a sizable population like I am who get this in their mid 50s and older who have what is considered low level low risk PCa. That's who TFT is for. I'm going over more and more to the opinion that this population later on may look back at these days of being over treated for what they have. With my low psa rate and gleason score and the fact I really had no symptoms ( my PCa was discovered by DRE during a routine physical) I would be one of those. That's why to me TFT was such a god send. Compared to surgery, radiation..etc this was by far less invasive and had the least amount of impact on my lifestyle. Which is one I really enjoy accepting an early retirement 4+ years ago, but I digress.

Sorry for the misunderstanding. But seriously Tony I've seen a few posts by you posted at night that are hard to understand. You must agree because I notice some of those are deleted by you by the next day. That's all I'm going to say on that.
Diagnosed 10/08/07
Age: 58
3 of 12 @5%
Psa: 2.3
3+3=6
Size: 34g
T-2-A
 
2/22/08
3D Mapping Saturation Biopsy
1 of 45 @2%
Psa:2.1
3+3=6
28g after taking Avodart
Catheter for 1 day
Good Candidate for TFT
(Targeted Focal Therapy)
Cryosurgery(Ice Balls)
Clinical Research Study
 
4/22/08
TFT performed at University of Colorado
Medical Center at Denver Fitzsimmons Campus
Catheter for 4 days
Slight soreness for 2 weeks but afterward
life returns as normal
 
7/30/08
Psa: .32 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/2/2008 11:47 AM (GMT -7)   
In one of the web casts I've seen hosted by the National Prostate Cancer Coalition, which I am a member, a discussion was about men in their 40's having a higher degree of advanced, or more aggressive disease. There is no scientific data to support that. The discussion went on to suggest that the reason that the higher occurance of advanced disease is attributed to the prostate cancer guidlines that standardize men being screened starting at age 50 (45 in african americans or those who have family members with Dx). The 50/45 rule makes those under 50 with less aggresive cancers undetected until they start having PSA tests. Thus, the men who have been diagnosed with it in their 40's had symptoms in many cases. Thus they were tested and found with advanced disease (as most symptomatic cases are). If the 50/45 guideline was changed to 40/35, I believe that there would be an equal ratio of advanced versus easrly stage disease in ages 40 and above.

This site allows us the ability to post, edit posts, and delete posts. After posting over 1300 times here I have made, I like to think, great posts, and regretably, bad posts as in one that I made a couple weeks back. I have also retracted posts because others don't share my views on disease, religion, or I simply rethought about it and changed my view. As some feel that women shouldn't be moderators here, I too face those that would like to censor use of terms like "God Bless you" and "I will pray for you" or any mention of religous theology. I don't agree that anyone was ever hurt by it, and it is a part of my coping with advanced cancer. But I stopped it because the tension was degrading this wonderful site.

I think we all have more important things to worry about. Thank you for posting peacefully.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
 


Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 8/2/2008 12:39 PM (GMT -7)   
You make a very valid point about those 40-50 with PCa. Like I said I just went by my observations and yes when I was in my 40s I would've never thought about asking for a psa or a dre.

I was raised catholic, but I'm an agnostic now. That said I never make a big deal about a god bless you or a I'll pray for you. The same way I don't get upset about people wishing me a merry christmas. I thought Gordy's don't pray for me thread turned into a big over reaction about nothing and the opposite of what he wanted. Yes your nonbelievers statement of them being more gullible about supplements was insulting and totally wrong. In fact we seem to pretty much agree about supplements. I can understand your religiosity is part of your coping with advanced PCa. There's nothing wrong with that, whatever works for an individual is fine by me. In any kind of forum bringing up religion and/or politics will always divide them. Religious types really can 't seem after awhile to not be able to proselytize or look down on non believers. That's it's nature and also the foundation of a lot of wars through history. I'm sure it will come up again at some time, it always does.
Diagnosed 10/08/07
Age: 58
3 of 12 @5%
Psa: 2.3
3+3=6
Size: 34g
T-2-A
 
2/22/08
3D Mapping Saturation Biopsy
1 of 45 @2%
Psa:2.1
3+3=6
28g after taking Avodart
Catheter for 1 day
Good Candidate for TFT
(Targeted Focal Therapy)
Cryosurgery(Ice Balls)
Clinical Research Study
 
4/22/08
TFT performed at University of Colorado
Medical Center at Denver Fitzsimmons Campus
Catheter for 4 days
Slight soreness for 2 weeks but afterward
life returns as normal
 
7/30/08
Psa: .32 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 8/2/2008 12:54 PM (GMT -7)   
Gentlemen, we seem to be wandering off the road here and into an area that has been hashed and rehashed, with the resulting big blowups, hurt feelings and inabilitity for one side to change the other sides views.  How about we get back onto the safe middle ground of discussing treatments and personal experiences with such and out of that explosive area that seems to be opening up. OK? 

James C.
Co-Moderator- Prostate Cancer Forum

Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07 ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08 Caverject started/stopped, aching. 2/24/08 .5ml Bimix started-success
7/31/08 ED- Viagra, pump continues, no response- Trimix .10ml x 2 weekly continues
Post Surgery PSA's:  3 mts-0, 6 mts.-0, 9 mts.-0.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/2/2008 12:58 PM (GMT -7)   
I not use the term gullible and I did not mean what I typed in the context it was taken. In my sincerest honesty I just simply did not reread my post before I posted it. It goes to show that I am just as human as the rest of us. It reminds me that I have to be more careful. I lost alot of respect for that and I deserved to. But I will keep my head down and continue to fight this disease, not just for my self but as an advocate for all of us.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
 

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